Browse Items (12 total)
- Tags: Epidemiology
Place of death of children and young adults with a life-limiting condition in England: a retrospective cohort study
The mother's risk of premature death after child loss across two centuries
A description of adaptive and maladaptive behaviour in children and adolescents with Cri-du-chat syndrome
Tags: 2011, Adolescent, adults, behavioral problems, behaviour, Chappaz I O, characteristics, Child, Cri-du-chat, cri-du-chat syndrome, development, Education & Educational Research, Emerich D R, Epidemiology, Gatto K R, Genetics & Heredity, INDIVIDUALS, Journal Of Intellectual Disability Research, Kim C A, maladaptive behaviors, Neurology, Neurosciences &, Orsati F T, Prevalence, Psychiatry, Rehabilitation, Rimerio R C, Teixeira Mctv, Trajectory
Fatigue and depression in children with demyelinating disorders
Tags: 2013, acquired demyelinating syndromes, acute disseminated encephalomyelitis, Adolescent, alertness, Article, Benedict R H B, Canada, characteristics, Child, Child Behavior, Childhood Disease, Clinical Article, Cohort Analysis, Comorbidity, Controlled Study, Cross-sectional Study, demyelinating disease, demyelinating disorders, Depression, disease duration, Epidemiology, Fatigue, Female, Health Survey, Human, Journal of Child Neurology, Male, Mood, Multiple Sclerosis, Parrish J B, Priority Journal, psychological aspect, School Child, Self Report, Sleep, Smerbeck A, Therapy, Trajectory, Weinstock-Guttman B, Yeh E A
The Rett Syndrome Behaviour Questionnaire (RSBQ): refining the behavioural phenotype of Rett syndrome
Tags: 2002, Adolescents, behavioral problems, behavioural phenotype, breathing difficulties, Cass H, Charman T, Children, cpg-binding protein-2, Diagnosis, Epidemiology, Hastings R P, Intellectual Disability, Journal Of Child Psychology And Psychiatry, mecp2, mecp2 mutations, Mental Retardation, mental-retardation, Mount R H, population prevalence, Psychiatry, Psychology, psychopathology, Questionnaire, Reilly S, Rett syndrome, RSBQ, scale development, sleep disturbance, tone and motor problems, tool development, x-chromosome inactivation
Incontinence in Individuals with Rett Syndrome: A Comparative Study
Tags: 2012, adaptive functioning, Adolescents, behavioral-phenotype, bowel incontinence, characteristics, Children, Comparative Study, Curfs L M G, Didden R, Disorders, enuresis, Epidemiology, fecal incontinence, females, Giesbers S, Incontinence, Intellectual Disability, Journal of Developmental and Physical Disabilities, Korzilius H, Lang R, mental-retardation, Radstaake M, Rehabilitation, Rett syndrome, Smeets E, Trajectory, urinary incontinence, von Gontard A
Epidemiology of Children With Multiple Complex Chronic Conditions in a Mixed Urban-Rural US Community
All-cause mortality rates and home deaths decreased in children with life-limiting diagnoses in Denmark between 1994 and 2014
Tags: 2018, accident, Acta Paediatrica, International Journal of Paediatrics, Adolescent, Adult, all cause mortality, Article, automutilation, Child, Childhood Mortality, Chromosome Aberration, Congenital Malformation, Death, Denmark, Ekholm O, Epidemiology, Home, Human, Infant, Infant Mortality, International Classification of Diseases, Lykke C, Neoplasm, November 2018 List, Olsen M, Perinatal Death, Priority Journal, Schmiegelow K, Sjogren P
Paediatric palliative care: development and pilot study of a 'Directory' of life-limiting conditions
Problematic variation in local institutional review of a multicenter genetic epidemiology study
Tags: 2003, Backlog, Beaty T, Beck S, Biomedical and Behavioral Research, Cutting G, Cystic Fibrosis, Empirical Approach, Epidemiologic Measurements, Epidemiologic Research Design, Epidemiology, Ethics Committees, Genetic Research/ethics, Genetics and Reproduction, Hamosh A, Hoover-Fong JE, Humans, JAMA, Journal Article, McWilliams R, Molecular/ethics/standards, Multi-site Ethics, Multicenter Studies as Topic/ethics/standards, Research/ethics/standards, United States