Browse Items · Pediatric Palliative Care Library

What Constitutes High-Quality Paediatric Palliative Care? A Qualitative Exploration of the Perspectives of Children, Young People, and Parents

Background: Globally, over 21 million children need palliative care each year. Although guidelines exist to support paediatric palliative care delivery, they are not informed by the experiences of children themselves. Objective: We aimed to determine…

Tags: 2025, Bariuan J, Bluebond-Langner M, Braybrook D, Bristowe K, Coombes L, Downing J, Ellis-Smith C, Fraser LK, Harardottir D, Harding R, July List 2025, Murtagh FEM, Roach A, Scott HM, the patient

Design and Administration of Patient-Centred Outcome Measures: The Perspectives of Children and Young People with Life-Limiting or Life-Threatening Conditions and Their Family Members

BACKGROUND: Self-reported health data from children with life-limiting conditions is rarely collected. To improve acceptability and feasibility of child and family-centred outcome measures for children, they need to be designed in a way that reflects…

Family Experiences with Care for Children with Inherited Metabolic Diseases in Canada: A Cross-Sectional Survey

BACKGROUND AND OBJECTIVE: Children with inherited metabolic diseases often require complex and highly specialized care. Patient and family-centered care can improve health outcomes that are important to families. This study aimed to examine…

Palliative sedation in dying patients: "we turn to it when everything else hasn't worked"

2005

Tags: 2005, Active Humans Hypnotics and Sedatives/administration & dosage Myoclonus/therapy Pain, and emotional issues they raise., and health care workers can all benefit from talking about the complex medical, as well as to the medical and nursing staff, Backlog, clinicians must understand and document which actions are consistent with an intention to relieve symptoms rather than to hasten death. The patient or family should agree with plans for palliative sedation. The attending physician needs to explain to them, Conscious Sedation Euthanasia, developed myoclonus. After other approaches proved ineffective, ethical, Extramural Research Support, Family, Intractable/therapyPalliative Care Physician-Patient Relations Research Support, JAMA, Journal Article, Lo B, N.I.H., Non-U.S. Gov't Research Support, P.H.S.Terminal Care Unconsciousness%X Despite skilled palliative care, palliative sedation was an option of last resort. The doctrine of double effect, PedPal Lit, permits physicians to provide high doses of opioids and sedatives to relieve suffering, provided that the intention is not to cause the patient's death and that certain other conditions are met. Such high doses are permissible even if the risk of hastening death is foreseen. Because intention plays a key role in this doctrine, receiving high doses of opioids administered to relieve pain, Rubenfeld G, some dying patients experience distressing symptoms that cannot be adequately relieved. A patient with metastatic breast cancer, the details of care and the justification for palliative sedation. Because cases involving palliative sedation are emotionally stressful, the patient, the traditional justification for palliative sedation, U.S. Gov't

Browse Items (4 total)

What Constitutes High-Quality Paediatric Palliative Care? A Qualitative Exploration of the Perspectives of Children, Young People, and Parents

Design and Administration of Patient-Centred Outcome Measures: The Perspectives of Children and Young People with Life-Limiting or Life-Threatening Conditions and Their Family Members

Family Experiences with Care for Children with Inherited Metabolic Diseases in Canada: A Cross-Sectional Survey

Palliative sedation in dying patients: "we turn to it when everything else hasn't worked"