Evolution in measuring the quality of dying

Title

Evolution in measuring the quality of dying

Creator

Steinhauser KE; Clipp EC; Tulsky JA

Publisher

Journal Of Palliative Medicine

Date

2002

Subject

Attitude to Death; Non-U.S. Gov't; P.H.S.; U.S. Gov't; Human; Support; Quality Assurance; Non-P.H.S.; Health Care/trends; Hospice Care/psychology/standards; Process Assessment (Health Care)/methods; Quality of Life/psychology; Terminal Care/psychology/standards

Description

PURPOSE: Despite multiple efforts to improve the experience for dying patients, researchers still struggle to identify appropriate outcome measures that assess patients' and families' experiences. If health care systems are to provide excellent, compassionate care to dying patients and their families, there must be a valid means of assessing the quality of those experiences and interventions to improve care. The purpose of this paper is to evaluate quality-of-life instruments currently used to assess the experiences of dying patients, and to offer a design for a next generation instrument to measure quality at the end of life. DESIGN: Sources were attained through a review of the quality of life, quality of dying, and end-of-life care literatures. The terms quality of life, quality of care, terminal care, hospice, assessment, and measurement were used singly and in combination in the MEDLINE database from 1966 to 2001. DISCUSSION: An appropriate clinical quality of dying instrument must be derived from the perspectives of end-of-life care participants and include the multiple domains of experience important to patients and families. Because dying patients are often too ill to communicate, nonresponse bias is a major problem in this population. Researchers must identify additional objective and subjective measures that clearly reflect, correspond well (or predictably) with, and serve as alternatives to patients' self-ratings. Additionally, an appropriate assessment tool must accommodate individual definitions of the quality of dying and demonstrate sensitivity to change over time.
2002

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Type

Journal Article

Citation List Month

Backlog

Pages

407-414

Issue

3

Volume

5

Citation

Steinhauser KE; Clipp EC; Tulsky JA, “Evolution in measuring the quality of dying,” Pediatric Palliative Care Library, accessed September 26, 2021, https://pedpalascnetlibrary.omeka.net/items/show/12589.

Social Bookmarking