Browse Items (8 total)
- Tags: Medical Information
DMD-YOUNG: paediatric palliative care for children with a slowly progressive neuromuscular disorder in transition to adulthood
Tags: 2024, Adolescent, ADULTHOOD, Annexstad E, Child, conference abstract, Controlled Study, Coping, Coping Strategy Questionnaire, Duchenne Muscular Dystrophy, Employment, empowerment, February List 2025, housing, Human, Knowledge, Life Expectancy, Male, Medical Information, muscle function, Neuromuscular Disease, Neuromuscular Disorders, Nordstrom M, Norway, Palliative Therapy, Quality Of Life, Ramberg C, Rosenberger A, Social Behavior, social life, social network
Importance of parental involvement in paediatric palliative care in Hong Kong: Qualitative case study
Tags: 2023, Archives of Disease in Childhood, Article, Caregiver, Case Study, Chan SCW, Child, Child Health, Chiu ATG, Diagnosis, February List 2024, Female, Fung CW, Health Care Personnel, Ho ACH, Ho EKY, Ho JMC, Hong Kong, Human, Internet, Interview, Lai TC, Lam KKW, Lee LPY, Lee SWY, Li CH, Li CK, Male, Medical Information, Nurse, Palliative Therapy, Physician, Semi Structured Interview, Social Support, Therapy, Tsui KW, Wong FKY
Communication and information sharing with pediatric patients including refugees with advanced cancer, their caregivers, and health care professionals in Jordan: a qualitative study
Tags: 2023, 2023 SE3 - Oncology, Abdal-Rahman M, Adolescent, Adult, advanced cancer/dm [Disease Management], Ahmed F, Al-Awady S, Alajarmeh S, Alarjeh G, Alnassan A, Alrjoub W, Article, Attitude To Health, Boufkhed S, Caregiver, Child, Cross-sectional Study, doctor patient relationship, Female, Frontiers in Oncology, Guo P, Harding R, Health Care Personnel, Health Care Policy, health care practice, Human, Human Experiment, implicit bias, Information Dissemination, Jordan, Jordanian, Kutluk T, Male, Medical Information, myelodysplastic syndrome, myeloproliferative disorder, Palliative Therapy, pediatric patient, Qualitative Research, refugee, reticuloendothelial tumor, Semi Structured Interview, Shamieh O, Yurdusen S
Speaking a different language: Communication patterns of palliative care and pediatric intensive care unit providers during family conferences
Tags: 2017, audio recording, Ciriello A G, conference abstract, Controlled Study, December 2018 List, genetic transcription, Health Care Personnel, hopelessness, Human, Human Experiment, Language, Medical Information, October TW, Palliative Therapy, Pediatric Critical Care Medicine, Pediatric Intensive Care Unit, Quality Of Life, Retrospective Study, Speech, Thematic Analysis, Uncertainty
Pediatric advance care discussions between health care professionals and parents of children with a life-limiting disease: A qualitative interview study
Tags: 2018, August 2018 List, Borasio GD, Child, Clinical Article, conference abstract, Conversation, Data Analysis, Daxer M, Emotion, Female, Führer M, Germany, Health Care Personnel, Hein K, Heitkamp N, Human, Jox R, Knochel K, Male, Medical Information, Monz A, Palliative Medicine, Palliative Therapy, Perception, Semi Structured Interview, writing
Bringing social context into the conversation about pediatric long-term ventilation
Tags: 2018, April 2018 List, Article, Artificial Ventilation, Boss RD, Child, decision support system, Family Decision Making, Henderson CM, Home Care, home care services, home environment, Hospital Patient, Hospital Pediatrics, Human, Life Sustaining Treatment, Long Term Care, Long-Term Care, Mechanical, Medical Information, Only Child, Patient-centered Care, Pediatrics, Personal Experience, practice gap, Quality Of Life, Social Environment, Tracheostomy, Ventilators, Wilfond BS
Designing pain research from the patient's perspective: What trial end points are important to patients with chronic pain?
Tags: 2001, Adult, Aged, Article, Asch DA, Backlog, Casarett D, Chronic Pain/dt [Drug Therapy], Clinical Article, Clinical Study, Controlled Study, Demography, Disease Severity, Dose Response, Empiricism, Evaluation, Female, Health Center, Hirschman K, Human, Interview, Journal Article, Karlawish J, Male, Medical Decision Making, Medical Information, Medical Research, Methodology, Opiate/do [Drug Dose], Opiate/dt [drug Therapy], Outcomes Research, Pain Assessment, Pain Clinic, Pain Medicine, Perception, Qualitative Analysis, Rating Scale, Sankar P, Sleep, Urban Area
Guidance on forgoing life-sustaining medical treatment
Tags: 2017, Apparent Life Threatening Event/th [therapy], Article, Awareness, Boss RD, Caregiver, Carter BS, Child Abuse, Child Care, Christian CW, Clinical Decision Making, Comatose Patient, Consensus, Consultation, Critical Illness/th [therapy], Davies D, Death, Death By Neurologic Criteria, Dell ML, Developmental Disorder/th [therapy], Diekema DS, Disease Burden, Disease Course, Elster N, Ethical Decision Making, Extremely Low Gestational Age, Family Decision Making, Family Stress, Feudtner C, Flaherty EG, Fortson BL, Foster Care, Gavril AR, Gestational Age, Goal Attainment, Guinn-Jones M, Hauer JM, Health Belief, High Risk Population, Human, Humphrey LM, Hurley TP, Hydration, Idzerda SM, Imaizumi S, Imminent Death, Informed Consent, Intensive Care, Interpersonal Communication, Katz AL, Klick J, Klipstein S, Laskey A, Laventhal N, Legal Aspect, Legano LA, Leventhal JM, Life-sustaining Medical Treatment, Linebarger JS, Lord B, MacAuley RC, MacMillan H, Medical Ethics, Medical Expert, Medical Information, Medical Procedures, Medical Specialist, Medically Administered Nutrition And Hydration, Moon MR, Neglect, Neurologic Disease/di [diagnosis], November 2017 List, Nutrition, Okun AL, Opel DJ, Oxygenation, Pain/th [therapy], Palliative Therapy, Parker S, Patient Care Planning, Pediatrician, Pediatrics, Practice Guideline, Priority Journal, Prognosis, Quality Of Life, Resuscitation, Rivera F, shared decision making, Social Support, Spiritual Care, Statter MB, Stedt E, Survival, Teamwork, Terminal Care, Tissue Perfusion, Uncertain Prognosis, Weise KL