Browse Items (24 total)
- Tags: Patient Selection
Family experience in a regional participant contact registry for research on intellectual disability
Tags: 2014, 2023 SE1 - Parent Perspectives, Adolescent, Adult Child, Child, Conners FA, Family, Female, Hamilton JC, Humans, Infant, Intellectual and Developmental Disabilities, Intellectual Disability, Male, Middle Aged, Patient Selection, Phillips BA, Preschool, Registries, Research, Rhodes JD, Surveys And Questionnaires, Young Adult
Ethical challenges for a new generation of early-phase pediatric gene therapy trials
Tags: 2021, August 2022 List, Averion GM, Bharucha-Goebel D, Bonnemann CG, Clinical Trial (topic), Ethics, Foley AR, Gene Therapy, Genetics in Medicine, giant axonal neuropathy, Grady C, Gray S, Hendriks S, Human, Iyer AA, Paredes E, patient engagement, Patient Selection, Pediatrics, Review, Rid A, Risk Benefit Analysis, Saade D
Beyond the Burke-Fahn-Marsden Dystonia Rating Scale: Deep brain stimulation in childhood secondary dystonia
Tags: (DBS), 2012, BFMDRS, cerebral-palsy, Childhood dystonia, Children, deep brain stimulation, Disability, European Journal of Paediatric Neurology, Follow-up, Gimeno H, globus-pallidus internus, Glutaric acidemia type I, Goals, Lin J P, Neurosciences & Neurology, Outcomes, Paediatric deep brain stimulation, Patient Selection, pediatric movement-disorders, Pediatrics, primary generalized dystonia, Rehabilitation, Reliability, secondary dystonia, Selway R, surgical intervention, tone and motor problems, Tustin K, Validity
Mitochondrial disease: needs and problems of children, their parents and family. A systematic review and pilot study into the need for information of parents during the diagnostic phase.
Tags: 2007, Adult, Backlog, Child, Goverde W, Hermans-Peters M, Humans, Interviews As Topic, Journal Article, Journal Of Inherited Metabolic Disease, Kemps H, Longitudinal Studies, Mitochondrial Diseases/diagnosis/psychology, Noorda G, Parent-child Relations, Parents/education, Patient Selection, Pilot Projects, Questionnaires, Reproducibility of Results, Research Design, Schoonhoven L, Smeitink JA, van Achterberg T
Harnessing social networks along with consumer-driven electronic communication technologies to identify and engage members of 'hard-to-reach' populations: a methodological case report
‘Do Not Attempt Resuscitation’ – Do Standardised Order Forms make a clinical difference above hand-written note entries?
Recruitment and retention in a longitudinal palliative care study.
Tags: 2005, Acquired Immunodeficiency Syndrome/therapy, Adult, Applied Nursing Research, Backlog, Caregivers, Clinical Nursing Research/organization & administration, Data Collection, et al, Feasibility Studies, Female, Focus Groups, Humans, Journal Article, Longitudinal Studies, Male, McSherry CB, Middle Aged, Neoplasms/therapy, Palliative Care, Parkas V, Patient Care Team, Patient Dropouts, Patient Selection, Sherman DW
Parental decision making in pediatric cancer end-of-life care: Using focus group methodology as a prephase to seek participant design input
Tags: 2006, Adaptation, Attitude To Health, Backlog, Barrera M, Baruchel S, Bouffet E, Capra M, Child, Decision Making, European Journal Of Oncology Nursing, Focus Groups/methods, Focus Groups/utilization, Gammon J, Geenberg ML, Helping Behavior, Hinds PS, Humans, Journal Article, Llewellyn-Thomas HA, Morale, Needs Assessment, Neoplasms, Nurse's Role, Nursing Methodology, Oncologic Nursing, Parents/psychology, Patient Selection, Patient-centered Care, Pediatric Nursing, PedPal Lit, Professional-family Relations, Program Development, Psychological, Qualitative Research, Quality Of Life/psychology, Questionnaires, Social Support, Sung L, Terminal Care, Tomlinson D, Volpe J
Parenteral nutrition in advanced cancer: indications and clinical practice guidelines
Tags: 2005, Aged, Backlog, Baracos V, Cachexia/et [Etiology], Cachexia/th [Therapy], Fainsinger RL, Female, Gastric Outlet Obstruction/co [Complications], Humans, IM, Intestinal Fistula/co [Complications], Journal Article, Journal of Palliative Medicine, Male, Middle Aged, Mirhosseini N, Neoplasms/co [complications], Neoplasms/th [therapy], Palliative Care, Parenteral Nutrition, Patient Selection, Practice Guidelines
Enteral and parenteral nutrition in terminally ill cancer patients: a review of the literature
Tags: 2006, Activities of Daily Living, Backlog, Communication, Decision Support Techniques, Dy SM, Enteral Nutrition/adverse effects/methods/utilization, Evidence-based Medicine, Humans, Journal Article, Malnutrition/etiology/therapy, Neoplasms/complications/mortality/psychology, Nutrition Assessment, Nutritional Status, Parenteral Nutrition/adverse effects/methods/utilization, Patient Education as Topic, Patient Selection, Practice Guidelines As Topic, Quality Of Life, Research Design, Risk Factors, Survival Rate, Terminal Care/methods/psychology/utilization, Terminally Ill, The American Journal of Hospice & Palliative Care, Treatment Outcome
The reactions to research participation questionnaires for children and for parents (RRPQ-C and RRPQ-P)
Tags: 2002, Acute, Adult, Attitude, Backlog, Child, Factor Analysis, Female, General Hospital Psychiatry, Humans, Journal Article, Kassam-Adams N, Male, Newman E, Parents, Patient Participation, Patient Selection, Pilot Projects, Research, Risk Assessment, statistical, Stress Disorders, Surveys And Questionnaires, Traumatic, Wounds and Injuries
The use of methadone for cancer pain
Tags: 2002, Analgesics, Attitude Of Health Personnel, Attitudes, Backlog, Bianchi M, Biological Availability, Child, Clinical Protocols, Dose-Response Relationship, Drug, Drug Administration Schedule, Drug Costs, Drug Industry/economics, Drug Information Services, Drug Interactions, Health Knowledge, Hematology/oncology Clinics Of North America, Humans, Information Dissemination, Journal Article, Metabolic Clearance Rate, Methadone/chemistry/economics/pharmacology/therapeutic use, Morphine/pharmacology/therapeutic use, Neoplasms/complications, Opioid/chemistry/economics/pharmacology/therapeutic use, Pain/diagnosis/drug therapy/etiology, Palliative Care/methods, Patient Selection, Practice, Ripamonti C, Treatment Outcome
Recruiting for research in hospice: feasibility of a research screening protocol
Tags: 2004, 80 And Over, Adolescent, Adult, Aged, Attitude To Health, Backlog, Casarett D, Community Health Services/utilization, Cross-sectional Studies, Eligibility Determination, Feasibility Studies, Female, Health Services Research/methods, Hospice Care/utilization, Humans, Journal Article, Journal of Palliative Medicine, Kassner CT, Kutner JS, Male, Middle Aged, Multi-site Ethics, Palliative Care, Patient Selection, Research Subjects/psychology
Initial experiences with medicinal extracts of cannabis for chronic pain: results from 34 'N of 1' studies
Tags: 2004, Administration, Adult, Aged, Anaesthesia, Analgesics, Backlog, Cannabidiol/adverse effects/therapeutic use, Chronic Disease, Cross-Over Studies, Depressive Disorder/drug therapy, Double-Blind Method, Drug Combinations, Female, Humans, Journal Article, Male, Middle Aged, Miller R, Multiple Sclerosis/drug therapy, Newport S, Non-Narcotic/adverse effects/therapeutic use, Notcutt W, Pain Measurement/methods, Pain/drug Therapy, Patient Selection, Phillips C, Price M, Sansom C, Simmons S, Sleep/drug effects, Sublingual, Tetrahydrocannabinol/adverse effects/therapeutic use, Treatment Outcome
Limitations and withdrawals of medical intervention in pediatric critical care
Tags: 1994, Analysis of Variance, Backlog, Child, Cuerdon TT, Death and Euthanasia, Empirical Approach, Female, Glover JJ, Hospital Mortality, Humans, ICU Decision Making, Infant, Intensive Care Units, Intervention, Interventions, JAMA, Journal Article, Levetown M, Life Support Care/utilization, Male, Outcome And Process Assessment (health Care), Patient Selection, Pediatric/standards/statistics & numerical data, Pollack MM, Preschool, Resuscitation Orders, Ruttimann UE, Survival Rate, United States, Withholding Treatment
Patient-controlled analgesia
Tags: 1999, Adult, Analgesia, Analgesics, Backlog, Dose-Response Relationship, Drug, Etches RC, Humans, Infusions, Injections, Intravenous, Journal Article, Opioid/adverse effects/therapeutic use, Pain, Patient Selection, Patient-Controlled/instrumentation, Postoperative/prevention & control, Respiration/drug effects, Safety, The Surgical Clinics Of North America
Not ready for hospice: characteristics of patients in a pre-hospice program
Tags: 2001, 80 And Over, Adaptation, Age Factors, Aged, Backlog, Comparative Study, Decision Making, Denial (Psychology), Female, Hayley DC, Health/statistics & numerical data, Hospice Care/organization & administration/psychology, Hougham G, Humans, Illinois, Insurance, Journal Article, Male, Middle Aged, Muir JC, Non-U.S. Gov't, Patient Acceptance of Health Care/psychology/statistics & numerical data, Patient Selection, Patient Transfer/statistics & numerical data, Psychological, Research Support, Retrospective Studies, Sachs G, Social Support, Stocking C, The American Journal of Hospice & Palliative Care
Metronomic therapy can increase quality of life during paediatric palliative cancer care, but careful patient selection is essential
Tags: 2016, Acta Paediatrica, Administration, Child, Female, Humans, Karnofsky Performance Status, Kivivuori SM, Lonnqvist T, Male, Metronomic, Neoplasms/dt [drug Therapy], Neoplasms/mo [mortality], Oncology 2017 List, Palliative Care, Patient Selection, Pentikainen V, Porkholm M, Prospective Studies, Quality Of Life, Saarinen-Pihkala UM, Seuri R, Toiviainen-Salo S, Vepsalainen K
Feasibility of Conducting a Palliative Care Randomized Controlled Trial in Children With Advanced Cancer: Assessment of the PediQUEST Study
Tags: 2015, Adolescent, Chen K, Child, Dussel V, Feasibility Studies, Female, Feudtner C, Geyer JR, Humans, Journal Of Pain & Symptom Management, Kang TI, Longitudinal Studies, Male, Neoplasms/th [therapy], Oncology 2017 List, Orellana L, Palliative Care, Palliative Care/mt [methods], Patient Dropouts, Patient Selection, Pilot Projects, Preschool, Soto N, Terminal Care, Ullrich C, Wolfe J
A Systematic Review Of Reasons For Gatekeeping In Palliative Care Research.
When healthcare professionals or other involved parties prevent eligible patients from entering a trial as a research subject, they are gatekeeping. This phenomenon is a persistent problem in palliative care research and thought to be…