Browse Items (77 total)
- Tags: Psychology
Parental Perceptions of the Impact of a Child’s Complex Chronic Condition: A Validation Study of the Impact on Family Scale
Tags: 2024, Adolescent, Adult, Alves SP, Article, August List 2024, Braz AC, Cerebral Palsy, Child, Child Health, Childhood Disease, Chronic Disease, cohesion, confirmatory factor analysis, construct validity, Disease, Educational Status, Emotional Stress, Family Life, family relation, Family Relations, Female, Fontaine AM, Graça L, Human, Humans, impact on family, Impact on Family Scale, International Journal of Environmental Research and Public Health, life satisfaction, Likert scale, Male, Middle Aged, Parent, parental care, Parents, pediatric complex chronic illness, Perception, Personal Satisfaction, Portugal, Psychology, psychometry, Questionnaire, Reproducibility, Reproducibility of Results, Satisfaction, satisfaction with life, scoring system, social cohesion, sociodemographics, Surveys And Questionnaires, test retest reliability, validation study
Maintaining Parental Roles During Neonatal End-of-Life Care: A Review of the Literature
Outcomes of critically ill children with pre-existing mental health conditions
Psychiatry and interdisciplinary pediatric palliative care: a scoping review
Tags: 2024, Adolescent, adolescents and young adults (AYAs), Advance Care Planning, Annals Of Palliative Medicine, Child, Cress AE, Humans, Interdisciplinary palliative care (interdisciplinary PC), May List 2024, Medical Oncology, Neoplasmspsychology, Palliative Care, Palliative Caremethods, Pediatric Palliative Care (ppc), Psychiatry, Psychology, Young Adult
Psychologists as Pivotal Members of the Pediatric Palliative Care Team
Tags: 2024, Adolescent, April List 2024, Article, Child, Consensus, Diagnosis, Drug Therapy, evidence based practice, Human, interdisciplinary research, Journal of Pain and Symptom Management, Kentor RA, McCarthy SR, Palliative Care, Palliative Therapy, Psychologist, Psychology, Quality Of Life, Schaefer MR, Therapy, Thompson AL
When a Child Dies in the PICU Despite Ongoing Life Support
Tags: 2018, Butt WW, Child, Clark JD, Death, Dryden-Palmer K, Family, Human, Human Relation, Lewis-Newby M, Long Term Care, March List 2024, Only Child, Palliative Therapy, Parshuram CS, Pediatric Critical Care Medicine, Pediatric Intensive Care Unit, Psychology, Resuscitation, Terminal Care, Treatment Outcome, Treatment Withdrawal, Truog RD, Uncertainty
Ethical, Cultural, Social, and Individual Considerations Prior to Transition to Limitation or Withdrawal of Life-Sustaining Therapies
Tags: 2018, Balit CR, Carnevale FA, Child, Child Parent Relation, Critical Illness/th [therapy], Decision Making, Ethics, Female, Human, Kirsch RE, Larcher V, Latour JM, Male, March List 2024, Patient Participation, Pediatric Critical Care Medicine, Pediatric Intensive Care Unit, Psychology, social media, Terminal Care, transcultural care, Treatment Withdrawal
Palliative Care for Infants in the Neonatal Intensive Care Unit: A Scoping Review
Family-Centered Culture Care: Touched by an Angel
Tags: 2019, Attitude To Death, Child, cultural anthropology, Empathy, Ethics, ethnology, Family Nursing, Hernandez JA, Hinduism, Human, Human Relation, Impatiens, Infant, Journal of Clinical Ethics, March List 2024, Mental Stress, Morality, Newborn, Nursing Staff, Psychology, Religion, touch, Treatment Refusal
Discussing Death as a Possible Outcome of PICU Care
Tags: 2018, Attitude To Death, Child, Critical Illness, Death, Decision Making, doctor patient relationship, Family, Female, Gilleland JC, Human, Interpersonal Communication, Male, March List 2024, Parshuram CS, Pediatric Critical Care Medicine, Pediatric Intensive Care Unit, Physician, Psychology, Risk Assessment, Terminal Care, Uncertainty
Chinese Neonatal Nurses' Lived Experiences of Providing End-of-Life Care in the NICU: A Descriptive Phenomenological Study
Parent Priorities in End-of-Life Care for Children With Cancer
Tags: 2023, 2023 SE3 - Oncology, Ananth P, Bayes Theorem, Boyden JY, Child, Child Parent Relation, Cross-sectional Study, de Oliveira S, Death, Female, Feudtner C, Gross CP, Human, JAMA Network Open, Kirch R, Lindsay M, Ma X, McCollum S, Middle Aged, Mun S, neoplasm/th [Therapy], Pitafi S, Psychology, Shabanova V, Terminal Care, Wolfe J
The care for oncologic patients undergoing pediatric palliative care and the griefs of a health team
Tags: 2023, 2023 SE3 - Oncology, Alves RSF, anxiety, Article, Cancer Diagnosis, Chronic Disease, Clinical Article, coronavirus disease 2019, Cross-sectional Study, de Sena JGM, de Vasconcelos AV, Female, Follow Up, Health Service, Human, Male, Melo CF, Palliative Care, Palliative Therapy, Pandemic, Psicooncologia, Psychology, Questionnaire, Ruiz EM, Semi Structured Interview, Teixeira LC
The Impact of End-of-Life Care Among Nurses Working in the Pediatric Intensive Care Unit
Diversity of Parent Emotions and Physician Responses During End-of-Life Conversations
Tags: 2023, Akkermans AA, Child, Child Parent Relation, Critical Illness, de Hoog M, de Vos MA, Death, Dijk PH, Emotion, Human, Kneyber MCJ, Linn AJ, Newborn, October List 2039, Pediatrics, Physician, Prins S, Psychology, Simons SHP, Smets EMA, van de Loo M, van Heerde M, van Kaam AHLC, van Woensel JBM
Bereaved Caregivers Perspectives of Negative Communication Experiences Near the End of Life for Adolescents and Young Adults with Cancer
Tags: 2022, 2022 Special Edition 3 - Oncology List, Adolescent, adolescent and young adult, Bakitas M, Cancer, Caregiver, Communication, Currie ER, Death, End Of Life, Female, Gilbertson-White S, Human, interpersonal, Journal Of Adolescent And Young Adult Oncology, Keenan MA, Lindley LC, Mack JW, Neoplasm, Palliative Care, Physician-patient relationship, Psychology, Roeland EJ, Schulz GL, Sisk BA, Terminal Care, Young Adult
Short-term Focused Feedback: A Model to Enhance Patient Engagement in Research and Intervention Delivery
Tags: 2021, 2023 SE1 - Parent Perspectives, Academies and Institutes, Aftercare/psychology, Auger KA, Gold JM, House Calls, Medical Care, Patient Outcome Assessment, Patient Participation, Pediatric, Psychology, Sauers-Ford H, Shah SS, Simmons JM, Stakeholder Participation, Statile AM, statistics & numerical data, statistics & numerical data Child Focus Groups Hospitals, statistics & numerical data Humans Parents/psychology Patient Discharge, Time Factors, Transitional Care, Wade-Murphy S
What constitutes meaningful engagement for patients and families as partners on research teams?
Tags: 2018, 2023 SE1 - Parent Perspectives, Adult Aged, Aged, Attitude To Health, Black A, Canada, Caregivers, Chang W, Charlton SG, Family and Patient Participation, family engagement, Hamilton C, Journal of Health Services Research & Policy, McNamee K, patient engagement in research, Patient experience, patient-oriented research, Psychology, Qualitative, Research Subjects, Researcher-Subject Relations, Strain K, Wallsworth C, Young Adult
Parents' Decision-Making for their Foetus or Neonate with a Severe Congenital Heart Defect
Tags: Child, Female, Fetus, Infant, Male, Newborn, Parents, Qualitative Research, 2022, Adult, Brown H, Cardiology In The Young, Congenital, Decision-making, Delaney RK, Donofrio MT, Fagerlin A, Heart Defects, Humans, Karasawa M, Miller SG, November 2022 List, Ozanne EM, Patel A, Pinto NM, Pregnancy, Psychology, Stark LA, Steltzer MM, Watt MH, Zickmund SL
Longitudinal Perinatal Palliative Care for Severe Fetal Neurologic Diagnoses
Fifteen-minute consultation: How to communicate with parents who have a child on life support with no hope of recovery
Pediatric Advance Care Planning and Families' Positive Caregiving Appraisals: An RCT
Fifteen-minute consultation: How to approach the withdrawal of neonatal intensive care
Parents' perspectives on conflict in paediatric healthcare: A scoping review
The Phenomenon of Bereaved Parenting: An Integrative Review of Literature
Tags: 2021, Bereavement, Communication, Conflict (Psychology), Coping, Emotions, Family Role, Grief, Haylett WJ, Human, March 2021 List, Omega: Journal Of Death & Dying, Parental Role, Parenting, Parents -- Psychosocial Factors, Psychology, Science, Scott Tilley D, Social Work, Survivors, Systematic Review
Play in Children With Life-Threatening and Life-Limiting Conditions: A Scoping Review
Variations of Stereotypies in Individuals With Rett Syndrome: A Nationwide Cross-Sectional Study in Taiwan
Tags: 2017, Autism, Autism Research, Behavioral Sciences, bruxism, CDKL5, characteristics, chinese patients, Disorders, Epilepsy, Ganglia, girls, hair pulling, Hung P L, Jan T Y, Lee W T, lip protrusion, manifestations, mecp2, mecp2 mutations, motor stereotypies, Movement Disorders, Psychology, retropulsion, Rett syndrome, stereotypies, stereotypy, tone and motor problems, Trajectory, Wong L C
Comparing PECS and VOCA to promote communication opportunities and to reduce stereotyped behaviors by three girls with Rett syndrome
Tags: 2 boys, 2014, Albano V, Augmentative and alternative communication, Autism, contact, Damiani R, De Pace C, DEVELOPMENTAL, Developmental-disabilities, Di Leone A, Disabilities, Education & Educational Research, environmental stimuli, Indices of happiness, keyboard emulator, microswitch-based programs, motor disabilities, Perilli V, physical intervention, Picture exchange communication systems, profound multiple disabilities, Psychiatry, Psychology, Quality Of Life, quality-of-life, Rehabilitation, Research In Autism Spectrum Disorders, Rett syndrome, Social, spectrum disorders, Stasolla F, stereotypies, tone and motor problems, Vocal output communication aid
The Association Between Repetitive, Self-Injurious and Aggressive Behavior in Children With Severe Intellectual Disability
Tags: 2012, adults, Aggression, Autism spectrum disorder, Bacarese-Hamilton M, behavioral problems, challenging behavior, challenging behaviors, characteristics, de-lange-syndrome, handicap, high frequency repetitive behavior, Intellectual Disability, Journal of Autism and Developmental Disorders, learning-disabilities, Mental, Oliver C, People, Petty J, Prevalence, Psychology, psychotropic medication, repetitive behavior, risk-factors, ritualistic behavior, Ruddick L, self-injury, severe intellectual disability, Stereotyped Behavior, total population, Trajectory, young-children
The Rett Syndrome Behaviour Questionnaire (RSBQ): refining the behavioural phenotype of Rett syndrome
Tags: 2002, Adolescents, behavioral problems, behavioural phenotype, breathing difficulties, Cass H, Charman T, Children, cpg-binding protein-2, Diagnosis, Epidemiology, Hastings R P, Intellectual Disability, Journal Of Child Psychology And Psychiatry, mecp2, mecp2 mutations, Mental Retardation, mental-retardation, Mount R H, population prevalence, Psychiatry, Psychology, psychopathology, Questionnaire, Reilly S, Rett syndrome, RSBQ, scale development, sleep disturbance, tone and motor problems, tool development, x-chromosome inactivation
Adaptive and maladaptive behaviour in children with Cri-du-chat syndrome
Incompatible with Care: Examining Trisomy 18 Medical Discourse and Families' Counter-discourse for Recuperative Ethos
Awareness of pediatric palliative care among health care workers
Upholding Ethical Decision Making in Children With Life Limiting Illnesses
Two Futures: Financial and Practical Realities for Parents of Living With a Life Limited Child
Tags: 2017, Adult, climacterium, Complication, Comprehensive Child and Adolescent Nursing, Coping Behavior, Critical Illness, economics, Empathy, etiology, Female, Human, June 2018 List, Male, Mental Stress, Nursing, Parent, Pediatric Intensive Care Unit, Psychology, Qualitative Research, Social Support
Posttraumatic growth in hospitalized children and adolescents
Content specificity of attention bias to threat in anxiety disorders: A meta-analysis
Tags: 2015, anxiety, Anxiety Disorders - psychology, Attention, Attention bias modification, Backlog, Bakermans-Kranenburg MJ, Bar-Haim Y, Clinical, Clinical Psychology Review, CONSCIOUS AWARENESS, EMOTIONAL STROOP, GENERALIZED SOCIAL PHOBIA, Journal Article, Naim R, OBSESSIVE-COMPULSIVE DISORDER, PANIC DISORDER, Pergamin-HL, PHYSICAL THREAT, Post-Traumatic Stress Disorder, PREATTENTIVE BIAS, PREFRONTAL CORTEX ACTIVATION, Psychology, SELECTIVE ATTENTION, THREAT, van Lizendoorn MH
Quantitative Evaluation of the Clinical Efficacy of Attention Bias Modification Treatment for Anxiety Disorders
Tags: 2015, Anxieties, anxiety, Anxiety Disorders, Anxiety Disorders - therapy, Backlog, Bar‐Haim Yair, Children, Clinical, Clinical Trials, Cognition, COGNITIVE-BEHAVIORAL THERAPY, computer, Confidence Intervals, Depression, Depression And Anxiety, GENERALIZED SOCIAL PHOBIA, INDIVIDUALS, Internet technology, Journal Article, Linetzky M, Meta-Analysis, MODIFICATION PROGRAM, Pergamin-HL, Pine DS, Psychiatry, Psychology, RANDOMIZED CONTROLLED-TRIAL, STIMULI, THREAT, Treatment
Psychosocial and spiritual needs of children living with a life-limiting illness
Tags: 2007, Activities of Daily Living, Backlog, Carroll JM, Child, Chronic Disease, Expressed Emotion, Health Services Needs And Demand, Humans, Interdisciplinary Communication, Journal Article, Kang T, Kehoe K, McSherry M, Pain/psychology/therapy, Palliative Care/methods, Patient Care Team, Pediatric Clinics of North America, Psychology, Rourke MT, Sibling Relations, Social Support, Spirituality
Self-portraits of families with young adult cancer survivors: using photovoice
Tags: 2010, Adolescent, Backlog, Ethnic Groups/statistics & numerical data, Family/psychology, Female, Humans, Journal Article, Journal Of Psychosocial Oncology, Male, Narration, Neoplasms/ethnology/psychology, Photography, Psychology, Quality Of Life/psychology, Questionnaires, Self Concept, Semantics, Socioeconomic Factors, Survivors/psychology, Voice, Yi J, Young Adult, Zebrack B