Browse Items (6 total)

Tags: 2024, Adolescent, Adult, Article, Barton KS, Bogetz J, brain ventricle peritoneum shunt, Child, Child Parent Relation, Clinical Article, Cohort Analysis, confusion (uncertainty), Controlled Study, Disease Severity, ethnic background, Father, feeding tube, Female, Health Survey, Home Care, Hospital Admission, hospital discharge, Human, implanted vagus nerve stimulator, intrathecal baclofen pump, Journal of Palliative Medicine, legal guardian, Length Of Stay, Life Expectancy, Male, mortality risk, Neurodisability, noninvasive positive pressure ventilation, October List 2024, Oslin E, Palliative Therapy, Parental Stress, Patient Advocacy, Pediatric Hospital, Pediatric Intensive Care Unit, Personal Experience, Prospective Study, Qualitative Research, Quantitative Study, Rosenberg AR, Semi Structured Interview, Tracheostomy, Trowbridge A, United States, VULNERABILITY, Watson RS, Yi-Frazier J

Tags: 2024, Advance Care Planning, August List 2024, Bailey V, Child, Cinahl, Delgado-Corcoran C, heart disease, Human, Lipsitz S, meta analysis, Moynihan KM, outcome assessment, Palliative Therapy, Parental Stress, patient coding, Pediatric Cardiology, Preferred Reporting Items for Systematic Reviews and Meta-Analyses, Quality Of Life, Resuscitation, Review, Rosenberg AR, Rotman C, Songer K, Systematic Review, Ting J, Web of Science

Tags: 2017, Aggression, anxiety disorder/dm [Disease Management], Article, attention disturbance/dm [Disease Management], behavioral problems, brain atrophy/dm [Disease Management], characteristics, Child, Child Behavior, childhood disease/dm [Disease Management], Clinical Article, Comorbidity, daily life activity, delinquency, depression/dm [Disease Management], Disease Severity, drug resistant epilepsy/dm [Disease Management], drug resistant epilepsy/dr [Drug Resistance], Emotion, Eom S, Female, Human, intellectual impairment/dm [Disease Management], Intelligence, Intelligence Quotient, lactic acidosis/dm [Disease Management], Lee Y M, Leigh disease/dm [Disease Management], Leigh syndrome, Male, MELAS syndrome, MELAS syndrome/dm [Disease Management], mitochondrial disorders, muscle disease/dm [Disease Management], nervous system development, neuroimaging, nuclear magnetic resonance imaging, Parental Stress, Pediatric Neurology, postnatal depression/dm [Disease Management], Preschool Child, Priority Journal, problem behavior/dm [Disease Management], Prognosis, psychomotor development, Quality Of Life, sleep disorder/dm [Disease Management], social problem, somatization/dm [Disease Management], thinking impairment/dm [Disease Management], Trajectory

Tags: 2019, Archives of Disease in Childhood, Bradbury M, Caregiver, Child, conference abstract, Crothers E, Depression, disease exacerbation, Female, health care need, Human, Ireland, Lewis S, Male, medical leave, Medline, Mental Stress, meta analysis, Murphy A M, North America, O'Gorman C, October 2019 List, Parental Stress, Prevention, Psychological Well-being, publication, Qualitative Research, Sample Size, Social Isolation, Social Support, Systematic Review

Tags: 2018, Aiyagari R, Bhat P, Cardiology In The Young, Chd, Donohue J, Fifer C, Hancock HS, Hypoplastic Left Heart Syndrome, Lowery R, March 2018 List, paediatric palliative care, Parental Stress, Pituch K, Silveira M, Uzark K, Welch S, Yu S

Tags: 2016, Becky J Christian, Bereavement And Coping, Cheryl Robinson, Decision Making, End-of-life Care, Erin R Currie, Grief, Hospitalization, Infant Mortality, Intensive Care, Journal of Pediatric Nursing, Karen Meneses, Neonatal Intensive Care Unit, Palliative Care, Pamela S Hinds, Parental Stress, Parents & Parenting, Pediatric Palliative Care, Samuel J Perna, Sara Day, September 2016 List