Browse Items · Pediatric Palliative Care Library

Role of palliative care in fetal neurological consultations: Guiding through uncertainty and hope

Fetal neurology is a rapidly evolving and expanding field. Discussions about diagnosis, prognosis, treatment options, and goals of care often begin in the antenatal period. However, there are inherent challenges to fetal counseling of neurological…

Home values and experiences navigation track (HomeVENT): Supporting decisions about pediatric home ventilation

Objective: To pilot feasibility and acceptability of HomeVENT, a systematic approach to family-clinician decision-making about pediatric home ventilation. Methods: Parents and clinicians of children facing home ventilation decisions were enrolled at…

Maternal-fetal surgery as part of pediatric palliative care

Maternal-fetal surgical interventions have become a more common part of prenatal care. This third option, beside termination or post-natal interventions, complicates prenatal decision-making: while interventions may be lifesaving, survivors may face…

Social Workers in Pediatric Intensive Care Units: A Physician Perspective

Objective: The role of social workers, who are beginning to be integrated into the entire health system, is now becoming more and more understood. In our study, we aimed to discuss the duties of social workers at PICU, the results of their work in…

Addressing bias and disparities in periviable counseling and care

Addressing bias and disparities in counseling and care requires that we contend with dehumanizing attitudes, stereotypes, and beliefs that our society and profession holds towards people of color, broadly, and Black birthing people in particular. It…

Tags: 2022, August 2022 List, Bias, Child, Counseling, Female, Humans, Infant, Newborn, Perinatal Care, Pregnancy, Schmidt A, Seminars in Perinatology, Tucker Edmonds B, Walker VP

Oral and dental considerations in pediatric cancers

Oral health care is an integral component of interprofessional collaborative care for children and adolescents diagnosed with cancer. The current review highlights the phases of cancer therapy when dental interventions and palliative care are…

Emergencies in Pediatric Palliative Care: A Survey of Ambulance Officers to Understand the Interface between Families and Ambulance Services

Background: Pediatric palliative care occurs across contexts through the child's illness trajectory, including within the child or young person's community. Interactions with the ambulance service may occur with a child's deterioration, crisis, or…

Situational analysis and needs assessment regarding the availability and extent of pediatric palliative care services in the philippines

Background: Around 200,000 pediatric clients are diagnosed with cancer each year globally. Majority (84%) of cancer cases are found in developing countries with 20% average survival rate (Ferlay et al, 2012). Two-thirds of pediatric oncology clients…

Psychological support in end-of-life decision-making in neonatal intensive care units: Full population survey among neonatologists and neonatal nurses

Background: Moral distress and burnout related to end-of-life decisions in neonates is common in neonatologists and nurses working in neonatal intensive care units. Attention to their emotional burden and psychological support in research is lacking.…

Impact of specialized pediatric palliative care programs on communication and decision-making

OBJECTIVE: To summarize and analyze the impact of specialized pediatric palliative care (SPPC) programs on communication and decision-making for children with life-threatening conditions. METHODS: Our search strategy covered MEDLINE, PsycINFO,…

Tags: 2019, April 2019 List, Children, Communication, Counseling, Decision-making, Medeiros C, Palliative Care, Patient Education & Counseling, Pediatrics, Specialized pediatric palliative care program, Streuli JC, Trenholm M, Widger K, Zuniga-Villanueva G

An interdisciplinary care model to establishing palliative care for children and adolescents with cancer

Background/Objectives: Palliative care for Pediatric cancer patients and their families includes the relief of symptom and improvement of quality of life at any and all stages of disease. There care are most effectively provided by an…

Wishing well, a home-based Pediatric palliative care service for childhood cancer in thailand

Parental Grief Following the Death of a Child from Cancer: The Ongoing Odyssey

BACKGROUND: The death of a child is a devastating event that results in profound grief and significant psychosocial and physical morbidities in parents. The parental grief journey is a complex phenomenon necessitating the utilization of newer models…

Tags: 2016, Backlog, Baker JN, Bereavement, Cancer, Continuity Of Patient Care, Counseling, Gibson D, Grief, Journal Article, Kaye EC, Pediatric Blood & Cancer, Qualitative Research, Self-Help Groups, Snaman JM, Torres C

PICU Prometheus: Ethical issues in the treatment of very sick children in Paediatric Intensive Care

Through a focus on one child's extended stay in a Pediatric Intensive Care Unit, I raise four general questions about pediatric medicine: How should physicians communicate with parents of very sick children? How should physicians involve parents of…

Tags: 2005, Backlog, Counseling, Death, Death & Dying, Death studies, Gerontology/Ageing, Gill MB, Grief & Trauma Counseling - Adult, Grief & Trauma Counseling - Children & Adolescents, Health & Medical Anthropology, Journal Article, Medical Sociology, Mortality, Palliative Care Nursing, Pastoral Counseling, Social Work with the Elderly, Sociology of Religion, Specialist Care

Growing up and moving on: transition from pediatric to adult care

The development of transitional care is one of the major challenges for the twenty-first century as the survival rates and medical outcomes for child and adolescent recipients of transplants continue to improve. Such developments must include both…

Tags: 2005, Adolescent, Adolescent Health Services/organization & administration, Adolescent Transitions, Adult, Backlog, Communication, Continuity Of Patient Care/organization & Administration, Counseling, Humans, Journal Article, McDonagh JE, Models, Organ Transplantation, Organizational, Parenting, Pediatric Transplantation

Medication non-adherence in the adolescent renal transplant recipient: a clinician's viewpoint

Recent advancements in immunosuppression and surgical techniques have significantly improved the outcome of kidney transplantation in the pediatric population. Adolescents enjoy the best 1-year graft survival of any age group. However, the long-term…

Creation of a neonatal end-of-life palliative care protocol

OBJECTIVE: To create a protocol delineating the needs of patients, families, and staff necessary to provide a pain-free, dignified, family-, and staff-supported death for newborns who cannot benefit from intensive, life-extending, technological…

Decision making and satisfaction with care in the pediatric intensive care unit: findings from a controlled clinical trial

OBJECTIVE: To facilitate critical decision making and improve satisfaction with care among families of patients in a pediatric intensive care unit. DESIGN: Prospective observational study followed by a nonrandomized controlled trial of a clinical…

Facilitating children's grief

A program of education and support is essential for children and their parent or adult caregivers when the children have experienced the death of a significant person. Children need guidance on how to deal with their profound feelings of grief. The…

Tags: 2003, Adolescent, Adult, Backlog, Child, Child Psychology, Communication, Counseling, Death, Grief, Humans, Interpersonal Relations, Journal Article, Riely M, School Nursing, Self-Help Groups, sibling bereavement, The Journal Of School Nursing: The Official Publication Of The National Association Of School Nurses

Nocturnal enuresis: an update on treatment

Computer-assisted health counselor visits: a low-cost model for comprehensive adolescent preventive services

OBJECTIVE: To evaluate a low-cost strategy for providing preventive health services to adolescents using computerized health assessments with individualized educational videos, trained health counselors, and nurses. DESIGN: Feasibility study, cost…

Health counseling in adolescent preventive visits: effectiveness, current practices, and quality measurement

Most morbidity and mortality among adolescents results from their participation in health-compromising behaviors. Recent guidelines for clinical adolescent preventive services recommend that primary care clinicians routinely screen for and counsel…

Trends in transition from pediatric to adult health care services for young adults with chronic conditions

PURPOSE: The rationale underlying this study was the need to move the transition health services model from a theoretical framework to an empirically-based investigation. Thus, it was necessary to identify programs for youth with chronic or disabling…

Searching for the meaning of meaning: Grief therapy and the process of reconstruction

A comprehensive quantitative review of published randomized controlled outcome studies of grief counseling and therapy suggests that such interventions are typically ineffective, and perhaps even deleterious, at least for persons experiences a normal…

Tags: 2000, Backlog, Bereavement, Counseling, Death, Death studies, Grief, Journal Article, Knowledge, Meaning, Neimeyer RA, Time

The death of a twin

Death or disability is much more common in multiple births than single children, especially in the perinatal period. Parents face particular problems in that their loss may be underestimated; their grieving may be impeded by the confusion between the…

Tags: 1995, Adolescent, Adult, Backlog, Bryan EM, Child, Child Psychology, Counseling, Death, Female, Fetal Death, Grief, Guilt, Humans, Infant, Journal Article, Male, Newborn, Palliative Medicine, Parent-child Relations, Preschool, sibling bereavement, Social Support, Twins

Focus group interview with parents of children with medically complex needs: an intimate look at their perceptions and feelings.

The purpose of this paper was to identify the needs of parents of children with medically complex needs from their own perception. In order to provide in-depth information, the focus group interview technique was used. Several strong recurrent themes…

Guidelines for assistance to terminally ill children with cancer: a report of the SIOP Working Committee on psychosocial issues in pediatric oncology

This, the sixth official document of the SIOP Working Committee on psychosocial issues in pediatric oncology, develops another important and especially difficult topic: assistance for terminally ill children with cancer. This is provided for the…

Supporting the family after the death of a child.

The death of a child can have a devastating effect on the family. The pediatrician has an important role to play in supporting the parents and any siblings still in his or her practice after such a death. Pediatricians may be poorly prepared to…

Counseling

Tags: 2009, Book/Book Section, Counseling, Medicine, Palliative Medicine, Spiegel D

Pediatric palliative care (PPC) access in Chile: Private practice health insurance law implementation

Background: There are 600 new pediatric cancer cases in Chile in a year, with an overall survival of 70% and there are two systems that guarantee the access for patients to health providers: The public system, or national health fund (FONASA), and…

Ethics and palliative care in the perinatal world

The perinatal world is unique in its dutiful consideration of two patients along the lines of decision-making and clinical management - the fetus and the pregnant woman. The potentiality of the fetus-newborn is intertwined with the absolute…

Tags: 2017, Carter BS, Counseling, Ethics, Marty CM, Neonatal, November 2017 List, Palliative Care, Perinatal Decision-making, Seminars in Fetal and Neonatal Medicine

Supporting The Grieving Child And Family

The death of someone close to a child often has a profound and lifelong effect on the child and results in a range of both short- and long-term reactions. Pediatricians, within a patient-centered medical home, are in an excellent position to provide…

Tags: 2016, Caregivers, Children & Youth, Counseling, David J Schonfeld, Grief, Pediatrics, September 2016 List, Thomas Demaria, Trauma

Extremely Premature Birth And The Choice Of Neonatal Intensive Care Versus Palliative Comfort Care: An 18-year Single- Center Experience.

OBJECTIVE:
Review all live births 22 0/7 through 26 6/7 weeks gestation born 1996 through 2013 at our institution to describe the decision process and immediate outcomes of palliative comfort care (PCC) versus neonatal intensive care (NICU) and…

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