Browse Items (85 total)
- Tags: Psychology
PACOPED QL: Development and evaluation of the quality-of-life scale for children with life-Threatening illnesses
Tags: 2025, Adolescent, Child, Child Preschool, Chronic Disease, Cross-sectional Studies, Cross-sectional Study, devices, Female, Human, Humans, Male, March List 2025, PACOPED QL, Palliative And Supportive Care, Palliative Care, Palliative Therapy, Pediatric Palliative Care, Pediatrics, Pilot Projects, Pilot Study, Preschool Child, Procedures, Psychology, Psychometrics, psychometry, Quality Of Life, Questionnaire, Reliability, Reproducibility, Reproducibility of Results, Riera-Negre L, Rosselló MR, Surveys And Questionnaires, Validity, Varona J, Verger S
Nurses' knowledge of paediatric palliative care in a children's hospital
Tags: 2024, Adult, Attitude To Health, Child, Clinical Competence, Cross-sectional Study, de Noriega Í, Education, Female, Human, International Journal of Palliative Nursing, Male, March List 2025, Martín-Romero I, Middle Aged, Nursing Staff, palliative nursing, Palliative Therapy, Pediatric Hospital, Pediatric Nursing, Perez-Perez JT, Psychology, Questionnaire, Spain, Vázquez-Sánchez JM
The critical role of education in shaping nurses' attitudes and intentions towards neonatal palliative care: A network analysis
Tags: 2025, Adult, Behavior, China, Clinical Trial, Cross-sectional Study, Education, Female, Health Personnel Attitude, Hu Y, Huang X, Human, Kain V, Li X, Li Y, Li YX, Luo B, Male, March List 2025, Multicenter Study, Neonatal Nurse, Newborn, newborn nursing, Nurse Education Today, Palliative Therapy, Peng H, Procedures, Psychology, Questionnaire, Shi Z, Wan X, Yang R
Patient and Public Involvement Work With Parents of Children With Life-Limiting Conditions and Bereaved Parents: A Rapid Systematic Review
Nurses' beliefs in the care of newborns at the end of life in the neonatal intensive care unit
Tags: 2024, Adult, Attitude To Death, February List 2025, Female, Ferro TA, Health Personnel Attitude, Human, Male, Neonatal Intensive Care Unit, Newborn, newborn nursing, Psychology, Revista da Escola de Enfermagem da USP, Santos MRD, Silva LTPD, Silva-Rodrigues FM, Szylit R, Terminal Care, Young Adult
Experience of caregivers and healthcare professionals using a telemedicine programme in a paediatric palliative care unit
Tags: 2024, Adult, Cantero MJP, Caregiver, Carrasco AS, Child, Female, Health Care Personnel, Health Personnel Attitude, Human, International Journal of Palliative Nursing, Male, Middle Aged, November List 2024, Palliative Therapy, Pinero JMG, Procedures, Psychology, Qualitative Research, Rodriguez AM, Telemedicine
Health-illness transition processes in children with complex chronic conditions and their parents: a scoping review
Tags: 2024, Adaptation Psychological, Adolescent, Article, Awareness, Bmc Pediatrics, Burnout, Charepe Z, Child, Child Preschool, Chronic Disease, Continuity Of Patient Care, Decision Making, Diagnostic Accuracy, family functioning, Ferreira AM, geographic distribution, health care organization, health practitioner, Health Promotion, Health Transition, healthcare, Hospitalization, Human, Humans, immunosuppressive treatment, Infant, Interpersonal Communication, investment, Loura D, Medical Education, Palliative Therapy, Parent, Parents, Patient Care, Polypharmacy, population dynamics, Preschool Child, Prevalence, psychological adjustment, Psychology, Quality Of Life, Questionnaire, Romeiro J, Scoping review, September List 2024, Sleep Quality, Terminal Care, Therapy, Transitional Care, VULNERABILITY, Young Adult
Feasibility of a Serious Illness Communication Program for Pediatric Advance Care Planning
Tags: 2024, Adolescent, Adult, Advance Care Planning, Bernacki RE, Cohort Analysis, Critical Illness, DeCourcey DD, Feasibility Study, Female, Human, Human Relation, Interpersonal Communication, JAMA Network Open, Lach S, Male, Nava-Coulter B, Parent, Pediatrics, Pilot Study, Procedures, Psychology, September List 2024, Therapy, Wolfe J, Xiong N, Young Adult
Parental Perceptions of the Impact of a Child’s Complex Chronic Condition: A Validation Study of the Impact on Family Scale
Tags: 2024, Adolescent, Adult, Alves SP, Article, August List 2024, Braz AC, Cerebral Palsy, Child, Child Health, Childhood Disease, Chronic Disease, cohesion, confirmatory factor analysis, construct validity, Disease, Educational Status, Emotional Stress, Family Life, family relation, Family Relations, Female, Fontaine AM, Graça L, Human, Humans, impact on family, Impact on Family Scale, International Journal of Environmental Research and Public Health, life satisfaction, Likert scale, Male, Middle Aged, Parent, parental care, Parents, pediatric complex chronic illness, Perception, Personal Satisfaction, Portugal, Psychology, psychometry, Questionnaire, Reproducibility, Reproducibility of Results, Satisfaction, satisfaction with life, scoring system, social cohesion, sociodemographics, Surveys And Questionnaires, test retest reliability, validation study
Maintaining Parental Roles During Neonatal End-of-Life Care: A Review of the Literature
Outcomes of critically ill children with pre-existing mental health conditions
Psychiatry and interdisciplinary pediatric palliative care: a scoping review
Tags: 2024, Adolescent, adolescents and young adults (AYAs), Advance Care Planning, Annals Of Palliative Medicine, Child, Cress AE, Humans, Interdisciplinary palliative care (interdisciplinary PC), May List 2024, Medical Oncology, Neoplasmspsychology, Palliative Care, Palliative Caremethods, Pediatric Palliative Care (ppc), Psychiatry, Psychology, Young Adult
Psychologists as Pivotal Members of the Pediatric Palliative Care Team
Tags: 2024, Adolescent, April List 2024, Article, Child, Consensus, Diagnosis, Drug Therapy, evidence based practice, Human, interdisciplinary research, Journal of Pain and Symptom Management, Kentor RA, McCarthy SR, Palliative Care, Palliative Therapy, Psychologist, Psychology, Quality Of Life, Schaefer MR, Therapy, Thompson AL
When a Child Dies in the PICU Despite Ongoing Life Support
Tags: 2018, Butt WW, Child, Clark JD, Death, Dryden-Palmer K, Family, Human, Human Relation, Lewis-Newby M, Long Term Care, March List 2024, Only Child, Palliative Therapy, Parshuram CS, Pediatric Critical Care Medicine, Pediatric Intensive Care Unit, Psychology, Resuscitation, Terminal Care, Treatment Outcome, Treatment Withdrawal, Truog RD, Uncertainty
Ethical, Cultural, Social, and Individual Considerations Prior to Transition to Limitation or Withdrawal of Life-Sustaining Therapies
Tags: 2018, Balit CR, Carnevale FA, Child, Child Parent Relation, Critical Illness/th [therapy], Decision Making, Ethics, Female, Human, Kirsch RE, Larcher V, Latour JM, Male, March List 2024, Patient Participation, Pediatric Critical Care Medicine, Pediatric Intensive Care Unit, Psychology, social media, Terminal Care, transcultural care, Treatment Withdrawal
Palliative Care for Infants in the Neonatal Intensive Care Unit: A Scoping Review
Family-Centered Culture Care: Touched by an Angel
Tags: 2019, Attitude To Death, Child, cultural anthropology, Empathy, Ethics, ethnology, Family Nursing, Hernandez JA, Hinduism, Human, Human Relation, Impatiens, Infant, Journal of Clinical Ethics, March List 2024, Mental Stress, Morality, Newborn, Nursing Staff, Psychology, Religion, touch, Treatment Refusal
Discussing Death as a Possible Outcome of PICU Care
Tags: 2018, Attitude To Death, Child, Critical Illness, Death, Decision Making, doctor patient relationship, Family, Female, Gilleland JC, Human, Interpersonal Communication, Male, March List 2024, Parshuram CS, Pediatric Critical Care Medicine, Pediatric Intensive Care Unit, Physician, Psychology, Risk Assessment, Terminal Care, Uncertainty
Chinese Neonatal Nurses' Lived Experiences of Providing End-of-Life Care in the NICU: A Descriptive Phenomenological Study
Parent Priorities in End-of-Life Care for Children With Cancer
Tags: 2023, 2023 SE3 - Oncology, Ananth P, Bayes Theorem, Boyden JY, Child, Child Parent Relation, Cross-sectional Study, de Oliveira S, Death, Female, Feudtner C, Gross CP, Human, JAMA Network Open, Kirch R, Lindsay M, Ma X, McCollum S, Middle Aged, Mun S, neoplasm/th [Therapy], Pitafi S, Psychology, Shabanova V, Terminal Care, Wolfe J
The care for oncologic patients undergoing pediatric palliative care and the griefs of a health team
Tags: 2023, 2023 SE3 - Oncology, Alves RSF, anxiety, Article, Cancer Diagnosis, Chronic Disease, Clinical Article, coronavirus disease 2019, Cross-sectional Study, de Sena JGM, de Vasconcelos AV, Female, Follow Up, Health Service, Human, Male, Melo CF, Palliative Care, Palliative Therapy, Pandemic, Psicooncologia, Psychology, Questionnaire, Ruiz EM, Semi Structured Interview, Teixeira LC
The Impact of End-of-Life Care Among Nurses Working in the Pediatric Intensive Care Unit
Diversity of Parent Emotions and Physician Responses During End-of-Life Conversations
Tags: 2023, Akkermans AA, Child, Child Parent Relation, Critical Illness, de Hoog M, de Vos MA, Death, Dijk PH, Emotion, Human, Kneyber MCJ, Linn AJ, Newborn, October List 2039, Pediatrics, Physician, Prins S, Psychology, Simons SHP, Smets EMA, van de Loo M, van Heerde M, van Kaam AHLC, van Woensel JBM
Bereaved Caregivers Perspectives of Negative Communication Experiences Near the End of Life for Adolescents and Young Adults with Cancer
Tags: 2022, 2022 Special Edition 3 - Oncology List, Adolescent, adolescent and young adult, Bakitas M, Cancer, Caregiver, Communication, Currie ER, Death, End Of Life, Female, Gilbertson-White S, Human, interpersonal, Journal Of Adolescent And Young Adult Oncology, Keenan MA, Lindley LC, Mack JW, Neoplasm, Palliative Care, Physician-patient relationship, Psychology, Roeland EJ, Schulz GL, Sisk BA, Terminal Care, Young Adult
Short-term Focused Feedback: A Model to Enhance Patient Engagement in Research and Intervention Delivery
Tags: 2021, 2023 SE1 - Parent Perspectives, Academies and Institutes, Aftercare/psychology, Auger KA, Gold JM, House Calls, Medical Care, Patient Outcome Assessment, Patient Participation, Pediatric, Psychology, Sauers-Ford H, Shah SS, Simmons JM, Stakeholder Participation, Statile AM, statistics & numerical data, statistics & numerical data Child Focus Groups Hospitals, statistics & numerical data Humans Parents/psychology Patient Discharge, Time Factors, Transitional Care, Wade-Murphy S
What constitutes meaningful engagement for patients and families as partners on research teams?
Tags: 2018, 2023 SE1 - Parent Perspectives, Adult Aged, Aged, Attitude To Health, Black A, Canada, Caregivers, Chang W, Charlton SG, Family and Patient Participation, family engagement, Hamilton C, Journal of Health Services Research & Policy, McNamee K, patient engagement in research, Patient experience, patient-oriented research, Psychology, Qualitative, Research Subjects, Researcher-Subject Relations, Strain K, Wallsworth C, Young Adult
Parents' Decision-Making for their Foetus or Neonate with a Severe Congenital Heart Defect
Tags: Child, Female, Fetus, Infant, Male, Newborn, Parents, Qualitative Research, 2022, Adult, Brown H, Cardiology In The Young, Congenital, Decision-making, Delaney RK, Donofrio MT, Fagerlin A, Heart Defects, Humans, Karasawa M, Miller SG, November 2022 List, Ozanne EM, Patel A, Pinto NM, Pregnancy, Psychology, Stark LA, Steltzer MM, Watt MH, Zickmund SL
Longitudinal Perinatal Palliative Care for Severe Fetal Neurologic Diagnoses
Fifteen-minute consultation: How to communicate with parents who have a child on life support with no hope of recovery
Pediatric Advance Care Planning and Families' Positive Caregiving Appraisals: An RCT
Fifteen-minute consultation: How to approach the withdrawal of neonatal intensive care
Parents' perspectives on conflict in paediatric healthcare: A scoping review
The Phenomenon of Bereaved Parenting: An Integrative Review of Literature
Tags: 2021, Bereavement, Communication, Conflict (Psychology), Coping, Emotions, Family Role, Grief, Haylett WJ, Human, March 2021 List, Omega: Journal Of Death & Dying, Parental Role, Parenting, Parents -- Psychosocial Factors, Psychology, Science, Scott Tilley D, Social Work, Survivors, Systematic Review
Play in Children With Life-Threatening and Life-Limiting Conditions: A Scoping Review
Variations of Stereotypies in Individuals With Rett Syndrome: A Nationwide Cross-Sectional Study in Taiwan
Tags: 2017, Autism, Autism Research, Behavioral Sciences, bruxism, CDKL5, characteristics, chinese patients, Disorders, Epilepsy, Ganglia, girls, hair pulling, Hung P L, Jan T Y, Lee W T, lip protrusion, manifestations, mecp2, mecp2 mutations, motor stereotypies, Movement Disorders, Psychology, retropulsion, Rett syndrome, stereotypies, stereotypy, tone and motor problems, Trajectory, Wong L C
Comparing PECS and VOCA to promote communication opportunities and to reduce stereotyped behaviors by three girls with Rett syndrome
Tags: 2 boys, 2014, Albano V, Augmentative and alternative communication, Autism, contact, Damiani R, De Pace C, DEVELOPMENTAL, Developmental-disabilities, Di Leone A, Disabilities, Education & Educational Research, environmental stimuli, Indices of happiness, keyboard emulator, microswitch-based programs, motor disabilities, Perilli V, physical intervention, Picture exchange communication systems, profound multiple disabilities, Psychiatry, Psychology, Quality Of Life, quality-of-life, Rehabilitation, Research In Autism Spectrum Disorders, Rett syndrome, Social, spectrum disorders, Stasolla F, stereotypies, tone and motor problems, Vocal output communication aid
The Association Between Repetitive, Self-Injurious and Aggressive Behavior in Children With Severe Intellectual Disability
Tags: 2012, adults, Aggression, Autism spectrum disorder, Bacarese-Hamilton M, behavioral problems, challenging behavior, challenging behaviors, characteristics, de-lange-syndrome, handicap, high frequency repetitive behavior, Intellectual Disability, Journal of Autism and Developmental Disorders, learning-disabilities, Mental, Oliver C, People, Petty J, Prevalence, Psychology, psychotropic medication, repetitive behavior, risk-factors, ritualistic behavior, Ruddick L, self-injury, severe intellectual disability, Stereotyped Behavior, total population, Trajectory, young-children
The Rett Syndrome Behaviour Questionnaire (RSBQ): refining the behavioural phenotype of Rett syndrome
Tags: 2002, Adolescents, behavioral problems, behavioural phenotype, breathing difficulties, Cass H, Charman T, Children, cpg-binding protein-2, Diagnosis, Epidemiology, Hastings R P, Intellectual Disability, Journal Of Child Psychology And Psychiatry, mecp2, mecp2 mutations, Mental Retardation, mental-retardation, Mount R H, population prevalence, Psychiatry, Psychology, psychopathology, Questionnaire, Reilly S, Rett syndrome, RSBQ, scale development, sleep disturbance, tone and motor problems, tool development, x-chromosome inactivation