Browse Items · Pediatric Palliative Care Library

Rapid response in the COVID-19 pandemic: a Delphi study from the European Pediatric Dialysis Working Group

BACKGROUND: COVID-19 was declared a global health emergency. Since children are less than 1% of reported cases, there is limited information to develop evidence-based practice recommendations. The objective of this study was to rapidly gather expert…

Family attitudes toward genomic sequencing in children with cardiac disease

Purpose of study Care for children with cardiac disease often involves difficult decisions and clinical uncertainty. Genomic Sequencing (GS) promises to improve clinical prognostics and could impact how difficult decisions are made. We sought to…

Benefit of Neoral C2 monitoring in de novo cardiac transplant recipients receiving basiliximab induction.

2008-04

Tags: 2008, Alonso-Pulpon L, Arizon JM, Backlog, Cantarovich M, Crespo MG, Gomez MA, Haddad H, Howlett J, Journal Article, Lage E, Manito N, Molina BD, Orus J, Ross H, Straatman L, Transplantation, Wang S

Liver transplantation for Wilson's disease: long-term results and quality-of-life assessment

BACKGROUND: Wilson's disease associated with severe liver disease is effectively cured by orthotopic liver transplantation (OLT). However, there are also anecdotal reports of improved or resolved neurologic symptoms after OLT in patients with stable…

Noncompliance with immunosuppressive medications in pediatric and adolescent patients receiving solid-organ transplants

Advances in knowledge in transplantation have improved 1-year renal allograft survival in all age groups of pediatric patients. However, the results from many studies have shown that the long-term allograft survival is least successful in adolescent…

Tags: 2004, Adolescent, Adolescent Transitions, Backlog, Child, Ettenger RB, Graft Rejection/drug therapy, Humans, Immunosuppressive Agents/therapeutic use, Journal Article, Malekzadeh M, Marik JL, Organ Transplantation, Rianthavorn P, Struber M, Transplantation, Treatment Refusal

Sexual dysfunction in male cardiac transplant recipients

Sexual dysfunction in male cardiac transplant recipients has received little systematic study. Problems reported in the literature include impotence, ejaculation problems, decreased libido and avoidance of sexual opportunities. PURPOSE: Investigate…

Tags: 1999, Abbey S, Backlog, Cardiac Transplant, Cohen E, Heart Transplant, Heart transplantation, Journal Article, Male, Ross H, Sex disorders, Sexual Dysfunction, Straatman L, Transplant, Transplant Recipient, Transplantation

Pediatric utilization of rapamycin for severe cardiac allograft rejection

BACKGROUND: Rapamycin is a new immunosuppressive agent that has been shown to be effective in the treatment of acute cardiac rejection in the adult population. METHODS: This case documents a pediatric patient with ongoing cardiac rejection that did…

Compassionate Deactivation Of Ventricular Assist Devices In Pediatric Patients.

Despite greatly improved survival in pediatric patients with end-stage heart failure through the use of ventricular assist devices (VADs), heart failure ultimately remains a life-threatening disease with a significant symptom burden. With increased…

End-of-life Care Patterns Associated With Pediatric Palliative Care Among Children Who Underwent Hematopoietic Stem Cell Transplant.

Stem cell transplantation (SCT) is an intensive therapy offering the possibility of cure for life-threatening conditions but with risk of serious complications and death. Outcomes associated with pediatric palliative care (PPC) for children who…

Browse Items (9 total)