Guidelines for assistance to terminally ill children with cancer: a report of the SIOP Working Committee on psychosocial issues in pediatric oncology

Guidelines for assistance to terminally ill children with cancer: a report of the SIOP Working Committee on psychosocial issues in pediatric oncology

Masera G; Spinetta J; Jankovic M; Ablin AR; D'Angio GJ; Van Dongen-Melman J; Eden T; Martins AG; Mulhern RK; Oppenheim D; Topf R; Chesler MA

Medical & Pediatric Oncology

1999

Child; Female; Male; Parent-Child Relations; Attitude to Death; Professional-Family Relations; Professional-Patient Relations; Family Health; Counseling; quality of life; Preschool; bereavement; social support; Human; Palliative Care; Anxiety/prevention & control; Terminal Care; Pain/prevention & control; Neoplasms/psychology/therapy; Child Care; Fear/psychology

This, the sixth official document of the SIOP Working Committee on psychosocial issues in pediatric oncology, develops another important and especially difficult topic: assistance for terminally ill children with cancer. This is provided for the pediatric oncology community as a useful set of guidelines. It should be always possible for a declining child to die without unnecessary physical pain, fear, or anxiety. It is essential that he or she receive adequate medical, spiritual, and psychological support, and that the child at no point feels abandoned. Palliative care, in the terminal phase of cancer, should be tailored to the different needs and desires of the child and the family, with the goal of providing the best possible quality of life for the days that remain.

1999

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