Focus group interview with parents of children with medically complex needs: an intimate look at their perceptions and feelings.
Title
Focus group interview with parents of children with medically complex needs: an intimate look at their perceptions and feelings.
Creator
Diehl SF; Moffitt KA; Wade SM
Identifier
Publisher
Children's Health Care
Date
1991
Subject
Female; Humans; Male; Health Services Needs and Demand; Longitudinal Studies; Florida; Respite Care; Family Health; Counseling; Self-Help Groups; Interviews; Parents/psychology; Home Nursing/psychology; Patient Care Planning/standards
Description
The purpose of this paper was to identify the needs of parents of children with medically complex needs from their own perception. In order to provide in-depth information, the focus group interview technique was used. Several strong recurrent themes were identified. The most persistent need was for a general organization or framework with which the care providers could operate. Along these same lines, the fragmentation of training, needs and services was consistently stated. A general lack of information in terms of home care and how to plan for the future was identified. Support groups were universally lauded for the invaluable services provided to the care parents.
1991
Rights
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
Journal Article
Citation List Month
Backlog
URL Address
Citation
Diehl SF; Moffitt KA; Wade SM, “Focus group interview with parents of children with medically complex needs: an intimate look at their perceptions and feelings.,” Pediatric Palliative Care Library, accessed November 29, 2023, https://pedpalascnetlibrary.omeka.net/items/show/11805.