Browse Items (232 total)
- Tags: Major Clinical Study
Children's and adolescents' perspectives on living with advanced cancer: A meta-synthesis of qualitative research
Tags: 2024, 2025 SE1 - Oncology, Adolescent, Advanced Cancer, Ali R, An E, Article, Awareness, Child, Disease Management, Emotional Stress, ethnography, Female, Human, Johnson A, Major Clinical Study, Male, Only Child, Palliative Therapy, Qualitative Research, Quality Of Life, Quality of Life Research, Widger K, Wilson C
Parent-Clinician Communication and Prolonged Grief in Parents Whose Child Died from Cancer
Tags: 2024, 2025 SE1 - Oncology, Adult, Ananth PJ, Article, Baker JN, Bereavement, biological marker, Child, Child Death, Childhood Cancer, Clinician, Controlled Study, Cross-sectional Study, Diagnosis, Disease Severity, Drug Therapy, Feder SL, Female, Human, Interpersonal Communication, Journal of Pain and Symptom Management, Knobf MT, Major Clinical Study, Male, Malignant Neoplasm, Middle Aged, multiple linear regression analysis, Ouyang N, Parent, prolonged grief, Snaman JM, Terminal Care
Parental Attitudes Towards Palliative Care in Pediatric Oncology: Insights from Bereaved Families
Tags: 2024, 2025 SE1 - Oncology, Adolescent, Article, Awareness, Bereavement, Caregiver, Child, Child Death, Childhood Cancer, Davis ES, do not resuscitate order, Drug Therapy, Family, Female, Hospice Care, Human, Infant, Johnston EE, Journal of Pain and Symptom Management, Major Clinical Study, Male, Martinez I, Oncology, Palliative Therapy, Parental Attitude, Patient Referral, Place Of Death, School Child, special situation for pharmacovigilance, sudden death, Towry L, United States, Walsh KM, Wimberly CE
A Feasibility Study Examining Storytelling Through Music with Bereaved Parents of Children with Cancer (RP212)
Tags: 2024, 2025 SE1 - Oncology, Adult, Bereavement, Bereavement Support, Caucasian, Child, Choi E, cognitive coping, conference abstract, Controlled Study, Coping, Ethnicity, Feasibility Study, Female, Grief, Hebdon M, Hispanic, Human, Jorgensen T, Journal of Pain and Symptom Management, Kesler S, Knowledge, Major Clinical Study, Male, Malignant Neoplasm, metacognition, Moorjani D, Morgan B, Morris J, Morris SE, music, Parent, Phillips C, prolonged grief, psychosocial care, Randomized Controlled Trial, Ravandi D, Rodriguez EM, Self Care, Storytelling, Therapy, Umberson D, Woods H
Access to legacy-oriented interventions at end of life for pediatric oncology patients: A decedent cohort review
Tags: 2024, 2025 SE1 - Oncology, Adolescent, Adult, Article, Bereavement, cadaver, Cantrell K, Child, Childhood Cancer, Cohort Analysis, Daniels S, Drug Therapy, Female, Franqui-Rios ND, Gaitskill E, Health Care Personnel, Hispanic, Human, Kaye EC, Major Clinical Study, Male, Mothi SS, Palliative Therapy, Pediatric Blood and Cancer, Retrospective Study, special situation for pharmacovigilance, Terminal Care, Therapy
Development and Validation of a Ready-to-Talk Measure for Use in Adolescents and Young Adults Living With Advanced Cancer
Tags: 2024, 2025 SE1 - Oncology, Adolescent, Adult, Advanced Cancer, Article, Awareness, Bell CJ, Cancer Nursing, Clinician, Cognition, conceptual model, content validity, Controlled Study, Conversation, Deatrick JA, Dickens DS, Female, Hinds PS, Human, Interview, Kavanaugh KL, Major Clinical Study, Male, Palliative Therapy, Reliability, shared decision making, Sibling, Spruit JL, Terminal Care, Validity, Weaver MS, Young Adult
Use of Cancer-Directed therapy at the end of life among adolescents and young adults
Tags: 2024, 2025 SE1 - Oncology, Adolescent, Adult, Adverse Drug Reaction, Altschuler A, Article, California, cancer center, Cannizzaro N, Casperson M, Cernik C, Chao CR, Cohort Analysis, Cooper RM, drug combination, drug comparison, Drug Therapy, electronic health record, Ethnicity, Female, Fisher L, Human, Journal of the National Cancer Institute, Kushi LH, Lakin JR, Laurent CA, Mack JW, Major Clinical Study, Male, Malignant Neoplasm, Munneke J, Retrospective Study, Schwartz CM, Side Effect, special situation for pharmacovigilance, Therapy, Uno H, Wiener L, Xu L, Young Adult
Clinical and socio-demographic profile of children receiving pediatric palliative care in a tertiary hospital of a metropolitan city in India
Tags: 2024, 2025 SE2 - LRS, Adolescent, Article, Bisen P, Child, Child Preschool, Childhood Disease, Chronic Disease, Chronic Disease/th [Therapy], Confusion, Constipation, Controlled Study, Deodhar J, Diagnosis, Disability, Dysphagia, European Journal of Pediatrics, Fatigue, Female, fever, Holistic Care, Human, Humans, immunopathology, India/ep [Epidemiology], Infant, Infant Newborn, Major Clinical Study, Male, Malik S, Muckaden MA, Neuromuscular Disease, Observational Study, Palliative Care, Palliative Care/sn [Statistics & Numerical Data], Palliative Therapy, pediatric patient, Rathi S, Retrospective Studies, Sample Size, Seizure, Socioeconomic Factors, Talawadekar P, terminal disease, tertiary care center, Tertiary Care Centers, Tertiary Care Centers/sn [Statistics & Numerical Data], Therapy, Wade P
Cross-sectional study of the perceived well-being of children in palliative care
Tags: 2025, Adolescent, Adult, Anales de Pediatría, anxiety, Article, Bolance C, Camprodon-Rosanas E, catastrophizing, Child, Cognition, Cross-sectional Study, Depression, emotion regulation, Female, Guillen M, Human, Limonero JT, Major Clinical Study, Male, March List 2025, multiple linear regression analysis, Navarro Vilarrubi S, Palliative Therapy, problem behavior, psychologic assessment, Psychological care, rumination, special situation for pharmacovigilance, Toro-Perez D, Visual Analog Scale, Wellbeing
Palliative Care Outcomes for Critically ill Children After Rapid Whole Genome Sequencing
Tags: 2024, acutely ill patient, Adolescent, Article, Beauchamp Walters J, Boulil Z, Child, Consultation, Controlled Study, Coufal NG, Critically Ill Patient, Diagnosis, Dimmock D, Doshi A, emergency visit, extubation, Female, Human, Infant, Intensive Care, Intubation, Journal of Intensive Care Medicine, Kaplan Meier method, Kingsmore S, Lee E, Major Clinical Study, Male, March List 2025, Medical Record Review, molecular diagnosis, molecular diagnostics, Newborn, outcome assessment, Palliative Therapy, pediatric intensive care nursing, Pediatric Intensive Care Unit, Perofsky K, Personalized medicine, Poisson regression, Retrospective Study, Therapy, whole genome sequencing
Prevalence of pain in the last 2 weeks of life in hospitalized pediatric patients
Tags: 2024, Adolescent, Adult, Analgesia, Article, Bastidas-Legarda S, Child, Data Analysis Software, Female, Flores-Munoz MA, Gutierrez-Cortes C, Hernandez-Ramirez E, Hospital Patient, Hospitalization, Human, Infant, longitudinal study, Major Clinical Study, Male, March List 2025, Medical Practice, Newborn, Observational Study, Pain Assessment, Pain Intensity, Pain/ep [Epidemiology], Palliative Therapy, pediatric patient, Prevalence, Quality Of Life, Questionnaire, Retrospective Study, Revista Medica del Hospital General de Mexico, SPSS version 21, terminally Ill Patient
The effect of musical-animated toys and audiobooks on fear and pain in the tracheostomy care of children in the palliative care
Tags: 2024, Akay G, anxiety, Article, Artificial Ventilation, atelectasis, Attention, audiobook, Autism, behavior change, book, breathing rate, Bulut DK, Child, Clinical Trial, Controlled Study, Drug Therapy, Fear, Female, Hospitalization, Human, interrater reliability, intervention study, Kadiroglu T, Learning, Major Clinical Study, Male, March List 2025, mean corpuscular volume, Music Therapy, musical animated toy, musical instrument, Oncer A, oxygen saturation, Pain, Pain Assessment, Palliative Therapy, Patient Satisfaction, Post Hoc Analysis, procedural pain, pulse oximeter, pulse rate, Questionnaire, Revista da Associacao Medica Brasileira, sleep disorder, special situation for pharmacovigilance, systolic blood pressure, trachea stenosis, Tracheostomy, Tufekci FG, videorecording
Goals of Surgical Interventions in Youths Receiving Palliative Care
Tags: 2024, adenoidectomy, Article, Assistive technology, Avery M, bone marrow aspiration, bone marrow biopsy, botulinum toxin/pv [Special Situation for Pharmacovigilance], bronchoscopy, Cancer Patient, cancer surgery, Cardiovascular Disease, central venous catheterization, cerebrospinal fluid shunting, Chemotherapy, Chen L, Child, Cohort Analysis, Controlled Study, dental procedure, Ellis DI, endoscopic biopsy, Endoscopy, February List 2025, Female, Genetic Disorder, Gordon Wexler S, heart catheterization, heart surgery, Human, JAMA Network Open, juvenile, Kaplan AJ, Kelleher C, Kim TD, laryngoscopy, life extension, lumbar puncture, Major Clinical Study, Male, Mazzola E, Neurologic Disease, Palliative Therapy, Patient Care, pediatric patient, pediatric surgery, phenol/pv [Special Situation for Pharmacovigilance], Retrospective Study, steroid therapy, steroid/pv [Special Situation for Pharmacovigilance], tenotomy, thorax surgery, Tonsillectomy, Tracheostomy, treatment indication, tympanostomy, Vascular Surgery, Wolfe J
Certified Child Life Specialists in Hospice and Palliative Care Organizations: A State of the Profession
Tags: 2024, Adult, American Journal Of Hospice And Palliative Care, Article, Caregiver, Caucasian, Child, Coping, Cross-sectional Study, Downing K, February List 2025, Female, Friedberg A, full time employment, Hospice, Hospice Care, Human, Lindley LC, Major Clinical Study, Male, Mangers-Deans J, Medical Specialist, multiple choice test, Needs Assessment, occupation, Palliative Therapy, Professional Development, psychosocial care, Self Care, work environment, work experience
Exploring the Role of Genetic Testing in Decisions to Redirect Care in Critically Ill Infants
Tags: 2024, American Journal Of Hospice And Palliative Care, Article, Brunelli L, Child, Clinical Article, Controlled Study, Cost Control, Critically Ill Patient, Diagnosis, electronic medical record, February List 2025, genetic screening, Human, Infant, Major Clinical Study, Mowery A, Neonatal Intensive Care Unit, Neonatology, Newborn Intensive Care, Palliative Therapy, Questionnaire, Retrospective Study, Seale J, Terminal Care, Wong B
Effect of timing of palliative care consultation on end-of-life care for children with advanced cardiac disease
Tags: 2024, Artificial Ventilation, Brain Death, Cardiology In The Young, chi square distribution, Child, Cohort Analysis, conference abstract, Consultation, Controlled Study, coronary care unit, Delgado-Corcoran C, Drug Therapy, escalation of care, extracorporeal oxygenation, February List 2025, Female, Fitzgerald L, Harousseau M, heart disease, Human, Major Clinical Study, Male, Meeks H, mode of death, Moresco B, Olson L, Palliative Therapy, Patient Comfort, pediatric patient, Resuscitation, Retrospective Study, Songer K, Terminal Care, Therapy, time of death, Wawrzynski SE
A quality improvement evaluation of a standardized intervention for children with medical complexity transitioning to adult care
Tags: 2024, Adams S, Adolescent, Adult, Article, assisted ventilation, Caregiver, Checklist, Child Psychiatry, Children With Medical Complexity, chronicity, Chung C, Conversation, decision support system, Demographics, dietitian, Disability, Esser K, Family physicians, feedback system, General Practitioner, Health Care Access, Health Care Personnel, Health care transition, Health Care Utilization, Hospital, Human, Information Processing, Lee S, Major Clinical Study, McKay T, Medical Record Review, Medical Technology, Moore C, Multidisciplinary team, Multiple Chronic Conditions, November List 2024, Nurse Practitioner, Orkin J, Paediatrics And Child Health, Patient Care, pediatric patient, Pediatrician, Pediatrics, pharmaceutical care, pharmacist, Quality Improvement, Rehabilitation, School, Social Worker, standardization, Total Quality Management, Transition To Adult Care, vascular access, Wagman H
Evaluation of a perinatal palliative care program by SWOT analysis
Tags: 2024, Adult, Article, Catapano F, Corvaglia LT, Diagnosis, Female, Human, Interpersonal Communication, Knowledge, Locatelli C, Major Clinical Study, Newborn, November List 2024, Nursing Care, Palliative Therapy, Patient Referral, Pediatric Research, Pregnancy, Prenatal Diagnosis, Quality Of Life, Ramacieri G, Retrospective Study, shared decision making, Sperti G
Context of death and end-of-life decision-making in paediatric patients with neurological conditions
Tags: 2023, Adolescent, Adult, Advance Care Planning, Age, Aguirre IA, Article, brain tumor/th [Therapy], Carmona-Nunez A, Cerebral Palsy/th [Therapy], Child, Controlled Study, Death, Demographics, Echaniz JS, Follow Up, Hospital Admission, Human, hypoxic ischemic encephalopathy/th [Therapy], Intensive Care Unit, Irazabal GM, Lopez-Bayon J, Major Clinical Study, Medical Decision Making, Medicina Paliativa, Murguiondo MI, neurologic disease/th [Therapy], October List 2024, Palliative Therapy, patient coding, pediatric patient, Pejenaute IS, Preschool Child, Retrospective Study, Sarriegui AZ, Terminal Care, Treatment Withdrawal, ward
DIVERSITY IN ETHNICITY AND MAIN SPOKEN LANGUAGE OF CHILDREN REFERRED TO A SPECIALIST PAEDIATRIC PALLIATIVE CARE SERVICE
Tags: 2024, Aidoo E, Archives of Disease in Childhood, Caribbean, Caucasian, Central Asian, Child, conference abstract, Controlled Study, drug comparison, electronic patient record, England, Epidemiology, ethnic background, Ethnicity, Female, Human, Major Clinical Study, Male, Medical Specialist, national health service, October List 2024, Pakistani, Palliative Therapy, Patient Referral, South Asian, Therapy, Wright L
DO CHILDREN AND YOUNG PEOPLE WITH LIFELIMITING CONDITIONS RECEIVE TIMELY PALLIATIVE CARE INPUT AND ADVANCE CARE PLANNING?
Tags: 2024, Adolescent, Advance Care Planning, Aged, Archives of Disease in Childhood, Child, conference abstract, Human, Infant, Jassal S, Major Clinical Study, Newborn, October List 2024, Palliative Therapy, Parry-Reece J, Pediatric Intensive Care Unit, Prevalence, Retrospective Study, Soman A, special situation for pharmacovigilance, Terminal Care, Therapy, time of death
PERINATAL PALLIATIVE CARE REQUIREMENTS IN THE WEST MIDLANDS: A SERVICE EVALUATION PROJECT
Tags: 2024, Archives of Disease in Childhood, Battersby C, brain malformation, Brown S, conference abstract, Diagnosis, Female, Fetus, Foster E, Harnden F, heart disease, Human, Infant, long term survival, Mackie F, Major Clinical Study, Maternal care, Mott C, multiple malformation syndrome, Neonatal Intensive Care Unit, nervous system malformation, Newborn, Newborn Care, Newborn Intensive Care, October List 2024, Palliative Therapy, Patient Referral, pharmaceutical care, Prenatal Care, Prognosis, Rajaraman N, routinely collected health data, Therapy, Van Hasselt TJ
Quality of Care in the Last Two Years of Life for Children with Complex Chronic Conditions
Tags: 2024, Ananth P, Article, Bogetz JF, Bradford MC, Child, Chronic Disease, Cohort Analysis, electronic health record, Female, Health Care Utilization, Hispanic, Human, Icd-10, Infant, Intensive Care Unit, Jeyte A, Johnston EE, Journal of Pain and Symptom Management, Major Clinical Study, Male, McGalliard J, Medical Record Review, October List 2024, Palliative Therapy, Patneaude A, Resuscitation, Retrospective Study, Rosenberg AR, Sedation, Shipman K, Strub B, Terminal Care, Thienprayoon R, Total Quality Management, United States
A RETROSPECTIVE AUDIT FOR PRE-HOSPITAL RESPECT DOCUMENTATION FOR CHILDREN WITH COMPLEX LIFE LIMITING NEURO-DISABILITY ADMITTED TO PAEDIATRIC INTENSIVE CARE UNIT
Tags: 2024, Adolescent, Archives of Disease in Childhood, Caregiver, Child, Clinical Audit, conference abstract, Controlled Study, Female, Hospice Care, Human, Infant, Intensive Care, Kayani R, Major Clinical Study, Male, Mohamed M, Neurodisability, October List 2024, Palliative Therapy, Pediatric Intensive Care Unit, Retrospective Study, special situation for pharmacovigilance, Terminal Care, Varma R
Suffering in children and adolescents in paediatric palliative care in Spain: Psychometric properties of the qESNA scale
Tags: 2024, Adolescent, Anales de Pediatría, anxiety, Article, Bolance C, Camprodon-Rosanas E, Child, Clinical Practice, confirmatory factor analysis, Controlled Study, convergent validity, correlation coefficient, Cronbach alpha coefficient, Cross-sectional Study, Depression, Diagnosis, emotional disorder, Factor Analysis, Female, Guillen M, Human, Limonero JT, longitudinal study, Major Clinical Study, Male, mental disease, Navarro Vilarrubi S, October List 2024, Palliative Therapy, psychologic assessment, receiver operating characteristic, Reliability, root mean squared error, Sensitivity and Specificity, social psychology, Spain, Toro-Perez D
THE WEST MIDLANDS PERINATAL PALLIATIVE CARE SERVICE AUDIT ON REFERRALS, DIAGNOSES AND PROGNOSES OF BABIES WITH SEVERE CONDITIONS
Tags: 2024, Adolescent, anencephalus, Archives of Disease in Childhood, bone dysplasia, Child, Clinical Audit, conference abstract, Congenital Heart Disease, congenital heart malformation, Diagnosis, diagnosis related group, Female, Fetus, heart disease, heart injury, Human, Infant, Major Clinical Study, Mott CE, national health service, Newborn, October List 2024, Palliative Therapy, Patient Referral, Prognosis, Surgery, survival time, systemic disease, Therapy, Trisomy 13, Trisomy 18
A protocol for neoWONDER: Neonatal whole population data linkage to improve long-term health and wellbeing of preterm and sick babies
Tags: 2024, Adult, Article, attention deficit hyperactivity disorder, Aveline A, Battersby C, behavior change, breast feeding, breast milk, Cause Of Death, Cohort Analysis, community mental health, congenital diaphragm hernia, Databases Factual, date of birth, Developmental delay, Educational Status, England, Epidemiology, esophagus atresia, factual database, Female, gastroschisis, Gestational Age, Health Care Utilization, Hirschsprung disease, hospital discharge, hospital readmission, Human, Humans, Infant Newborn, Infant Premature, information retrieval, Information Storage and Retrieval, Length Of Stay, Major Clinical Study, Male, Mortality Rate, Necrotizing Enterocolitis, Newborn, newborn assessment, Newborn Care, newborn surgery, Pediatric Intensive Care Unit, place of birth, PLoS One, premature labor, Prematurity, Propensity Score, routinely collected health data, school attendance, September List 2024, van Blankenstein E, Wales, Wellbeing
The knowledge, attitude and behavior on the palliative care among neonatal nurses: what can we do
Tags: 2024, Article, Attitude, Behavior, BMC Palliative Care, Complication, Controlled Study, Hu F, Hu J, Human, Knowledge, Major Clinical Study, Neonatal Intensive Care Unit, Neonatal Nurse, Newborn, Newborn Intensive Care, Nurse, Nursing Knowledge, palliative nursing, Palliative Therapy, Questionnaire, September List 2024, tertiary care center, Therapy, work experience, Wu L, Yan Y
Permanent cutaneous vesicostomy: a pragmatic approach to safely manage lower urinary tract dysfunction in pediatric patients with chronic and life-limiting conditions and neuropathic bladders
Tags: 2024, Abdelmaguid N, Adolescent, Al Saeedi A, antibiotic agent, antibiotic prophylaxis, Article, bladder catheterization, bladder irrigation, bladder stone, Cerebral Palsy, Child, chronic life-limiting disease, Clinical Effectiveness, conservative treatment, Controlled Study, cutaneous vesicostomy, cystostomy, encephalomyelitis, Female, Follow Up, Frontiers in Pediatrics, Gross Motor Function Classification System, Human, Hydrocephalus, hydronephrosis, hydroureter, hypoxic ischemic encephalopathy, Khalil IA, Long Term Care, lower urinary tract dysfunction (LUTD), lower urinary tract symptom, Major Clinical Study, Male, Meningomyelocele, Mohamed RB, Muneer E, nephrolithiasis, neurogenic bladder, neurogenic bladder dysfunction, Neuromuscular Disease, neuropathic bladder, occult spinal dysraphism, Palliative Therapy, Patient Safety, Pippi Salle JL, Polypharmacy, postoperative complication, Postoperative Period, pragmatic trial, Preschool Child, quadriplegia, recurrent infection, Retrospective Study, School Child, September List 2024, Spinal Muscular Atrophy, stenosis, stoma, urinary tract infection, Vallasciani S, vesicostomy
Assessing Pediatric Resident Needs in Grief and Bereavement Education
Tags: 2024, Article, Bereavement, Brown AW, Child, Child Death, Controlled Study, Cross-sectional Study, Curriculum, Dying, Education, Female, Grief, Harris K, Health Care Personnel, Human, Journal of Pain and Symptom Management, Leadership, Major Clinical Study, Male, Maurer SH, Needs Assessment, Palliative Therapy, Peer Group, Reuman H, September List 2024, special situation for pharmacovigilance
Hospitalization- and death-related financial and employment effects in parents of children with life-limiting conditions: a fixed-effects analysis
Tags: 2024, Accommodation, Adolescent, Adult, Article, Bereavement, Bergstrasser E, Child, Cohort Analysis, Controlled Study, Death, Employment, European Journal of Pediatrics, Father, Female, Fink G, Follow Up, Gerber AK, Hospitalization, Human, leisure, Length Of Stay, Major Clinical Study, Male, medical leave, Mitterer S, Palliative Therapy, Parent, personal income, return to work, September List 2024, Simon M, travel, Zimmermann K
Exploring Pediatric Code Status, Advance Care Planning, and Mode of Death Disparities at End of Life
Tags: 2024, Advance Care Planning, Article, Casas J, Caucasian, Child, Cross-sectional Study, date of death, Ethnicity, Female, Hispanic, Human, Infant, Journal of Pain and Symptom Management, Kim E, Major Clinical Study, Makinde KW, Male, Medical Record Review, mode of death, Multicenter Study, Palliative Therapy, Peckham-Gregory E, Personal Experience, race, September List 2024, Silverstein A, Surgery, Terminal Care, Texas, Therapy
Trajectories in Intensity of Medical Interventions at the End of Life: Clustering Analysis in a Pediatric, Single-Center Retrospective Cohort, 2013-2021
Tags: 2024, Aggression, Article, Char DS, Child, Cluster Analysis, Cohort Analysis, Consultation, coronary care unit, Dinh TC, Drug Therapy, Female, Health Care Personnel, Hollander SA, Hospital Mortality, Human, Intensive Care Unit, Kam BN, Liesse KM, Major Clinical Study, Male, Malladi L, Organ Transplantation, Palliative Therapy, Pediatric Critical Care Medicine, Pyke-Grimm KA, Resuscitation, Retrospective Study, September List 2024, special situation for pharmacovigilance, Terminal Care, time of death, Turturice BA, Wesp BM
Prevalence and Mortality of Life-Threatening and Life-Shortening Diseases in Children and Adolescents in Germany
Tags: 2024, Adolescent, Article, Burgio NM, Cause Of Death, Child, Clinical Pediatrics, Diagnosis, Drug Therapy, Epidemiology, Germany, health Insurance, Human, Icd-10, Jennessen S, Lifespan, Major Clinical Study, Mortality, Newborn, outpatient care, Palliative Therapy, Preschool Child, Prevalence, secondary data analysis, September List 2024, special situation for pharmacovigilance
The Home-based Experiences of Palliative and Hospice Care for Children and Caregivers (EXPERIENCE) Measure: Evaluation of psychometric properties
Place of death among children from 0 to 17 years of age: A population-based study from Sweden
Tags: 2024, Acta Paediatrica, Adolescent, Age, Article, at home mortality, August List 2024, Child, Death, Female, groups by age, Home Care, Hospital Mortality, hospital visit, Human, Incidence, Infant, Larsdotter C, Major Clinical Study, Male, Newborn, Nilsson S, Nyblom S, Ohlen J, Ozanne A, place of birth, Place Of Death, Retrospective Study, Stenmarker M, Sweden
Parent Preferences and Experiences in Advance Care Planning in the Neonatal Intensive Care Unit
Tags: 2024, Advance Care Planning, American Journal of Perinatology, Article, August List 2024, Caregiver, Controlled Study, Cost Effectiveness Analysis, Cross-sectional Study, Cummings C, DeCourcey DD, Emotional Stress, Female, Follow Up, Health Care Cost, Hospital Anxiety and Depression Scale, Human, Infant, Intensive Care Unit, Lin M, Major Clinical Study, Neonatal Intensive Care Unit, Palliative Therapy, Patient Preference, psychiatrist, Quality Of Life, Questionnaire, Resuscitation, Sayeed S, Social Support, Terminal Care, Vitcov G, Williams D, Wolfe J
Parental quality of life as an outcome of specialised paediatric palliative care: results of the SPhAERA study
Death One Hour After Terminal Extubation (DONATE): A Multisite Cohort Study
Tags: 2024, Aczon M, Adult, Aged, Avesar M, Child, Clinical Feature, Cohort Analysis, Cohort Studies, conference abstract, Critical Care Medicine, Death, Drug Therapy, extubation, Fainberg N, family counseling, Female, Hsu S, Human, Intensive Care Unit, July List 2024, Laksana E, Ledbetter D, machine learning, Major Clinical Study, Male, McCrory M, Morrow K, O'Brien C, operating room, organ donor, Pediatric Intensive Care Unit, predictive value, Pringle C, Randomized Controlled Trial, Retrospective Study, Ross P, Shah S, Shpaner L, Siegel L, Tripathi S, vital sign, Wetzel R, Winter M, Zhou A
Pediatric palliative care for metabolic diseases: 20-year epidemiological survey of outpatients at a Brazilian quaternary hospital
Tags: 2024, Article, Barbosa SMDM, Bueno C, Child, Cohort Analysis, Controlled Study, Data Analysis Software, disease surveillance, do Nascimento AG, energy deficiency type metabolic disorders, Female, Follow Up, Freitas E, Henrique AC, Human, Journal Of Inherited Metabolic Disease, July List 2024, Kok F, Long Term Care, Major Clinical Study, Male, Metabolic Diseases, metabolic disorder/di [Diagnosis], metabolic disorder/ep [Epidemiology], Metabolism, Outpatient, Palliative Care, Palliative Therapy, PASW statistics 25.0 software, Pathology, pathophysiology, patient monitoring, pediatric patient, Pediatrics, Polastrini RTV, Prevalence, Pugliese C, Retrospective Study, sphingolipidosis, Spolador GM, Zoboli I