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Parental experience of hope in pediatric palliative care: Critical reflections on an exemplar of parents of a child with trisomy 18

The purpose of this study is to analyze the experience of hope that appears in a parent's blog presenting everyday life while caring for a child with Trisomy 18 (Edwards syndrome). The author, Rebekah Peterson, began her blog on 17 March 2011 and…

Tags: 2020, 2022 Special Edition 1 - Parent Perspectives, care behavior, Child, child protection, Controlled Study, Edwards syndrome, family counseling, Grounded Theory, Intensive Care Unit, Nursing inquiry., Pain, Palliative Therapy, Patient Education, Pediatrics, personnel management, Practice Guideline, son, Szabat M

Parental experience of hope in pediatric palliative care: Critical reflections on an exemplar of parents of a child with trisomy 18

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