Effectiveness of a Family-Caregiver Training Program in Home-Based Pediatric Palliative Care

Title

Effectiveness of a Family-Caregiver Training Program in Home-Based Pediatric Palliative Care

Creator

Chocarro González L; Rigal Andrés M; de la Torre-Montero JC; Barceló Escario M; Martino Alba R

Publisher

Children (Basel)

Date

2021

Subject

pediatrics; palliative care; education; health promotion; parents

Description

Background: Pediatric palliative cares involve the whole family, along with the interdisciplinary pediatric palliative care (PPC) team. The commitment of the PPC team and the engagement of the family at different levels can play a key role in advancing a better quality of life in children and families. Method: A descriptive pre-post educational intervention study was carried out. The creation of a training program (with the term "school" used to denote this effort) strives to prepare caretakers to master the skills as well as provide support for the care of children with serious conditions requiring palliative through home-based initiatives. The analysis includes aspects of learning and satisfaction with the activity in a final sample of 14 families who had one child enrolled into a home-based palliative care program. Results: After the educational intervention in our school, the mean score of the theoretical evaluation was 9.14 points (SD 0.96), showing improvement with respect to the initial assessment, (mean diff. of +0.98 points). Although the analysis of all conceptual areas demonstrates a trend towards a positive impact of the intervention, feeding-related instruction saw the highest level of improvement, with a mean difference of +1.43 points. All enrolled parents expressed having a very positive experience during their participation in the educational program. Conclusions: The educational program showed a positive trend in the acquisition of knowledge and skills, resulting in a positive impact on the self-perception of their abilities. This psycho-educational space allowed them to share their experience of daily care for a child with complex needs with other families, showing them that they were not alone and that they could help each other.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

April 2021 List

Collection

Citation

Chocarro González L; Rigal Andrés M; de la Torre-Montero JC; Barceló Escario M; Martino Alba R, “Effectiveness of a Family-Caregiver Training Program in Home-Based Pediatric Palliative Care,” Pediatric Palliative Care Library, accessed August 2, 2021, https://pedpalascnetlibrary.omeka.net/items/show/17503.

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