Browse Items (155 total)
- Tags: Prognosis
The Psychiatric Care of Children and Young Adults With Neurodegenerative Diseases
Tags: 2024, Adolescence, Aggression, Agitation, antiemetic agent/pv [Special Situation for Pharmacovigilance], anxiety disorder, apathy, appetite stimulant/pv [Special Situation for Pharmacovigilance], Augustine EF, automutilation, Behavior Therapy, body weight gain, Brown HB, Caregiver Burden, Child Psychiatry, Childhood Mortality, choreoathetosis/dt [Drug Therapy], cognitive defect/si [Side Effect], collaborative care team, Comorbidity, degenerative disease/dm [Disease Management], degenerative disease/dt [Drug Therapy], Dementia, disease exacerbation, Dysphagia, Editorial, Expectation, extrapyramidal symptom, February List 2025, feeding disorder, feeding tube, first-line treatment, gabapentin/dt [Drug Therapy], gabapentin/pv [Special Situation for Pharmacovigilance], Hauptman AJ, high risk behavior, Human, Huntington chorea/dm [Disease Management], iatrogenic disease/si [Side Effect], Interpersonal Communication, Irritability, Journal Of The American Academy Of Child And Adolescent Psychiatry, juvenile neuronal ceroid lipofuscinosis/dm [Disease Management], Lafora disease, Live Birth, Medication therapy management, mental health care, mirtazapine/pv [Special Situation for Pharmacovigilance], mood disorder, motor dysfunction, neuroleptic agent/ae [Adverse Drug Reaction], neurologic disease/dm [Disease Management], neuropsychiatry, obsession, onset age, Palliative Therapy, parenting education, parkinsonism, Patient Care, Patient Comfort, pediatric patient, perseveration, Polypharmacy, Prevalence, Prognosis, psychiatric neuropalliative care, psychoeducation, psychosis, Quality Of Life, quetiapine/dt [Drug Therapy], quetiapine/pv [Special Situation for Pharmacovigilance], responsibility, risperidone/dt [Drug Therapy], risperidone/pv [Special Situation for Pharmacovigilance], Seizure, sensory dysfunction, Side Effect, sleep disorder, Spasticity, Symptom, symptom burden, tardive dyskinesia/si [Side Effect], Tay Sachs disease, trazodone/dt [Drug Therapy], trazodone/pv [Special Situation for Pharmacovigilance], visual impairment, Young Adult
Demographic and clinical profile of children with congenital heart diseases receiving palliative care
Tags: 2024, Adolescent, Adult, Advance Care Planning, anxiety, Bodhanwala M, Cardiology In The Young, Child, Clinical Article, Cognition, conference abstract, Congenital Heart Disease, Consultation, Controlled Study, Dinand V, Dixit P, February List 2025, Human, intervention study, Jain S, Khanna S, Male, Medical Decision Making, Mishra J, oxygen concentrator, Palliative Therapy, Panda B, Patient Referral, Pediatric Quality of Life Inventory, Prabhu SS, Prognosis, Quality Of Life, Reoperation, Sumitra V, Surgery, Terminal Care
PERINATAL PALLIATIVE CARE REQUIREMENTS IN THE WEST MIDLANDS: A SERVICE EVALUATION PROJECT
Tags: 2024, Archives of Disease in Childhood, Battersby C, brain malformation, Brown S, conference abstract, Diagnosis, Female, Fetus, Foster E, Harnden F, heart disease, Human, Infant, long term survival, Mackie F, Major Clinical Study, Maternal care, Mott C, multiple malformation syndrome, Neonatal Intensive Care Unit, nervous system malformation, Newborn, Newborn Care, Newborn Intensive Care, October List 2024, Palliative Therapy, Patient Referral, pharmaceutical care, Prenatal Care, Prognosis, Rajaraman N, routinely collected health data, Therapy, Van Hasselt TJ
THE WEST MIDLANDS PERINATAL PALLIATIVE CARE SERVICE AUDIT ON REFERRALS, DIAGNOSES AND PROGNOSES OF BABIES WITH SEVERE CONDITIONS
Tags: 2024, Adolescent, anencephalus, Archives of Disease in Childhood, bone dysplasia, Child, Clinical Audit, conference abstract, Congenital Heart Disease, congenital heart malformation, Diagnosis, diagnosis related group, Female, Fetus, heart disease, heart injury, Human, Infant, Major Clinical Study, Mott CE, national health service, Newborn, October List 2024, Palliative Therapy, Patient Referral, Prognosis, Surgery, survival time, systemic disease, Therapy, Trisomy 13, Trisomy 18
Scandinavian perspectives on life support at the border of viability
Tags: 2024, Clinical Practice, Consensus, Denmark, Family Centered Care, Frontiers in Pediatrics, Gestational Age, Human, July List 2024, Medical Ethics, Newborn Care, Norway, Palliative Therapy, Practice Guideline, Prematurity, Prognosis, Scandinavia, shared decision making, Short Survey, Sweden, Syltern J
Bereavement, Palliative, and End-of-Life Education Needs Assessment
Tags: 2024, Balakumar N, Bereavement, Child, conference abstract, Conversation, Critical Care Medicine, Curriculum, Education, Educational Measurement, Enteropathogenic Escherichia coli, Henley K, Hospital Mortality, Human, Intensive Care, Jaisankar B, July List 2024, learning style, Male, Needs Assessment, Palliative Therapy, Pediatric Intensive Care Unit, Ponton O, Prognosis, Simulation, Surgery, Terminal Care
Prognostic Disclosure to Dying Adolescents Against Parental Wishes: A Point-Counter Point Debate
Free and Appropriate: Navigating School Integration for Pediatric Patients Receiving Palliative Care or Hospice
Tags: 2024, Adolescent, Child, conference abstract, Drug Therapy, Education Program, Female, French C, Glioma, Hospice, Human, Inflammation, Journal of Pain and Symptom Management, June List 2024, knowledge gap, Maxwell E, median survival time, medical student, Palliative Therapy, pediatric patient, Physiotherapy, professionalism, Prognosis, Purol N, Quality Of Life, Satty AM, School Child, Self Report, special situation for pharmacovigilance, symptom burden, Teamwork, tumor burden, Ullrich CK, wheelchair
Palliative Care in the Neonatal Intensive Care Unit: An Evolutionary Concept Analysis of Uncertainty in Anticipated Loss
Tags: 2024, Advances in Neonatal Care, Article, Complication, Concept analysis, Confusion, Diagnosis, Dick T, Drug Administration, Dudding KM, Fazeli PL, Genetic Disorder, genetic screening, Human, Infant, Infant Newborn, Lenington K, March List 2024, Neonatal Intensive Care Unit, Neonatal Nurse, Newborn Intensive Care, Nurse, Palliative Care, Palliative Therapy, Patrician P, Prognosis, Uncertainty
Implementing Palliative care, based on family-centered care, in a highly complex neonatal unit
Tags: 2023, Article, Blanco DE, Camprubi CM, Cause Of Death, Child, Clotet CJ, Congenital Malformation, Controlled Study, February List 2024, Female, Human, intimacy, Jornal De Pediatria, Major Clinical Study, Male, Morillo PA, Mortality, Neonatal Intensive Care Unit, Newborn Death, Observational Study, Palliative Therapy, Prognosis, Retrospective Study, Riverola de Veciana A, Silla GJ, Terminal Care, Transitional Care
A meta-ethnography of how children and young people with chronic non-cancer pain and their families experience and understand their condition, pain services, and treatments
Tags: 2023, abdominal pain, Adolescent, Analgesia, Analgesics Opioid, Anthropology Cultural, Caes L, Child, Child Parent Relation, Chronic Pain, Cochrane Database of Systematic Reviews, Complex Regional Pain Syndrome, cultural anthropology, Disease Severity, endometriosis, ethnography, Family, Family Life, February List 2024, Fibromyalgia, Forbat L, France E, Headache, Health Care Personnel, Health Service, Human, Humans, inflammatory bowel disease, Jordan A, juvenile rheumatoid arthritis, migraine, musculoskeletal pain, narcotic analgesic agent, Noyes J, outcome assessment, Pain Assessment, Pain Severity, patient-reported outcome, pediatric patient, Peer Group, Personal Experience, Prognosis, Quality Of Life, racism, Review, Sibling, Silveira Bianchim M, Social Care, Social Isolation, Social Support, Social Work, Systematic Review, Thomson K, Turley R, Uny I, Wellbeing
Gender Differences in Depressive Symptoms Following Child Death in Later
Tags: 2023, Adaptation Psychological, Adult, Age Factors, Aged, Bereavement, Child, Comparative Studies, Depression, Evaluation, Father-child Relations, Fathers, Female, Funding Source, Human, In Adulthood, In Middle Age, In Old Age, Journals of Gerontology Series B: Psychological Sciences & Social, Male, Mellencamp KA, Middle Age, Mortality, Mother-child Relations, Mothers, November List 2034, Only Child, Parent-child Relations, Prognosis, Psychosocial Factors, Recovery, Risk Factors, Sex Factors, Trends, United States, VULNERABILITY
Neonatal serious illness: operational definition
Tags: 2023, Article, BMJ Supportive & Palliative Care, Cause Of Death, Cohort Analysis, Controlled Study, Conversation, Female, Guttmann K, Hospital care, Human, Infant, Infant Newborn, Major Clinical Study, Male, Newborn, October List 2041, Palliative Therapy, Pediatrics, Prognosis, rank sum test, Retrospective Study, Silverman R, Terminal Care, Weintraub AS
Pediatric palliative medicine in Brazil: an ethical reflection of medical practice
Tags: 2023, Acta Bioethica, Article, August List 2047, Brazil, Cesconetto J, Child, Ethics, Freitas L, Human, Medical Ethics, Medical Practice, Morality, Nunes RML, Palliative Care, Palliative Therapy, pediatric patient, Pediatrics, Physician, Prognosis, Reboucas LC, Rocha AA, Salomao VB, Software, Uncertainty
Barriers to Pediatric Palliative Care: Trainee and Faculty Perspectives Across Two Academic Centers
Tags: 2023, Agrawal AK, Article, August List 2038, Bogetz JF, Child, Communication Barrier, Controlled Study, Education, Female, Fogel AH, Human, Journal of Palliative Medicine, Lelkes E, Levine A, Life Sustaining Treatment, Major Clinical Study, Male, McPoland P, Multicenter Study, Palliative Care, Palliative Therapy, Pediatric Hospital, Perception, personnel shortage, Physician, Prognosis, Resident, Thematic Analysis, United States, Winn PA
Role of palliative care in fetal neurological consultations: Guiding through uncertainty and hope
Tags: 2023, August List 2029, Brain, Consultation, Cortezzo DE, Counseling, Decision Making, Diagnosis, encephalocele, Fetus, Frontiers in Pediatrics, Grief, Human, Infant, Medical Care, Neurology, Palliative Care, Palliative Therapy, Patient Care, Pregnancy, prenatal period, Prognosis, Referral And Consultation, Review, shared decision making, Shoaib A, social belief, Uncertainty, Vawter-Lee M, Venkatesan C, vignette
The efficacy of educational interventions on neonatal intensive care unit nurses knowledge and attitude toward neonatal palliative care
Tags: 2023, Abuhammad S, adjuvant therapy, Adult, Aggression, analgesic activity, anxiety, Article, Attitude, care behavior, Chronic Pain, cocaine, Controlled Study, Death, Demographics, drowsiness, drug dependence, Education Program, Educational Status, El-Bashir M, Elayyan M, electrolyte disturbance, Electronic Journal of General Medicine, emotional deprivation, Family, Fatigue, Female, Grief, Hospital Admission, Human, Human Experiment, Infant Newborn, Intestine, Jordan, June 2022 List, Knowledge, Male, Marriage, Morphine, Nausea And Vomiting, Neonatal Intensive Care Unit, neonatal intensive care unit attitude scale, Nurse, Nursing, Opiate, Pain, Palliative Care, Palliative Therapy, pethidine, pretest posttest design, Prognosis, Questionnaire, Respiration Depression, scoring system, Sedation, work experience
Shared Spiritual Beliefs between Adolescents with Cancer and Their Families
Tags: 2020, 2021 Special Edition - Oncology, Adolescent, Adolescent Behavior, Adolescents, Adult, Advance Care Planning/statistics & Numerical Data, Baker JN, Cancer, Cheng YI, congruence, Cross-sectional Studies, Decision Making, Family, Family/psychology, Female, Follow-up Studies, Friebert S, funding from the American Cancer Society to adapt/translate this protocol into, Humans, Livingston J, Longitudinal Studies, Lyon ME, Male, Neoplasms/psychology/therapy, Pediatric Blood & Cancer, Prognosis, Quality Of Life, Religion and Medicine, Single-Blind Method, Spanish. There are no other conflicts of interest to disclose., Spirituality, study from the National Institutes of Health. Maureen E. Lyon is also receiving, Thompkins J, Tweddle M, Wang J, Young Adult
Longitudinal Understanding of Prognosis among Adolescents with Cancer
Tags: 2021, 2021 Special Edition - Oncology, Adolescent, Child, Communication, Compas BE, Desjardins L, Female, Fisher RS, Follow-up Studies, Fults MZ, Gerhardt CA, Humans, Kenney AE, Longitudinal Studies, Male, Manring S, Neoplasms/pathology/psychology/therapy, Oncologists/psychology, Oncology, Palliative Care, Parents/psychology, Pediatric Blood & Cancer, Prognosis, Psycho-Oncology, psychosocial, Ranalli MA, Rausch JR, Rodriguez EM, Surveys And Questionnaires, Vannatta K, Young-Saleme T
Patient-Centered Perinatal Palliative Care: Family Birth Plans, Outcomes, and Resource Utilization in a Diverse Cohort
Tags: Article, Child, Female, Fetus, Infant, Newborn, 2022, American Journal of Obstetrics & Gynecology MFM, Buskmiller C, Chen M, Cohort Analysis, Comfort, Consultation, Controlled Study, Crowe E, Demographics, Expectation, Fetus Malformation, Gants S, Ho S, Hospice, Human, income group, Lopez S, November 2022 List, outcome assessment, Palliative Therapy, postpartum hemorrhage, Prenatal Diagnosis, Prognosis, Retrospective Study, Trisomy 13
Paediatric palliative screening scale as a useful tool for clinicians' assessment of palliative care needs of pediatric patients: a retrospective cohort study
COVID-19 Severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) infection in children and adolescents: a systematic review of critically unwell children and the association with underlying comorbidities
Tags: 2021, Adolescent, Agrawal P, April 2021 List, Child, Comorbidities, Comorbidity, Cook J, COVID-19, COVID-19/diagnosis/epidemiology, Critical Illness, Critically unwell, European Journal of Pediatrics, Global Health, Gupta A, Harman K, Humans, Paediatric, Prognosis, Radia T, Risk Factors, Severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2), Severity Of Illness Index, Williams N
Racial and Ethnic Differences in Communication and Care for Children With Advanced Cancer
Tags: 2020, Bagatell R, Baker J N, Cancer, Cohn S L, Communication, Diller L R, Disparities, end-of-life, Fernandez J H, Glade Bender J, Granger M M, Journal of Pain and Symptom Management, Mack J W, Marachelian A, Oncology 2020 List, Park J R, Pediatric, Prognosis, Rosenberg A R, Shusterman S, Twist C J, Uno H
Differences in perspectives of pediatricians on advance care planning: a cross-sectional survey
Medical and end-of-life decision making in adolescents' pre-heart transplant: A descriptive pilot study
Tags: 2020, Adolescent, Adult, Advance Care Planning, Article, Attention, Blume E D, Child, Clinical Article, Cousino M K, Cross-sectional Study, Decision Making, Female, heart graft, Human, Lowery R, Male, May 2020 List, Miller V A, Palliative Medicine, Patient Participation, Pilot Study, Prognosis, Rottach N, School Child, Schumacher K R, Smith C, Uzark K, Young Adult
Family attitudes toward genomic sequencing in children with cardiac disease
Tags: 2020, April 2020 List, Char D, Child, conference abstract, Confidentiality, consumer, Controlled Study, Deuitch N, Family Attitudes, family planning, Gal D, genetic discrimination, Grounded Theory, Health Care System, heart center, Heart Diseases -- Mortality, Human, Human Tissue, Insurance, interrater reliability, Journal Of Investigative Medicine, Magnus D, Perception, Privacy, Prognosis, Resource Allocation, Semi Structured Interview, sequence analysis, Surgery, Tang R, Transplantation, Trust, Uncertainty
Parent-Reported Outcomes of Prognostic Communication in Hospitalized Children with Advanced Heart Disease (S762)
Tags: 2020, Adult, Blume E, Cardiology, Caucasian, Child, Cohort Analysis, conference abstract, Controlled Study, Conversation, Decision Making, Expectation, Female, Feraco A, Goldberg S, heart single ventricle, high school, Hospitalization, Hospitalized Child, Human, Infant, Intubation, Journal of Pain and Symptom Management, Length Of Stay, Major Clinical Study, Male, March 2020 List, married person, Medical Record Review, Miller M K, Morell E, Mother, Prognosis, Prospective Study, pulmonary hypertension, pulmonary vein stenosis, Recall, Reichman J, Sahakian L, Sleeper L, Young Adult
Development of an innovative program to improve provision of palliative and hospice care to children and families in the community: The story of QoLA Kids
Tags: 2019, Baker J N, Blazin L J, Cancer Patient, Cancer Prognosis, catchment, Child, Childhood Cancer, conference abstract, Controlled Study, Counselor, Distress Syndrome, Female, Hospice Care, hospital personnel, Human, Kaye E C, Kiefer A C, magnet, Major Clinical Study, Male, March 2020 List, Nurse Practitioner, Outpatient, Palliative Therapy, Patient Referral, Pediatric Hospital, pediatric patient, Pediatrics, Prognosis, program impact, Quality Of Life, registered nurse, Social Worker
Preliminary Study of Neurodevelopmental Outcomes and Parenting Stress in Pediatric Mitochondrial Disease
Tags: 2017, Aggression, anxiety disorder/dm [Disease Management], Article, attention disturbance/dm [Disease Management], behavioral problems, brain atrophy/dm [Disease Management], characteristics, Child, Child Behavior, childhood disease/dm [Disease Management], Clinical Article, Comorbidity, daily life activity, delinquency, depression/dm [Disease Management], Disease Severity, drug resistant epilepsy/dm [Disease Management], drug resistant epilepsy/dr [Drug Resistance], Emotion, Eom S, Female, Human, intellectual impairment/dm [Disease Management], Intelligence, Intelligence Quotient, lactic acidosis/dm [Disease Management], Lee Y M, Leigh disease/dm [Disease Management], Leigh syndrome, Male, MELAS syndrome, MELAS syndrome/dm [Disease Management], mitochondrial disorders, muscle disease/dm [Disease Management], nervous system development, neuroimaging, nuclear magnetic resonance imaging, Parental Stress, Pediatric Neurology, postnatal depression/dm [Disease Management], Preschool Child, Priority Journal, problem behavior/dm [Disease Management], Prognosis, psychomotor development, Quality Of Life, sleep disorder/dm [Disease Management], social problem, somatization/dm [Disease Management], thinking impairment/dm [Disease Management], Trajectory
Perceptions of Pediatric Palliative Care among Physicians Who Care for Pediatric Patients in South Korea
Tags: 2019, Article, care behavior, Caregiver, Child, Controlled Study, December 2019 List, Decision Making, Education, Human, Journal of Palliative Medicine, Kim CH, Kim MS, Moon YJ, Multicenter Study, Oncologist, Palliative Therapy, pediatric patient, Perception, Prognosis, Quality Of Life, Questionnaire, Shin HY, Song IG, South Korea, Terminal Care, tertiary care center, workforce, Yu J
Palliative care integration in pediatric cardiac intensive care units: A novel champion-based model
Tags: 2019, Bailey V, Child, Comorbidity, Conceptual Framework, conceptual model, conference abstract, Consensus, coronary care unit, Critical Care Medicine, December 2019 List, Feasibility Study, heart development, heart disease, Hospitalization, Human, Kaye E, Morbidity, Moynihan K, outcome assessment, Palliative Therapy, Prognosis, Rotation, Simulation, Snaman J, Thiagarajan R, Total Quality Management, Wolfe J
Perinatal hypoxic-ischaemic encephalopathy: a national survey of end-of-life decisions and palliative care
Tags: 2019, Arnaez J, Article, BMJ supportive & palliative care., Consensus, Controlled Study, Decision Making, Garcia-Alix A, Gestational Age, Grief, Herranz-Rubia N, Human, hypothermia, hypoxic ischemic encephalopathy, Interview, Nervous System, Newborn, November 2019 List, Nurse, Palliative Therapy, Prognosis
When a child becomes terminal: Discrepant adolescent and parent perspectives on discussing a terminal prognosis with adolescents with cardiomyopathy, heart failure, and heart transplant
Tags: 2018, Adolescent, Advance Care Planning, Cancer Prognosis, Cardiomyopathy, Child, Circulation. Conference, Cohen H, conference abstract, Controlled Study, Conversation, Death, Edwards L A, Halpern-Felsher B, Hansen K, Heart Failure, heart graft, Human, June 2019 List, Kaufman B, Luong R, Malignant Neoplasm, Outpatient, Perception, Prognosis, School Child, Yohannes K
How Parents of Children With Cancer Learn About Their Children's Prognosis
Tags: 2017, Child, Hospitals Pediatric, Kang TI, Mack JW, Oncology 2018 List, Only Child, Pediatrics, Prognosis, Sisk BA
Sick leave among parents of children with cancer - a national cohort study
Tags: 2017, Acta Oncologica, Adolescent, Adult, Child, Child Preschool, Cohort Studies, Female, Follow-up Studies, Hed MI, Hjelmstedt S, Hoven E, Humans, Infant, Infant Newborn, Lindahl NA, Male, Montgomery S, Neoplasms/diagnosis/epidemiology/psychology, Oncology 2018 List, Only Child, Parents/psychology, Prognosis, Registries, Sick Leave, Sick Leave/statistics & numerical data, Sweden/epidemiology
Perceptions of barriers and facilitators to early integration of pediatric palliative care: A national survey of pediatric oncology providers
Tags: 2018, Article, Cancer Prognosis, Child, Childhood Cancer, Controlled Study, Dalberg T, Friebert S, Human, McNinch NL, Nurse Practitioner, Oncologist, Oncology 2018 List, Only Child, outcome assessment, Palliative Care, Palliative Therapy, Patient Care, Patient Education, Pediatric Blood and Cancer, Perception, Prognosis, Social Work, Software
Early mortality in children with acute lymphoblastic leukemia in a developing country: the role of malnutrition at diagnosis. A multicenter cohort MIGICCL study
Tags: 2017, Adolescent, Age Factors, Alvarez-Rodriguez FJ, Amador-Sanchez R, Body Weights and Measures, Bolea-Murga V, Cardenas-Cardos R, Child, Child Preschool, Children, Comorbidity, de Diego Flores-Chapa J, Developing Countries, Developing World 2018 List, Dorantes-Acosta EM, Duarte-Rodriguez DA, Espinosa-Elizondo RM, Fajardo-Gutierrez A, Female, Flores-Lujano J, Flores-Villegas LV, Gil-Hernandez AE, Gonzalez-Bonilla CR, Humans, Infant, Infant Newborn, Jimenez-Hernandez E, Leukemia, Leukemia & Lymphoma, Male, malnutrition, Malnutrition/diagnosis/epidemiology, Martin-Trejo JA, Martinez-Avalos A, Medina-Sanson A, Mejia-Arangure JM, Mexico/epidemiology, Mortality, Nunez-Enriquez JC, Nunez-Villegas NN, Paredes-Aguilera R, Penaloza-Gonzalez JG, Perez-Saldivar ML, Population Surveillance, Precursor Cell Lymphoblastic Leukemia-Lymphoma/epidemiology/ mortality/therapy, Prevalence, Prognosis, Proportional Hazards Models, Rangel-Lopez A, Remission Induction, Reyes-Zepeda NC, Rivera-Luna R, Rodriguez-Zepeda MD, Socioeconomic Factors, Torres-Nava JR, Velazquez-Avina MM
Pediatric Palliative Care in Iran: Applying Regionalization of Health Care Systems
Tags: 2018, Akbari Sari A, Asian Pacific Journal Of Cancer Prevention, Cancer Care Facilities/og [Organization & Administration], Cancer Care Facilities/ut [Utilization], Child, Delivery of Health Care/og [Organization & Administration], Developing World 2018 List, Eshghi P, Follow-up Studies, Health Services Accessibility/og [Organization & Administration], Heravi Karimooi M, Humans, Khanali ML, Neoplasms/th [therapy], Palliative Care/og [Organization & Administration], Prognosis, Qualitative Research, Quality Of Health Care, Rassouli M, Shirin Abadi Farahani A, Tahmasebi M, Zendedel K
Primary palliative care skills in CF: Perspectives of adults with CF, caregivers, and CF care team members
Tags: 2018, Adult, Advance Care Planning, Awareness, Basile M, Caregiver, Chen E, Child, clinical assessment, conference abstract, Controlled Study, December 2018 List, Dellon EP, depression assessment, Education, Faro A, Female, Georgiopoulos A, Goggin JL, Goss CH, Hempstead SE, Hobler M R, Hospice, Human, Kavalieratos D, Kruskal Wallis test, lung, Major Clinical Study, Male, Pain Assessment, Palliative Therapy, Pediatric Pulmonology, Perception, Prognosis, Skill
Unexpected Survivors: Children With Life-Limiting Conditions of Uncertain Prognosis
Tags: 2018, American Journal of Hospice & Palliative Medicine, Child, Cohort Studies, Congenital Abnormalities/mo [Mortality], Critical Illness/mo [Mortality], Female, Humans, Hurst A, Male, Nageswaran S, North Carolina, November 2018 List, Palliative Care/sn [Statistics & Numerical Data], Preschool, Prognosis, Radulovic A, Retrospective Studies, Survivors/sn [Statistics & Numerical Data], Survivorship