Browse Items · Pediatric Palliative Care Library

Palliative Care Family Support in Neonatology

In this chapter we will describe the evidence for palliative care family support beginning in the prenatal period and extending to acute and chronic neonatal intensive care unit (NICU) care and finally to bereavement. Neonatal providers have the…

Impact of End-of-Life Circumstances on the Adjustment of Bereaved Siblings of Children Who Died from Cancer

The aim of this study was to examine the impact of end-of-life (EoL) circumstances on grief and internalizing symptoms among bereaved siblings. Bereaved families (N = 88) were recruited from three sites 3-12 months (M = 11.57, SD = 3.48) after their…

Black, White, and Hispanic Children's Health and Function 2-13 Months After Sibling Intensive Care Unit Death

OBJECTIVE: To describe children's anxiety, depression, behaviors, and school performance at 2-13 months after sibling neonatal/pediatric intensive care unit (NICU/PICU) or emergency department (ED) death and compare these outcomes by child age, sex,…

Tags: 2019, Brooten D, Cantwell G P, child bereavement, Child Death, Del-Moral T, Journal of Pediatrics, June 2019 List, sibling bereavement, Sibling death, Totapally B, Yoo C, Youngblut J M

Surviving Siblings' Illnesses, Treatments/Health Services over 13 Months after a Sibling's Death

Two million children experience sibling death annually and have problems that require clinical intervention although few receive such help. Effects on surviving siblings' mental health has been well documented, however their physical health has not.…

Tags: 2018, April 2019 List, Brooten DA, Caicedo CL, Child Death, Children's illnesses, Children's treatments/health services, Journal of child and family studies, Page T F, Roche RM, sibling bereavement, Sibling death, they have no conflict of interest., Youngblut J M

Grief Related to the Experience of Being the Sibling of a Child With Cancer

BACKGROUND:: Few studies have described the well siblings' experience of grief when a brother or sister is treated for cancer. Knowing how sibling grief is expressed will guide clinician and family efforts to provide appropriate support. OBJECTIVE::…

Tags: 2013, Backlog, Cancer Nursing, Enskär K, Hellström Anna-Lena, Jenholt NM, Journal Article, sibling bereavement

Impact of social support on bereaved siblings' anxiety: a nationwide follow-up

Purpose:To assess adolescent and young adult siblings' perception of social support prior to and following the loss of their brother or sister to cancer, 2 to 9 years earlier, and their anxiety at follow-up. Method: In 2009, 174 (73%) bereaved…

Tags: 2013, Backlog, Eilegård A, Eilertsen Mary-Elizabeth B, Journal Article, Journal Of Pediatric Oncology Nursing, Kreicbergs U, Nyberg T, sibling bereavement, Steineck G

Parents’ Report of Child’s Response to Sibling’s Death in a Neonatal or Pediatric Intensive Care Unit

Background Research on sibling death in a pediatric/neonatal intensive care unit is limited, despite many qualitative differences from deaths at home or in hospitals’ general care areas and has overlooked cultural differences. Objectives To describe…

Tags: 2013, American Journal of Critical Care, Backlog, Brooten D, Journal Article, sibling bereavement, Youngblut JM

Loss in the NICU Sibling Matters

Siblings of patients that have lengthy stays in the neonatal intensive care unit (NICU) may be affected emotionally by their brother’s or sister’s condition, separation, or even death. In an effort to assess the effect of perinatal loss on siblings a…

Tags: 2013, American Journal of Hospice & Palliative Medicine, Backlog, Bereavement, Carter BS, Family, Intensive Care, Journal Article, Loss, Neonatal, Robinson E, Sandler CL, sibling bereavement, Siblings

Parental perceptions of siblings' grieving after a childhood cancer death: a longitudinal study.

We investigated longitudinally parental perceptions of siblings' bereavement after childhood cancer death. Parents were interviewed 6 months (n = 25) and 18 months (n = 75) post-death. Data are analyzed combined and over time. The following themes…

Tags: 2013, Alam R, Backlog, Barrera M, D'Agostino NM, Death studies, Journal Article, Nicholas DB, Schneiderman G, sibling bereavement, T

Psychological health in siblings who lost a brother or sister to cancer 2 to 9 years earlier: Psychological health in siblings who lost a brother or sister to cancer

Sibling death and death fear in relation to depressive symptomatology in older adults

Previously overlooked factors in elders' depressive symptomatology were examined, including death fear, sibling death, and sibling closeness. Participants were 150 elders (61 men, 89 women) aged 65-97 years with at least one sibling. Measures were…

Siblings’ farewell to a stillborn sister or brother and parents’ support to their older children: a questionnaire study from the parents’ perspective

This study aims to capture parental descriptions of how siblings take leave of and mourn a stillborn brother or sister and how their parents support them. Data were collected by questionnaires from 16 parents of siblings to a stillborn child one year…

Tags: 2010, Avelin P, Backlog, Bereavement, Erlandsson K, Grief, Journal Article, Journal Of Child Health Care, mourning, Rådestad I, Säflund K, Sibling, sibling bereavement, Stillbirth, Wredling R

Bereaved Parents’ and Siblings’ Reports of Legacies Created by Children With Cancer

This qualitative study explored bereaved parents’ and siblings’ reports of legacies created by children with advanced cancer. Participants included 40 families of children who died from cancer, with 36 mothers, 27 fathers, and 40 siblings (ages 8-18…

Candles in the snow: ritual and memory for siblings of infants who died in the intensive care nursery.

CONCLUSIONS: Although death in the NICU often has a brief course, consequences for survivor siblings can be life-long. Siblings born both before and after the death of an infant may be at risk and in need of psychological support. Family rituals and…

Tags: 2009, AIM, Backlog, Edwards WH, Fanos JH, IM, Journal Article, Journal of Pediatrics, Little GA, sibling bereavement

Siblings and child friends in death-related literature for children.

This article explores ways in which siblings and child friends are represented as being involved in death and loss experiences. These representations are taken from 51 selected examples of death-related literature designed to be read by or with…

Tags: 2009, Backlog, Corr CA, IM, Journal Article, Journal Of Death, sibling bereavement

A meta-analysis of interventions for bereaved children and adolescents

The main objective of this review was to provide a quantitative and methodologically sound evaluation of existing treatments for bereavement and grief reactions in children and adolescents. Two meta-analyses were conducted: 1 on controlled studies…

Children's reactions to parental and sibling death

A significant population of children will experience bereavement because of the death of a parent or a sibling. This grief is different from the bereavement seen in adults and needs to be understood in a developmental context. Cognitive and emotional…

Tags: 2006, Attitude To Death, Backlog, Bereavement, Child, Cognition, Culture, Current Psychiatry Reports, Humans, Journal Article, Parents, Psychotherapy, Razdan A, Risk Factors, sibling bereavement, Siblings, Sood AB, Weller EB, Weller R

Transition: a conceptual analysis in the context of siblings of children with cancer

Transition has been described by many disciplines. However, the concept of transition has yet to be applied to the sibling experience of childhood cancer. Understanding the transitions that siblings encounter is important because it will offer nurses…

Brief report: family-based group intervention for young siblings of children with chronic illness and developmental disability

OBJECTIVE: To evaluate the impact of a family-based group intervention for young siblings of children with chronic illness and developmental disability (CI/DD). METHODS: Forty-three healthy siblings (ages 4-7 years) of children with CI/DD and their…

Evidence for healing interventions with perinatal bereavement

The purpose of this article is to explore the concept of perinatal grief and evidence-based healing interventions for it. The loss of a pregnancy or death of an infant causes profound grief, yet society has long minimized or ignored this grief, which…

One month after diagnosis: quality of life, coping and previous functioning in siblings of children with cancer

BACKGROUND: The aim of the present study is to describe the quality of life (QoL) of siblings of children with cancer and to predict it according to their health before the diagnosis of cancer in the ill child and their ways of coping with the…

Sibling involvement at the end of life

When a child is diagnosed with a life-threatening illness, such as cancer, there is much disruption to the family. It is a struggle for parents to divide their time between the hospital, home, and other healthy siblings. Nurses strive to provide…

Tags: 2005, Attitude To Death, Attitude to DeathBereavement Child Emotions HumansNeoplasms/nursing/psychology Oncologic NursingSibling Relations Siblings/psychology Terminal Care/psychology, Backlog, Bereavement, Child, Emotions, Giovanola J, Humans, Journal Article, Journal Of Pediatric Oncology Nursing, Neoplasms, Oncology Nursing, PedPal Lit, sibling bereavement, Sibling Relations, Siblings, Terminal Care

Siblings of pediatric cancer patients: the quantitative and qualitative nature of quality of life

This study used both quantitative and qualitative methodologies to assess the pediatric health-related quality of life (HRQOL) in siblings (n = 77) of cancer patients attending summer camp. On quantitative measures (Pediatric Quality of Life…

Bereavement support for families following the death of a child from cancer: experience of bereaved parents

This study explored the experiences and needs of nine parents who had received hospital-based bereavement support following the death of their child from cancer, in Western Australia. Six prominent themes emerged from thematic data analysis: personal…

Siblings' needs and issues when a brother or sister dies of cancer.

To explore siblings'needs and issues when a brother or sister dies of cancer, interviews were conducted with 10 surviving children and young adults. The siblings expressed dissatisfaction with the information they had received and said that they had…

Sibling bereavement and continuing bonds.

Historically, from a Freudian and medical model perspective, emotional disengagement from the deceased was seen as essential to the successful adaptation of bereavement. A major shift in the bereavement literature has occurred and it is now generally…

Quality of life and psychological adaptation in siblings of paediatric cancer patients, 2 years after diagnosis

Several studies have been conducted on sibling psychosocial adaptation to cancer in a brother or sister, but little is known on how the long-term adaptation of siblings to the illness develops. The concept quality of life has primarily been applied…

Facilitating children's grief

A program of education and support is essential for children and their parent or adult caregivers when the children have experienced the death of a significant person. Children need guidance on how to deal with their profound feelings of grief. The…

Tags: 2003, Adolescent, Adult, Backlog, Child, Child Psychology, Communication, Counseling, Death, Grief, Humans, Interpersonal Relations, Journal Article, Riely M, School Nursing, Self-Help Groups, sibling bereavement, The Journal Of School Nursing: The Official Publication Of The National Association Of School Nurses

Effects of sibling death on teenagers

This study reports the effects of sibling death on 33 adolescents from white, middle- to upper-middle income families. Contact was made through mutual support groups for bereaved parents. A focused interview was used to gather data on bereavement…

The Response of Children to the Dying and Death of a Sibling

1989-01

Tags: 1989, Backlog, Birenbaum LK, Journal Article, McCown DE, Omega, Phillips DS, Robinson MA, sibling bereavement, Stewart BJ

Adolescent Reactions to Sibling Death: Perceptions of Mothers, Fathers, and Teenagers

1990-03

Tags: 1990, Backlog, Balk D, Hogan NS, Journal Article, Nursing Research, sibling bereavement

The Effects of Group Therapy on Siblings of Pediatric Oncology Patients

The stress and psychological difficulties of siblings of children with cancer is well documented. Siblings must cope with a myriad of emotions, isolation from the family, and many changes in daily life. Therefore, a need exists to determine the…

Tags: 1990, Backlog, Ettinger RS, Ettinger S, Goon-Johnson K, Heiney SP, Journal Article, Journal Of Pediatric Oncology Nursing, sibling bereavement

Shared life space and sibling bereavement responses.

1988-12

Tags: 1988, Backlog, Bereavement, Cancer Nursing, Davies B, IM, Journal Article, N, sibling bereavement

The effects of time on the adolescent sibling bereavement process.

1988-08

Tags: 1988, Backlog, Hogan NS, Journal Article, N, Paediatric Nursing, sibling bereavement

Sibling grief: a case report

The intensity of sibling grief and the significance of sibling mourning are described in research studies. Yet, nurses caring for dying children may be unaware of these findings and may not offer adequate support to assist siblings in working through…

Tags: 1991, Adaptation, Archives Of Psychiatric Nursing, Art, Attitude To Death, Backlog, Bereavement, Child, Family Therapy, Grief, Heiney SP, Humans, Journal Article, Male, Psychological, sibling bereavement, Sibling Relations

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