Identifying key elements for paediatric advance care planning with parents, healthcare providers and stakeholders: A qualitative study

Identifying key elements for paediatric advance care planning with parents, healthcare providers and stakeholders: A qualitative study

Hein K; Knochel K; Zaimovic V; Reimann D; Monz A; Heitkamp N; Borasio G D; Fuhrer M

Palliative Medicine

2020

adolescent; advance care planning; article; awareness; child; content analysis; decision making; documentation; emergency health service; female; health care personnel; human; human experiment; living will; male; Palliative therapy; pediatrics; practice guideline; qualitative research; trust

BACKGROUND: Although international guidelines recommend discussions about goals of care and treatment options for children with severe and life-limiting conditions, there are still few structured models of paediatric advance care planning. AIM: The study aimed at identifying key components of paediatric advance care planning through direct discussions with all involved parties. DESIGN: The study had a qualitative design with a participatory approach. Participants constituted an advisory board and took part in two transdisciplinary workshops. Data were collected in discussion and dialogue groups and analysed using content analysis. SETTING/PARTICIPANTS: We included bereaved parents, health care providers and stakeholders of care networks.

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March 2020 List