Browse Items · Pediatric Palliative Care Library

Intensity of end-of-life care among children with life-threatening conditions: a national population-based observational study

Background Children with life-threatening conditions frequently experience high intensity care at the end of life, though most of this research only focused on children with cancer. Some research suggests inequities in care provided based on age,…

Tags: 2023, Bmc Pediatrics, Brennenstuhl S, Child, Gupta S, Nelson KE, Only Child, Rapoport A, Seow H, September List 2059, Siden H, Tanuseputro P, Terminal Care, Vadeboncoeur C, Widger K

Location of death among children with life-threatening conditions: a national population-based observational study using the Canadian Vital Statistics Database (2008-2014)

BACKGROUND: Patterns in location of death among children with life-threatening conditions (e.g., cancer, genetic disorders, neurologic conditions) may reveal important inequities in access to hospital and community support services. We aimed to…

Optimizing the Management of Pain and Irritability in Children with Severe Neurological Impairment: Phase I (Poster)

Tags: Andrews G, Dewan T, Gnanakumar V, Holsti L, Lim E, Oberlander T, Orkin J, PIUO, poster, Richardson A, Siden H, Vadeboncoeur C

Evaluation of children with severe neurological impairment admitted to hospital with pain and irritability

BACKGROUND: Pain is the most common symptom reported by caregivers of children with severe neurological impairment (SNI), a descriptive term for children with disorders affecting the neurological system across multiple domains. In SNI, cognition,…

Pain Detectives: Optimizing the Management of Pain and Irritability of Unknown Origin in Children with Severe Neurological Impairment (Poster)

Tags: Carleton B, Dewan T, Gnanakumar V, Ketchum K, Oberlander T, Orkin J, PIUO, Richardson A, Siden H, Vadeboncoeur C

Caregiver-reported nociceptive pain responses in children with significant neurological impairment (Poster)

Tags: Carleton B, Dewan T, Gnanakumar V, Holsti L, Johnston E, Oberlander T, Orkin J, PIUO, Richardson A, Siden H, Vadeboncoeur C

Use of the interRAI PEDS HC in Children Receiving Home Care in Ontario, Canada

BACKGROUND: There is no standard assessment tool for pediatric home care recipients in Canada, limiting the availability of comparable, population-based data. The objective of this study was to describe pediatric home care recipients who were part of…

Tags: Child, Female, Male, 2022, BMC Health Services Research, Doherty M, Epidemiology, Home Care, Human, Jones A, November 2022 List, Ontario, Palliative Therapy, Pilot Study, Prevalence, Thorburn-Winsor E, Vadeboncoeur C

interRAI Pediatric Home Care (PEDS-HC) Assessment Tool: Evaluating Ontario Healthcare Workers’ Experience

High quality pediatric homecare requires comprehensive assessment of the needs, supports, and health care challenges of children with special healthcare needs and their families. There is no standardized homecare assessment system to evaluate…

Tags: 2022, Doherty M, Focus Groups, Health Services Insights, home care services, Lynch-Godrei A, May 2022 List, Needs Assessment, Pediatrics, Vadeboncoeur C

Children's Health Care Utilization and Cost in the Last Year of Life: A Cohort Comparison with and without Regional Specialist Pediatric Palliative Care

Background: Research remains inconclusive regarding the impact of specialist pediatric palliative care (SPPC) on health care utilization and cost. Objective: To better understand and quantify the impact of regional SPPC services on children's health…

Tags: 2022, Cost, February 2022 List, Gupta S, Health Care, Journal of Palliative Medicine, Lysecki DL, Palliative Care, Pediatrics, Rapoport A, Rhodes E, Spruin S, Tanuseputro P, utilization, Vadeboncoeur C, Widger K

Medications to manage infant pain, distress and end-of-life symptoms in the immediate postpartum period

INTRODUCTION: Perinatal palliative care (PnPC) is a growing field where healthcare providers from multiple disciplines are supporting families and providing holistic care for their babies with life-limiting illnesses. It is important to have an…

Tags: 2021, Comfort Care, Daboval T, Expert Opinion on Pharmacotherapy, Ferretti E, Lauzon L, Life-limiting Condition, MacLean G, medications, October 2021 List, Palliative Care, Perinatal Palliative Care, Reuvers E, Symptom Management, Vadeboncoeur C, Veldhuijzen van Zanten S

Pediatric Project ECHO®: A Virtual Community of Practice to Improve Palliative Care Knowledge and Self-Efficacy among Interprofessional Health Care Providers

Background: Health care providers (HCPs) require ongoing training and mentorship to fully appreciate the palliative care needs of children. Project ECHO® (Extension for Community Healthcare Outcomes) is a model for delivering…

Tags: 2020, continuing professional development, distance education, February 2021 List, Journal of Palliative Medicine, Lalloo C, Osei-Twum J, Pediatric Palliative Care, Project ECHO, Rapoport A, Stinson J, Vadeboncoeur C, Veldhuijzen van Zanten S, Weingarten K, Widger K

Adaptation and Feasibility of the interRAI Family Carer Needs Assessment in a Pediatric Setting

Family carers of children with serious illness contribute many hours of medical care in addition to usual daily care. Assessing the needs and supports of family carers is not routine practice. This study is the first to utilize the interRAI Family…

Tags: 2020, Child, Family Caregivers, Health Services Insights, Informal caregivers, January 2021 List, Needs Assessment, Pediatric, Self Report, Stochitoiu IA, Surveys And Questionnaires, Vadeboncoeur C

Benefits of Early Referral to Pediatric Palliative Care for a Child With a Rare Disease

The article outlines the benefits of palliative care supporting the child and family with attention to individualized symptom management, improved communication, and support making difficult decisions. Topics mentioned include the research program…

Introducing a Lexicon of Terms for Pediatric Palliative Care

2015

Tags: 2015, Backlog, Davies D, Journal Article, Macdonald ME, Paediatrics & Child Health, PEDI Study, Siden H, Spicer S, Vadeboncoeur C

A paediatric palliative care programme in development: trends in referral and location of death

Purpose To describe the formation of a paediatric palliative care programme providing care in hospital, at home or in hospice, ensuring continuity of care where the child and family desire. Study design Descriptive analysis was performed on referral…

Tags: 2010, Archives of Disease in Childhood, Backlog, Coulombe L, Johnston DL, Journal Article, Location Of Death, Rattray M, Splinter WM, Vadeboncoeur C

Nutritional differences in neurologically impaired children

OBJECTIVES: To determine whether the recommended nutritional intake of moderately to severely neurologically impaired children is congruent with current growth parameter expectations. METHODS: Observational cross-sectional study at a children's…

Tags: 2012, Backlog, Journal Article, Paediatrics & Child Health, Riley A, Vadeboncoeur C

The Validity of Using Health Administrative Data To Identify the Involvement of Specialized Pediatric Palliative Care Teams in Children with Cancer in Ontario, Canada.

BACKGROUND: Population-based research to identify underserviced populations and the impact of palliative care (PC) is limited as the validity of such data to identify PC services is largely unknown. OBJECTIVE: To determine the validity of using such…

Tags: 2017, December 2017 List, Earle C, Gupta S, Journal of Palliative Medicine, Kassam A, Liu Y, Nelson K, Pole JD, Rapoport A, Sutradhar R, Vadeboncoeur C, Widger K, Wolfe J, Zelcer S

Lexicon of Terms in Pediatric Palliative Care

PedPalASCNET-Lexicon-31-July2014-Final.pdf

This Lexicon has been developed through a collaborative process by the PedPalASCNET network members as a tool for clinicians and researchers to standardize the usage of common terms in the field of pediatric palliative care. The Lexicon reflects the…

Tags: 2014, Davies D, Macdonald ME, Siden H, Spicer S, Vadeboncoeur C

Case 2: A 10-year-old boy with leg pain and swelling.

Tags: 2015, Doherty M, Paediatrics & Child Health, Vadeboncoeur C, Wheaton L

Introducing a lexicon of terms for paediatric palliative care.

Tags: 2015, Davies D, Macdonald ME, Paediatrics & Child Health, Siden H, Spicer S, Vadeboncoeur C

Pediatric palliative care in Canada in 2012: a cross-sectional descriptive study.

BACKGROUND: Pediatric palliative care focuses on comprehensive symptom management and enhancing quality of life for children with life-threatening conditions and their families. Our aim was to describe Canadian programs that provided specialized…

Tags: 2016, Adam R, Amrita S, Claude C, Cmaj Open, Daoust L, Davies D, Gregoire Marie-Claude, Hodgson-Viden H, Laflamme J, Liben S, Robertson M, Siden H, Stenekes S, Vadeboncoeur C, Widger K

A Comparative Cost-minimization Analysis Of Providing Paediatric Palliative Respite Care Before And After The Opening Of Services At A Paediatric Hospice

A palliative care service provider may add or decrease overall operational costs to the healthcare system. This study assessed the costs of managing respite care for children with life-limiting illness at the Children's Hospital of Eastern Ontario…

Not There Yet: Pediatric Palliative Care In Canada 2002 – 2012

Objectives: As a follow-up to a study conducted in 2002,
our objective was to obtain an accurate description of
programs that provided specialized pediatric palliative
care (PPC) in 2012 and the children who received it;
explore changes in the…

Tags: 2016, Claude Cyr, Davies D, December 2016 List, Gregoire Marie-Claude, Heather Hodgson-Viden, Helene Roy, Journal of Pain and Symptom Management, Liben S, Lysanne Dauost, Rapoport A, Robertson M, Sarpal A, Siden H, Simone Stenekes, Vadeboncoeur C, Widger K

Browse Items (23 total)