Browse Items (21 total)
- Tags: Quality Of Life/psychology
Psychosocial factors affecting the quality of life of parents who have children with home mechanical ventilation
Tags: 2024, 2024 SE2 - Parent Perspectives, Adult, Bakirarar B, Bayav S, Child, Child Preschool, Cobanoglu N, Cross-sectional Studies, Duman B, Female, home care services, home mechanical ventilation, Humans, Male, Middle Aged, Ozcan G, Parents, Parents/psychology, Pediatric Pulmonology, Quality Of Life, Quality Of Life/psychology, Respiration Artificial/psychology, Social Support, Surveys And Questionnaires, Tekin MN, Zirek F
Quality-of-Life Assessment in Pediatric Advanced Cancer: Development of the Patient-Reported Outcome Measure Advance QoL
Tags: 2024, 2025 SE1 - Oncology, Adolescent, Advanced Cancer, Child, Current Oncology, Duval M, Felipe J, Female, Humans, Male, Marquis MA, measure, Michon B, Neoplasms/psychology, Olivier-D'Avignon M, Palliative Care, Patient Reported Outcome Measures, Pediatric Cancer, Perreault S, Quality Of Life, Quality Of Life/psychology, Robichaud LA, Self Report, Sultan S, Surveys And Questionnaires, Tyo-Gomez M
An International Study of Caregiver-Reported Burden and Quality of Life in Metachromatic Leukodystrophy
Tags: Child, Quality of Life, 2022, Afriyie A, Barth M, Burden of illness, Caregiver Burden, Caregiver experience, Caregivers, Dillon A, Early-onset, Family, Howie K, Humans, juvenile, Late infantile, Leukodystrophy Metachromatic/Genetics, Metachromatic Leukodystrophy, Mld, November 2022 List, Orphanet Journal Of Rare Diseases, Pang F, Quality Of Life/psychology, Sevin C, Surveys And Questionnaires, Walz M, Wilds A
Use of subcutaneous fluids in palliative care with children: a case study
Tags: 2020, artificial hydration, Brimble MJ, Child Health, Clinical, End Of Life Care, ethical issues, fluid management, Hospices, Humans, Hydration, Hypodermoclysis/methods/standards, May 2021 List, Nursing Children and Young People, Nutrition, Palliative Care, Palliative Care/methods/standards, Parents, Patient Comfort/standards, Pediatrics/instrumentation/methods, Professional, Quality Of Life/psychology, Smith A, Terminal Care
Child and adolescent self-report symptom measurement in pediatric oncology research: a systematic literature review
Tags: 2018, Adolescent, Adult, Adverse event self-report, Baker JN, Biomedical Research, Child, Cross-sectional Studies, Freyer DR, Hinds PS, Humans, Lucas N, Mack JW, McFatrich M, Medical Oncology/standards, Oncology 2018 List, Pediatric Oncology, Pinheiro LC, Psychometrics, Quality of Life Research, Quality Of Life/psychology, Reeve BB, Reproducibility of Results, Self Report, Self-report instruments, Sung L, Tomlinson D, Walker JS, Withycombe JS, Young Adult
Long term posttraumatic growth after breast cancer: prevalence, predictors and relationships with psychological health
Tags: 2010, Adaptation, Adult, Aged, Attitude To Health, Backlog, Bonnaud-Antignac A, Breast Neoplasms/epidemiology/psychology, Cross-sectional Studies, Disease-Free Survival, Female, Florin A, Follow-up Studies, Humans, Journal Article, Journal Of Clinical Psychology In Medical Settings, Lelorain S, Middle Aged, Post-Traumatic/diagnosis/epidemiology/psychology, Predictive Value of Tests, Prevalence, Psychological, Quality Of Life/psychology, Retrospective Studies, Stress Disorders
Providing care in chronic disease: the ever-changing balance of integrating palliative and restorative medicine
Self-portraits of families with young adult cancer survivors: using photovoice
Tags: 2010, Adolescent, Backlog, Ethnic Groups/statistics & numerical data, Family/psychology, Female, Humans, Journal Article, Journal Of Psychosocial Oncology, Male, Narration, Neoplasms/ethnology/psychology, Photography, Psychology, Quality Of Life/psychology, Questionnaires, Self Concept, Semantics, Socioeconomic Factors, Survivors/psychology, Voice, Yi J, Young Adult, Zebrack B
Impact of an inpatient palliative care team: a randomized control trial.
Tags: 2008, Advance Directives/sn [Statistics & Numerical Data], Advance Directives/statistics & Numerical Data, Aged, Backlog, Beane J, Blum M, Conner D, Cooperative Behavior, Critical Illness/ep [Epidemiology], Critical Illness/epidemiology, Critical Illness/psychology, Critical Illness/px [psychology], Critical Illness/rehabilitation, Critical Illness/rh [Rehabilitation], Della PR, DNAR, DNAR Outcomes, Gade G, Hospice Care/ut [Utilization], Hospice Care/utilization, Hospitalization, Hospitalization/statistics & numerical data, Humans, Journal Article, Journal of Palliative Medicine, Liberson M, McGrady K, Palliative Care/methods, Palliative Care/mt [methods], Patient Care Team, Patient Satisfaction, Prospective Studies, Quality Of Life/psychology, Quality Of Life/px [psychology], Richardson RH, Survival Rate, Venohr I, Williams MP
Impaired health-related quality of life in children and adolescents with chronic conditions: a comparative analysis of 10 disease clusters and 33 disease categories/severities utilizing the PedsQL 4.0 Generic Core Scales
Tags: 2007, Adolescent, Age Factors, Backlog, Burwinkle TM, Case-Control Studies, Child, Chronic Disease/classification/epidemiology/psychology, Cluster Analysis, Disabled Children/psychology, Female, Health And Quality Of Life Outcomes, Humans, Journal Article, Limbers CA, Longitudinal Studies, Male, Pediatrics/instrumentation, Preschool, Proxy, Psychometrics/instrumentation, Quality Of Life/psychology, Self Disclosure, Severity Of Illness Index, Sickness Impact Profile, Varni JW, World Health
Parental decision making in pediatric cancer end-of-life care: Using focus group methodology as a prephase to seek participant design input
Tags: 2006, Adaptation, Attitude To Health, Backlog, Barrera M, Baruchel S, Bouffet E, Capra M, Child, Decision Making, European Journal Of Oncology Nursing, Focus Groups/methods, Focus Groups/utilization, Gammon J, Geenberg ML, Helping Behavior, Hinds PS, Humans, Journal Article, Llewellyn-Thomas HA, Morale, Needs Assessment, Neoplasms, Nurse's Role, Nursing Methodology, Oncologic Nursing, Parents/psychology, Patient Selection, Patient-centered Care, Pediatric Nursing, PedPal Lit, Professional-family Relations, Program Development, Psychological, Qualitative Research, Quality Of Life/psychology, Questionnaires, Social Support, Sung L, Terminal Care, Tomlinson D, Volpe J
A meta-analytic review of benefit finding and growth
Recommendations for using opioids in chronic non-cancer pain
Tags: 2003, Allan L, Analgesics, Backlog, Biomarkers of Pain, Chronic Disease, Dellemijn PL, Drug Administration Schedule, European Journal Of Pain, Faura CC, Humans, Ilias WK, Jensen TS, Journal Article, Kalso E, Opioid/therapeutic use, Pain/drug Therapy, Patient Education, Perrot S, Plaghki LH, Psychology, Quality Of Life/psychology, Zenz M
Relationship between three palliative care outcome scales
Tags: 2004, 80 And Over, Adaptation, Adult, Aged, Backlog, Caregivers/psychology, Donaldson N, England, Family/psychology, Female, Health And Quality Of Life Outcomes, Higginson IJ, home care services, Hospitalization, Humans, Journal Article, Male, Middle Aged, Neoplasms/physiopathology/psychology/therapy, Outcome Assessment (Health Care)/methods, Palliative Care/psychology, Psychological, Psychometrics, Quality Of Life/psychology, Questionnaires, Sickness Impact Profile, Socioeconomic Factors
Evolution in measuring the quality of dying
Tags: 2002, Attitude To Death, Backlog, Clipp EC, Health Care/trends, Hospice Care/psychology/standards, Human, Journal Article, Journal of Palliative Medicine, Non-P.H.S., Non-U.S. Gov't, P.H.S., Process Assessment (Health Care)/methods, Quality Assurance, Quality Of Life/psychology, Steinhauser KE, Support, Terminal Care/psychology/standards, Tulsky JA, U.S. Gov't
Methodological challenges for measuring quality of care at the end of life
The Spanish version of the dementia quality of life questionnaire: a validation study
Tags: 2011, 80 And Over, Aged, Aging & Mental Health, Backlog, Brod M, Dementia/diagnosis/physiopathology/psychology, Diagnostic and Statistical Manual of Mental Disorders, European Continental Ancestry Group, Female, Gomez-Benito J, Humans, Journal Article, Language, Lucas-Carrasco R, Male, Middle Aged, Psychometrics/instrumentation, Quality Of Life/psychology, Questionnaires/standards, Rejas J, Reproducibility of Results, Sensitivity and Specificity, Severity Of Illness Index, Spain, Translations
A Longitudinal, Randomized, Controlled Trial Of Advance Care Planning For Teens With Cancer: Anxiety, Depression, Quality Of Life, Advance Directives, Spirituality
METHODS:
Adolescent (age 14-20 years)/family dyads (N = 30) with a cancer…
Tags: 2014, Adolescent, Adult, Advance Care Planning, Advance Care Planning/statistics & Numerical Data, Advance Directive, Advance Directives/psychology, Advance Directives/statistics & Numerical Data, African-american, Anxiety/complications, Anxiety/psychology, Cancer, Communication, Decision-making, Depression/complications, Depression/psychology, End Of Life, Family, Family Intervention, Feasibility Studies, Female, Follow-up Studies, Humans, Journal of Adolescent Health, July 2016 List, Longitudinal Studies, M.E. Lyon, Male, Neoplasms/complications, Neoplasms/psychology, Patient Satisfaction/statistics & Numerical Data, Pediatric Palliative Care, Quality Of Life/psychology, Spirituality, Surveys And Questionnaires, United States, Wang J, Young Adult
Protocol: Evaluating The Impact Of A Nation-wide Train-the-trainer Educational Initiative To Enhance The Quality Of Palliative Care For Children With Cancer
There are identified gaps in the care provided to children with cancer based on the self-identified lack of education for health care professionals in pediatric palliative care and in the perceptions of bereaved parents who describe…
Tags: 2016, Adolescent, BMC Palliative Care, Bouffet E, Canada, Cancer Quality Care, Child, Child Preschool, Curriculum/standards, Education Knowledge Translation, Friedrichsdorf SJ, Greenberg M, Health Personnel/education, Humans, Husain A, Liben S, Neoplasms/therapy, November 2016 List, Palliative Care, Palliative Care/methods, Palliative Care/standards, Pediatrics, Pediatrics/methods, Pole JD, Program Evaluation, Quality Of Life/psychology, Rapoport A, Siden H, Teaching/standards, Whitlock JA, Widger K, Wolfe J
Listening To Parents: The Role Of Symptom Perception In Pediatric Palliative Home Care
This study analyzes symptom perception by parents and healthcare professionals and the quality of symptom management in a pediatric palliative home care setting and identifies which factors contribute to a high quality of palliative and…
Tags: 2016, Adult, Borasio GD, Brandstatter M, Cross-sectional Studies, Death, Duroux A, Dyspnea/diagnosis, Dyspnea/psychology, End-of-life Symptoms, Female, Führer M, Grasser M, Home Care Services/standards, Humans, Male, November 2016 List, Pain/diagnosis, Pain/psychology, Palliative & Supportive Care, Palliative Care/methods, Palliative Care/psychology, Parents/psychology, Pediatric Palliative Home Care, Pediatrics/methods, Perception, Quality Of Life/psychology, Retrospective Studies, Surveys And Questionnaires, Symptom Assessment/psychology, Symptom Perception, Vollenbroich R
Families' Priorities In Life-limiting Illness: Improving Quality With Online Empowerment
Improving quality of life (QOL) is the central focus of palliative care support for children with life-limiting illness (LLI), but achieving this can be challenging.
INTERVENTION:
MyQuality is an online tool that enables families to choose…
Tags: 2016, Adolescent, Archives of Disease in Childhood, Beringer A, Child, Child Preschool, Disabled Children/psychology, Family, Female, Fletcher M, Harris N, Hospice, Humans, Infant, Internet, July 2016 List, Longitudinal Studies, Male, Outcome, Palliative Care, Parents, Parents/psychology, Power (psychology), Quality Of Life, Quality Of Life/psychology, Social Support, Surveys And Questionnaires, United Kingdom, Young Adult