Browse Items (83 total)

Tags: 2024, Adolescent, Advance Care Planning, Aged, Archives of Disease in Childhood, Child, conference abstract, Human, Infant, Jassal S, Major Clinical Study, Newborn, October List 2024, Palliative Therapy, Parry-Reece J, Pediatric Intensive Care Unit, Prevalence, Retrospective Study, Soman A, special situation for pharmacovigilance, Terminal Care, Therapy, time of death

Tags: 2024, Adult, Archives of Disease in Childhood, Brown K, Child, conference abstract, Degenerative Disease, Drug Therapy, Health Care Personnel, Human, Life Expectancy, McCusker K, muscarinic receptor blocking agent, October List 2024, Palliative Therapy, prescription, Prevalence, Scotland, Seizure, Spasticity, Therapy, Young Adult

Tags: 2024, Adolescent, Adult, Agosto C, Analgesia, Article, Avagnina I, Baratiri F, Benini F, Caregiver, Caregiver Burden, Child, Children, Cross-sectional Study, Divisic A, drug cost, Drug Safety, eye drops, Female, Human, Infant, Maghini I, Male, Mengato D, nose spray, Observational Study, October List 2024, off label drug use, Palliative Therapy, Pediatrics, Pharmacoeconomics, Pivato L, Polypharmacy, Prevalence, Quality Of Life, Questionnaire, Roverato B, Rusalen F, special situation for pharmacovigilance, typographical error, Venturini F, Zanin A

Tags: 2024, Adaptation Psychological, Adolescent, Article, Awareness, Bmc Pediatrics, Burnout, Charepe Z, Child, Child Preschool, Chronic Disease, Continuity Of Patient Care, Decision Making, Diagnostic Accuracy, family functioning, Ferreira AM, geographic distribution, health care organization, health practitioner, Health Promotion, Health Transition, healthcare, Hospitalization, Human, Humans, immunosuppressive treatment, Infant, Interpersonal Communication, investment, Loura D, Medical Education, Palliative Therapy, Parent, Parents, Patient Care, Polypharmacy, population dynamics, Preschool Child, Prevalence, psychological adjustment, Psychology, Quality Of Life, Questionnaire, Romeiro J, Scoping review, September List 2024, Sleep Quality, Terminal Care, Therapy, Transitional Care, VULNERABILITY, Young Adult

Tags: 2024, Adolescent, Article, Burgio NM, Cause Of Death, Child, Clinical Pediatrics, Diagnosis, Drug Therapy, Epidemiology, Germany, health Insurance, Human, Icd-10, Jennessen S, Lifespan, Major Clinical Study, Mortality, Newborn, outpatient care, Palliative Therapy, Preschool Child, Prevalence, secondary data analysis, September List 2024, special situation for pharmacovigilance

Tags: 2024, Anales de Pediatría, Andrés de Llano J, August List 2024, Chronic Disease, del Villar Guerra P, Epidemiology, Hospitalization, Marugán de Miguelsanz JM, Ochoa-Brezmes J, Palliative Care, Prevalence

Tags: 2024, Article, Barbosa SMDM, Bueno C, Child, Cohort Analysis, Controlled Study, Data Analysis Software, disease surveillance, do Nascimento AG, energy deficiency type metabolic disorders, Female, Follow Up, Freitas E, Henrique AC, Human, Journal Of Inherited Metabolic Disease, July List 2024, Kok F, Long Term Care, Major Clinical Study, Male, Metabolic Diseases, metabolic disorder/di [Diagnosis], metabolic disorder/ep [Epidemiology], Metabolism, Outpatient, Palliative Care, Palliative Therapy, PASW statistics 25.0 software, Pathology, pathophysiology, patient monitoring, pediatric patient, Pediatrics, Polastrini RTV, Prevalence, Pugliese C, Retrospective Study, sphingolipidosis, Spolador GM, Zoboli I

Tags: 2024, abdominal pain, Adolescent, Andes Pediatrica, Article, Bernada Scarrone MM, Child, Constipation, Consultation, Diarrhea, digestive prosthesis, digestive system hemorrhage, Dysphagia, Gastrointestinal Symptom, Gastrostomy, Human, Infant, Le Pera Garofalo V, Major Clinical Study, May List 2024, mucosa inflammation, Multicenter Study, Nausea, Observational Study, Palliative Care, Palliative Therapy, pediatric patient, Preschool Child, Prevalence, Prospective Study, Quality Of Life, Questionnaire, School Child, Vomiting

Tags: 2024, Adolescent, April List 2024, Article, Burnout, Caregiver, Child, Controlled Study, Convenience Sample, Coping, Cross-sectional Study, Doolittle BR, Dying, Female, Human, International Journal of Psychiatry in Medicine, Job Satisfaction, job stress, life satisfaction, Male, Multidisciplinary team, Oberholzer AE, Palliative Care, Palliative Therapy, Prevalence, Qualitative Analysis, Religion, South Africa, terminally Ill Patient, work environment

Tags: 2019, April List 2024, Birth Weight, brain hemorrhage, Clinical Article, Cohort Analysis, conference abstract, Controlled Study, Corticosteroid, encephalomalacia, Feberova J, Female, Gender, Gestational Age, Human, Infant, Kis H, Lemyre B, Length Of Stay, lung dysplasia, Male, Morbidity, mortality risk, Necrotizing Enterocolitis, Neonatal Intensive Care Unit, Paediatrics And Child Health, Palliative Therapy, Perception, Pregnancy, Prevalence, Probability, Radonjic A, Regression Analysis, retrolental fibroplasia, Retrospective Study, Sepsis, Stillbirth, survival prediction, univariate analysis

Tags: 2024, alienation, April List 2024, Article, avoidance behavior, Bereavement, Cacciatore J, Child Death, community care, complicated grief/dt [Drug Therapy], continuing education, Coping, Decision Making, Depression, Emotion, Emotional Stress, emotional support, family history, Family Stress, Fear, Guilt, Human, Identity, lactation, Loneliness, mourning, naltrexone/dt [Drug Therapy], Palliative Therapy, Personal Experience, PostTraumatic Stress Disorder, Prevalence, rage, regret, Sadness, Self Concept, Seminars in Perinatology, shame, social bonding, Social Support, sorrow, spontaneous abortion, Stigma, Stillbirth, Suicide, traffic accident

Tags: 2023, Alexandre M, Archives de Pediatrie, Article, assisted ventilation, Brossier D, Child, Controlled Study, Disability, Duval C, February List 2024, Female, Functional Status, Human, Intensive Care, Intensive Care Unit, Major Clinical Study, Male, Palliative Therapy, Pediatric Intensive Care Unit, Pediatrician, Porcheret F, Prevalence, Retrospective Study, Roulland C, special situation for pharmacovigilance, Therapy, Toulouse J, Viallard ML

Tags: 2023, 2023 SE5 - Low Resource Setting, Alotaibi Q, Arab, Arabs, Article, Child, data source, Dighe M, Female, Funding, Human, Human Experiment, Incidence, Male, Mortality, Palliative Care, Palliative Medicine Reports, Palliative Therapy, Prevalence, Quality Of Life, vocational education

Tags: 2022, Awareness, BMJ Supportive and Palliative Care, Child, Child Death, Clinical Article, conference abstract, Data Analysis, England, Female, Hospice, Hospice Care, Hospital Admission, Hospital Mortality, Human, information center, Male, March List 2023, Medical History, Only Child, Opstad H, Palliative Therapy, Patient Referral, Prevalence, Retrospective Study, Social Care, time of death

Tags:  Child,  Female,  Male, 2022, BMC Health Services Research, Doherty M, Epidemiology, Home Care, Human, Jones A, November 2022 List, Ontario, Palliative Therapy, Pilot Study, Prevalence, Thorburn-Winsor E, Vadeboncoeur C

Tags: 2022, Child, December List 2022, Human, Journal of Pain and Symptom Management, Kaye EC, Keegan A, Letter, Lindley LC, Palliative Therapy, Prevalence, Quality Of Life, Shostrom VK, Weaver MS

Tags: 2022, Adult, Age, Article, August 2022 List, Child, Chronic Disease, Cohort Analysis, congenital disorder, Controlled Study, Cross-sectional Study, Doran T, England, Female, Fraser LK, Gibson-Smith D, Hills M, Human, Jarvis S, Journal of Pain and Symptom Management, Major Clinical Study, Male, Neefjes V, Nervous System, Observational Study, Papworth A, Pediatrics, Polypharmacy, Prevalence, Taylor J, Young Adult

Tags: 2021, Amarri S, Bertelli S, Bertolini P, Bianchi E, Caldarelli V, Campagna A, Children With Medical Complexity, Cortina I, De Panfilis L, Fornaro M, Gabriele C, Gulmini L, Hospices, Italian Journal of Pediatrics, Locatelli C, Magistà A, Mazzoni E, Melchionda F, Mondardini MC, Needs Assessment, Ottaviani A, Paediatrics, Palliative Care, Poggi G, Prevalence, Riva M, Sani E, September 2021 List, Serra L, Soffritti S

Tags: 2020, Benedi Gonzalez J, Cuervas-Mons Vendrell M, de Noriega I, Drug Approval, drug compounding, Drug Prescriptions, Garcia-Lopez I, Journal Of Pain & Symptom Management, Martin Romero I, Martino-Alba R, October 2020 List, off-label use, Palliative Care, Palliative Medicine, Pediatrics, Prevalence

Tags: 2692, April 2020 List, Article, Child, Controlled Study, Female, Health Care Utilization, Human, Kim C H, Kim M S, Lee J Y, Length Of Stay, Lim N G, Male, Malignant Neoplasm, Mortality Rate, national health insurance, Palliative Therapy, Prevalence, Retrospective Study, Scientific reports, Shin H Y, Song I G

Tags: 2018, April 2020 List, Awareness, Burnout, Child, Compassion Fatigue, conference abstract, coworker, Distress Syndrome, Education, Exhaustion, friend, Health Care Personnel, Human, injury, Kase S M, Life Sustaining Treatment, linear regression analysis, Palliative Therapy, Pediatrics, Prevalence, Questionnaire, risk factor, satisfaction with care, Self Care, Social Isolation, Waldman E D, Weintraub A S, Wellbeing

Tags: 2017, achondroplasia, adenotonsillectomy, Amaddeo A, American Journal of Medical Genetics Part A, apnea hypopnea index, apnea monitoring, Baujat G, BiPAP, bone dysplasia, breathing difficulties, cervical decompression, Child, Clinical Article, Cormier-Daire V, Couloigner V, CPAP, De Sanctis L, ENT surgery, Fauroux B, Human, James S, Khirani S, Michot C, Neurosurgery, obstructive sleep apnea, physical interventions, Polysomnography, Preschool Child, Prevalence, Retrospective Study, School Child, Sleep disordered breathing, Surgery, surgical interventions, Tenconi R, upper respiratory tract, Zerah M

Tags: 2011, Adolescent, adults, behavioral problems, behaviour, Chappaz I O, characteristics, Child, Cri-du-chat, cri-du-chat syndrome, development, Education & Educational Research, Emerich D R, Epidemiology, Gatto K R, Genetics & Heredity, INDIVIDUALS, Journal Of Intellectual Disability Research, Kim C A, maladaptive behaviors, Neurology, Neurosciences &, Orsati F T, Prevalence, Psychiatry, Rehabilitation, Rimerio R C, Teixeira Mctv, Trajectory

Tags: 2009, Arron K, behavioral problems, behavioural phenotype, brachmann-delange syndrome, Children, Cornelia de Lange syndrome, De Lange syndrome, demand denial no contact, descriptive analysis, Education & Educational Research, Environment, environmental conditions, functional-analysis, Genetics & Heredity, Hall S, INDIVIDUALS, Intervention, Journal Of Intellectual Disability Research, Neurology, Neurosciences &, Oliver C, Phenomenology, Phenotype, prader-willi syndrome, Prevalence, Psychiatry, psychological intervention, Rehabilitation, self-injurious behaviour, self-injury, Sloneem J, social reinforcement, Symptoms

Tags: 2012, Adolescent, Adult, Aged, Aged 80 and over, Aggression/psychology, Attention Deficit and Disruptive Behavior, behavioral problems, Child, Child Preschool, Didden R, Disorders/diagnosis/epidemiology/psychology, Dumont E L, Female, Hastings R, Humans, Intellectual Disability/diagnosis/epidemiology/psychology, Journal Of Intellectual Disability Research, Kroes D B, Male, Matson J L, Middle Aged, Multivariate Analysis, Personality Inventory/standards/statistics & numerical data, Prevalence, Reference Values, Rojahn J, Rowe E W, scale development, Self-Injurious Behavior/diagnosis/epidemiology/psychology, Sensitivity and Specificity, Sharber A C, Stereotypic Movement Disorder/diagnosis/epidemiology/psychology, tool development, unspecified ID, Young Adult

Tags: 2013, Abby L, Aggressive/destructive behavior, Barnard-Brak L, Behavior, behavioral problems, behaviors, characteristics, Cornelia de Lange syndrome, De Lange syndrome, delange-syndrome, Dotson W, Intellectual disabilities, Journal of Developmental and Physical Disabilities, Medeiros K, Phenomenology, Prevalence, Rehabilitation, Reliability, repetitive, Richman D, Rojahn J, Scale, Self-injurious, self-injurious-behavior, short form, Stereotyped Behavior, Trajectory, Validity, Wei T L

Tags: 2012, adults, Aggression, Autism spectrum disorder, Bacarese-Hamilton M, behavioral problems, challenging behavior, challenging behaviors, characteristics, de-lange-syndrome, handicap, high frequency repetitive behavior, Intellectual Disability, Journal of Autism and Developmental Disorders, learning-disabilities, Mental, Oliver C, People, Petty J, Prevalence, Psychology, psychotropic medication, repetitive behavior, risk-factors, ritualistic behavior, Ruddick L, self-injury, severe intellectual disability, Stereotyped Behavior, total population, Trajectory, young-children

Tags: 2009, Adolescent, Adult, Angelman Syndrome/epidemiology/psychology, Arron K, behavioral problems, Berg K, Burbidge C, characteristics, Child, Child Preschool, Cri-du-chat, Cri-du-Chat Syndrome/epidemiology/psychology, De Lange syndrome, De Lange Syndrome/epidemiology/psychology, Female, Fragile X Syndrome/epidemiology/psychology, Humans, Intellectual Disability/epidemiology/genetics/psychology, Journal of Autism and Developmental Disorders, London, Male, Middle Aged, Moss J, Oliver C, Phenotype, Prader-Willi Syndrome/epidemiology/psychology, Prevalence, repetitive behavior, Stereotyped Behavior, Surveys And Questionnaires, Syndrome, tone and motor problems, Trajectory, Young Adult

Tags: 2009, Adolescent, Adult, Braam W, characteristics, Child, Child Preschool, Cri-du-chat, Cri-du-Chat Syndrome/ep [Epidemiology], Cri-du-Chat Syndrome/ge [Genetics], Curfs L M, Didden R, Female, Genetic Testing, Humans, Infant, Infant Newborn, Journal Of Intellectual Disability Research, Korzilius H, Maas A P, Male, Middle Aged, Prevalence, Severity Of Illness Index, sleep disturbance/disorders, Sleep Wake Disorders/di [Diagnosis], Sleep Wake Disorders/ep [Epidemiology], Smits M G, Statistics Nonparametric, Surveys And Questionnaires, Trajectory, Young Adult

Tags: 2006, Acetylglucosamine, Acetylglucosamine/analogs & derivatives/urine, Adolescent, Adult, Aspartylglucosaminuria, characteristics, Child, Child Preschool, Children W/SNI, Female, Heiskala H, Humans, Journal Of Inherited Metabolic Disease, Kaski M, Kivinen S, Laakso M L, Lindblom N, Longitudinal Studies, Male, Metabolism Inborn Errors, Metabolism Inborn Errors/complications/pathology, Middle Aged, Prevalence, Questionnaires, Sleep Disorders/complications/diagnosis, sleep disturbance/disorders, Sleep Wake Disorders, Surveys And Questionnaires, Trajectory

Tags: 2012, Adolescent, Adult, Age Factors, Annese F, Barrish J O, Bone Diseases/complications/epidemiology, Caeg E, characteristics, Child, Child Preschool, Child Nutrition Disorders/epidemiology/etiology/genetics, Constipation, dysmotility, Dysphagia, feeding difficulties, Female, Gastrointestinal Diseases/epidemiology/etiology/genetics, gastrointestinal dysmotility, Geerts S, Glaze D G, Growth Disorders/epidemiology/etiology/genetics, Health Surveys, Humans, Infant, Infant Nutrition Disorders/epidemiology/etiology/genetics, Journal Of Pediatric Gastroenterology And Nutrition, Lane J B, Lee H S, Male, McNair L, Methyl-CpG-Binding Protein 2/genetics, Motil K J, Mutation, Neul J L, Nutrition Disorders/epidemiology/etiology/genetics, Parents, Percy A K, Prevalence, Rett syndrome, Rett Syndrome/complications/genetics, Skinner S A, Surveys And Questionnaires, Trajectory, Young Adult

Tags: 2011, American Journal of Medical Genetics Part A, anamnesis, apnea, Article, Azevedo A C, Barrios P, breathing difficulties, characteristics, Child, Clinical Article, Clinical Feature, Controlled Study, Cross-sectional Study, Dalcin P, disease association, Disease Severity, Doppler echocardiography, Fagondes S, Female, Giugliani R, Glycosaminoglycans, Human, John A, Lysosomal storage diseases, lysosome storage disease, macroglossia, Male, Maroteaux Lamy syndrome, Menna-Barreto S, Morquio syndrome, MPSVI, Mucopolysaccharidosis, oxygen saturation, oxygen/ec [Endogenous Compound], physical examination, pigeon thorax, Polysomnography, Preschool Child, Prevalence, Priority Journal, Prospective Study, pulmonary hypertension, Schwartz I, Sleep apnea, sleep apnea syndrome/di [Diagnosis], sleep disorder, snoring, Trajectory, witnessed apnea

Tags: 2008, Adolescent, Arron K, behavioral problems, Case-Control Studies, characteristics, Comorbidity, De Lange syndrome, De Lange Syndrome/epidemiology/psychology, Ear Diseases/epidemiology/psychology, Eye Diseases/epidemiology/psychology, Female, Gastrointestinal Diseases/epidemiology/psychology, Hall S, Health Status, Hernia/epidemiology/psychology, Humans, Intellectual Disability/epidemiology/psychology, Journal Of Intellectual Disability Research, Male, Oliver C, Prevalence, Self-Injurious Behavior/epidemiology/psychology, self-injury, Severity Of Illness Index, Skin Diseases/epidemiology/psychology, sleep disturbance, Sleep Wake Disorders/epidemiology, Sloneem J, Stomatognathic Diseases/epidemiology/psychology, Surveys And Questionnaires, Trajectory

Tags: 2002, Adolescent, Adult, Aggression, Aggression/psychology, Behavior, characteristics, Child, Collins M S, Comorbidity, Cornish K, Cri-du-chat, Cri-du-Chat Syndrome/epidemiology, Female, Humans, Journal Of Intellectual Disability Research, Male, Prevalence, Self-Injurious Behavior/epidemiology, self-injury, Stereotypic Movement Disorder/epidemiology, stereotypy, Surveys And Questionnaires, tone and motor problems, Trajectory

Tags: 2019, Adolescent, Adult, Age, Aged, America, Amin R, amyotrophic lateral sclerosis, amyotrophic lateral sclerosis/ep [Epidemiology], Animals, APEC countries, Article, August 2019 List, Bai Y, Canada, Child, childhood disease/ep [Epidemiology], childhood diseases, Children, Chordata, Cohort Analysis, Cohort Studies, Commonwealth of Nations, Controlled Study, Data Base, death rate, Developed Countries, Disease Course, disease prevalence, Disease Progression, Eukaryotes, Female, Gershon A, Goldstein R, Health Care, health Insurance, Hominidae, Homo, Human, Human Diseases, Incidence, Infant, International Classification of Diseases, Katz S, Leasa D, Major Clinical Study, Male, Mammals, Man, McKim D, Middle Aged, Mortality, mortality rates, muscles, neuromuscular disease/ep [Epidemiology], Neuromuscular Diseases, Neuromuscular Disorders, Nonoyama M, North America, OECD Countries, Ontario, Palliative Care, Palliative Therapy, planning, PLoS One, Population Research, Preschool Child, Prevalence, Primates, Retrospective Studies, Retrospective Study, Rose L, School Child, sclerosis, spinal muscular atrophy/ep [Epidemiology], Spine, Survival, Tandon A, trend study, Trends, Vertebrates, Young Adult

Tags: 2019, Adolescent, Adult, anxiety, Article, Barker MM, Beresford B, Bland M, Child, data extraction, Depression, Embase, Female, Fraser LK, Human, Human Tissue, Incidence, Interview, JAMA Pediatrics., Male, Medline, meta analysis, Monitoring, Organisation for Economic Co-operation and Development, Prevalence, psychologic assessment, Psycinfo, Regression Analysis, September 2019 List, synthesis, Systematic Review, Young Adult

Tags: 2019, African American, Article, Attention, Caucasian, Child, Chronic Disease, Comorbidity, Complex Chronic Conditions, Controlled Study, end-of-life, Fortney C A, hcup kid, Health Care Cost, Hospital Patient, Human, Infant, Infants, Insurance, June 2019 List, Lindley L C, Neonates, Palliative Therapy, Prevalence, Regression Analysis, Serious Illness, The American Journal of Hospice & Palliative Care

Tags: 2018, Advanced Cancer, Al-Sayegh H, Article, Bona K, Cancer, Cancer Patient, Child, Cohort Analysis, Distress Syndrome, Dussel V, Female, Feudtner C, highest income group, household income, Human, Ilowite MF, Kang TI, lowest income group, Ma C, Major Clinical Study, Male, Oncology 2018 List, outcome assessment, Pain, Palliative Therapy, patient-reported outcome, Poverty, Prevalence, Quality Of Life, Rosenberg AR, Secondary Analysis, Wolfe J

Tags: 2017, Aggression, aggressiveness, Annals of Oncology, Cancer Staging, Cardoso A, Cause Of Death, Child, Cohort Analysis, Cohort Studies, developmental stage, Female, Gomes B, Hospitalization, Human, Icd-9, immunotherapy, Intensive Care Unit, Lacerda A, Lopes S, Major Clinical Study, Male, Martins BD, Morbidity, Multicenter Study, Oncology 2018 List, Only Child, Palliative Care, Palliative Therapy, Portugal, Prevalence, Quality Of Life, Resuscitation, School Child, total parenteral nutrition, vascular access

Tags: 2017, Adolescent, Age Factors, Alvarez-Rodriguez FJ, Amador-Sanchez R, Body Weights and Measures, Bolea-Murga V, Cardenas-Cardos R, Child, Child Preschool, Children, Comorbidity, de Diego Flores-Chapa J, Developing Countries, Developing World 2018 List, Dorantes-Acosta EM, Duarte-Rodriguez DA, Espinosa-Elizondo RM, Fajardo-Gutierrez A, Female, Flores-Lujano J, Flores-Villegas LV, Gil-Hernandez AE, Gonzalez-Bonilla CR, Humans, Infant, Infant Newborn, Jimenez-Hernandez E, Leukemia, Leukemia & Lymphoma, Male, malnutrition, Malnutrition/diagnosis/epidemiology, Martin-Trejo JA, Martinez-Avalos A, Medina-Sanson A, Mejia-Arangure JM, Mexico/epidemiology, Mortality, Nunez-Enriquez JC, Nunez-Villegas NN, Paredes-Aguilera R, Penaloza-Gonzalez JG, Perez-Saldivar ML, Population Surveillance, Precursor Cell Lymphoblastic Leukemia-Lymphoma/epidemiology/ mortality/therapy, Prevalence, Prognosis, Proportional Hazards Models, Rangel-Lopez A, Remission Induction, Reyes-Zepeda NC, Rivera-Luna R, Rodriguez-Zepeda MD, Socioeconomic Factors, Torres-Nava JR, Velazquez-Avina MM