Identifying key elements for paediatric advance care planning with parents, healthcare providers and stakeholders: A qualitative study

Title

Identifying key elements for paediatric advance care planning with parents, healthcare providers and stakeholders: A qualitative study

Creator

Hein K; Knochel K; Zaimovic V; Reimann D; Monz A; Heitkamp N; Borasio G D; Fuhrer M

Publisher

Palliative Medicine

Date

2020

Subject

adolescent; advance care planning; article; awareness; child; content analysis; decision making; documentation; emergency health service; female; health care personnel; human; human experiment; living will; male; Palliative therapy; pediatrics; practice guideline; qualitative research; trust

Description

BACKGROUND: Although international guidelines recommend discussions about goals of care and treatment options for children with severe and life-limiting conditions, there are still few structured models of paediatric advance care planning. AIM: The study aimed at identifying key components of paediatric advance care planning through direct discussions with all involved parties. DESIGN: The study had a qualitative design with a participatory approach. Participants constituted an advisory board and took part in two transdisciplinary workshops. Data were collected in discussion and dialogue groups and analysed using content analysis. SETTING/PARTICIPANTS: We included bereaved parents, health care providers and stakeholders of care networks.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

March 2020 List

Collection

Citation

Hein K; Knochel K; Zaimovic V; Reimann D; Monz A; Heitkamp N; Borasio G D; Fuhrer M, “Identifying key elements for paediatric advance care planning with parents, healthcare providers and stakeholders: A qualitative study,” Pediatric Palliative Care Library, accessed July 27, 2021, https://pedpalascnetlibrary.omeka.net/items/show/16997.

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