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Tags: Linebarger JS

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Including Goals of Care in Treatment Decisions—Meeting Them Where They Are Involves Moving

Asking about the guiding goal of care (GOC) offers health care professionals a perspective on how an individual patient or a family prioritizes health care decisions and is an essential component of shared-decision making. Listening to the patient…

Tags: 2023, Chronic Disease\, Conversation\, Critical Illness\, Decision Making Shared\, Family\, Goals and Objectives\, Health Personnel\, Health Priorities\, Health Status\, JAMA Pediatrics\'a0, Linebarger JS, October List 2025, Palliative Care\, Parents\, Patient Care Planning, Pediatric Care\, Quality of Life\

A Quality Improvement Project to Increase Palliative Care Team Involvement in Pediatric Oncology Patients

BACKGROUND: Pediatric palliative care (PPC) for oncology patients improves quality of life and the likelihood of goal-concordant care. However, barriers to involvement exist. OBJECTIVES: We aimed to increase days between PPC consult and death for…

Tags: 2020, 2021 Special Edition - Oncology, Clark NA, Ellis K, Farooki S, Lewing K, Linebarger JS, Olaiya O, Oncology, Palliative Care, Pediatric Blood & Cancer, Pediatric Palliative Care, refractory cancer, Stroh J, Tarbell L

Adolescents and Young Adults with Life-Threatening Illness: Special Considerations, Transitions in Care, and the Role of Pediatric Palliative Care

This article will cover the special considerations, challenges, and opportunities presented by caring for adolescents and young adults with life-threatening illnesses when the possibility of transition to an adult care setting arises.

Tags: 2014, Adolescents, Ajayi TA, Backlog, Jones BL, Journal Article, Life-threatening Illnesses, Linebarger JS, Pediatric Clinics of North America, Transition of care, Young Adults

Guidance on forgoing life-sustaining medical treatment

Pediatric health care is practiced with the goal of promoting the best interests of the child. Treatment generally is rendered under a presumption in favor of sustaining life. However, in some circumstances, the balance of benefits and burdens to the…

Tags: 2017, Apparent Life Threatening Event/th [therapy], Article, Awareness, Boss RD, Caregiver, Carter BS, Child Abuse, Child Care, Christian CW, Clinical Decision Making, Comatose Patient, Consensus, Consultation, Critical Illness/th [therapy], Davies D, Death, Death By Neurologic Criteria, Dell ML, Developmental Disorder/th [therapy], Diekema DS, Disease Burden, Disease Course, Elster N, Ethical Decision Making, Extremely Low Gestational Age, Family Decision Making, Family Stress, Feudtner C, Flaherty EG, Fortson BL, Foster Care, Gavril AR, Gestational Age, Goal Attainment, Guinn-Jones M, Hauer JM, Health Belief, High Risk Population, Human, Humphrey LM, Hurley TP, Hydration, Idzerda SM, Imaizumi S, Imminent Death, Informed Consent, Intensive Care, Interpersonal Communication, Katz AL, Klick J, Klipstein S, Laskey A, Laventhal N, Legal Aspect, Legano LA, Leventhal JM, Life-sustaining Medical Treatment, Linebarger JS, Lord B, MacAuley RC, MacMillan H, Medical Ethics, Medical Expert, Medical Information, Medical Procedures, Medical Specialist, Medically Administered Nutrition And Hydration, Moon MR, Neglect, Neurologic Disease/di [diagnosis], November 2017 List, Nutrition, Okun AL, Opel DJ, Oxygenation, Pain/th [therapy], Palliative Therapy, Parker S, Patient Care Planning, Pediatrician, Pediatrics, Practice Guideline, Priority Journal, Prognosis, Quality Of Life, Resuscitation, Rivera F, shared decision making, Social Support, Spiritual Care, Statter MB, Stedt E, Survival, Teamwork, Terminal Care, Tissue Perfusion, Uncertain Prognosis, Weise KL

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