Eat, sleep, internet and talk': an exploratory study of play profile for children living with palliative care needs

Title

Eat, sleep, internet and talk': an exploratory study of play profile for children living with palliative care needs

Creator

Jasem Z A; Darlington AS; Lambrick D; Randall DC

Publisher

Palliative Care Social Practice

Date

2022

Subject

palliative; care; play; vulnerable; children

Description

BACKGROUND: Play is central to children's lives. Children living with palliative care needs experience disruption in their play. In this study, we sought to discover the characteristics and patterns of children's play when receiving care in children's hospital wards and hospices in Kuwait and the United Kingdom. METHODS: A qualitative nonparticipatory observation design was used. Thirty-one children were observed, between the ages of 5 and 11 years, all diagnosed with life-limiting or life-threatening conditions and receiving palliative care. The data were analysed using content analysis. RESULTS: The children's illnesses were negatively impacting their ability to have typical play for their age and development. The children's interactive play was with grown-ups and very rarely with other children. This was associated with isolation precautions, the child's need for assistance and a lack of play resources that match children's physical and cognitive abilities. This gave rise to their engagement in more sedentary, solitary play. The findings of the study did not indicate significant cultural differences between the two countries. CONCLUSION: Children living with palliative care needs may be socially isolated due to their illnesses and their play participation can be limited. Understanding the influencing factors that determine these children's play is essential for implementing effective modifications to enhance their play routines.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

October 2022 List

Collection

Citation

Jasem Z A; Darlington AS; Lambrick D; Randall DC, “Eat, sleep, internet and talk': an exploratory study of play profile for children living with palliative care needs,” Pediatric Palliative Care Library, accessed February 2, 2023, https://pedpalascnetlibrary.omeka.net/items/show/18394.

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