Browse Items (22 total)
- Tags: Epidemiology
Epidemiological Assessment of a Pediatric Palliative Care Clinic at a Brazilian Quaternary Hospital: 20 Years of Experience
DIVERSITY IN ETHNICITY AND MAIN SPOKEN LANGUAGE OF CHILDREN REFERRED TO A SPECIALIST PAEDIATRIC PALLIATIVE CARE SERVICE
Tags: 2024, Aidoo E, Archives of Disease in Childhood, Caribbean, Caucasian, Central Asian, Child, conference abstract, Controlled Study, drug comparison, electronic patient record, England, Epidemiology, ethnic background, Ethnicity, Female, Human, Major Clinical Study, Male, Medical Specialist, national health service, October List 2024, Pakistani, Palliative Therapy, Patient Referral, South Asian, Therapy, Wright L
Virtual Bereavement Support Program in a Children's Hospice Care Center During COVID-19 Pandemic and Beyond
Tags: 2024, Allan-Wiseman S, Article, Bereavement, Bereavement Support, Child, Child Death, Controlled Study, coronavirus disease 2019, Epidemiology, Female, grandchild, Grief, Hospice Care, Human, Journal of social work in end-of-life and palliative care, Modanloo S, Ontario, Palliative Therapy, Pandemic, Pediatrics, September List 2024, Telehealth, Yazdani N
A protocol for neoWONDER: Neonatal whole population data linkage to improve long-term health and wellbeing of preterm and sick babies
Tags: 2024, Adult, Article, attention deficit hyperactivity disorder, Aveline A, Battersby C, behavior change, breast feeding, breast milk, Cause Of Death, Cohort Analysis, community mental health, congenital diaphragm hernia, Databases Factual, date of birth, Developmental delay, Educational Status, England, Epidemiology, esophagus atresia, factual database, Female, gastroschisis, Gestational Age, Health Care Utilization, Hirschsprung disease, hospital discharge, hospital readmission, Human, Humans, Infant Newborn, Infant Premature, information retrieval, Information Storage and Retrieval, Length Of Stay, Major Clinical Study, Male, Mortality Rate, Necrotizing Enterocolitis, Newborn, newborn assessment, Newborn Care, newborn surgery, Pediatric Intensive Care Unit, place of birth, PLoS One, premature labor, Prematurity, Propensity Score, routinely collected health data, school attendance, September List 2024, van Blankenstein E, Wales, Wellbeing
Prevalence and Mortality of Life-Threatening and Life-Shortening Diseases in Children and Adolescents in Germany
Tags: 2024, Adolescent, Article, Burgio NM, Cause Of Death, Child, Clinical Pediatrics, Diagnosis, Drug Therapy, Epidemiology, Germany, health Insurance, Human, Icd-10, Jennessen S, Lifespan, Major Clinical Study, Mortality, Newborn, outpatient care, Palliative Therapy, Preschool Child, Prevalence, secondary data analysis, September List 2024, special situation for pharmacovigilance
Comprehensive care programmes for children with medical complexity
Tags: 2024, Adolescent, adverse outcome, August List 2024, Bias, Caregiver, Child, Child Health Care, Child Preschool, Children With Medical Complexity, Chronic Disease, Cochrane Database of Systematic Reviews, Cohen E, community care, Comprehensive Health Care, Connell TG, Controlled Before-After Studies, controlled clinical trial (topic), Cox GR, D’Aprano AL, Decision Making, Emergency Health Service, Emergency Ward, Epidemiology, Functional Status, Gibb SM, Harvey AR, Health Care, Health Care Cost, Health Care Delivery, health care need, health care organization, Health Care Personnel, Health Care Quality, Health Care Utilization, health Insurance, Hospital Admission, hospital readmission, Human, Humans, Infant, Interrupted Time Series Analysis, life satisfaction, Medical Care, Meehan E, Merrick N, meta analysis, Mountford NJ, Multidisciplinary team, Multiple Chronic Conditions, Non-Randomized Controlled Trials as Topic, outcome assessment, Patient Safety, Perception, Preschool Child, Primary Health Care, Program Evaluation, pulmonary aspiration, Quality Of Health Care, Quality Of Life, Randomized Controlled Trial (topic), Randomized Controlled Trials as Topic, remuneration, Review, social determinants of health, Social Worker, statistical bias, Survival Rate, Telemedicine, Therapy, Transition To Adult Care, Williams K
Increasing trend in patients with life-limiting and complex chronic conditions
Overview of Perinatal Palliative Care in Brazil
Tags: 2022, 2022 Special Edition Low Resource Setting Issue, America, Animals, Birth, Birth defects, Brazil, Brazilian Archives of Biology and Technology, Chordata, Community of Portuguese Language Countries, Congenital Abnormalities, Congenital malformations, de Moraes AMSM, drug abusers, drug users, epidemics, Epidemiology, Eukaryotes, Favero GM, gestation, Guidelines, Health Care, high Human Development Index countries, Hominidae, Homo, Human Diseases, Latin America, Malformations, Mammals, Man, microcephaly, Mothers, Neonates, Palliative Care, Pregnancy, Primates, Quality Of Life, Recommendations, Saffi Junior MC, South America, upper-middle income countries, Vertebrates, Women
Use of the interRAI PEDS HC in Children Receiving Home Care in Ontario, Canada
COVID-19 in pediatric palliative care: what can we learn from the pandemic and possible future directions
Place of death of children and young adults with a life-limiting condition in England: a retrospective cohort study
The mother's risk of premature death after child loss across two centuries
A description of adaptive and maladaptive behaviour in children and adolescents with Cri-du-chat syndrome
Tags: 2011, Adolescent, adults, behavioral problems, behaviour, Chappaz I O, characteristics, Child, Cri-du-chat, cri-du-chat syndrome, development, Education & Educational Research, Emerich D R, Epidemiology, Gatto K R, Genetics & Heredity, INDIVIDUALS, Journal Of Intellectual Disability Research, Kim C A, maladaptive behaviors, Neurology, Neurosciences &, Orsati F T, Prevalence, Psychiatry, Rehabilitation, Rimerio R C, Teixeira Mctv, Trajectory
Fatigue and depression in children with demyelinating disorders
Tags: 2013, acquired demyelinating syndromes, acute disseminated encephalomyelitis, Adolescent, alertness, Article, Benedict R H B, Canada, characteristics, Child, Child Behavior, Childhood Disease, Clinical Article, Cohort Analysis, Comorbidity, Controlled Study, Cross-sectional Study, demyelinating disease, demyelinating disorders, Depression, disease duration, Epidemiology, Fatigue, Female, Health Survey, Human, Journal of Child Neurology, Male, Mood, Multiple Sclerosis, Parrish J B, Priority Journal, psychological aspect, School Child, Self Report, Sleep, Smerbeck A, Therapy, Trajectory, Weinstock-Guttman B, Yeh E A
The Rett Syndrome Behaviour Questionnaire (RSBQ): refining the behavioural phenotype of Rett syndrome
Tags: 2002, Adolescents, behavioral problems, behavioural phenotype, breathing difficulties, Cass H, Charman T, Children, cpg-binding protein-2, Diagnosis, Epidemiology, Hastings R P, Intellectual Disability, Journal Of Child Psychology And Psychiatry, mecp2, mecp2 mutations, Mental Retardation, mental-retardation, Mount R H, population prevalence, Psychiatry, Psychology, psychopathology, Questionnaire, Reilly S, Rett syndrome, RSBQ, scale development, sleep disturbance, tone and motor problems, tool development, x-chromosome inactivation
Incontinence in Individuals with Rett Syndrome: A Comparative Study
Tags: 2012, adaptive functioning, Adolescents, behavioral-phenotype, bowel incontinence, characteristics, Children, Comparative Study, Curfs L M G, Didden R, Disorders, enuresis, Epidemiology, fecal incontinence, females, Giesbers S, Incontinence, Intellectual Disability, Journal of Developmental and Physical Disabilities, Korzilius H, Lang R, mental-retardation, Radstaake M, Rehabilitation, Rett syndrome, Smeets E, Trajectory, urinary incontinence, von Gontard A
Epidemiology of Children With Multiple Complex Chronic Conditions in a Mixed Urban-Rural US Community
All-cause mortality rates and home deaths decreased in children with life-limiting diagnoses in Denmark between 1994 and 2014
Tags: 2018, accident, Acta Paediatrica, International Journal of Paediatrics, Adolescent, Adult, all cause mortality, Article, automutilation, Child, Childhood Mortality, Chromosome Aberration, Congenital Malformation, Death, Denmark, Ekholm O, Epidemiology, Home, Human, Infant, Infant Mortality, International Classification of Diseases, Lykke C, Neoplasm, November 2018 List, Olsen M, Perinatal Death, Priority Journal, Schmiegelow K, Sjogren P
Paediatric palliative care: development and pilot study of a 'Directory' of life-limiting conditions
Problematic variation in local institutional review of a multicenter genetic epidemiology study
Tags: 2003, Backlog, Beaty T, Beck S, Biomedical and Behavioral Research, Cutting G, Cystic Fibrosis, Empirical Approach, Epidemiologic Measurements, Epidemiologic Research Design, Epidemiology, Ethics Committees, Genetic Research/ethics, Genetics and Reproduction, Hamosh A, Hoover-Fong JE, Humans, JAMA, Journal Article, McWilliams R, Molecular/ethics/standards, Multi-site Ethics, Multicenter Studies as Topic/ethics/standards, Research/ethics/standards, United States