Browse Items (32 total)
- Tags: Patient Participation
Short-term Focused Feedback: A Model to Enhance Patient Engagement in Research and Intervention Delivery
Tags: 2021, 2023 SE1 - Parent Perspectives, Academies and Institutes, Aftercare/psychology, Auger KA, Gold JM, House Calls, Medical Care, Patient Outcome Assessment, Patient Participation, Pediatric, Psychology, Sauers-Ford H, Shah SS, Simmons JM, Stakeholder Participation, Statile AM, statistics & numerical data, statistics & numerical data Child Focus Groups Hospitals, statistics & numerical data Humans Parents/psychology Patient Discharge, Time Factors, Transitional Care, Wade-Murphy S
I actually felt like I was a researcher myself.' On involving children in the analysis of qualitative paediatric research in the Netherlands
Tags: 2020, 2023 SE1 - Parent Perspectives, Adolescent, Biomedical Research, Bmj Open, Child, children involvement, Female, Humans, Interviews As Topic, Luchtenberg ML, Maeckelberghe ELM, Male, Netherlands, Paediatrics, Patient Participation, Pediatrics/methods, Qualitative Research, Research Subjects, Verhagen AE
Establishing a multistakeholder research agenda: lessons learned from a James Lind Alliance Partnership
Shortening and validation of the Patient Engagement In Research Scale (PEIRS) for measuring meaningful patient and family caregiver engagement
Tags: 2021, 2023 SE1 - Parent Perspectives, Adolescent, Caregivers, Cross-sectional Studies, English K, family caregiver, Female, Hamilton CB, Hawke LD, Health Expectations, Hoens AM, Humans, Li LC, McKinnon AM, McQuitty S, patient and public involvement, Patient Participation, patient-oriented research, Prospective Studies, Psychometrics, reliability and validity
Patient Involvement in RSV Research: Towards Patients Setting the Research Agenda
Tags: 2022, 2023 SE1 - Parent Perspectives, Adult Aged Child Europe Humans Immunocompromised Host Patient Participation, Awareness, Bont LJ, Derksen-Lazet ND, Human, Journal of Infectious Diseases, Parmentier CEJ, patient involvement, patient network, Patient Participation, Patient Perspective, Respiratory Syncytial Virus, Respiratory Syncytial Virus Infections/prevention & control, Wildenbeest JG
Laying the groundwork: Building relationships for public and patient involvement in pre-clinical paediatric research
Tags: 2020, 2023 SE1 - Parent Perspectives, administrative personnel, Adolescent Arthritis, Child, Communication Barriers, Community Participation, Cooperative Behavior, Costello W, Dorris E, Health Expectations, Interpersonal Relations, juvenile, Methods, Paediatrics, patient engagement, patient involvement, Patient Participation, Pediatrics, Personnel, Research, Siblings, Stakeholder Participation
Children's perspectives on the benefits and burdens of research participation
Tags: 2018, 2023 SE1 - Parent Perspectives, Adolescent, AJOB empirical bioethics, Attitude, Barned C, benefits burdens, Canada, Child, Child Health, Children, Chronic Disease, Delivery of Health Care, Dobson J, Emotions, Ethics, Female, health care systems, Humans, Inflammatory Bowel Diseases, Informed Consent By Minors/psychology, Learning, Mack D, Male, Motivation, O'Doherty KC, Patient Participation, psychology Qualitative Research, Research, Research Subjects, Stintzi A
Parent engagement in perinatal mortality reviews: an online survey of clinicians from six high-income countries
Tags: 2021, April 2021 List, Bakhbakhi D, Bereavement Care, Bjog, Boyle FM, Burden C, Cross-sectional Studies, Developed Countries, Female, Flenady V, Health Care Surveys, Horey D, Humans, Infant Newborn, Male, Medical Audit/methods, parent engagement, Parents, Patient Participation, Patient Safety, Perinatal Mortality, perinatal mortality review, Siassakos D, Silver RM, Stillbirth
Medical and end-of-life decision making in adolescents' pre-heart transplant: A descriptive pilot study
Tags: 2020, Adolescent, Adult, Advance Care Planning, Article, Attention, Blume E D, Child, Clinical Article, Cousino M K, Cross-sectional Study, Decision Making, Female, heart graft, Human, Lowery R, Male, May 2020 List, Miller V A, Palliative Medicine, Patient Participation, Pilot Study, Prognosis, Rottach N, School Child, Schumacher K R, Smith C, Uzark K, Young Adult
Can the Ethical Best Practice of Shared Decision-Making lead to Moral Distress?
Tags: 2018, April 2017 List, Attitude Of Health Personnel, Burnout Professional, Clinical Ethics, Decision Making/ethics, Decision-making, End-Of-Life Issues, Gillam L, Humans, Journal of bioethical inquiry, Morals, Neonatology, Patient Care/ethics, Patient Participation, Physicians/ethics/psychology, Prentice TM, Professional-professional relationship, Stress Psychological
Decision making in pediatric oncology: Views of parents and physicians in two European countries
Tags: 2017, Adult, AJOB empirical bioethics, Badarau DO, Child Parent Relation, clinical protocol, Colita A, De CE, Decision Making, Doctor Patient Relation, Elger BS, Female, Human, Interpersonal Communication, Kuhne T, Male, Middle Aged, neoplasm/th [Therapy], Oncologist, Oncology, Oncology 2018 List, Parent, Patient Participation, Pediatrics, Physician, Qualitative Research, Quality Of Life, Romania, Ruhe K, Switzerland, Wangmo T
Decision-making at the limit of viability: Differing perceptions and opinions between neonatal physicians and nurses
Tags: 2018, Adult, Article, assisted ventilation, Barbara D, Baumann-Holzle R, Berger TM, Bmc Pediatrics, Brigitte S, Bucher HU, Controlled Study, enteric feeding, Fauchere JC, Female, Gudrun J, Hendriks MJ, hospital policy, Human, Infant Mortality, Jean-Claude F, Kai R, Klein SD, Legal Aspect, Liliane S, Magali C, Male, Mathias N, Matthias R, Medical Decision Making, Medical Practice, Neonatal Intensive Care Unit, Neonatal Nurse, Neonatologist, nurse attitude, October 2018 List, Patient Participation, Philipp M, Physician Attitude, Prematurity, Questionnaire, Religion, Renate I, Riccardo P, Roland N, Ruth D, September 2018 List, Streuli JC, Switzerland, Terminal Care, Ulrike S, work experience
The duty of the physician to care for the family in pediatric palliative care: context, communication, and caring
Characteristics of family conferences at the bedside versus the conference room in pediatric critical care
Tags: 2013, Attitude Of Health Personnel, Backlog, Child, Cohort Studies, Decision Making, Female, Health Care Surveys, Hinds PS, Humans, Intensive Care, Intensive Care Units, Journal Article, Male, October TW, Parents, Patient Care Team, Patient Participation, Pediatric, Pediatric Critical Care Medicine, Physicians, Professional-family Relations, Prospective Studies, Questionnaires, Watson Anne C
Effects of a palliative care intervention on clinical outcomes in patients with advanced cancer: the Project ENABLE II randomized controlled trial
Tags: 2009, Adaptation, Affect, Aged, Ahles TA, Backlog, Bakitas M, Balan S, Brokaw FC, Byock IR, Emergency Service, Female, Health Services/utilization, Hegel MT, Hospital/utilization, Hospitalization/statistics & numerical data, Hull JG, Humans, Intensive Care Units/utilization, Intervention, Interventions, JAMA, Journal Article, Kaplan-Meiers Estimate, Length Of Stay, Li Z, Lyons KD, Male, Middle Aged, Neoplasms/mortality/nursing/psychology/therapy, Outcomes, Palliative Care/methods, Patient Care Team, Patient Education as Topic, Patient Participation, Psychological, Quality Of Life, Seville J, Sickness Impact Profile, Social Support, Terminally Ill/psychology, Tosteson TD, Treatment Outcome
Transition care for young people with chronic illness
Tags: 2007, Adolescent, Adolescent Health Services, Adolescent Transitions, Age Factors, Australia, Backlog, Brodie L, Child, Continuity Of Patient Care/organization & Administration, Cooperative Behavior, Delivery of Health Care/organization & administration, Health Services Accessibility, Health Services Needs And Demand, Humans, International Journal Of Adolescent Medicine And Health, Journal Article, Patient Participation, Steinbeck KS, Towns SJ
Consultation with children in hospital: children, parents' and nurses' perspectives
Tags: 2006, Attitude Of Health Personnel, Backlog, Child, Communication, Comprehension, Coyne I, Decision Making, England, Hospital/psychology, Hospitalized/psychology, Hospitals, Humans, Interviews, Journal Article, Journal of Clinical Nursing, Nurse-patient Relations, Nurse's Role, Nursing Staff, Parent-child Relations, Parents/psychology, Patient Participation, Pediatric, PedPal Lit, Questionnaires
The reactions to research participation questionnaires for children and for parents (RRPQ-C and RRPQ-P)
Tags: 2002, Acute, Adult, Attitude, Backlog, Child, Factor Analysis, Female, General Hospital Psychiatry, Humans, Journal Article, Kassam-Adams N, Male, Newman E, Parents, Patient Participation, Patient Selection, Pilot Projects, Research, Risk Assessment, statistical, Stress Disorders, Surveys And Questionnaires, Traumatic, Wounds and Injuries
A descriptive study of children dying in the pediatric intensive care unit after withdrawal of life-sustaining treatment
Tags: 2004, Adolescent, Analgesics/administration & dosage, Backlog, Child, DeVita MA, Euthanasia, Female, Humans, Hypnotics and Sedatives/administration & dosage, ICU Decision Making, Infant, Intensive Care Units, Journal Article, Male, Neuromuscular Blockade, Palliative Care, Parents/psychology, Passive, Patient Participation, Pediatric, Pediatric Critical Care Medicine, Preschool, Retrospective Studies, Time Factors, Zawistowski CA
Forgoing life-sustaining treatments in children: a comparison between Northern and Southern European pediatric intensive care units
Tags: 2004, Adolescent, Adult, Backlog, Child, Death and Euthanasia, Decision Making, Devictor DJ, Empirical Approach, Europe, Euthanasia, Female, Hospital Mortality, Humans, ICU Decision Making, Infant, Intensive Care Units, Journal Article, Male, Newborn, Nguyen DT, Organizational, Parents/psychology, Passive/psychology, Patient Participation, Pediatric, Pediatric Critical Care Medicine, Preschool, Prospective Studies
Individualizing treatment decisions. The likelihood of being helped or harmed
Complexities in prognostication in advanced cancer: "to help them live their lives the way they want to"
Tags: 2003, 80 And Over, Adenocarcinoma/drug therapy/secondary, Aged, algorithms, Antineoplastic Agents, Backlog, Christakis NA, Female, Hormonal/therapeutic use, Human, JAMA, Journal Article, Lamont EB, Non-U.S. Gov't, P.H.S., Patient Participation, Physician-patient Relations, Prognosis, Skin Neoplasms/drug therapy/secondary, Stomach Neoplasms/drug therapy/pathology, Support, Survival Analysis, Tamoxifen/therapeutic use, Truth Disclosure, U.S. Gov't
Effects of framing and level of probability on patients' preferences for cancer chemotherapy
Tags: 1989, Adolescent, Adult, Aged, Attitude To Health, Backlog, Female, Health Status, Humans, Informed Consent, Journal Article, Journal Of Clinical Epidemiology, Male, Middle Aged, Neoplasms/drug therapy/mortality/psychology, Non-U.S. Gov't, O'Connor AM, Patient Participation, Probability, Prognosis, Random Allocation, Research Support
On the elicitation of preferences for alternative therapies
Tags: 1982, Adult, Aged, Backlog, Choice Behavior, Decision Making, Humans, Journal Article, Life Expectancy, Lung Neoplasms/mortality/radiotherapy/surgery, Male, McNeil BJ, Middle Aged, Non-U.S. Gov't, Outcome And Process Assessment (health Care), P.H.S., Patient Participation, Pauker SG, Probability, Research Support, Sox HC, The New England Journal Of Medicine, Therapeutics, Tversky A, U.S. Gov't
Between two worlds: bridging the cultures of child health and adult medicine
Tags: 1995, Adolescent Transitions, Adult, Backlog, Child, Chronic Disease, Continuity Of Patient Care, Decision Making, Delivery of Health Care/organization & administration, Disabled Persons, Humans, Internal Medicine/organization & administration, Journal Article, Patient Care Team, Patient Participation, Pediatrics/organization & Administration, Physician-patient Relations, Rosen D, Survivors, The Journal Of Adolescent Health : Official Publication Of The Society For Adolescent Medicine, United States
Physician-older patient communication at the end of life.
Tags: 2000, Advance Care Planning, Advance Directive Adherence, Advance Directives, Aged, Attitude To Death, Backlog, Clinics In Geriatric Medicine, Communication, DNAR, Empirical Research, Female, Humans, Journal Article, Levin BW, Male, Palliative Care/mt [methods], Patient Participation, Physician-patient Relations, Siegler EL, Terminal Care/mt [methods], Time Factors, Truth Disclosure
Care of terminally ill children with cancer
Tags: 2000, Adolescent, Adult, Attitude To Death, Backlog, Child, Communication, Foster P, Hospice Care, Human, Huszti H, Journal Article, Medical & Pediatric Oncology, Meyer WH, Neoplasms/psychology/therapy, Nitschke R, Palliative Care, Parent-child Relations, Parkhurst JB, Patient Participation, Physician-patient Relations, Preschool, Sexauer CL, Social Support, Terminal Care, Terminally Ill/psychology
Reframing US Maternity Care: Lessons Learned From End-of-Life Care
Tags: 2017, Caughey AB, Death, Decision Making, Delivery Obstetric, Female, Guidelines As Topic, Humans, Infant Newborn, Journal of Midwifery & Women's Health, Lowe NK, Maternal Health Services, Midwifery, November 2017 List, Palliative Care, Parturition, Patient Participation, Patient Safety, Patient-centered Care, Pregnancy, Snowden JM, Terminal Care, Tilden EL, United States
Consistency in end of life care
Tags: 2016, Adolescent, Allen D, August 2017 List, Child, Child Preschool, Communication, Decision Making, Hospice And Palliative Care Nursing/ Standards, Humans, Infant, Nurse-patient Relations, Nursing Children and Young People, Patient Participation, Pediatric Nursing/ Standards, Practice Guidelines As Topic