Helen House--a hospice for children: analysis of the first year


Helen House--a hospice for children: analysis of the first year


Burne SR; Dominica F; Baum JD


British Medical Journal (clinical Research Ed.)




Child; Female; Humans; Male; England; Quality of Health Care; Family Health; Patient Admission; adolescent; Terminal Care/standards; Canuck Place 15 year chart review; Cerebellar Neoplasms/therapy; Hospices/organization & administration; Medulloblastoma/therapy; Neuronal Ceroid-Lipofuscinoses/therapy


Helen House, a hospice for children, opened in Oxford in November 1982. From then until December 1983 care was provided for 52 children with terminal illness, progressive and incurable illness, and very severe handicap. The children came from a wide area of the United Kingdom, and eight died during the year. The style of care provided in Helen House is based on that of the families in their own homes, with a minimum of rules, regulations, and routines. Terminal care follows the principles developed by hospices experienced in the care of adults. Despite the great sadness and distress associated with every child admitted, Helen House is neither a sombre nor a depressing place.


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Burne SR; Dominica F; Baum JD, “Helen House--a hospice for children: analysis of the first year,” Pediatric Palliative Care Library, accessed September 25, 2023, https://pedpalascnetlibrary.omeka.net/items/show/12447.