Browse Items (39 total)
- Tags: Practice Guideline
Barriers and facilitators influencing referral and access to palliative care for children and young people with life-limiting and life-threatening conditions: a scoping review of the evidence
Tags: 2024, access to medication, biological marker, Child, Chudleigh J, Clinical practice guideline, Cochrane Library, community resource, Coombes L, drug bioavailability, Drug Therapy, family support, Fraser LK, Harding R, Health Care Access, Holder P, Human, Interdisciplinary Communication, November List 2024, Palliative Medicine, Palliative Therapy, Parental Attitude, Patient Referral, Practice Guideline, Psycinfo, Quantitative Study, Review, Scoping review, Systematic Review, Terminal Care, Workplace
Immersive Virtual Reality for Pain and Anxiety Management Associated with Medical Procedures in Children and Adolescents: A Systematic Review
Tags: 2024, Adolescence, anxiety, burn, Caregiver, Children, computer aided design, computer assisted tomography, Cost Effectiveness Analysis, Delirium, dizziness, Endoscopy, Faces Pain Scale, Headache, Heart Rate, Human, immunization, Likert scale, lung function test, Medical Procedures, meta analysis, metastatic colorectal cancer, November List 2024, Ortega-Donaire L, outcome assessment, Pain, Pain Intensity, Palliative Therapy, Practice Guideline, quality control, Questionnaire, Randomized Controlled Trial (topic), Rating Scale, Review, Sanchez-Caballero E, Sanz-Martos S, skin conductance, Systematic Review, Vaccination, vein puncture, virtual reality, Visual Analog Scale, wound closure
Navigating the shadows: medical professionals' values and perspectives on end-of-life care within pediatric intensive care units in Croatia
Tags: 2024, Article, Borovecki A, Child, Croatia, Cross-sectional Study, Curkovic M, Decision Making, Female, Filipovic-Grcic B, Frontiers in Pediatrics, Grosek S, Health Care Personnel, Human, Intensive Care, Intensive Care Unit, Jankovic S, Jozepovic A, Kujundzic Tiljak M, Lah Tomulic K, Life Sustaining Treatment, Male, Mestrovic J, Novak M, Nurse, October List 2024, overall response rate, Pediatric Intensive Care Unit, Peter B, Physician, Practice Guideline, Professional Standard, Rubic F, Spoljar D, Stajduhar A, Terminal Care, Vukovic J
Structured Framework for Multidisciplinary Parent Counseling and Medical Interventions for Fetuses and Infants with Trisomy 13 or Trisomy 18
Tags: 2024, American Journal of Perinatology, Artificial Ventilation, August List 2024, Continuous Positive Airway Pressure, Decision Making, diaphragm hernia, Dukhovny S, Early Intervention, Echocardiography, endotracheal intubation, enteric feeding, feeding disorder, Fetus, fetus distress, Gievers L, Health Care Personnel, Human, Infant, Intensive Care Unit, Kim AJH, Madriago EJ, Marshall M, mood disorder, Morbidity, Mortality, mortality risk, multiple organ failure, nasogastric tube, neural tube defect, Newborn, noninvasive positive pressure ventilation, Palliative Therapy, parent counseling, Practice Guideline, Qualitative Analysis, Resuscitation, Review, Ronai C, Seizure, Sepsis, Sleep Apnea Syndromes, Tate T, Taub S, Tracheostomy, trisomy 13/di [Diagnosis], trisomy 13/ep [Epidemiology], trisomy 18/di [Diagnosis], trisomy 18/ep [Epidemiology], ultrasound
Scandinavian perspectives on life support at the border of viability
Tags: 2024, Clinical Practice, Consensus, Denmark, Family Centered Care, Frontiers in Pediatrics, Gestational Age, Human, July List 2024, Medical Ethics, Newborn Care, Norway, Palliative Therapy, Practice Guideline, Prematurity, Prognosis, Scandinavia, shared decision making, Short Survey, Sweden, Syltern J
A Prospective Pilot Study of Longitudinal Parent Anxiety Screening: Implications for Data-Driven Palliative Care
Tags: 2024, Adult, anxiety, Bemis H, Caregiver, Caucasian, Child, conference abstract, Controlled Study, Decision Making, Diagnosis, Distress Syndrome, Female, Hispanic, Human, Journal of Pain and Symptom Management, June List 2024, Klein M, Lotstein D, Major Clinical Study, Male, Palliative Therapy, Parent, Patient Referral, patient triage, Pilot Study, Practice Guideline, preliminary data, Ritter MD, Screening, Self Report, Spaniard, supportive care need, Treatment Outcome
Improving family grief outcomes: A scoping review of family-based interventions before and after the death of a child
Tags: 2024, Article, Bereavement, Bidstrup PE, Child, Child Death, Family, Family Therapy, Grief, Guldin MB, Hoeg BL, Hogh J, Human, Larsen HB, May List 2024, Only Child, Palliative Medicine, Palliative Therapy, Practice Guideline, Preferred Reporting Items for Systematic Reviews and Meta-Analyses, School Child, Scoping review, Sibling, Systematic Review, Therapy, Volkmann JE, Wolfe J
The funding of specialised paediatric palliative care in Switzerland: a conceptualisation and modified Delphi study on obstacles and priorities
Tags: 2023, Adult, Aged, Article, Bergstrasser E, Clinical Practice, Consensus Development, Delphi Study, Delphi Technique, evidence based medicine, Female, Fink G, Funding, Gerber AK, Health Care Cost, Health Care Delivery, Health Service, Human, Male, March List 2024, Mitterer S, modified Delphi study, Palliative Care, Palliative Therapy, Pediatrics, Practice Guideline, program effectiveness, Program Sustainability, Reimbursement, Simon M, Swiss Medical Weekly, Switzerland, Zimmermanna K
Palliative care for children: methodology for the development of a national clinical practice guideline
Tags: 2023, Advance Care Planning, Article, Bereavement, BMC Palliative Care, Borggreve BCM, Child, Drug Administration, evidence based medicine, February List 2024, Human, Kremer LCM, Methodology, Michiels EMC, Mulder RL, Palliative Therapy, Practice Guideline, psychosocial care, Qualitative Research, Randomized Controlled Trial, Rippen H, shared decision making, special situation for pharmacovigilance, Systematic Review, Therapy, van Teunenbroek KC, Verhagen AAE, Verheijden JMA
Optimizing resource utilization: Palliative care consultations in critically ill pediatric trauma patients
Tags: 2023, Adolescent, Arteaga GM, Article, Baxter J, Child, Child Abuse, childhood trauma, Clinical Feature, Consultation, Controlled Study, Critically Ill Patient, electronic medical record, Elsbernd TA, February List 2024, Female, Goswami J, Human, Infant, injury, Intensive Care Unit, Klinkner DB, Major Clinical Study, Male, Palliative Therapy, Pediatric Intensive Care Unit, Practice Guideline, Retrospective Study, Schiltz BM, School Child, special situation for pharmacovigilance, Surgery, toddler, Total Quality Management, Trauma Surgery and Acute Care Open, traumatic brain injury
Palliative Care for Childhood Cancer
Tags: 2022, 2023 SE3 - Oncology, Advanced Cancer, Cancer Palliative Therapy, Cancer Patient, Cause Of Death, Child, Child Health Care, childhood cancer/th [Therapy], Children, collaborative care team, daily life activity, Disease Burden, Editorial, evidence based practice, Family, Health Care Access, health care need, Health Care Personnel, health care planning, Health Care Quality, Hematopoietic stem cell transplantation, Home Care, Hope, Hospital care, Human, illness trajectory, Medical Education, Michiels EM, Nausea, Netherlands, Nurse, Pain, Palliative Care, patient worry, personalized cancer therapy, Physician, Practice Guideline, Quality Of Life, Vomiting
More qualitative research is needed to unpack the complexities of resuscitation decisions for preterm infants
Tags: 2023, Acta Paediatrica, International Journal of Paediatrics, Cavolo A, Gastmans C, Gestational Age, Human, Infant, Infant Premature, Letter, Medical Decision Making, November List 2037, Palliative Therapy, pediatric patient, Practice Guideline, Prematurity, Qualitative Research, Resuscitation
Internet Health Resources on Nocturnal Enuresis - A Readability, Quality and Accuracy Analysis
Tags: 2023, Article, Chan IHY, Child, Clinical Article, continence, Controlled Study, enuresis, European journal of pediatric surgery : official journal of Austrian Association of Pediatric Surgery ... [et al] = Zeitschrift fur Kinderchirurgie, Female, Fung ACH, government, health care planning, Human, Internet, Kenneth W, Lee MHL, Leung L, Male, nephrologist, nocturnal enuresis, October List 2046, pediatric surgeon, Practice Guideline, Questionnaire, reading, search engine, urologist
Evaluation Of Temporal Health System Factors Influencing Parallel Palliative Care Referral For Children With Complex Cardiorespiratory Diagnosis And Treatment
Tags: 2023, Adolescent, Aidoo E, apparent life threatening event, Archives of Disease in Childhood, Artificial Ventilation, Awareness, Chan-Dominy A, Child, Clinical Article, Clinical Nurse Specialist, community care, conference abstract, Consultation, Controlled Study, Decision Making, Demographics, Diagnosis, E-mail, Education, Female, Follow Up, Freitas D, heart graft, Hospice, hospital discharge, Human, Infant, Length Of Stay, Life Sustaining Treatment, Male, Nkulu G, Nurse, Nursing Staff, October List 2031, organizational restructuring, outcome assessment, Oxygenation, Palliative Care, Palliative Therapy, Patient Referral, Pediatric Intensive Care Unit, Practice Guideline, Quality Of Life, Retrospective Study, Subhash S, Surgery, Trust, writing
The FATHER Model of Loss and Grief After Child's Life-Limiting Illness
Tags: 2023, ambivalence, anxiety, Article, August List 2045, Child, Cinahl, Davies S, Deterioration, directory, disenfranchised grief, ethnography, Father, Fatigue, Female, Grief, Guilt, Hamilton J, Human, injury, Male, Medline, Mental Health, meta analysis, Michael A, Mother, Mukaetova-Ladinska EB, Only Child, Palliative Therapy, Pediatrics, Postavaru GI, Practice Guideline, Preferred Reporting Items for Systematic Reviews and Meta-Analyses, quality control, ScienceDirect, Scopus, Swaby H, Swaby R, Systematic Review, unresolved grief
Neonatal Palliative Care Practices: An Indian Perspective
Tags: 2022, 2022 Special Edition Low Resource Setting Issue, Article, Female, Goyal M, Human, Human Experiment, India, Male, Mascarenhas D, Memory, middle income country, Nanavati R, Neonatal Intensive Care Unit, Neonatal Nurse, Neonatologist, Newborn, Paediatrics and International Child Health, Palliative Therapy, Photography, Practice Guideline, Questionnaire, Terminal Care
Use of Mobile Cold Sheets in Paediatric Hospice Care
Tags: 2022, Australia, BMJ Supportive and Palliative Care, Child, Child Parent Relation, cold stress, Cold Temperature, conference abstract, cooling, Emergency Care, funeral home, Hospice, Hospice Care, Human, Learning, March List 2023, Memory, Mott C, nut, Oldham K, Posthumous Care, Practice Guideline, Privacy, Twins, unlicensed drug use
Palliative Care Nurse: A Quantitative Study of Caring for Neonates at End-Of-Life Stage
Tags: Article, Infant, Newborn, Nurse, Terminal Care, 2022, Annals of Medicine and Surgery, care behavior, Checklist, content validity, Controlled Study, correlation coefficient, face validity, Health Care Quality, Human, Intensive Care, Neonatal Intensive Care Unit, Nourian M, November 2022 List, Nursing Care, Palliative Therapy, Pourhoseingholi MA, Practice Guideline, Rassouli M, Reliability, Shahintab S
The Dutch Multidisciplinary Clinical Practice Guideline for Pediatric Palliative Care
Tags: 2022, Advance Care Planning, Bereavement Support, Borggreve B, Child, Clinical Practice, conference abstract, Controlled Study, December List 2022, Female, Human, Kremer L, Male, Michiels E, Mulder R, Netherlands, Palliative Therapy, Pediatric Blood and Cancer, Practice Guideline, Randomized Controlled Trial (topic), shared decision making, Systematic Review, Van Teunenbroek K, Verhagen AAE
Parental experience of hope in pediatric palliative care: Critical reflections on an exemplar of parents of a child with trisomy 18
Tags: 2020, 2022 Special Edition 1 - Parent Perspectives, care behavior, Child, child protection, Controlled Study, Edwards syndrome, family counseling, Grounded Theory, Intensive Care Unit, Nursing inquiry., Pain, Palliative Therapy, Patient Education, Pediatrics, personnel management, Practice Guideline, son, Szabat M
Oral and dental considerations in pediatric cancers
Tags: 2020, Adolescent, Cancer metastasis reviews, cancer prevention, cancer screening, Cancer Survival, cancer survivor, Cancer Therapy, Child, Childhood Cancer, Chrisentery-Singleton T E, Complication, Counseling, dental procedure, English (language), Female, Human, immunosuppressive treatment, Male, Medline, mouth infection, mucosa inflammation, occupation, Oncology 2020 List, Pain, Palliative Therapy, pediatric dentist, Practice Guideline, Prevention, Review, Ritwik P, Survival Rate, Systematic Review, tooth malformation, vulnerable population
Introduction of triggers for palliative care consultation improve utilization and and satisfaction within a level 4 NICU
Parental experience of hope in pediatric palliative care: Critical reflections on an exemplar of parents of a child with trisomy 18
Tags: 2020, Article, care behavior, Child, child protection, Controlled Study, Edwards syndrome, family counseling, Female, Grounded Theory, Human, Intensive Care Unit, Male, March 2020 List, Nursing Inquiry, Pain, Palliative Therapy, Patient Education, Pediatrics, personnel management, Practice Guideline, son, Szabat M
Key Findings of the Structures and Processes of Inpatient Pediatric Palliative Care Programs (S737)
Tags: 2020, Burnout, Child, Clergy, conference abstract, Controlled Study, Female, Friebert S, Health Care Delivery, Health Care System, Heitner R, Hospital Patient, Human, Journal of Pain and Symptom Management, Klick J, Major Clinical Study, Male, March 2020 List, Palliative Therapy, Physician, Practice Guideline, registered nurse, Rogers M, Social Worker, Williams C
Identifying key elements for paediatric advance care planning with parents, healthcare providers and stakeholders: A qualitative study
Tags: 2020, Adolescent, Advance Care Planning, Article, Awareness, Borasio G D, Child, Content Analysis, Decision Making, Documentation, Emergency Health Service, Female, Fuhrer M, Health Care Personnel, Hein K, Heitkamp N, Human, Human Experiment, Knochel K, living will, Male, March 2020 List, Monz A, Palliative Medicine, Palliative Therapy, Pediatrics, Practice Guideline, Qualitative Research, Reimann D, Trust, Zaimovic V
The integration of palliative care in Dr Congo "a Model of Sustainability": A field study
Tags: 2018, Analgesia, capacity building, Caregiver, Child, conference abstract, Congo, Congolese (Kinshasa), Developing World 2019 List, doctor nurse relation, Female, field study, Home Care, Human, Journal of Global Oncology, Leadership, Major Clinical Study, Male, Mubeneshayi Kananga A, Organization, Palliative Therapy, Practice Guideline, Primary Health Care, sensitization, Training, uganda, Volunteer
Feed-induced Dystonias in Children with Severe Central Nervous System Disorders
Tags: 1134-47-0 (baclofen), 2017, acquired brain injury, Adolescent, Article, Baclofen/dt [drug Therapy], baclofen/tl [Intrathecal Drug Administration], Campbell D I, Case Study, central nervous system disease, Cerebral Palsy, Child, Clinical Article, Constipation, Dystonia, dystonia/dt [Drug Therapy], feed induced dystonia, feed induced dystonia/dt [Drug Therapy], feeding difficulties, Female, Gastroesophageal Reflux, Gastroscopy, GERD, Human, Hydrocephalus, Hyperglycinemia, Infant, infantile spasm, intestinal dysmotility, intestine motility, Intestine Obstruction, Journal Of Pediatric Gastroenterology And Nutrition, Male, microcephaly, Mordekar S R, motor dysfunction, MPSIII, onset age, Parenteral Nutrition, Percutaneous Endoscopic Gastrostomy, peristalsis, pharmacologic intervention, Practice Guideline, Preschool Child, Priority Journal, reflux esophagitis, Retrospective Study, Rett syndrome, Sanfilippo syndrome, School Child, tone and motor problems, total parenteral nutrition, Velayudhan M, West syndrome
The impact of home-based physical rehabilitation program on parents' experience with children in palliative care: a qualitative study
Tags: 2019, Adult, Article, Child, Chocarro-Gonzalez L, Education, European journal of physical and rehabilitation medicine, genetic transcription, Gueita-Rodriguez J, home environment, Human, Martino-Alba R, October 2019 List, Pain, Palacios-Cena D, Palliative Therapy, Practice Guideline, Qualitative Research, Quality Of Life, Rico-Mena P, Semi Structured Interview, Spain, Thematic Analysis, Young Adult
Development and integration of a perinatal palliative care program at a tertiary care center
Tags: 2019, Abortion, anencephalus, Child, Clergy, Comfort, conference abstract, Controlled Study, electronic medical record, Female, Fetus Malformation, Hospice, Human, Intensive Care, Journal Of Investigative Medicine, June 2019 List, May R, Neonatologist, Newborn, Nurse, Oklahoma, Palliative Therapy, Perinatal Care, Practice Guideline, Prenatal Diagnosis, Shah B A, Social Worker, tertiary care center, White L, Wlodaver A
Impact of Pediatric palliative care initiative at tertiary cancer care hospital of nepal
Tags: 2018, Analgesia, Brain Tumor, cancer center, Case Study, Child, conference abstract, Developing World 2018 List, Diagnosis, Dyspnea, Female, Gastrointestinal Symptom, Hematologic Malignancy, Hospice, Human, Major Clinical Study, Male, Nepal, Palliative Therapy, Panthee S, Pediatric Blood and Cancer, Practice Guideline, Quality Of Life, Sarcoma, Sharma KS, Terminal Care, wound
Are pediatric patients just short adults? most commonly prescribed drugs for pediatric hospice patients
Tags: 2018, acid, Adult, Cancer Patient, central nervous system cancer, Chi Square Test, Child, conference abstract, Constipation, Controlled Study, Corticosteroid, Death, Diagnosis, diazepam, diphenhydramine, drug formulation, Drug Therapy, Dyspnea, Female, Genetic Disorder, Haloperidol, Hospice Care, hospice patient, Human, hyoscyamine, Institutional Review, laxative, Length Of Stay, levetiracetam, Lorazepam, macrogol, Major Clinical Study, McPherson ML, metoclopramide, Morgan J, Morphine, Nausea, November 2018 List, ondansetron, Opiate, Pain, Paracetamol, patient information, pediatric patient, Postgraduate Medicine, Practice Guideline, Preschool Child, prochlorperazine, Retrospective Study, salbutamol, Seizure, Sera L, Unclassified Drug, vitamin
Caring for dying children in the paediatric intensive care unit [PICU]
Tags: 2018, Child, Child Parent Relation, Clinical Article, conference abstract, Critically Ill Patient, Female, Human, intimacy, Male, Mattsson J, Medical Examination, November 2018 List, Nurse, Palliative Therapy, Pediatric Critical Care Medicine, Pediatric Intensive Care Unit, Practice Guideline, Sweden, Terminal Care
Survey on Neonatal End-of-Life Comfort Care Guidelines Across America
Tags: 2018, anxiety, April 2018 List, Article, bodily secretions, Canada, Carter B, Comfort, Compassion Fatigue, Farooqi S, Gastrointestinal Symptom, geographic distribution, Haug S, Hopper A, Human, Infant, Institutional Review, Intensive Care, Journal of Pain and Symptom Management, neonatal nurse practitioner, Neonatologist, Newborn, Oei G, Pain, Palliative Care, Palliative Therapy, Pediatrics, Perinatal Care, Practice Guideline, Satisfaction, Terminal Care, Wilson CG
Neonatal end-of-life care: A single-center NICU experience in Israel over a decade
Tags: 2013, adrenal insufficiency/ep [Epidemiology], anemia/ep [Epidemiology], Article, Bar-Oz B, brain edema/ep [Epidemiology], brain hemorrhage/ep [Epidemiology], Cause Of Death, Child Parent Relation, congenital malformation/ep [Epidemiology], Eventov-Friedman S, Gestational Age, Human, Incidence, Israel, Jerusalem, Kanevsky H, kidney failure/ep [Epidemiology], March 2018 List, Medical Decision Making, Middle East, necrotizing enterocolitis/ep [Epidemiology], Newborn, Newborn Care, Newborn Death, newborn hypoxia/ep [Epidemiology], Newborn Intensive Care, newborn mortality, newborn sepsis/ep [Epidemiology], Pediatrics, Practice Guideline, Prematurity, Priority Journal, Quality Of Life, Religion, respiratory failure/ep [Epidemiology], sepsis/ep [Epidemiology], shock/ep [Epidemiology], treatment duration
Advanced care planning in cystic fibrosis
Tags: 2017, 7782-44-7 (oxygen), Altstein L, Bach K, chest tube, Child, Clinical Article, Comfort, Cystic Fibrosis, durable power of attorney, Female, Forced Expiratory Volume, Friedman D, Georgiopoulos A, hemoptysis, Hospitalization, Human, Islam S, January 2018 List, Lifespan, Linnemann RW, living will, Male, Moskowitz SM, Outpatient, oxygen, Palliative Therapy, Pediatric Pulmonology, Pilot Study, pneumothorax, Practice Guideline, School Child, St John A, thinking, Yonker LM
Guidance on forgoing life-sustaining medical treatment
Tags: 2017, Apparent Life Threatening Event/th [therapy], Article, Awareness, Boss RD, Caregiver, Carter BS, Child Abuse, Child Care, Christian CW, Clinical Decision Making, Comatose Patient, Consensus, Consultation, Critical Illness/th [therapy], Davies D, Death, Death By Neurologic Criteria, Dell ML, Developmental Disorder/th [therapy], Diekema DS, Disease Burden, Disease Course, Elster N, Ethical Decision Making, Extremely Low Gestational Age, Family Decision Making, Family Stress, Feudtner C, Flaherty EG, Fortson BL, Foster Care, Gavril AR, Gestational Age, Goal Attainment, Guinn-Jones M, Hauer JM, Health Belief, High Risk Population, Human, Humphrey LM, Hurley TP, Hydration, Idzerda SM, Imaizumi S, Imminent Death, Informed Consent, Intensive Care, Interpersonal Communication, Katz AL, Klick J, Klipstein S, Laskey A, Laventhal N, Legal Aspect, Legano LA, Leventhal JM, Life-sustaining Medical Treatment, Linebarger JS, Lord B, MacAuley RC, MacMillan H, Medical Ethics, Medical Expert, Medical Information, Medical Procedures, Medical Specialist, Medically Administered Nutrition And Hydration, Moon MR, Neglect, Neurologic Disease/di [diagnosis], November 2017 List, Nutrition, Okun AL, Opel DJ, Oxygenation, Pain/th [therapy], Palliative Therapy, Parker S, Patient Care Planning, Pediatrician, Pediatrics, Practice Guideline, Priority Journal, Prognosis, Quality Of Life, Resuscitation, Rivera F, shared decision making, Social Support, Spiritual Care, Statter MB, Stedt E, Survival, Teamwork, Terminal Care, Tissue Perfusion, Uncertain Prognosis, Weise KL
[Use of subcutaneous route for comfort care in neonatal palliative population: Systematic review and survey of practices in France]
Tags: 2017, Analgesia, Analgesic Agent, Archives de Pediatrie, Child, Comfort, Drug Therapy, France, Human, Medline, Neonatal Intensive Care Unit, Newborn, November 2017 List, Palliative Therapy, Pouvreau N, Practice Guideline, Renesme L, Sedation, Systematic Review, Tandonnet J, Tandonnet O, Tranquilizing Activity