Browse Items (50 total)
- Tags: Home Care
Parental perspectives on home-based palliative care in children with advanced cancer
Tags: 2023, 2025 SE1 - Oncology, Advanced Cancer, Bereavement Support, Biji MS, cancer center, Child, Childhood Cancer, conference abstract, Drug Therapy, Father, Fatigue, Female, friend, Gopakumar KG, Home Care, Human, Jithin TK, Journal Of Pediatric Hematology/oncology, Likert scale, Male, Nimitha T, Observational Study, Only Child, oral drug administration, Pain, Palliative Care, Palliative Therapy, Questionnaire, refractory disease, relapse, Rizwana KN, social media, Therapy
Physician Perceptions of and Barriers to Pediatric Palliative Care for Children with Cancer in Brazil
Tags: 2023, 2025 SE2 - LRS, Adult, Agulnik A, Antunes Geronutti Ayub D, Article, Baker JN, Beatriz Costa Neves Do Amaral A, Bereavement, Boldrini E, Brazil, Cancer Palliative Therapy, Child, Childhood Cancer, clinical assessment, Consultation, Cristina Cunha Ferreira EFonseca I, De Oliveira Junior A, Devidas M, emotional support, Esmeraldo Andrade De Almeida A, Female, Francisco Oliveira De Lima A, Friedrich P, Godfrey A, Grief, Health Care Access, health care need, Health Education, Health Survey, Home Care, Human, JCO Global Oncology, Job G, Loggetto P, Lopes Garcia J, Male, McNeil MJ, Medical Expert, Metzger ML, Pediatric Palliative Care, Pediatrics, physical activity, Physician, Physician Attitude, professional knowledge, Qualitative Analysis, Quality Of Life, Regina Costa Murra G, Spiritual Care, World Health Organization
Beyond treatment: Understanding family experiences in pediatric palliative care
Tags: 2024, Adolescent, Adult, Andres de Alvaro M, anxiety, Article, Burnout, care behavior, Caregiver, Caregiver Support, Child, Convenience Sample, CPAP device, Del Villar GP, Drug Therapy, Family, Garcia ML, Gene Expression, Health Care Personnel, Home Care, Human, Interpersonal Communication, Interview, lens (optics), Male, March List 2025, Mood, Palliative And Supportive Care, Palliative Therapy, Patient Care, Quality Of Life, Ramos PD, Semi Structured Interview, Tamayo-Morales O, Therapy
Living with Pompe disease: results from a qualitative interview study with children and adolescents and their caregivers
Tags: 2024, Adolescent, Adult, Article, Caregiver, Child, Clinical Article, cognitive behavioral therapy, Content Analysis, content validity, Disease Severity, Dyspnea, Emotion, emotional appraisal, enzyme replacement, Fatigue, February List 2025, Female, glycogen storage disease type 2, Hahn A, Hennermann JB, Home Care, Huemer M, Human, inborn error of metabolism, Lagler FB, Landolt MA, Life Expectancy, Male, MAXQDA software, Moslinger D, Multicenter Study, Muscle Weakness, musculoskeletal pain, Orphanet Journal Of Rare Diseases, Pain, Pain Intensity, Palliative Therapy, Perception, Pfrimmer C, psychosocial care, Qualitative Analysis, Qualitative Research, Quality Of Life, Questionnaire, Rohrbach M, School Child, Semi Structured Interview, Severity Of Illness Index, social exclusion, Social Support, sore throat, Truninger MI, Vomiting, Werner H, Young Adult
A Nationwide Study to Evaluate Accessibility to Specialized Pediatric Palliative Care in Italy-Patients, Needs, and Critical Issues: The PalliPed Study
Tags: 2024, Adolescent, Agosto C, Albanesi B, Amarri S, Article, Avagnina I, Barbugian E, Basile R, Bellagamba O, Bellini F, Beltrami C, Benini F, Bignamini E, Bolognani M, Campagna M, Carraro C, Catalano G, Catalano I, Celentano L, Child, Controlled Study, De Marinis MG, De Tommasi V, De Zen L, Di Nunzio S, Diagnosis, Divisic A, Dolcini A, family support, Fasson A, Franchi F, Ghiraldo G, Giacomelli L, Grigolon E, Health Care Personnel, Home Care, Human, Iadelica A, Infant, Italy, Journal of Palliative Medicine, Lazzarin P, Maghini I, Manfredini L, Marinetto A, Maternal care, Mazzoni E, Mercante A, Michelotto E, Mirone R, Molinaro G, Moliterni P, Moro N, October List 2024, Orofino R, Palliative Therapy, Paone G, Papa S, Patient Referral, Pediatrician, Pellegatta F, Peruselli C, Piccolruaz UV, Prenatal Care, Raspi M, Roverato B, Salata M, Santini A, Schiavon B, Soffritti S, Taucar V, terminal disease, Thaler M, Therapy, Tornesello A, Uez F, Vaccher S, Vezzoli C, Young Adult, Zanin A, Ziggiotto S
Stress Among Parents of Children With Severe Neurological Impairment in the Pediatric Intensive Care Unit
Tags: 2024, Adolescent, Adult, Article, Barton KS, Bogetz J, brain ventricle peritoneum shunt, Child, Child Parent Relation, Clinical Article, Cohort Analysis, confusion (uncertainty), Controlled Study, Disease Severity, ethnic background, Father, feeding tube, Female, Health Survey, Home Care, Hospital Admission, hospital discharge, Human, implanted vagus nerve stimulator, intrathecal baclofen pump, Journal of Palliative Medicine, legal guardian, Length Of Stay, Life Expectancy, Male, mortality risk, Neurodisability, noninvasive positive pressure ventilation, October List 2024, Oslin E, Palliative Therapy, Parental Stress, Patient Advocacy, Pediatric Hospital, Pediatric Intensive Care Unit, Personal Experience, Prospective Study, Qualitative Research, Quantitative Study, Rosenberg AR, Semi Structured Interview, Tracheostomy, Trowbridge A, United States, VULNERABILITY, Watson RS, Yi-Frazier J
Healthcare personnel's perspectives on health technology in home-based pediatric palliative care: a qualitative study
Tags: 2024, Access To Information, Article, August List 2024, BMC Palliative Care, Cognitive Defect, communication technology, Descriptive Research, Documentation, electronic patient record, Exploratory Research, Health Personnel Attitude, health personnel perspective, health technology, Holmen H, home based pediatric palliative care, Home Care, Human, Human Relation, in person interaction, Information Processing, information sharing, language ability, Medical Record, Medical Technology, Multidisciplinary team, Norway, Palliative Therapy, Pediatrics, physical activity, Qualitative Research, Riiser K, Schroder J, Software, Thematic Analysis, Videoconferencing, visual documentation
Place of death among children from 0 to 17 years of age: A population-based study from Sweden
Tags: 2024, Acta Paediatrica, Adolescent, Age, Article, at home mortality, August List 2024, Child, Death, Female, groups by age, Home Care, Hospital Mortality, hospital visit, Human, Incidence, Infant, Larsdotter C, Major Clinical Study, Male, Newborn, Nilsson S, Nyblom S, Ohlen J, Ozanne A, place of birth, Place Of Death, Retrospective Study, Stenmarker M, Sweden
Finnish children who needed long-term home respiratory support had severe sleep-disordered breathing and complex medical backgrounds
Tags: 2024, Acta Paediatrica, acute respiratory failure, adenoid hypertrophy, adenotonsillectomy, Adolescent, angiotensin receptor antagonist/pv [Special Situation for Pharmacovigilance], anxiety, apnea hypopnea index, April List 2024, Article, aspiration pneumonia/co [Complication], Asthma, automatic positive airway pressure, beta 2 adrenergic receptor stimulating agent/ih [Inhalational Drug Administration], beta 2 adrenergic receptor stimulating agent/pv [Special Situation for Pharmacovigilance], beta adrenergic receptor blocking agent/pv [Special Situation for Pharmacovigilance], brain hypoxia, Brain Tumor, cardiovascular agent/pv [Special Situation for Pharmacovigilance], central nervous system disease, central sleep apnea syndrome/th [Therapy], Child, childhood obesity, choana atresia/su [Surgery], Clinical Feature, Clinical Outcome, Cohort Analysis, Comorbidity, Continuous Positive Airway Pressure, Controlled Study, corticosteroid/ih [Inhalational Drug Administration], corticosteroid/pv [Special Situation for Pharmacovigilance], craniofacial malformation, craniofacial surgery, cranioplasty, Data Analysis Software, Demographics, Developmental delay, developmental disorder, diaphragm hernia, dipeptidyl carboxypeptidase inhibitor/pv [Special Situation for Pharmacovigilance], Disease Severity, Down Syndrome, Eskola V, Female, Finn (citizen), Follow Up, Home Care, Human, hypoventilation/th [Therapy], Icd-10, Infant, invasive ventilation, Jarvela M, Katila M, laryngomalacia, Lauhkonen E, Le Fort III osteotomy, Long Term Care, lung hypoplasia, Major Clinical Study, Makinen R, Male, Mandelin P, mask/am [Adverse Device Effect], maxilla hypoplasia/co [Complication], medical device complication/co [Complication], montelukast/pv [Special Situation for Pharmacovigilance], Multidisciplinary team, nasal mask, Neuromuscular Disease, noninvasive positive pressure ventilation, nose obstruction/co [Complication], obstructive sleep apnea/th [Therapy], Only Child, onset age, orthodontic procedure, Palliative Therapy, Pneumonia, Polysomnography, psychological aspect, respiratory care, Respiratory Distress Syndrome, Retrospective Study, Saarenpaa-Heikkila O, skin irritation/co [Complication], Sleep Apnea Syndromes, Sleep Apnea Syndromes/th [Therapy], sleep disorder/co [Complication], Sleep Disorders, SPSS version 28.00, steroid/pv [Special Situation for Pharmacovigilance], Tonsillectomy, tonsillotomy, Tracheostomy, treatment duration, University Hospital
Palliative Care in Children with Inherited Metabolic Diseases: Why does it matter?
Tags: 2023, Article, Bereavement Support, Cancelinha C, Child, Cohort Analysis, communication disorder, Diogo L, drug combination, Emergency Ward, emotional support, Endocrine, Metabolic and Immune Disorders - Drug Targets, enteric feeding, February List 2024, Female, Ferreira S, Follow Up, Grilo E, Home Care, Hospital Admission, Hospitalization, Human, Intensive Care, Male, medical device, Metabolic Disorder, motor dysfunction, Neurologic Disease, Nogueira A, Noninvasive Ventilation, Palliative Therapy, Patient Referral, Pereira MJ, Place Of Death, respiratory equipment, Retrospective Study, School Child, Symptom Assessment
Palliative Care for Childhood Cancer
Tags: 2022, 2023 SE3 - Oncology, Advanced Cancer, Cancer Palliative Therapy, Cancer Patient, Cause Of Death, Child, Child Health Care, childhood cancer/th [Therapy], Children, collaborative care team, daily life activity, Disease Burden, Editorial, evidence based practice, Family, Health Care Access, health care need, Health Care Personnel, health care planning, Health Care Quality, Hematopoietic stem cell transplantation, Home Care, Hope, Hospital care, Human, illness trajectory, Medical Education, Michiels EM, Nausea, Netherlands, Nurse, Pain, Palliative Care, patient worry, personalized cancer therapy, Physician, Practice Guideline, Quality Of Life, Vomiting
Parents' experiences of paediatric palliative care in the community healthcare system: a qualitative study
Current State of Palliative Medical Care for Children at the Regional Level on the Example of the Minsk Region
Tags: 2021, Article, assisted ventilation, Belarus, Child, Halasheuskaya A, Health Belief, Home Care, Hope, Human, June 2022 List, Kashliak O, Lazarchik I, Long Term Care, Only Child, Paediatrics Eastern Europe, Palliative Therapy, Pediatrics, Quality Of Life, relative, Tikhonovets M, Uncertainty, Zaitsev D
The Emotional Experience of Caring for Children in Pediatric Palliative Care: A Qualitative Study among a Home-Based Interdisciplinary Care Team
Tags: 2023, Adult, Article, Burnout, care behavior, Case Study, Castel-Sanchez M, Child, Child Death, Children, collaborative care team, Emotion, Emotional Stress, Emotions, Female, Gueita-Rodriguez J, Health Personnel Attitude, Home Care, Human, Job Satisfaction, July List 2023, Male, Martino-Alba R, Palacios-Cena D, Palliative Care, Palliative Therapy, Pediatrics, Qualitative Research, Rico-Mena P, Satisfaction, Semi Structured Interview, Thematic Analysis
Use of the interRAI PEDS HC in Children Receiving Home Care in Ontario, Canada
Empowering Pediatric Palliative Homecare Patients and Caregivers with Symptom Management Plans
I feel like my house was taken away from me': Parents' experiences of having home adaptations for their medically complex, technology-dependent child
Tags: 2022, Adolescent, Adult, Article, August 2022 List, biotechnology, Blake L, Bray L, Carter B, Child, Chronic Patient, Conceptual Framework, Controlled Study, Decision Making, Dickinson A, disabled person, England, Father, Female, Health And Social Care In The Community, Heat, Home Care, Human, Human Experiment, Interview, Male, Mitchell TK, Mother, Patient Care, Preschool Child, regeneration, Scotland, Thematic Analysis, thinking, Wales, Wellbeing
What does effective end-of-life care at home for children look like? A qualitative interview study exploring the perspectives of bereaved parents
Home or hospital as the place of end-of-life care and death: A grounded theory study of parents' decision-making
What does effective end-of-life care at home for children look like? A qualitative interview study exploring the perspectives of bereaved parents
Home or hospital as the place of end-of-life care and death: A grounded theory study of parents' decision-making
Preferred place of death in paediatric, teenage and young adult haemato-oncology patients: a retrospective review
Family experiences with palliative care for children at home: a systematic literature review
Home-based end of life care for children and their families - a systematic scoping review and narrative synthesis
Factors associated with place of death for children in South Yorkshire: a retrospective cohort study
Tags: 2020, Alison L, anonymised data, April 2020 List, Article, BMJ Supportive & Palliative Care, Child, Cohort Analysis, Controlled Study, Ethnicity, Female, Gender, Home Care, Hospice Care, Human, Major Clinical Study, Male, Mayer A P T, Newborn, Newborn Death, Palliative Therapy, Pediatrics, Renton K, Retrospective Study, Yeomanson D
Palliative care in 9 children with neurodegeneration with brain iron accumulation
Tags: 2020, April 2020 List, Article, body mass, Bone Density, bone strength, botulinum toxin, Child, Clinical Article, contracture, Controlled Study, Dangel T, Densitometry, Dystonia, facilitation, Female, femur, Home Care, Hospice And Palliative Care Nursing, Human, hypersalivation, iron, Januszaniec A, ketogenic diet, Kmiec T, Male, Multidisciplinary team, neurodegeneration with brain iron accumulation, Neurological Sciences, Pain, Palliative Therapy, pathologic fracture, Prevention, Questionnaire, School Child, skeleton, Spasticity, Spine, Thorax, Wazny B
Multidiciplinary approach of transition into home care for peadiatric and AYA end-of life cancer patients: A single center experience
Tags: 2018, Adolescent, Adult, Arakawa A, cancer center, Cancer Patient, Cancer Staging, Child, Clinical Article, conference abstract, Controlled Study, Female, Home Care, Human, Ishiki H, Ishimaru S, Kumamoto T, Male, Nakajima M, Ogawa C, Oncology 2019 List, Pediatric Blood and Cancer, Retrospective Study, Satomi E, Shimizu M, Shirakawa N, Social Worker, Sonoda T, time of death, Young Adult
The integration of palliative care in Dr Congo "a Model of Sustainability": A field study
Tags: 2018, Analgesia, capacity building, Caregiver, Child, conference abstract, Congo, Congolese (Kinshasa), Developing World 2019 List, doctor nurse relation, Female, field study, Home Care, Human, Journal of Global Oncology, Leadership, Major Clinical Study, Male, Mubeneshayi Kananga A, Organization, Palliative Therapy, Practice Guideline, Primary Health Care, sensitization, Training, uganda, Volunteer
Providing cost-effective and coordinated care for children with medical complexity
Tags: 2019, administrative personnel, Adolescent, Archives of Disease in Childhood, Artificial Ventilation, Caregiver, Cerebral Palsy, Child, Chow C, conference abstract, Congenital Heart Disease, Controlled Study, Diagnosis, Fatigue, Female, Gastrostomy, Home Care, Human, limited mobility, machine, Major Clinical Study, Male, Medical Technology, Multicenter Study, Multidisciplinary team, Neuromuscular Disease, Nurse, October 2019 List, Outpatient, Pediatrician, salary, Shahdadpuri R, Stress, Tracheostomy, ventilator, working time
Costs of Care and Location of Death in Community-Based Pediatric Palliative Care
Tags: 2019, Adolescent, Adult, Article, cardiovascular disease/dm [Disease Management], Child, Child Death, Child Health Care, child health insurance, childhood cancer/dm [Disease Management], childhood disease/dm [Disease Management], Chirico J, Cohort Analysis, community care, community-based, congenital disorder/dm [Disease Management], Cost, Cromwell P, Dawson C, Donnelly J P, Dying, family income, Female, groups by age, Gupton A, Health Care Cost, health maintenance organization, Home Care, Human, Journal of Palliative Medicine, July 2019 List, Korones D N, Major Clinical Study, Male, Medicaid, Miller M, neuromuscular disease/dm [Disease Management], newborn disease/dm [Disease Management], Palliative Therapy, Pediatric Palliative Care, pediatric patient, Prematurity/dm [disease Management], Race Difference, Retrospective Study
End-of-life care in children with hematologic malignancies
Tags: 2017, 52-26-6 (morphine), 57-27-2 (morphine), Adolescent, Adult, Article, Balzer S, Blood Transfusion, Borkhardt A, Child, Child Care, Clinical Article, Cohort Analysis, Controlled Study, Fatigue, Female, hematologic malignancy/dt [Drug Therapy], hematologic malignancy/th [Therapy], Hoell JI, Home Care, Hospital Mortality, Human, Intensive Care Unit, Janßen G, Kuhlen M, Male, Morphine/dt [drug Therapy], mucosa inflammation, Oncology 2018 List, Oncotarget, Palliative Therapy, pallor, Patient Referral, petechia, prescription, Retrospective Study, somnolence, Terminal Care, treatment duration, walking difficulty, Warfsmann J
A possibility for strengthening family life and health: Family members' lived experience when a sick child recieves home care in sweden
Tags: 2018, Attention, Castor C, Child, Childhood Cancer, Clinical Article, conference abstract, December 2018 List, Expectation, Family Life, Father, Female, genetic transcription, Hansson H, Home Care, Human, Interview, Kristensson HI, Landgren K, lion, Male, Mother, Nonhuman, Pediatric Blood and Cancer, Personal Experience, responsibility, Sibling, Sweden, welfare, Wellbeing
Patterns of paediatric end-of-life care: A chart review across different care settings in Switzerland
Tags: 103-90-2 (paracetamol), 2018, Adolescent, Aebi C, Ansari M, Article, Baer R, Bergstraesser E, Bernet V, Bmc Pediatrics, Brazzola P, Bucher HU, Buder R, Cagnazzo S, Cardiology, Cause Of Death, Child, Child Care, Child Death, Cignacco E, Cohort Analysis, community care, Dinten B, Dorsaz A, Drug Use, Elmer F, Engberg S, Enriquez R, Eskola K, Fahrni-Nater P, Female, Finkbeiner G, Frey B, Frey U, Greiner J, Hassink RI, Health Care Utilization, Home Care, Hospital Admission, Human, Infant, Intensive Care Unit, invasive procedure, Keller S, Kretschmar O, Kroell J, Laubscher B, Leibundgut K, Length Of Stay, Life Sustaining Treatment, Major Clinical Study, Malaer R, Male, Medical Record Review, Meyer A, narcotic analgesic agent, Nelle M, Neonatology, Neuhaus T, Neurology, Newborn, Niggli F, October 2018 List, Oncology, Paracetamol, Perrenoud G, Pfammatter JP, Plecko B, Popovic MB, Ramelet AS, Resuscitation, Retrospective Study, Rupf D, Sennhauser F, September 2018 List, Stade C, Steinlin M, Stoffel L, Stuessi C, Switzerland, Terminal Care, Thomas K, Treatment Withdrawal, Von der Weid N, von Vigier R, Vonarburg C, Wagner B, Wernz B, Wieland J, Zimmermann K
The qualitative study on the experience and perception of healthcare professionals in pediatric palliative care
Tags: 2018, August 2018 List, Awareness, Child, conference abstract, constant comparative method, Death, Diagnosis, Grounded Theory, Home Care, Hospice, Human, Interview, Ireland, Major Clinical Study, Male, Palliative Medicine, Palliative Therapy, pediatric nurse, Pediatric Nursing, Perception, Qualitative Research, Quality Of Life, Salvaggio E
Challenges in assessing the need for beds in palliative care-The example of inpatient hospice care for children, adolescents and young adults
Tags: 2018, Adult, Artificial Ventilation, August 2018 List, calculation, Child, conference abstract, Death, Diagnosis, disabled person, Female, Funding, Germany, Home Care, Hospice Care, Hospital Patient, Human, Jansky M, Jaspers B, Length Of Stay, Likert scale, Long Term Care, Major Clinical Study, Male, Mortality, Nauck F, occupation, Palliative Medicine, Palliative Therapy, Politics, Prevalence, psychosocial care, quantitative analysis, Resident, Semi Structured Interview, Statistics, Young Adult
Advance care planning and outcome in pediatric palliative home care
Tags: 2018, Advance Care Planning, Article, Balzer S, Borkhardt A, Child, Controlled Study, Danneberg M, Death, Female, Gagnon G, Hoell JI, Home Care, Hospice, Human, Janßen G, June 2018 List, Kuhlen M, Life Sustaining Treatment, Major Clinical Study, Male, medical order, Oncotarget, Palliative Therapy, Resuscitation, Retrospective Study, Trocan L, Weber HL
Bringing social context into the conversation about pediatric long-term ventilation
Tags: 2018, April 2018 List, Article, Artificial Ventilation, Boss RD, Child, decision support system, Family Decision Making, Henderson CM, Home Care, home care services, home environment, Hospital Patient, Hospital Pediatrics, Human, Life Sustaining Treatment, Long Term Care, Long-Term Care, Mechanical, Medical Information, Only Child, Patient-centered Care, Pediatrics, Personal Experience, practice gap, Quality Of Life, Social Environment, Tracheostomy, Ventilators, Wilfond BS
