Browse Items (10 total)
- Tags: Caregiver Burden
Polypharmacy in Children with Medical Complexity: A Cross-Sectional Study in a Pediatric Palliative Care Center
Tags: 2024, Adolescent, Adult, Agosto C, Analgesia, Article, Avagnina I, Baratiri F, Benini F, Caregiver, Caregiver Burden, Child, Children, Cross-sectional Study, Divisic A, drug cost, Drug Safety, eye drops, Female, Human, Infant, Maghini I, Male, Mengato D, nose spray, Observational Study, October List 2024, off label drug use, Palliative Therapy, Pediatrics, Pharmacoeconomics, Pivato L, Polypharmacy, Prevalence, Quality Of Life, Questionnaire, Roverato B, Rusalen F, special situation for pharmacovigilance, typographical error, Venturini F, Zanin A
Advance Care Planning for Children With Rare Diseases: A Pilot RCT
Tags: 2024, Adolescent, Adult, Advance Care Planning, Aged, anxiety, Aoun S, Article, Beck Anxiety Inventory, Brodie N, care behavior, Caregiver, Caregiver Burden, Child, Clark H, Controlled Study, Detwiler K, Diagnosis, Distress Syndrome, Female, Follow Up, Fraser JL, Functional Assessment of Chronic Illness Therapy, Guerrera MF, Health Care Utilization, household income, Human, intention to treat analysis, July List 2024, Lyon ME, Major Clinical Study, Male, Needs Assessment, Pediatrics, Pilot Study, Poverty, poverty level, Quality Of Life, Randomized Controlled Trial, Rare Disease, Religion, Single Blind Procedure, Therapy, Thompkins JD, Torres C, Trujillo Rivera EA, Younge T
Effect of Family Centered Pediatric Advance Care Planning for Children with Rare Diseases on Meaning/Peace
Tags: 2024, Adult, Advance Care Planning, Aged, anxiety, Beck Anxiety Inventory, care behavior, Caregiver, Caregiver Burden, Child, conference abstract, Controlled Study, Conversation, Decision Making, Diagnosis, Disability, Distress Syndrome, emergency department visit, Family, Female, Follow Up, Health Care Utilization, Hospitalization, household income, Human, intention to treat analysis, Journal of Pain and Symptom Management, June List 2024, Lyon ME, Male, Metabolic Disorder, Needs Assessment, Palliative Therapy, Patient Care, pediatric patient, Poverty, poverty level, Quality Of Life, Randomized Controlled Trial, Rare Disease, Religion, shared decision making, social determinants of health, spiritual well-being, Surgery, Therapy
Ameliorating Caregiver Burden in the Pediatric Palliative Population Utilizing a Psychophysiological Intervention
Tags: 2023, American Journal Of Hospice And Palliative Care, Anxiety/therapy, Beattie A, Caregiver Burden, Caregivers, Child, Cost Of Illness, diaphragmatic breathing, home care services, Humans, Informal caregivers, Palliative Care, Pediatrics, Quality Of Life, Respite Care, Restaino MR, rolestrain, September List 2024, Stress
An International Study of Caregiver-Reported Burden and Quality of Life in Metachromatic Leukodystrophy
Tags: Child, Quality of Life, 2022, Afriyie A, Barth M, Burden of illness, Caregiver Burden, Caregiver experience, Caregivers, Dillon A, Early-onset, Family, Howie K, Humans, juvenile, Late infantile, Leukodystrophy Metachromatic/Genetics, Metachromatic Leukodystrophy, Mld, November 2022 List, Orphanet Journal Of Rare Diseases, Pang F, Quality Of Life/psychology, Sevin C, Surveys And Questionnaires, Walz M, Wilds A
Childhood cancer physical symptom burden and parent distress: The role of parent rumination
Tags: 2021, 2022 Special Edition 1 - Parent Perspectives, Basile NL, Caregiver Burden, Carrick Carter J, Chaney JM, Clinical Practice in Pediatric Psychology, Distress, Family, Fisher RS, Gamwell KL, Income Level, Mayes S, McNall-Knapp R, Mullins LL, Neoplasms, Pain, Parental Role, Pediatrics, Pepper M, Perez MN, Rumination (Cognitive Process), Symptoms
Pediatric oncology nursing research in low- and middle-income countries
Tags: 2020, Afungchwi G M, Alqudimat M R, alternative medicine, Burkitt lymphoma, cancer incidence, Cancer Survival, Caregiver, Caregiver Burden, caregiver burnout, Challinor J M, Cytotoxicity, Day S W, Developing World 2020 List, economic status, Fatigue, geographic distribution, gross national income, Health Care Personnel, high income country, Human, immune status, Impact of Events Scale, Infant Mortality, Kaposi sarcoma, lifestyle, low income country, malnutrition, Methodology, middle income country, nurse training, Nursing Care, Nursing Practice, nursing science, Nutrition, Pain, Palliative Therapy, Pediatric Oncology, pediatric oncology nursing, PostTraumatic Stress Disorder, Priority Journal, Quality Of Life, risk factor, Sepsis, Southeast Asian, Southern Europe, Stress, traditional medicine, treatment response
Psychosocial factors related with caregiver burden among families of children with chronic conditions
Tags: 2019, affiliations., BioPsychoSocial Medicine, Bioseguridad] of the Hospital Infantil de Mexico Federico Gomez National, Caregiver Burden, Dominguez-Guedea M T, Ethics and Biosafety Commission [Comisiones de Investigacion Etica y, Family Caregivers, family functioning, family support, have given their approval for the article to be published.Springer Nature remains, informed consent form.The authors declare that they have no competing interests., Institute of Health. All participants signed an informed consent form.Consent to, May 2019 List, neutral with regard to jurisdictional claims in published maps and institutional, Pediatric chronic diseases, Psychosocial Factors, publish this study has been provided and all participants have signed an, Social support networks, Sociodemographic variables, The authors declare that we have no conflicts of interest. All of the authors, Toledano-Toledano F, Well-being