Longitudinal Perinatal Palliative Care for Severe Fetal Neurologic Diagnoses

Title

Longitudinal Perinatal Palliative Care for Severe Fetal Neurologic Diagnoses

Creator

Humphrey L M; Schlegel AB

Publisher

Seminars in Pediatric Neurology

Date

2022

Subject

Family psychology; Female; Fetal; Diseases; Humans; Infant; Newborn Palliative Care; Psychology; Parents; Perinatal Care; Pregnancy; Prenatal Diagnosis

Description

Perinatal palliative care (PnPC) focuses on enhancing family and newborn quality-of-life in the setting of a life-limiting fetal condition while simultaneously ensuring medical care delivery that is soundly in line with the family's goals and values. The inclusion of PnPC in the multidisciplinary care of a family facing severe fetal neurologic diagnoses allows for skilled exploration of the values and experience that ultimately drive creation of goals of care. The parental experience of receiving a life-limiting fetal diagnosis pushes parents into an emotional journey, which typically follows a recognizable progression of stages. PnPC providers appreciate the significance of this experiential journey and the importance of parental movement toward readiness to simultaneously welcome and mourn their child. Through longitudinal supportive care, beginning early in the fetal diagnostic progress and continuing throughout pregnancy and into the newborn period, PnPC providers explore the uncharted parental experience alongside the family and support them in creating value-driven care plans for their child. They contribute greatly to the multidisciplinary fetal and neonatal care teams as the advocate for and promote insightful communication and assist in delivery and coordination of value-driven care.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

October 2022 List

Collection

Citation

Humphrey L M; Schlegel AB, “Longitudinal Perinatal Palliative Care for Severe Fetal Neurologic Diagnoses,” Pediatric Palliative Care Library, accessed February 7, 2023, https://pedpalascnetlibrary.omeka.net/items/show/18395.

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