Browse Items · Pediatric Palliative Care Library

Is it early enough? The authentic meaning of the pediatric palliative approach between early and late referral in pediatric oncology: a case study

The literature widely supports the benefits of early integration of palliative care into pediatric oncological care; however, many barriers to its successful integration remain. Integrating palliative care as early as possible in the oncology pathway…

Tags: 2024, 2025 SE1 - Oncology, Adolescent, Adult, Advance Care Planning, Affinita MC, anxiety, Article, Artificial Ventilation, Avagnina I, Benini F, Brain Metastasis, Child, Childhood Cancer, Clinical Article, cognitive behavioral therapy, colonoscopy, community hospital, computed tomographic angiography, doctor patient relationship, Dysphagia, Dyspnea, facial nerve paralysis, Female, Follow Up, Frontiers in Oncology, Headache, Health Promotion, hearing impairment, hematothorax, hemoptysis, Hospitalization, Human, Intensive Care Unit, Life Expectancy, Morphine, nerve paralysis, neurofibromatosis type 1, nuclear magnetic resonance imaging, Oncology, oncology ward, Palliative Therapy, Patient Referral, Quality Of Life, Questionnaire, refugee, Rhabdomyosarcoma, Santini A, Terminal Care, thorax pain, tracheobronchial toilet, Verbal Communication, visual field, Zanin A

Health-illness transition processes in children with complex chronic conditions and their parents: a scoping review

Background: The prevalence of complex chronic conditions (CCC), which cause serious limitations and require specialized care, is increasing. The diagnosis of a CCC is a health-illness transition for children and their parents, representing a…

Synthesis of health promotion concepts in children's palliative care

BACKGROUND: Palliative care improves the health of children with a life-limiting condition and appears to draw implicitly on concepts shared with a model of health promotion. However, to date there has been no scrutiny about how this relationship may…

Tags: 2021, Bennett V, Best fit framework, Child, Children's Palliative Care, February 2022 List, Hain R, Health Policy, Health Promotion, International Journal of Palliative Nursing, Ireland, Noyes J, Nursing, Palliative Care, Pritchard AW, Quality Of Life

Effectiveness of a Family-Caregiver Training Program in Home-Based Pediatric Palliative Care

Background: Pediatric palliative cares involve the whole family, along with the interdisciplinary pediatric palliative care (PPC) team. The commitment of the PPC team and the engagement of the family at different levels can play a key role in…

Tags: 2021, April 2021 List, Barceló Escario M, Children (Basel), Chocarro González L, de la Torre-Montero JC, Education, Health Promotion, Martino Alba R, Palliative Care, Parents, Pediatrics, Rigal Andrés M

Case study: the Interact Home Telehealth Project

Two home telehealth technologies (the Intel Health Guide and the Apple iPad) were trialled by four clinical services of the Hunter New England Local Health District. The iPad was selected by the Paediatric Palliative Care Service, the Stroke Service…

Bereaved Parents' Perspectives on Informal Social Support: “What Worked for You?”

This study identified and explored the informal social supports that bereaved parents found helpful following the death of their primary school-aged child. Ten participants were interviewed using a semistructured interview schedule. Data were…

Tags: 2013, Backlog, Gear R, Health Promotion, innovation, Journal Article, Journal of Loss and Trauma, Loss, parental bereavement, Social Support

Photovoice: a review of the literature in health and public health

Although a growing number of projects have been implemented using the community-based participatory research method known as photovoice, no known systematic review of the literature on this approach has been conducted to date. This review draws on…

Tags: 2010, Backlog, Catalani C, Community Health Services, Community-Based Participatory Research, Consumer Participation, Health Education, Health Education & Behavior, Health Policy, Health Promotion, Humans, Journal Article, Minkler M, Outcome And Process Assessment (health Care), Photography, Public Health

Transition: a conceptual analysis in the context of siblings of children with cancer

Transition has been described by many disciplines. However, the concept of transition has yet to be applied to the sibling experience of childhood cancer. Understanding the transitions that siblings encounter is important because it will offer nurses…

Experimental evidence for stages of health behavior change: the precaution adoption process model applied to home radon testing

Hypotheses generated by the precaution adoption process model, a stage model of health behavior, were tested in the context of home radon testing. The specific idea tested was that the barriers impeding progress toward protective action change from…

Transition from paediatric to adult care for persons with cystic fibrosis: patient and parent perspectives

OBJECTIVES: To gauge the perspectives of adolescents and adults with cystic fibrosis (CF) and their parents regarding the transition from paediatric to adult-oriented health care. METHODS: Cross-sectional survey using an anonymous, semi-structured…

Health-related, help-seeking behaviors in female Mexican-American adolescents

PURPOSE: To explore and describe the health-related, help-seeking behaviors of young female Mexican-American adolescents. DESIGN: Qualitative exploratory-descriptive design using focus groups. SETTING: Community recreation centers. PARTICIPANTS: 18…

Tags: 1997, Adolescent, Adolescent Health Services, Backlog, Child, Female, Focus Groups, Health Behavior, Health Promotion, Health Services Needs And Demand, Hispanic Americans, Humans, Journal Article, Journal Of The Society Of Pediatric Nurses, Mexico/ethnology, Pregnancy, Rew L, Sex Education, United States

Assessing mothers' attitudes about the physician's role in child health promotion

OBJECTIVE: This study assessed maternal attitudes about the physician's role in child health promotion. METHODS: Home interviews were conducted with 200 Massachusetts mothers (with one child age 2 to 3 years) enrolled in a health maintenance…

Bereaved Parents' Health Status During the First 6 Months After Their Child's Death

PURPOSE: To examine bereaved parents' physical, mental, and social health during the first 6 months after their child's (

Tags: 2017, American Journal Of Hospice And Palliative Care, Bereaved Parents, Bereavement, bereavement programs, Brandon D, Child, child's death, Dias N, February 2018 List, Haase JE, health outcomes, Health Promotion, Health Status, Only Child, palliative and end-of-life, parental bereavement, pediatric bereavement care, Tanabe P

Palliative Care After Neonatal Intensive Care: Contributions Of Leonetti Law And Remaining Challenges

Nurses' Experiences Of Spiritual Communication With Seriously Iii Children.

The goal of this study was to explore nurse experiences in communication with children about spiritual topics in order to develop training in this area.
BACKGROUND:
Although spiritual care is essential in pediatric palliative care, few providers…

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