Browse Items (157 total)
- Tags: Major Clinical Study
Neonatal serious illness: operational definition
Tags: 2023, Article, BMJ Supportive & Palliative Care, Cause Of Death, Cohort Analysis, Controlled Study, Conversation, Female, Guttmann K, Hospital care, Human, Infant, Infant Newborn, Major Clinical Study, Male, Newborn, October List 2041, Palliative Therapy, Pediatrics, Prognosis, rank sum test, Retrospective Study, Silverman R, Terminal Care, Weintraub AS
Facilitators and barriers perceptions to early referral to pediatric palliative care perceived
Tags: 2023, Adult, Andes Pediatrica, Article, Ceballos-Yanez D, Child, Clinical Practice, Controlled Study, Demography, Eugenin-Soto MI, Female, Human, Major Clinical Study, Male, Multicenter Study, Palliative Care, Palliative Therapy, Patient Referral, Patricio AP, Pediatrician, Perception, Professional Practice, Referral And Consultation, Religion, September List 2030
Appropriateness of end-of-life care for children with genetic and congenital conditions: a cohort study using routinely collected linked data
Tags: 2023, administrative health data, Article, August List 2043, Beernaert K, Belgium, Bereavement, Child, Cohen J, Cohort Analysis, Cohort Studies, computer assisted tomography, congenital disorder, Debulpaep S, Decision Making, Deliens L, Drawing, Empirical Research, European Journal of Pediatrics, Female, General Practitioner, genetic association, Genetic Disorder, Health Care System, Human, Major Clinical Study, Male, nuclear magnetic resonance imaging, Palliative Therapy, paramedical personnel, Pediatrics, Physician, Piette V, Terminal Care, X ray
Barriers to Pediatric Palliative Care: Trainee and Faculty Perspectives Across Two Academic Centers
Tags: 2023, Agrawal AK, Article, August List 2038, Bogetz JF, Child, Communication Barrier, Controlled Study, Education, Female, Fogel AH, Human, Journal of Palliative Medicine, Lelkes E, Levine A, Life Sustaining Treatment, Major Clinical Study, Male, McPoland P, Multicenter Study, Palliative Care, Palliative Therapy, Pediatric Hospital, Perception, personnel shortage, Physician, Prognosis, Resident, Thematic Analysis, United States, Winn PA
Goals of Care Among Parents of Children Receiving Palliative Care
Tags: 2023, Article, August List 2032, Beight LJ, Bogetz JF, Boyden JY, Child, Chronic Disease, Cohort Analysis, Comfort, Controlled Study, Demographics, Feudtner C, Friebert SE, Hall M, Hill DL, Hinds PS, Human, JAMA Pediatrics, Johnston EE, Kang TI, life extension, Major Clinical Study, Male, Nye RT, Palliative Care, Palliative Therapy, Patient Care Planning, Quality Of Life, Wolfe J
Increasing Trend and Effects of Pediatric Palliative Care on Children with Non-Cancer Diagnoses
Tags: 2023, Analgesia, Article, Artificial Ventilation, August List 2028, Cancer Patient, Cancer Survival, Chang CH, Chen HL, Chen SH, Cheng SY, Child, Cohort Analysis, Controlled Study, Female, Human, Journal of Pain and Symptom Management, Lu FL, Major Clinical Study, Male, Morphine, Only Child, Palliative Care, Palliative Therapy, Retrospective Study, Survival, Terminal Care, trend study, ventilator, Wang CC, Wu ET, Yu Su M
Specialized pediatric palliative care services in pediatric hematopoietic stem cell transplant centers
Tags: 2021, Advance Care Planning, Article, Bader P, Bereavement Counseling, Bereavement Support, Cause Of Death, Child, Children, Controlled Study, Corbacioglu S, Dalissier A, Descriptive Research, Ethics, Female, Galimard JE, Gjergji M, Hematopoietic stem cell transplantation, Hematopoietic Stem Cells, Home, Hospice, Hospital, Human, Hutt D, in-hospital mortality, July List 2023, Kenyon M, Kozijn A, Liptrott S, Major Clinical Study, Male, Mekelenkamp H, Mortality, Murray J, Palliative Care, Palliative Therapy, Patient Referral, Pediatric Intensive Care Unit, Place Of Death, relapse, Retrospective Study, Schroder T, Spiritual Care, Stem Cell Transplantation, Trigoso E
Impact of Palliative Care Integration on End-of-Life Outcomes in Pediatric Hematopoietic Cell Transplant
Tags: 2023, anxiety, Appetite, Baker JN, bleeding, bodily secretions, Child, conference abstract, Controlled Study, coughing, Cuviello A, Data Analysis, Demographics, Diarrhea, Distress Syndrome, do not resuscitate order, Documentation, Dyspnea, edema, Fatigue, Female, fever, hematopoietic cell, Hospice, Human, human cell, Intubation, Irritability, July List 2023, Levine DR, Lifespan, Major Clinical Study, Male, Medical Record Review, Nausea And Vomiting, Pain, Palliative Care, Palliative Therapy, Quality Of Life, Retrospective Study, Surgery, Survival, Terminal Care, Transplantation, Transplantation and Cellular Therapy
Early Integration of Pediatric Palliative Care in Pediatric Hematopoietic Stem Cell Transplant Patients
Tags: 2023, Callard E, Child, conference abstract, Consultation, Controlled Study, Distress Syndrome, evidence based practice center, Female, Fisher J, Hematopoietic Stem Cell, Hematopoietic Stem Cells, Human, human cell, July List 2023, Kent L, Learning, Major Clinical Study, Male, Medical Record Review, Morbidity, Mortality, Palliative Care, Palliative Therapy, Pinner LA, Pyke-Grimm K, Retrospective Study, Risk Assessment, Satisfaction, staff training, Stem Cell Transplantation, Transplantation, Transplantation and Cellular Therapy, Williams M
Palliative team involvement in end-of-life care for Jewish and Muslim children in Jerusalem: A unique clinical and cultural context
Tags: 2023, Analgesia, Article, Child, Decision Making, Female, Follow Up, Fried I, Genetic Disorder, Human, invasive procedure, living will, Major Clinical Study, Male, May List 2023, Medical Record Review, Muslim, Palliative And Supportive Care, Palliative Therapy, pediatric patient, psychosocial care, religious background, Retrospective Study, Shack AR, Siedner-Weintraub Y, Spiritual Care, Terminal Care
Timing of palliative consultation for children during a fatal illness
Tags: 2019, African American, Article, Cardiovascular Disease, Caucasian, Child, Childhood Disease, Cohort Analysis, Female, Fosselman DD, Hospital Pediatrics, Human, Humphrey L, Insurance, Ketner AR, Length Of Stay, Major Clinical Study, Male, May List 2023, Miller R, Only Child, outcome assessment, Palliative Therapy, private health insurance, Referral And Consultation, Retrospective Study, Rossfeld ZM, Tobias JD, Tumin D
Population-Level Analysis of Appropriateness of End-of-Life Care for Children with Neurologic Conditions
Tags: 2023, Analysis of Variance, Article, Beernaert K, Belgium, Child, Cohen J, Cohort Analysis, Comfort, Deliens L, Drawing, Female, financial management, Follow Up, General Practitioner, Human, Intensive Care Unit, Major Clinical Study, Male, May List 2023, nationality, Palliative Therapy, Phlebotomy, Physician, Piette V, Retrospective Study, Sibling, Smets T, Surgery, Terminal Care, The Journal Of Pediatrics, Total Quality Management, van Berlaer G
End of life in patients attended by pediatric palliative care teams: what factors influence the place of death and compliance with family preferences?
Tags: 2023, Article, Child, Child Death, Childhood Mortality, death toll, Decision Making, Escobosa-Sanchez O, European Journal of Pediatrics, Female, Follow Up, Home Visit, Hospital Mortality, Human, living will, Madrid-Rodriguez A, Major Clinical Study, Martino-Alba R, May List 2023, Morales-Asencio JM, Multicenter Study, Navarro-Mingorance Á, neuromuscular function, Palliative Care, Palliative Therapy, Peláez-Cantero MJ, Place Of Death, Probability, Quality Of Life, Right to Die, Tavera-Tolmo A, Terminal Care
Data-driven approach to understanding neonatal palliative care needs in England and Wales: a population-based study 2015-2020
Tags: 2023, Archives of Disease in Childhood, Article, Battersby C, England, Female, Harnden F, Human, Infant, Infant Newborn, Lanoue J, long term survival, Major Clinical Study, Male, May List 2023, Modi N, Morbidity, Neonatology, Newborn, Newborn Care, Palliative Care, Palliative Therapy, Perinatal Care, Uthaya SN, Wales
Parent and Provider Perspectives of a Hospital-Based Bereavement Support Program in Pediatric Palliative Care
Tags: 2023, Article, Bereavement, Bereavement Support, Bradford N, Bunker K, Child, Cross-sectional Study, Donovan L, Elvidge N, Expectation, Female, Grief, Gundry A, Herbert A, Human, Human Experiment, Journal of Pain and Symptom Management, Major Clinical Study, Male, May List 2023, Palliative Care, Palliative Therapy, Pediatric Hospital, program impact, Questionnaire
Talking about the End of Life, Death and Bereavement with Children's Literature
How Do Hospitalised Children Die? The Context of Death and End-Of-Life Decision-Making
Tags: 2023, Advance Care Planning, April List 2023, Article, Astigarraga I, Cardiovascular Disease, Carmona-Nunez A, Child, Childhood Mortality, Controlled Study, Decision Making, Demographics, Documentation, Drug Withdrawal, Female, Hospitalized Child, Human, Infant, Intensive Care Unit, Journal of Paediatrics and Child Health, Life Sustaining Treatment, Lopez-Bayon J, Major Clinical Study, Male, Martin-Irazabal G, Medical Record, Nervous System, Observational Study, Only Child, Palliative Therapy, pediatric patient, Respiratory Tract Disease, Resuscitation, Retrospective Study, Sanchez-Echaniz J, Serrano-Pejenaute I, Treatment Withdrawal, Zorrilla-Sarriegui A
Timing of Pediatric Palliative Care Consults in Hospitalized Patients with Heart Disease
Tags: 2023, Advance Care Planning, April List 2023, Article, Artificial Ventilation, Bennett E, Bodily S, Cardiomyopathy, Catheterization, Child, Congenital Heart Disease, Consultation, Cook L, Delgado-Corcoran C, Disease Course, extracorporeal oxygenation, Female, Green DJ, heart disease, Hospital Patient, Hospitalization, Hospitalized Child, Human, Infant, information technology, Intensive Care Unit, Journal of Pediatric Intensive Care, Length Of Stay, Life Sustaining Treatment, Major Clinical Study, Male, Mansfield KJ, Medical Decision Making, Moore D, Mortality, Myocarditis, myopericarditis, Newborn, Olson LM, Palliative Care, Palliative Therapy, Patient Referral, pediatric patient, Pediatrics, pericarditis, pulmonary hypertension, Retrospective Study, Terminal Care, Wawrzynski S, Wilkins V
Challenges in Establishing Optimal Pediatric Palliative Care at the University Hospital in Slovenia
The integration of pediatric palliative care (PPC) should become a standard of care for all children with life-limiting and life-threatening illnesses. There are many barriers and misperceptions in pediatrics which hinder the early…
Tags: 2023, Article, Awareness, Bertok S, Child, Clinical Practice, doctor nurse relation, Education, employee, European Journal of Pediatrics, Female, Human, Kreft HI, Lepej D, Lesnik MP, library, Lisec A, Loboda T, Major Clinical Study, Male, March List 2023, Meglic A, Meglic J, Nurse, Ostir M, Palliative Care, Palliative Therapy, Physician, Ponjevic T, Psychologist, Questionnaire, Self Evaluation, Slovenia, University Hospital
Factors Affecting Hospice Use Among Adolescents and Young Adult Cancer Patients
Tags: 2022, 2022 Special Edition 3 - Oncology List, Adolescent, Adult, Article, Bui C, cancer model, Cancer Patient, Cancer Therapy, Controlled Study, Female, Health Care Utilization, Hematologic Malignancy, Hospice Care, Humans, Insurance, Journal Of Adolescent And Young Adult Oncology, Mack JW, Major Clinical Study, Male, Medical Record, Noh H, Patient Referral, psychological model, race, solid malignant neoplasm, time of death, United States, Young Adult
Palliative Care Services for Children with Life-Limiting Conditions
Tags: Adolescent, Article, Child, Male, Nurse, Terminal Care, 2022, Cohort Analysis, community support, Conroy M, Controlled Study, Gallagher S, Hayden J, Hospice, Human, Ireland, Irish Journal Of Medical Science, Larkin MA, Major Clinical Study, Noonan H, November 2022 List, O'Reilly V, Palliative Therapy, Patient Referral, Place Of Death, residential care, Retrospective Study, Social Welfare, Twomey F
At the End of Life: Pediatric Palliative Care Can Make a Difference in Caring for the Child and Family
Tags: 2022, Agitation, Alvarez T, anxiety, Bolanos J, Cancer Patient, care behavior, Child, Claros A, Cleves D, conference abstract, Controlled Study, Cuervo M, December List 2022, Demography, Dyspnea, Fear, Female, Garcia X, Hospital Mortality, Human, Intensive Care Unit, Irritability, Leukemia, Major Clinical Study, Male, middle income country, Molina K, Pain, Palliative Therapy, Pediatric Blood and Cancer, pediatric patient, quasi experimental study, Retrospective Study, School Child, Seizure, Skill, social needs, Terminal Care, ward
Polypharmacy in children and young people with life-limiting conditions from 2000-2015: a repeated cross-sectional study in England
Tags: 2022, Adult, Age, Article, August 2022 List, Child, Chronic Disease, Cohort Analysis, congenital disorder, Controlled Study, Cross-sectional Study, Doran T, England, Female, Fraser LK, Gibson-Smith D, Hills M, Human, Jarvis S, Journal of Pain and Symptom Management, Major Clinical Study, Male, Neefjes V, Nervous System, Observational Study, Papworth A, Pediatrics, Polypharmacy, Prevalence, Taylor J, Young Adult
"I Didn't Want My Baby to Pass, But I Didn't Want Him Suffering Either": Comparing Bereaved Parents' Narratives With Nursing End-of-Life Assessments in the Pediatric Intensive Care Unit
Tags: 2022, Article, August 2022 List, Broden EG, Cancer Patient, Child, Chronic Disease, Comfort, Controlled Study, Curley MAQ, Distress Syndrome, Hinds PS, Human, Infant, Intensive Care, Interview, Journal of Hospice and Palliative Nursing, Major Clinical Study, Male, Malignant Neoplasm, Memory, Narrative, Nursing, Pain, Pediatric Intensive Care Unit, Perception, quantitative analysis, Sedation, Terminal Care, Werner-Lin AV
Helping parents prepare for their child's end of life: A retrospective survey of cancer-bereaved parents
Tags: 2020, Adolescent, Adult, Aged, Article, Battles H, Bedoya S Z, Bereavement, Caregiver, Child, childhood cancer/dm [Disease Management], Content Analysis, Emotion, Female, Gerhardt C A, health care need, Human, Infant, Interpersonal Communication, Mack J, Major Clinical Study, Male, Newborn, Nurse, Oncology 2020 List, open ended questionnaire, Parent, Pediatric Blood and Cancer, pediatric oncologist, pediatric patient, Priority Journal, Psycho-Oncology, Psychologist, Quality Of Life, quantitative analysis, Retrospective Study, social media, Social Support, Social Worker, support group, Tager J, Terminal Care, Thematic Analysis, time of death, Wiener L, worker
Unrealistic parental expectations for cure in poor-prognosis childhood cancer
Tags: 2020, Article, Bagatell R, Baker J N, Cancer, Cancer Palliative Therapy, Cancer Prognosis, Cancer Recurrence, cancer risk, Child, Childhood Cancer, Clinical Decision Making, Cohn S L, Cohort Analysis, confidence interval, Controlled Study, Cronin A M, Diller L R, Expectation, Female, Glade Bender J, Granger M M, High Risk Population, Human, Interpersonal Communication, Levine A, Mack J W, Major Clinical Study, Male, Marachelian A, Medical Record, Neuroblastoma, Odds Ratio, Oncology 2020 List, parental behavior, Park J, Patient Care, pediatric patient, Priority Journal, Prospective Study, Quality Of Life, Questionnaire, Rosenberg A, Shusterman S, Taddei S, theoretical model, Twist C J, Uno H
Examining key sociodemographic characteristics of adolescents and young adults with cancer: A post hoc analysis of the Promoting Resilience in Stress Management randomized clinical trial
Tags: 2020, Adolescent, Article, Bona K, Bradford M C, cancer center, cancer specific quality of life, Child, Connor-Davidson Resilience Scale, Controlled Study, Coping Behavior, environmental resilience, Female, Hope Scale, Human, Lau N, Major Clinical Study, Male, McCauley E, Oncology 2020 List, outcome assessment, Palliative Medicine, Palliative Therapy, patient-reported outcome, Pediatric Quality of Life Inventory, Post Hoc Analysis, Psychological Distress Scale, psychosocial development, Quality Of Life, Randomized Controlled Trial, Rosenberg A R, School Child, Scott S, Socioeconomics, Steineck A, stress management, Total Quality Management, Treatment Outcome, Yi-Frazier J P, Young Adult
Defining the Boundaries of Palliative Care in Pediatric Oncology
Tags: 2020, Article, Boss R D, Cancer Patient, Child, Childhood Cancer, Comfort, Content Analysis, Controlled Study, Cuviello A, Donohue P K, Female, genetic transcription, Human, Interview, Journal of Pain and Symptom Management, Major Clinical Study, Male, Mental Health, Nurse Practitioner, Oncology 2020 List, Palliative Therapy, pediatric oncologist, Quality Of Life, Raisanen J C, Skill, standardization, Terminal Care, Wiener L
Transforming a Face-to-Face Legacy Intervention to a Web-Based Legacy Intervention for Children With Advanced Cancer
Tags: 2020, Adolescent, Advanced Cancer, Akard T F, Article, Cancer Recurrence, cancer resistance, Caregiver, Child, Dietrich M S, Female, Friedman D L, Gerhardt C A, Gilmer M J, Given B, Hendricks-Ferguson V, Hinds P S, Human, Journal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association, Major Clinical Study, Male, Oncology 2020 List, Palliative Therapy, Satisfaction, Wray S
Inter-Rater Reliability of the Phase of Illness Tool in Pediatric Palliative Care
Tags: 2020, Adult, Anderson A K, Article, Burke K, Child, Cohort Analysis, Controlled Study, Coombes L H, Feasibility Study, Female, Human, interrater reliability, Major Clinical Study, Male, May 2020 List, Palliative Therapy, pediatric patient, Petruckevitch A, Prospective Study, Reproducibility, The American journal of hospice & palliative care., Uncertainty
Factors associated with place of death for children in South Yorkshire: a retrospective cohort study
Tags: 2020, Alison L, anonymised data, April 2020 List, Article, BMJ Supportive & Palliative Care, Child, Cohort Analysis, Controlled Study, Ethnicity, Female, Gender, Home Care, Hospice Care, Human, Major Clinical Study, Male, Mayer A P T, Newborn, Newborn Death, Palliative Therapy, Pediatrics, Renton K, Retrospective Study, Yeomanson D
Paediatric long-term home ventilation: Should we rethink social inclusion for these children?
Tags: 2019, Adolescent, Agosto C, April 2020 List, Artificial Ventilation, assisted ventilation, Attention, Benedetti F, Benini F, Child, conference abstract, Divisic A, European Respiratory Journal, Female, Grigolon E, Human, Lazzarin P, Major Clinical Study, Male, Medical Record Review, Moro N, Neuromuscular Disease, Noninvasive Ventilation, Ometto M, Palliative Therapy, Pellizzon M, Retrospective Study, Rusalen F, School Child, school dropout, secondary health care, social exclusion, social needs, Tracheostomy
Palliative care in an underserved community: Striving and thriving
Tags: 2018, Alladin A R, April 2020 List, Awareness, Bereavement Support, bone marrow, Cancer Patient, Cantwell G P, Caribbean, Child, Childhood Cancer, conference abstract, Congenital Malformation, coordination compound, Ethnic Group, Europe, Female, Heart, Hispanic, Hospice, Hospital Patient, Human, Japan, Juanico K, kidney, liver, Major Clinical Study, Male, Medicaid, Memory, Middle East, Music Therapy, Nares M, Neonatal Intensive Care Unit, Newborn, nursing education, Pain, Palliative Therapy, Pastoral Care, Pediatrics, Perception, Posthumous Care, Resident, Sibling, Social Work, Terminal Care, terminally Ill Patient, Webster-Carrion A
Feasibility and Acceptability of Recruiting Very Young Hospitalized Children Receiving Palliative Care to an Integrative Therapy Study (S743)
Tags: 2020, Adolescent, Allmendinger-Goertz K, Child, conference abstract, Controlled Study, Critically Ill Patient, Feasibility Study, Female, Follow Up, Foster Care, Friebert S, Hospitalized Child, Human, Ibach M, Infant, Journal of Pain and Symptom Management, Major Clinical Study, Male, March 2020 List, Palliative Therapy, Pilot Study, Reiki, Shaner V, Thrane S
Key Findings of the Structures and Processes of Inpatient Pediatric Palliative Care Programs (S737)
Tags: 2020, Burnout, Child, Clergy, conference abstract, Controlled Study, Female, Friebert S, Health Care Delivery, Health Care System, Heitner R, Hospital Patient, Human, Journal of Pain and Symptom Management, Klick J, Major Clinical Study, Male, March 2020 List, Palliative Therapy, Physician, Practice Guideline, registered nurse, Rogers M, Social Worker, Williams C
Parent-Reported Outcomes of Prognostic Communication in Hospitalized Children with Advanced Heart Disease (S762)
Tags: 2020, Adult, Blume E, Cardiology, Caucasian, Child, Cohort Analysis, conference abstract, Controlled Study, Conversation, Decision Making, Expectation, Female, Feraco A, Goldberg S, heart single ventricle, high school, Hospitalization, Hospitalized Child, Human, Infant, Intubation, Journal of Pain and Symptom Management, Length Of Stay, Major Clinical Study, Male, March 2020 List, married person, Medical Record Review, Miller M K, Morell E, Mother, Prognosis, Prospective Study, pulmonary hypertension, pulmonary vein stenosis, Recall, Reichman J, Sahakian L, Sleeper L, Young Adult
What impedes timely pediatric palliative care consults? A preliminary report
Symptoms and Suffering at the End of Life for Children and Young Adults with Life-Threatening Complex Chronic Conditions (S756)
Tags: 2020, Adult, Central Nervous System, Child, Chromosome, Chronic Disease, conference abstract, Data Analysis, DeCourcey D, Dyspnea, Female, Human, Journal of Pain and Symptom Management, Kao P C, Ma C, Major Clinical Study, Male, March 2020 List, Marcus K, Medical Technology, Pain, Prospective Study, Wolfe J, Young Adult
Sign Me Up! Understanding Referral and Enrollment to Community-Based Pediatric Hospice and Palliative Care (FR420D)
Tags: 2020, Caliboso M, Child, Cohort Analysis, conference abstract, Controlled Study, Demography, Female, Hospice, Human, Insurance, Journal of Pain and Symptom Management, Lindley L, Lotstein D, Major Clinical Study, Male, March 2020 List, Neonatal Intensive Care Unit, Nervous System, Palliative Therapy, Patient Referral, Pediatric Hospital, Preschool Child, Retrospective Study, Speech, Total Quality Management, Wolfe J
Development of an innovative program to improve provision of palliative and hospice care to children and families in the community: The story of QoLA Kids
Tags: 2019, Baker J N, Blazin L J, Cancer Patient, Cancer Prognosis, catchment, Child, Childhood Cancer, conference abstract, Controlled Study, Counselor, Distress Syndrome, Female, Hospice Care, hospital personnel, Human, Kaye E C, Kiefer A C, magnet, Major Clinical Study, Male, March 2020 List, Nurse Practitioner, Outpatient, Palliative Therapy, Patient Referral, Pediatric Hospital, pediatric patient, Pediatrics, Prognosis, program impact, Quality Of Life, registered nurse, Social Worker