Browse Items (29 total)
- Tags: Home Care
What does effective end-of-life care at home for children look like? A qualitative interview study exploring the perspectives of bereaved parents
Home or hospital as the place of end-of-life care and death: A grounded theory study of parents' decision-making
Preferred place of death in paediatric, teenage and young adult haemato-oncology patients: a retrospective review
Family experiences with palliative care for children at home: a systematic literature review
Home-based end of life care for children and their families - a systematic scoping review and narrative synthesis
Factors associated with place of death for children in South Yorkshire: a retrospective cohort study
Tags: 2020, Alison L, anonymised data, April 2020 List, Article, BMJ Supportive & Palliative Care, Child, Cohort Analysis, Controlled Study, Ethnicity, Female, Gender, Home Care, Hospice Care, Human, Major Clinical Study, Male, Mayer A P T, Newborn, Newborn Death, Palliative Therapy, Pediatrics, Renton K, Retrospective Study, Yeomanson D
Palliative care in 9 children with neurodegeneration with brain iron accumulation
Tags: 2020, April 2020 List, Article, body mass, Bone Density, bone strength, botulinum toxin, Child, Clinical Article, contracture, Controlled Study, Dangel T, Densitometry, Dystonia, facilitation, Female, femur, Home Care, Hospice And Palliative Care Nursing, Human, hypersalivation, iron, Januszaniec A, ketogenic diet, Kmiec T, Male, Multidisciplinary team, neurodegeneration with brain iron accumulation, Neurological Sciences, Pain, Palliative Therapy, pathologic fracture, Prevention, Questionnaire, School Child, skeleton, Spasticity, Spine, Thorax, Wazny B
Multidiciplinary approach of transition into home care for peadiatric and AYA end-of life cancer patients: A single center experience
Tags: 2018, Adolescent, Adult, Arakawa A, cancer center, Cancer Patient, Cancer Staging, Child, Clinical Article, conference abstract, Controlled Study, Female, Home Care, Human, Ishiki H, Ishimaru S, Kumamoto T, Male, Nakajima M, Ogawa C, Oncology 2019 List, Pediatric Blood and Cancer, Retrospective Study, Satomi E, Shimizu M, Shirakawa N, Social Worker, Sonoda T, time of death, Young Adult
The integration of palliative care in Dr Congo "a Model of Sustainability": A field study
Tags: 2018, Analgesia, capacity building, Caregiver, Child, conference abstract, Congo, Congolese (Kinshasa), Developing World 2019 List, doctor nurse relation, Female, field study, Home Care, Human, Journal of Global Oncology, Leadership, Major Clinical Study, Male, Mubeneshayi Kananga A, Organization, Palliative Therapy, Practice Guideline, Primary Health Care, sensitization, Training, uganda, Volunteer
Providing cost-effective and coordinated care for children with medical complexity
Tags: 2019, administrative personnel, Adolescent, Archives of Disease in Childhood, Artificial Ventilation, Caregiver, Cerebral Palsy, Child, Chow C, conference abstract, Congenital Heart Disease, Controlled Study, Diagnosis, Fatigue, Female, Gastrostomy, Home Care, Human, limited mobility, machine, Major Clinical Study, Male, Medical Technology, Multicenter Study, Multidisciplinary team, Neuromuscular Disease, Nurse, October 2019 List, Outpatient, Pediatrician, salary, Shahdadpuri R, Stress, Tracheostomy, ventilator, working time
Costs of Care and Location of Death in Community-Based Pediatric Palliative Care
Tags: 2019, Adolescent, Adult, Article, cardiovascular disease/dm [Disease Management], Child, Child Death, Child Health Care, child health insurance, childhood cancer/dm [Disease Management], childhood disease/dm [Disease Management], Chirico J, Cohort Analysis, community care, community-based, congenital disorder/dm [Disease Management], Cost, Cromwell P, Dawson C, Donnelly J P, Dying, family income, Female, groups by age, Gupton A, Health Care Cost, health maintenance organization, Home Care, Human, Journal of Palliative Medicine, July 2019 List, Korones D N, Major Clinical Study, Male, Medicaid, Miller M, neuromuscular disease/dm [Disease Management], newborn disease/dm [Disease Management], Palliative Therapy, Pediatric Palliative Care, pediatric patient, Prematurity/dm [disease Management], Race Difference, Retrospective Study
End-of-life care in children with hematologic malignancies
Tags: 2017, 52-26-6 (morphine), 57-27-2 (morphine), Adolescent, Adult, Article, Balzer S, Blood Transfusion, Borkhardt A, Child, Child Care, Clinical Article, Cohort Analysis, Controlled Study, Fatigue, Female, hematologic malignancy/dt [Drug Therapy], hematologic malignancy/th [Therapy], Hoell JI, Home Care, Hospital Mortality, Human, Intensive Care Unit, Janssen G, Kuhlen M, Male, Morphine/dt [drug Therapy], mucosa inflammation, Oncology 2018 List, Oncotarget, Palliative Therapy, pallor, Patient Referral, petechia, prescription, Retrospective Study, somnolence, Terminal Care, treatment duration, walking difficulty, Warfsmann J
A possibility for strengthening family life and health: Family members' lived experience when a sick child recieves home care in sweden
Tags: 2018, Attention, Castor C, Child, Childhood Cancer, Clinical Article, conference abstract, December 2018 List, Expectation, Family Life, Father, Female, genetic transcription, Hansson H, Home Care, Human, Interview, Kristensson HI, Landgren K, lion, Male, Mother, Nonhuman, Pediatric Blood and Cancer, Personal Experience, responsibility, Sibling, Sweden, welfare, Wellbeing
Patterns of paediatric end-of-life care: A chart review across different care settings in Switzerland
Tags: 103-90-2 (paracetamol), 2018, Adolescent, Aebi C, Ansari M, Article, Baer R, Bergstraesser E, Bernet V, Bmc Pediatrics, Brazzola P, Bucher HU, Buder R, Cagnazzo S, Cardiology, Cause Of Death, Child, Child Care, Child Death, Cignacco E, Cohort Analysis, community care, Dinten B, Dorsaz A, Drug Use, Elmer F, Engberg S, Enriquez R, Eskola K, Fahrni-Nater P, Female, Finkbeiner G, Frey B, Frey U, Greiner J, Hassink RI, Health Care Utilization, Home Care, Hospital Admission, Human, Infant, Intensive Care Unit, invasive procedure, Keller S, Kretschmar O, Kroell J, Laubscher B, Leibundgut K, Length Of Stay, Life Sustaining Treatment, Major Clinical Study, Malaer R, Male, Medical Record Review, Meyer A, narcotic analgesic agent, Nelle M, Neonatology, Neuhaus T, Neurology, Newborn, Niggli F, October 2018 List, Oncology, Paracetamol, Perrenoud G, Pfammatter JP, Plecko B, Popovic MB, Ramelet AS, Resuscitation, Retrospective Study, Rupf D, Sennhauser F, September 2018 List, Stade C, Steinlin M, Stoffel L, Stuessi C, Switzerland, Terminal Care, Thomas K, Treatment Withdrawal, Von der Weid N, von Vigier R, Vonarburg C, Wagner B, Wernz B, Wieland J, Zimmermann K
The qualitative study on the experience and perception of healthcare professionals in pediatric palliative care
Tags: 2018, August 2018 List, Awareness, Child, conference abstract, constant comparative method, Death, Diagnosis, Grounded Theory, Home Care, Hospice, Human, Interview, Ireland, Major Clinical Study, Male, Palliative Medicine, Palliative Therapy, pediatric nurse, Pediatric Nursing, Perception, Qualitative Research, Quality Of Life, Salvaggio E
Challenges in assessing the need for beds in palliative care-The example of inpatient hospice care for children, adolescents and young adults
Tags: 2018, Adult, Artificial Ventilation, August 2018 List, calculation, Child, conference abstract, Death, Diagnosis, disabled person, Female, Funding, Germany, Home Care, Hospice Care, Hospital Patient, Human, Jansky M, Jaspers B, Length Of Stay, Likert scale, Long Term Care, Major Clinical Study, Male, Mortality, Nauck F, occupation, Palliative Medicine, Palliative Therapy, Politics, Prevalence, psychosocial care, quantitative analysis, Resident, Semi Structured Interview, Statistics, Young Adult
Advance care planning and outcome in pediatric palliative home care
Tags: 2018, Advance Care Planning, Article, Balzer S, Borkhardt A, Child, Controlled Study, Danneberg M, Death, Female, Gagnon G, Hoell JI, Home Care, Hospice, Human, Janssen G, June 2018 List, Kuhlen M, Life Sustaining Treatment, Major Clinical Study, Male, medical order, Oncotarget, Palliative Therapy, Resuscitation, Retrospective Study, Trocan L, Weber HL
Bringing social context into the conversation about pediatric long-term ventilation
Tags: 2018, April 2018 List, Article, Artificial Ventilation, Boss RD, Child, decision support system, Family Decision Making, Henderson CM, Home Care, home care services, home environment, Hospital Patient, Hospital Pediatrics, Human, Life Sustaining Treatment, Long Term Care, Long-Term Care, Mechanical, Medical Information, Only Child, Patient-centered Care, Pediatrics, Personal Experience, practice gap, Quality Of Life, Social Environment, Tracheostomy, Ventilators, Wilfond BS
Palliative Sedation at Home for Terminally Ill Children With Cancer
Neurological palliative care in children
Tags: 2017, Adolescent, Adult, Child, Chromosome Aberration, Controlled Study, Female, Fuhrer M, Home Care, Hospice, Human, Icd-10, Infant, Journal Of The Neurological Sciences, Major Clinical Study, Male, March 2018 List, Metabolic Disorder, Mortality, Neoplasm, nervous system malformation, Neurology, Palliative Therapy, Preschool Child, Retrospective Study, Statistics
Paediatric palliative care at home: a single centre's experience
Community palliative care nurses’ challenges and coping strategies on delivering home-based pediatric palliative care: A qualitative study
GPs and paediatric oncology palliative care: a Q methodological study
"Let's bring her home first." Patient Characteristics and Place of Death in Specialized Pediatric Palliative Home Care
Experiences In Palliative Home Care Of Infants With Life-limiting Conditions.
The aim of this study was to determine the distinct issues neonates/infants with life-limiting conditions and their families face during palliative home care and to enable physicians/caregivers to carefully address their needs. Data on…
Tags: 2015, Borkhardt A, Caregivers, December 2016 List, European Journal of Pediatrics, Female, Germany, Höll J, Home Care, Home Care Services/statistics & Numerical Data, Hospitals Pediatric, Humans, Infant, Infant Mortality, Infant Newborn, Infants, Jansen G, Kuhlen M, Life-limiting Conditions, Male, Neonates, Palliative Care, Palliative Care/statistics & Numerical Data, Patient Comfort/statistics & Numerical Data, Sabir H, Terminal Care/statistics & Numerical Data
Volunteer Activity In Specialist Paediatric Palliative Care: A National Survey
Tags: 2015, Adolescent, Adult, BMJ Supportive & Palliative Care, Bravery R, Burbeck R, Candy B, Cross-sectional Study, England, Female, Health Care Survey, Home Care, Hospice, Hospice Care, Hospital Volunteer, Human, Internet, Low J, Male, Organization And Management, Palliative Therapy, Pediatrics, Procedures, Questionnaire, Sampson E L, Scott R, September 2017 List, Specialization, Statistics And Numerical Data, Young Adult
Aims And Tasks In Parental Caregiving For Children Receiving Palliative Care At Home: A Qualitative Study
Tags: 2017, Bosman DK, Child, Child Parent Relation, Clinical Article, Colenbrander DA, Controlled Study, European Journal of Pediatrics, Family Life, Grootenhuis MA, Home Care, Human, Interview, Kars MC, March 2017 List, Palliative Therapy, Personal Experience, Qualitative Research, Schouten-Van Meeteren AYN, Sound, Symptom, Thematic Analysis, van Delden JJ, Verberne LM
Listening To Parents: The Role Of Symptom Perception In Pediatric Palliative Home Care
Tags: 2016, Adult, Borasio GD, Brandstatter M, Cross Sectional Study, Death, Duroux A, Dyspnea/di [diagnosis], Female, Fuhrer M, Grasser M, Home Care, Human, January 2017 List, Male, Pain/di [diagnosis], Palliative & Supportive Care, Palliative Therapy, Parent, Pediatrics, Perception, Procedures, Psychology, Quality Of Life, Questionnaire, Retrospective Study, Standards, Symptom Assessment, Vollenbroich R