Browse Items (62 total)
- Tags: Psychology
Bereaved Caregivers Perspectives of Negative Communication Experiences Near the End of Life for Adolescents and Young Adults with Cancer
Tags: 2022, 2022 Special Edition 3 - Oncology List, Adolescent, adolescent and young adult, Bakitas M, Cancer, Caregiver, Communication, Currie ER, Death, End Of Life, Female, Gilbertson-White S, Human, interpersonal, Journal Of Adolescent And Young Adult Oncology, Keenan MA, Lindley LC, Mack JW, Neoplasm, Palliative Care, Physician-patient relationship, Psychology, Roeland EJ, Schulz GL, Sisk BA, Terminal Care, Young Adult
Short-term Focused Feedback: A Model to Enhance Patient Engagement in Research and Intervention Delivery
Tags: 2021, 2023 SE1 - Parent Perspectives, Academies and Institutes, Aftercare/psychology, Auger KA, Gold JM, House Calls, Medical Care, Patient Outcome Assessment, Patient Participation, Pediatric, Psychology, Sauers-Ford H, Shah SS, Simmons JM, Stakeholder Participation, Statile AM, statistics & numerical data, statistics & numerical data Child Focus Groups Hospitals, statistics & numerical data Humans Parents/psychology Patient Discharge, Time Factors, Transitional Care, Wade-Murphy S
What constitutes meaningful engagement for patients and families as partners on research teams?
Tags: 2018, 2023 SE1 - Parent Perspectives, Adult Aged, Aged, Attitude To Health, Black A, Canada, Caregivers, Chang W, Charlton SG, Family and Patient Participation, family engagement, Hamilton C, Journal of Health Services Research & Policy, McNamee K, patient engagement in research, Patient experience, patient-oriented research, Psychology, Qualitative, Research Subjects, Researcher-Subject Relations, Strain K, Wallsworth C, Young Adult
Parents' Decision-Making for their Foetus or Neonate with a Severe Congenital Heart Defect
Tags: 2022, Child, Female, Fetus, Infant, Male, Newborn, Parents, Qualitative Research, Adult, Brown H, Cardiology In The Young, Congenital, Decision-making, Delaney RK, Donofrio MT, Fagerlin A, Heart Defects, Humans, Karasawa M, Miller SG, November 2022 List, Ozanne EM, Patel A, Pinto NM, Pregnancy, Psychology, Stark LA, Steltzer MM, Watt MH, Zickmund SL
Longitudinal Perinatal Palliative Care for Severe Fetal Neurologic Diagnoses
Fifteen-minute consultation: How to communicate with parents who have a child on life support with no hope of recovery
Pediatric Advance Care Planning and Families' Positive Caregiving Appraisals: An RCT
Fifteen-minute consultation: How to approach the withdrawal of neonatal intensive care
Parents' perspectives on conflict in paediatric healthcare: A scoping review
The Phenomenon of Bereaved Parenting: An Integrative Review of Literature
Tags: 2021, Bereavement, Communication, Conflict (Psychology), Coping, Emotions, Family Role, Grief, Haylett WJ, Human, March 2021 List, Omega: Journal Of Death & Dying, Parental Role, Parenting, Parents -- Psychosocial Factors, Psychology, Science, Scott Tilley D, Social Work, Survivors, Systematic Review
Play in Children With Life-Threatening and Life-Limiting Conditions: A Scoping Review
Variations of Stereotypies in Individuals With Rett Syndrome: A Nationwide Cross-Sectional Study in Taiwan
Tags: 2017, Autism, Autism Research, Behavioral Sciences, bruxism, CDKL5, characteristics, chinese patients, Disorders, Epilepsy, Ganglia, girls, hair pulling, Hung P L, Jan T Y, Lee W T, lip protrusion, manifestations, mecp2, mecp2 mutations, motor stereotypies, Movement Disorders, Psychology, retropulsion, Rett syndrome, stereotypies, stereotypy, tone and motor problems, Trajectory, Wong L C
Comparing PECS and VOCA to promote communication opportunities and to reduce stereotyped behaviors by three girls with Rett syndrome
Tags: 2 boys, 2014, Albano V, Augmentative and alternative communication, Autism, contact, Damiani R, De Pace C, DEVELOPMENTAL, Developmental-disabilities, Di Leone A, Disabilities, Education & Educational Research, environmental stimuli, Indices of happiness, keyboard emulator, microswitch-based programs, motor disabilities, Perilli V, physical intervention, Picture exchange communication systems, profound multiple disabilities, Psychiatry, Psychology, Quality Of Life, quality-of-life, Rehabilitation, Research In Autism Spectrum Disorders, Rett syndrome, Social, spectrum disorders, Stasolla F, stereotypies, tone and motor problems, Vocal output communication aid
The Association Between Repetitive, Self-Injurious and Aggressive Behavior in Children With Severe Intellectual Disability
Tags: 2012, adults, Aggression, Autism spectrum disorder, Bacarese-Hamilton M, behavioral problems, challenging behavior, challenging behaviors, characteristics, de-lange-syndrome, handicap, high frequency repetitive behavior, Intellectual Disability, Journal of Autism and Developmental Disorders, learning-disabilities, Mental, Oliver C, People, Petty J, Prevalence, Psychology, psychotropic medication, repetitive behavior, risk-factors, ritualistic behavior, Ruddick L, self-injury, severe intellectual disability, Stereotyped Behavior, total population, Trajectory, young-children
The Rett Syndrome Behaviour Questionnaire (RSBQ): refining the behavioural phenotype of Rett syndrome
Tags: 2002, Adolescents, behavioral problems, behavioural phenotype, breathing difficulties, Cass H, Charman T, Children, cpg-binding protein-2, Diagnosis, Epidemiology, Hastings R P, Intellectual Disability, Journal Of Child Psychology And Psychiatry, mecp2, mecp2 mutations, Mental Retardation, mental-retardation, Mount R H, population prevalence, Psychiatry, Psychology, psychopathology, Questionnaire, Reilly S, Rett syndrome, RSBQ, scale development, sleep disturbance, tone and motor problems, tool development, x-chromosome inactivation
Adaptive and maladaptive behaviour in children with Cri-du-chat syndrome
Incompatible with Care: Examining Trisomy 18 Medical Discourse and Families' Counter-discourse for Recuperative Ethos
Awareness of pediatric palliative care among health care workers
Upholding Ethical Decision Making in Children With Life Limiting Illnesses
Two Futures: Financial and Practical Realities for Parents of Living With a Life Limited Child
Tags: 2017, Adult, climacterium, Complication, Comprehensive Child and Adolescent Nursing, Coping Behavior, Critical Illness, economics, Empathy, etiology, Female, Human, June 2018 List, Male, Mental Stress, Nursing, Parent, Pediatric Intensive Care Unit, Psychology, Qualitative Research, Social Support
Posttraumatic growth in hospitalized children and adolescents
Content specificity of attention bias to threat in anxiety disorders: A meta-analysis
Tags: 2015, anxiety, Anxiety Disorders - psychology, Attention, Attention bias modification, Backlog, Bakermans-Kranenburg MJ, Bar-Haim Y, Clinical, Clinical Psychology Review, CONSCIOUS AWARENESS, EMOTIONAL STROOP, GENERALIZED SOCIAL PHOBIA, Journal Article, Naim R, OBSESSIVE-COMPULSIVE DISORDER, PANIC DISORDER, Pergamin-HL, PHYSICAL THREAT, Post-Traumatic Stress Disorder, PREATTENTIVE BIAS, PREFRONTAL CORTEX ACTIVATION, Psychology, SELECTIVE ATTENTION, THREAT, van Lizendoorn MH
Quantitative Evaluation of the Clinical Efficacy of Attention Bias Modification Treatment for Anxiety Disorders
Tags: 2015, Anxieties, anxiety, Anxiety Disorders, Anxiety Disorders - therapy, Backlog, Bar‐Haim Yair, Children, Clinical, Clinical Trials, Cognition, COGNITIVE-BEHAVIORAL THERAPY, computer, Confidence Intervals, Depression, Depression And Anxiety, GENERALIZED SOCIAL PHOBIA, INDIVIDUALS, Internet technology, Journal Article, Linetzky M, Meta-Analysis, MODIFICATION PROGRAM, Pergamin-HL, Pine DS, Psychiatry, Psychology, RANDOMIZED CONTROLLED-TRIAL, STIMULI, THREAT, Treatment
Psychosocial and spiritual needs of children living with a life-limiting illness
Tags: 2007, Activities of Daily Living, Backlog, Carroll JM, Child, Chronic Disease, Expressed Emotion, Health Services Needs And Demand, Humans, Interdisciplinary Communication, Journal Article, Kang T, Kehoe K, McSherry M, Pain/psychology/therapy, Palliative Care/methods, Patient Care Team, Pediatric Clinics of North America, Psychology, Rourke MT, Sibling Relations, Social Support, Spirituality
Self-portraits of families with young adult cancer survivors: using photovoice
Tags: 2010, Adolescent, Backlog, Ethnic Groups/statistics & numerical data, Family/psychology, Female, Humans, Journal Article, Journal Of Psychosocial Oncology, Male, Narration, Neoplasms/ethnology/psychology, Photography, Psychology, Quality Of Life/psychology, Questionnaires, Self Concept, Semantics, Socioeconomic Factors, Survivors/psychology, Voice, Yi J, Young Adult, Zebrack B
Brief report: psychosocial functioning of fathers as primary caregivers of pediatric oncology patients
Tags: 2007, Adult, Backlog, Bonner MJ, Caregivers/statistics & numerical data, Child, Disabled Children/statistics & numerical data, father experience, Fathers/psychology/statistics & numerical data, Hardy KK, Humans, Hutchinson KC, Journal Article, Journal of Pediatric Psychology, Male, Neoplasms/epidemiology, Psychological/diagnosis/epidemiology/psychology, Psychology, Questionnaires, Social Adjustment, Social Behavior, Stress, Willard VW
Research Review: attention bias modification (ABM): a novel treatment for anxiety disorders
Tags: 2010, Adolescents, Analysis, Anxieties, anxiety, Anxiety Disorders, Anxiety Disorders - diagnosis, Anxiety Disorders - psychology, Anxiety Disorders - therapy, Attention, Attentional bias, Backlog, Bar-Haim Y, Care And Treatment, Child Psychology, Children, Cognitive Restructuring, Cognitive Therapy, Cognitive Therapy/methods, COGNITIVE-BEHAVIORAL THERAPY, DEVELOPMENTAL, Drug Therapy, EMOTIONAL FACES, EXPERIMENTAL MANIPULATION, Health Aspects, Journal Article, Journal Of Child Psychology And Psychiatry, Medical Research, Medical treatment, Outcomes of Treatment, Psychiatry, Psychology, RANDOMIZED CLINICAL-TRIAL, SCHIZOPHRENIA, SOCIAL PHOBIA, Therapy, THREAT, VISUAL-ATTENTION
A difference in perception of quality of life in chronically ill children was found between parents and pediatricians
Tags: [95% CI 2.00-11.22]), [95% CI 2.88-18.97], 2005, Acute, Adolescent Arthritis, and asthma (2.3, Backlog, Gemke RJ, Janse AJ, Journal Article, Journal Of Clinical Epidemiology, juvenile idiopathic arthritis (4.7, Juvenile Rheumatoid/physiopathology/psychology/rehabilitation Asthma/physiopathology/psychology/rehabilitation Child Child, Kimpen JL, Lymphocytic, Pediatrics, PedPal Lit, physiology Male Pain, physiopathology, physiopathology Parents, Preschool Chronic Disease/psychology/, Psychology, Quality Of Life, rehabilitation Cognition Cross-Sectional Studies Cystic Fibrosis, rehabilitation Emotions Female Health Status Indicators Humans Infant Leukemia, rehabilitation Locomotion, Sinnema G, Social Perception Speech/physiology, Uiterwaal CS
Medical, surgical, and health outcomes of gastrostomy feeding
Tags: 2006, Adolescent, Anthropometry, Backlog, Carr LJ, Cass H, Child, Cognition Disorders/epidemiology, Craig GM, Developmental Medicine and Child Neurology, Diet Records, Disabled Children, Female, Gastrostomy/statistics & numerical data, Hastings RP, Health Status, Humans, Infant, Journal Article, Lawson M, Male, Motor Skills Disorders/epidemiology, Nutritional Failure, Nutritional Status, Postoperative Complications/epidemiology, Preschool, Prospective Studies, Psychology, Reilly S, Ryan M, Spitz L, Townsend J
Quality of life in chronic illness: perceptions of parents and paediatricians
Tags: 2005, Acute/psychology/rehabilitation Longitudinal Studies Pain Measurement Parents/, Adolescent Arthritis, Archives of Disease in Childhood, at baseline and follow up, Backlog, but also after a period of follow up, differences at follow up did not decrease compared to baseline. CONCLUSION: At the onset of a chronic disease, especially in the subjective attributes. Systematic assessment of quality of life may contribute to better understanding between(TRUNCATED), Gemke RJ, Janse AJ, Journal Article, juvenile idiopathic arthritis, Juvenile Rheumatoid/psychology/rehabilitation Asthma/psychology/rehabilitationAttitude of Health Personnel Child Child, Kimpen JL, Lymphocytic, not only at diagnosis but also after a period of follow up. Differences were particularly clear in the subjective attributes emotion (range of agreement 28-68%) and pain/discomfort (range of agreement 11-33%). In all patient groups, Pediatrics Perception Pneumonia/complications, PedPal Lit, Preschool Chronic Disease/psychology/rehabilitation Cystic Fibrosis/complications/psychology/rehabilitation Emotions Health Status Humans Infant Leukemia, Psychology, Quality Of Life, quality of life of paediatric patients may be misunderstood by healthcare professionals, Sinnema G, the paediatrician asse ssed the patient to have less pain/discomfort in comparison to the parents. Despite a prolonged patient- paediatrician relationship, Uiterwaal CS
Parental grieving after a child dies from cancer: is stress from stem cell transplant a factor?
Tags: 2005, Adaptation, Backlog, Drew D, Foreman T, Goodenough B, Grief Health Services Needs and Demand Humans Male Mass Screening Neoplasms/psychology/, International Journal of Palliative Nursing, Journal Article, Maurice L, Non-U.S. Gov't Risk Assessment Risk Factors Stem Cell Transplantation/, PedPal Lit, Psychological Adult Analysis of Variance Anxiety/psychology Attitude to Death Attitude to Health Case-Control Studies Child Cross-Sectional Studies Depression/psychology Female, Psychological/diagnosis/etiology/, Psychology, psychology Questionnaires Research Support, Stress (Psychology), therapy New South Wales Nursing Assessment Nursing Methodology Research Parents/, Willis L
Palliative care management of a child with juvenile onset Huntington's disease
Tags: 2005, Adolescent Adolescent Psychology Attitude to Death Attitude to Health Conscious Sedation, Backlog, complications, etiology, International Journal of Palliative Nursing, Journal Article, King N, Methods, methods England Family, methods Grief Helping Behavior Hospices, organization & administration, organization & administration Humans Huntington Disease, Organizational Nursing Assessment Pain, PedPal Lit, prevention & control Palliative Care, Psychology, psychology Female Gastrostomy, psychology Patient Care Planning Patient Care Team, the issues around terminal care management are very similar to those for any neuro-degenerative disorder, therapy Models
The palliative care nurse's role in supporting the adolescent child of a dying patient
Tags: 2005, Adaptation, Adolescent Psychology/ethics Adult Attitude to Death Bereavement Female Helping Behavior Humans Information Services Internet Life Change Events Neoplasms/nursing/psychology Nurse's Role/, Backlog, International Journal of Palliative Nursing, Journal Article, Methods, PedPal Lit, Professional-Family Relations/ethics Prognosis Social Support Truth Disclosure/ethics, Psychological/ethics Adolescent, Psychology, psychology Palliative Care/ethics/, Sweetland C
Factors related to the quality of life in adolescents with chronic pain
Tags: 2006, Adolescent, Backlog, Child, Chronic Disease, Cross-sectional Studies, Female, Hazebroek-Kampschreur AA, Humans, Hunfeld JA, Journal Article, Koes BW, Male, Merlijn VP, Netherlands/epidemiology, Pain Measurement, Pain/diagnosis/epidemiology/psychology, Passchier J, PedPal Lit, Prognosis, Psychology, Quality Of Life, Questionnaires, Risk Assessment/methods, Risk Factors, The Clinical Journal Of Pain, van der Wouden JC
Chronic abdominal pain in children: an update
Tags: 2006, Abdominal Pain/diagnosis/epidemiology/therapy, Adolescent, Backlog, Child, Chronic Disease, Combined Modality Therapy, Continuing, Education, Female, Friesen CA, Gastrointestinal Diseases/diagnosis/epidemiology/therapy, Humans, Journal Article, Male, Medical, Missouri Medicine, Missouri/epidemiology, Pain Measurement, PedPal Lit, Preschool, Prevalence, Prognosis, Psychology, Risk Assessment, Schurman JV, Severity Of Illness Index, Socioeconomic Factors
Bereavement outcomes for parents who lose a child to cancer: are place of death and sex of parent associated with differences in psychological functioning?
Tags: 2004, Adaptation, Adult, Anxiety/diagnosis/epidemiology/psychology, Attitude To Death, Backlog, Bereavement, Child, Depression/diagnosis/epidemiology/psychology, Drew D, Female, Goodenough B, Higgins S, Humans, Journal Article, Location Of Death, Longitudinal Studies, Male, Outcome Assessment (health Care), Parents/psychology, Psycho-Oncology, Psychological, Psychology, Questionnaires, Sex Factors, Trethewie S
Changing geographies of care: employing the concept of therapeutic landscapes as a framework in examining home space
Tags: 2002, Aged, Backlog, Caregivers/psychology, Cost-Benefit Analysis, Delivery of Health Care/trends, Female, Geography, Home Nursing/economics/psychology, Hospitalization, Humans, Journal Article, Non-U.S. Gov't, Patient-centered Care, Psychology, Research Support, Self Concept, Social, Social Change, Social Environment, Social Responsibility, Social science & medicine, Williams A, Women/psychology
Recommendations for using opioids in chronic non-cancer pain
Tags: 2003, Allan L, Analgesics, Backlog, Biomarkers of Pain, Chronic Disease, Dellemijn PL, Drug Administration Schedule, European Journal Of Pain, Faura CC, Humans, Ilias WK, Jensen TS, Journal Article, Kalso E, Opioid/therapeutic use, Pain/drug Therapy, Patient Education, Perrot S, Plaghki LH, Psychology, Quality Of Life/psychology, Zenz M
A review of subjective impact measures for use with children and adolescents with epilepsy
Tags: 2004, Adolescent Child Child, Backlog, Baker GA, Cowan J, instrumentation Quality of Life, Journal Article, PedPal Lit, physiopathology/psychology Female Great Britain Humans Male Outcome Assessment (Health Care) Psychometrics/, Preschool Epilepsy/, Psychology, Quality of Life Research, Sickness Impact Profile