Browse Items (38 total)
- Tags: School Child
Assessing well-being in pediatric palliative care: A pilot study about views of children, parents and health professionals
Tags: 2023, Article, Bolance C, Camprodon-Rosanas E, Child, Clinical Article, Controlled Study, Cross-sectional Study, Demography, Emotion, emotional well-being, Female, Guillen M, health practitioner, Human, Limonero JT, Male, May List 2023, Navarro Vilarrubi S, Palliative And Supportive Care, Palliative Care, Palliative Therapy, Perception, Pilot Projects, Pilot Study, psychologic assessment, School Child, Toro-Perez D, vision, Visual Analog Scale, Wellbeing
The Landscape of Outpatient Pediatric Palliative Care: A National Cross-Sectional Assessment
Tags: 2023, Advance Care Planning, Analgesia, Article, Autrey AK, Cesarean Section, Child, Controlled Study, Demographics, Funding, Hospital Patient, Human, James C, Journal of Pain and Symptom Management, Kaye EC, May List 2023, Miller EG, Morvant A, Mothi SS, Outpatient, Palliative Care, Palliative Therapy, Patient Referral, Program Development, School Child, Stafford C, United States, workflow
At the End of Life: Pediatric Palliative Care Can Make a Difference in Caring for the Child and Family
Tags: 2022, Agitation, Alvarez T, anxiety, Bolanos J, Cancer Patient, care behavior, Child, Claros A, Cleves D, conference abstract, Controlled Study, Cuervo M, December List 2022, Demography, Dyspnea, Fear, Female, Garcia X, Hospital Mortality, Human, Intensive Care Unit, Irritability, Leukemia, Major Clinical Study, Male, middle income country, Molina K, Pain, Palliative Therapy, Pediatric Blood and Cancer, pediatric patient, quasi experimental study, Retrospective Study, School Child, Seizure, Skill, social needs, Terminal Care, ward
Examining key sociodemographic characteristics of adolescents and young adults with cancer: A post hoc analysis of the Promoting Resilience in Stress Management randomized clinical trial
Tags: 2020, Adolescent, Article, Bona K, Bradford M C, cancer center, cancer specific quality of life, Child, Connor-Davidson Resilience Scale, Controlled Study, Coping Behavior, environmental resilience, Female, Hope Scale, Human, Lau N, Major Clinical Study, Male, McCauley E, Oncology 2020 List, outcome assessment, Palliative Medicine, Palliative Therapy, patient-reported outcome, Pediatric Quality of Life Inventory, Post Hoc Analysis, Psychological Distress Scale, psychosocial development, Quality Of Life, Randomized Controlled Trial, Rosenberg A R, School Child, Scott S, Socioeconomics, Steineck A, stress management, Total Quality Management, Treatment Outcome, Yi-Frazier J P, Young Adult
Medical and end-of-life decision making in adolescents' pre-heart transplant: A descriptive pilot study
Tags: 2020, Adolescent, Adult, Advance Care Planning, Article, Attention, Blume E D, Child, Clinical Article, Cousino M K, Cross-sectional Study, Decision Making, Female, heart graft, Human, Lowery R, Male, May 2020 List, Miller V A, Palliative Medicine, Patient Participation, Pilot Study, Prognosis, Rottach N, School Child, Schumacher K R, Smith C, Uzark K, Young Adult
Palliative care in 9 children with neurodegeneration with brain iron accumulation
Tags: 2020, April 2020 List, Article, body mass, Bone Density, bone strength, botulinum toxin, Child, Clinical Article, contracture, Controlled Study, Dangel T, Densitometry, Dystonia, facilitation, Female, femur, Home Care, Hospice And Palliative Care Nursing, Human, hypersalivation, iron, Januszaniec A, ketogenic diet, Kmiec T, Male, Multidisciplinary team, neurodegeneration with brain iron accumulation, Neurological Sciences, Pain, Palliative Therapy, pathologic fracture, Prevention, Questionnaire, School Child, skeleton, Spasticity, Spine, Thorax, Wazny B
Paediatric long-term home ventilation: Should we rethink social inclusion for these children?
Tags: 2019, Adolescent, Agosto C, April 2020 List, Artificial Ventilation, assisted ventilation, Attention, Benedetti F, Benini F, Child, conference abstract, Divisic A, European Respiratory Journal, Female, Grigolon E, Human, Lazzarin P, Major Clinical Study, Male, Medical Record Review, Moro N, Neuromuscular Disease, Noninvasive Ventilation, Ometto M, Palliative Therapy, Pellizzon M, Retrospective Study, Rusalen F, School Child, school dropout, secondary health care, social exclusion, social needs, Tracheostomy
Trends in the aggressiveness of pediatric cancer near the end-of-life
Tags: 2018, Adult, aggressiveness, Artificial Ventilation, Cancer Patient, Child, Childhood Cancer, conference abstract, Controlled Study, Death, Diagnosis, Female, Fushimi K, Hematologic Malignancy, Human, Intubation, Japan, Major Clinical Study, Male, Matsumoto K, Oncology 2019 List, Pediatric Blood and Cancer, Resuscitation, School Child, Shinjo D, Terminal Care, Yotani N, Young Adult
Vulnerable Populations Receiving Palliative Radiation in a Children's Hospital: Reporting on the Underreported
Tags: 2019, Adult, Anesthesia, Asia, cancer radiotherapy, Central Nervous System Tumor, Child, conference abstract, Controlled Study, Death, electronic medical record, employer, Female, Follow Up, fraud, housing, Human, Hwang L, immigration, International Journal Of Radiation Oncology Biology Physics, Lee H J, Liu K X, lowest income group, Major Clinical Study, Male, Medical Record Review, Mental Stress, Neuroblastoma, Olch A J, Oncology 2019 List, Organization, Pain, Poverty, race, radiation oncologist, Radiotherapy, Retrospective Study, Rhabdomyosarcoma, School Child, South and Central America, Terminal Care, vulnerable population, Wong K, Young Adult
Sleep-disordered breathing and its management in children with achondroplasia
Tags: 2017, achondroplasia, adenotonsillectomy, Amaddeo A, American Journal of Medical Genetics Part A, apnea hypopnea index, apnea monitoring, Baujat G, BiPAP, bone dysplasia, breathing difficulties, cervical decompression, Child, Clinical Article, Cormier-Daire V, Couloigner V, CPAP, De Sanctis L, ENT surgery, Fauroux B, Human, James S, Khirani S, Michot C, Neurosurgery, obstructive sleep apnea, physical interventions, Polysomnography, Preschool Child, Prevalence, Retrospective Study, School Child, Sleep disordered breathing, Surgery, surgical interventions, Tenconi R, upper respiratory tract, Zerah M
Promoting adaptive behaviors by two girls with Rett syndrome through a microswitch-based program
Tags: 2013, adaptive behavior, Adolescent, Article, Assistive technology, Caffo A O, Case Report, Child Behavior, Female, hand washing, Happiness, Human, Indices of happiness, locomotion, Locomotor behavior, Microswitches, optic sensors, physical intervention, Priority Journal, Research In Autism Spectrum Disorders, Rett syndrome, School Child, Stasolla F, stereotyped movements, stereotypy, tone and motor problems, Wobble microswitch
Otorhinolaryngological, Audiovestibular and swallowing manifestations of patients with Niemann-Pick disease Type C
Tags: 2016, Adolescent, Aksoy S, Akyol U, Article, aspiration scale, auditory response, Balance disorders, body equilibrium, characteristics, Child, Clinical Article, Controlled Study, Demir N, Dysphagia, Endoscopy, feeding difficulties, Female, Flexible endoscopy, hearing, hearing impairment, Hearing problems, Human, International Journal of Pediatric Otorhinolaryngology, Kuscu O, Male, Niemann Pick disease/di [Diagnosis], Niemann-Pick Disease, NPC, Otorhinolaryngology, penetration, postural imbalance, Preschool Child, Priority Journal, Prospective Study, pure tone audiometry, School Child, Senirli R T, stabilography, Swallowing, Swallowing disorders, tone and motor problems, Topcu M, Trajectory, vestibular system, Yigit O
Polysomnographic recordings of respiratory disturbances in Rett syndrome
Tags: 1995, Adolescent, Aguigah G, Aksu F, apnea, breathing difficulties, Buschatz D, Case Report, characteristics, Conference Paper, Disorder of respiratory control, Female, Human, hyperventilation, hypocapnia, Journal of Sleep Research, Polygraphic recording, Polysomnography, Priority Journal, Respiratory Tract Disease, Rett syndrome, Rett Syndrome/di [Diagnosis], Schluter B, School Child, Trajectory, Trowitzsch E
Gait, Balance, and Coordination Impairments in Niemann Pick Disease, Type C1
Tags: 2 hydroxypropyl beta cyclodextrin, 2018, 94035-02-6 (2 hydroxypropyl beta cyclodextrin), Adolescent, Adult, Alter K, Article, balance impairment, body equilibrium, case control study, characteristics, Child, Clinical Article, clinical evaluation, Comparative Study, coordination disorder, disease severity assessment, Farhat N, Female, gait disorder, Human, Human Development, intervention study, Journal of Child Neurology, Keener L A, Male, molecular stability, motion analysis system, Neurologic Examination, Niemann Pick disease, NIH NPC Neurologic Severity Scale, NPC, outcome assessment, performance, Porter F, Preschool Child, Priority Journal, Research, Retrospective Study, Sansare A, School Child, scoring system, spatiotemporal analysis, stabilography, Stanley C, tone and motor problems, Trajectory, Upper limb, vts 270, Young Adult, Zampieri C
Fatigue and depression in children with demyelinating disorders
Tags: 2013, acquired demyelinating syndromes, acute disseminated encephalomyelitis, Adolescent, alertness, Article, Benedict R H B, Canada, characteristics, Child, Child Behavior, Childhood Disease, Clinical Article, Cohort Analysis, Comorbidity, Controlled Study, Cross-sectional Study, demyelinating disease, demyelinating disorders, Depression, disease duration, Epidemiology, Fatigue, Female, Health Survey, Human, Journal of Child Neurology, Male, Mood, Multiple Sclerosis, Parrish J B, Priority Journal, psychological aspect, School Child, Self Report, Sleep, Smerbeck A, Therapy, Trajectory, Weinstock-Guttman B, Yeh E A
Supplementation with carnitine reduces the severity of constipation: A retrospective study of patients with severe motor and intellectual disabilities
Tags: 102767-28-2 (levetiracetam), 1069-66-5 (valproic acid), 1309-48-4 (magnesium oxide), 1317-74-4 (magnesium oxide), 14093-02-8 (iron), 14378-32-6 (zinc), 146-22-5 (nitrazepam), 1622-61-3 (clonazepam), 2017, 22316-47-8 (clobazam), 298-46-4 (carbamazepine), 461-06-3 (carnitine), 50-06-6 (phenobarbital), 53858-86-9 (iron), 541-15-1 (carnitine), 56-99-5 (carnitine), 57-30-7 (phenobarbital), 57-88-5 (cholesterol), 59-30-3 (folic acid), 6484-89-5 (folic acid), 68291-97-4 (zonisamide), 7439-89-6 (iron), 7440-66-6 (zinc), 7782-49-2 (selenium), 8028-68-0 (phenobarbital), 8047-84-5 (carbamazepine), 84057-84-1 (lamotrigine), 99-66-1 (valproic acid), acute brain disease, Adult, albumin, albumin blood level, anticonvulsant therapy, Aomatsu T, Article, bacterial meningitis, bed rest, body mass, brain infarction, carbamazepine/dt [Drug Therapy], carnitine, carnitine deficiency, carnitine deficiency/dt [Drug Therapy], carnitine/dt [Drug Therapy], Cerebral Palsy, Child, cholesterol blood level, cholesterol/ec [Endogenous Compound], Clinical Article, Clinical Trial, clobazam/dt [Drug Therapy], clonazepam/dt [Drug Therapy], Constipation, constipation/dt [Drug Therapy], constipation/pc [Prevention], Controlled Study, copper blood level, cupric ion/ec [Endogenous Compound], diet supplementation, Disease Severity, Endogenous Compound, enema/dt [Drug Therapy], enteric feeding, epilepsy/dt [Drug Therapy], Female, folic acid, folic acid blood level, folic acid/ec [Endogenous Compound], Gene Expression, groups by age, Hospital, Human, Human Tissue, infantile spasm, Inoue K, Intellectual Impairment, iron blood level, iron/ec [Endogenous Compound], Journal of Clinical Biochemistry and Nutrition, lamotrigine/dt [Drug Therapy], levetiracetam/dt [Drug Therapy], magnesium oxide/dt [Drug Therapy], Male, Medical Record Review, Middle Aged, motor dysfunction, Murata S, NCL3, neuronal ceroid lipofuscinosis, nitrazepam/dt [Drug Therapy], Pelizaeus Merzbacher disease, Pelizaeus- Merzbacher disease, periventricular leukomalacia, pharmacologic intervention, phenobarbital/dt [Drug Therapy], prealbumin, prealbumin/ec [Endogenous Compound], Preschool Child, Retrospective Study, School Child, selenium blood level, selenium/ec [Endogenous Compound], sex difference, Tamai H, trace element, Tuberous Sclerosis, valproic acid, valproic acid/dt [Drug Therapy], West syndrome, Yoden A, Young Adult, zinc/ec [Endogenous Compound], zonisamide/dt [Drug Therapy]
Feed-induced Dystonias in Children with Severe Central Nervous System Disorders
Tags: 1134-47-0 (baclofen), 2017, acquired brain injury, Adolescent, Article, Baclofen/dt [drug Therapy], baclofen/tl [Intrathecal Drug Administration], Campbell D I, Case Study, central nervous system disease, Cerebral Palsy, Child, Clinical Article, Constipation, Dystonia, dystonia/dt [Drug Therapy], feed induced dystonia, feed induced dystonia/dt [Drug Therapy], feeding difficulties, Female, Gastroesophageal Reflux, Gastroscopy, GERD, Human, Hydrocephalus, Hyperglycinemia, Infant, infantile spasm, intestinal dysmotility, intestine motility, Intestine Obstruction, Journal Of Pediatric Gastroenterology And Nutrition, Male, microcephaly, Mordekar S R, motor dysfunction, MPSIII, onset age, Parenteral Nutrition, Percutaneous Endoscopic Gastrostomy, peristalsis, pharmacologic intervention, Practice Guideline, Preschool Child, Priority Journal, reflux esophagitis, Retrospective Study, Rett syndrome, Sanfilippo syndrome, School Child, tone and motor problems, total parenteral nutrition, Velayudhan M, West syndrome
Autonomic breathing abnormalities in Rett syndrome: Caregiver perspectives in an international database study
Tags: 2017, abdominal bloating, Adult, Article, autonomic dysfunction, bloating, breath holding, breath-holding, breathing difficulties, breathing disorder, Breathing disorders, breathing pattern, Caregiver, characteristics, Child, Data Base, Developmental Disability, Downs J, Epstein A, Female, Genotype, Heyworth J, Human, hyperventilation, International database, Journal of Neurodevelopmental Disorders, Leonard H, MacKay J, Male, mecp2, Mutation, Noninvasive Ventilation, onset age, oxygen, Priority Journal, Questionnaire, Rare disorder, rebreathing, Rett syndrome, School Child, Trajectory, Wong K
Intrathecal baclofen treatment an option in X-linked adrenoleukodystrophy
Tags: 1134-47-0 (baclofen), 1309378-01-5 (botulinum toxin A), 1638949-86-6 (botulinum toxin A), 1800016-51-6 (botulinum toxin A), 2018, 93384-43-1 (botulinum toxin A), Addison disease, adrenoleukodystrophy/dt [Drug Therapy], adrenoleukodystrophy/su [Surgery], Article, baclofen, Baclofen/dt [drug Therapy], baclofen/po [Oral Drug Administration], baclofen/tl [Intrathecal Drug Administration], balance disorder, behavior change, bladder dysfunction, botulinum toxin A, Case Report, Child, Clinical Article, clinical examination, clonus, diplopia, drug dose increase, Dystonia, Ehrstedt C, European Journal of Paediatric Neurology, Fatigue, hearing disorder, Hjartarson H T, Human, hyperpigmentation, intrathecal baclofen, intrathecal pump, Leukodystrophy, limited mobility, Male, Pain, pharmacologic interventions, Priority Journal, Quality Of Life, Range of Motion, School Child, Spasticity, strabismus, Tedroff K, tone and motor problems, urinary catheter, visual disorder, X chromosome linked disorder/dt [Drug Therapy], X chromosome linked disorder/su [Surgery], X-linked adrenoleukodystrophy
Balloon dilatation in esophageal strictures in epidermolysis bullosa and the role of anesthesia
Tags: 2017, Adolescent, Adult, Anesthesia, Article, Ates U, Balloon dilatation, Can O S, Child, Clinical Article, Clinical Effectiveness, colon interposition, digestive endoscope, Dindar H, Diseases of the Esophagus, Dysphagia, endoscopic balloon dilatation, epidermolysis bullosa, Ergun E, esophagus balloon, esophagus perforation, esophagus stenosis/co [Complication], esophagus stenosis/th [Therapy], feeding difficulties, Female, Gastrostomy, Gollu G, Human, Male, Patient Safety, Preschool Child, Priority Journal, Retrospective Study, School Child, surgical intervention, Young Adult
Effect of selective dorsal rhizotomy on daily care and comfort in non-walking children and adolescents with severe spasticity
Tags: 2017, Adolescent, Attention, Becher J G, Bolster E A M, Buizer A I, Cerebral Palsy, Child, Clinical Article, Comfort, Congenital Malformation, Controlled Study, dorsal rhizotomy, Dystonia, European Journal of Paediatric Neurology, Follow Up, Human, leg muscle, lipidoses, Medical History, Pain, risk factor, Satisfaction, School Child, scoliosis, selective dorsal rhizotomy, Spasticity, Stadhouder A, Strijers R L, surgical intervention, tone and motor problems, van de Pol L A, van Ouwerkerk W J, van Schie P E M, Vermeulen R J
Mitochondrial capacity, muscle endurance, and low energy in friedreich ataxia
Tags: 2017, Adolescent, Adult, alertness, Article, Bossie H M, cellular subcellular and molecular biological phenomena and functions, characteristics, Child, Clinical Article, Comparative Study, Controlled Study, Cross-sectional Study, Disease Severity, electrostimulation, endurance, energy, Fatigue, Female, Friedreich ataxia, Godin Leisure Time Physical Activity Score, Human, Male, McCully K K, mechanomyography, mitochondrial capacity, Muscle and Nerve, muscle endurance, muscle exercise, myography, near infrared spectroscopy, O'Connor P J, oxygen consumption, physical energy, Priority Journal, Schoick R A V, School Child, scoring system, skeletal muscle, Trajectory, Willingham T B
Deep Brain Stimulation in Rare Inherited Dystonias
Tags: 2016, Adolescent, Adult, Aged, Aquino C C, Article, ataxia telangiectasia, ataxia telangiectasia/di [Diagnosis], ataxia telangiectasia/dt [Drug Therapy], atypical dopa responsive dystonia/di [Diagnosis], atypical dopa responsive dystonia/dt [Drug Therapy], Baclofen/dt [drug Therapy], Beaulieu-Boire I, benzodiazepine derivative/dt [Drug Therapy], Brain Depth Stimulation, Brain Stimulation, Burke Fahn Marsden Dystonia Rating Scale, cerebellar ataxia/di [Diagnosis], cerebellar ataxia/dt [Drug Therapy], Child, chorea/di [Diagnosis], chorea/dt [Drug Therapy], Clinical Article, clinical assessment, Clinical Effectiveness, clobazam/dt [Drug Therapy], clonazepam/dt [Drug Therapy], deep brain stimulation, diazepam/dt [Drug Therapy], disease duration, Disease Severity, Dystonia, dystonia/di [Diagnosis], dystonia/dt [Drug Therapy], Dystonic Disorder/su [surgery], dystonic disorder/th [Therapy], entacapone/cb [Drug Combination], entacapone/dt [Drug Therapy], escitalopram/dt [Drug Therapy], extrapyramidal syndrome/di [Diagnosis], extrapyramidal syndrome/dt [Drug Therapy], Fallis M, Fasano A, Follow Up, gabapentin/dt [Drug Therapy], haloperidol/dt [Drug Therapy], Hodaie M, Human, Inherited dystonia, Kalia S K, Lang A E, levodopa/dt [Drug Therapy], lorazepam/dt [Drug Therapy], Lozano A, MCM deficiency, methylmalonic aciduria/di [Diagnosis], methylmalonic aciduria/dt [Drug Therapy], Middle Aged, mirtazapine/dt [Drug Therapy], Moro E, motor dysfunction assessment, NCL, Nemaline myopathy, nemaline myopathy/di [Diagnosis], nemaline myopathy/dt [Drug Therapy], neuronal ceroid lipofuscinosis/di [Diagnosis], neuronal ceroid lipofuscinosis/dt [Drug Therapy], olanzapine/dt [Drug Therapy], outcome assessment, Phenotype, Poon Y Y, pramipexole/cb [Drug Combination], pramipexole/dt [Drug Therapy], Preoperative Care, Priority Journal, Rating Scale, risperidone/dt [Drug Therapy], School Child, selegiline/cb [Drug Combination], selegiline/dt [Drug Therapy], Surgery, surgical intervention, tetrabenazine/dt [Drug Therapy], therapy effect, time to treatment, tizanidine/dt [Drug Therapy], tone and motor problems, trazodone/dt [Drug Therapy], Treatment, trihexyphenidyl/cb [Drug Combination], trihexyphenidyl/dt [Drug Therapy], Trisomy/di [diagnosis], trisomy/dt [Drug Therapy], Wilson disease/di [Diagnosis], Wilson disease/dt [Drug Therapy], woodhouse sakati syndrome/di [Diagnosis], woodhouse sakati syndrome/dt [Drug Therapy], x trisomy/di [Diagnosis], x trisomy/dt [Drug Therapy]
Efficacy and safety of endoscopic dilation of esophageal strictures in epidermolysis bullosa
Tags: 2004, Adolescent, Adult, Anderson S H C, Article, Balloon dilatation, barium, Body Weight, Chappiti U, contrast enhancement, Doig L, Dysphagia, Eady R A J, endoscopic balloon dilatation, endoscopic therapy, epidermolysis bullosa, epidermolysis bullosa/th [Therapy], esophagus dilatation, esophagus stricture/th [Therapy], feeding difficulties, Female, Follow Up, Gastrointestinal Endoscopy, Human, Major Clinical Study, Male, Meenan J, Morbidity, Nutritional Status, Prinja H, Priority Journal, Propofol, School Child, scoring system, surgical intervention, Thompson R P H, Treatment Outcome, Williams K N
Trends in incidence, prevalence, and mortality of neuromuscular disease in Ontario, Canada: a population-based retrospective cohort study (2003-2014)
Tags: 2019, Adolescent, Adult, Age, Aged, America, Amin R, amyotrophic lateral sclerosis, amyotrophic lateral sclerosis/ep [Epidemiology], Animals, APEC countries, Article, August 2019 List, Bai Y, Canada, Child, childhood disease/ep [Epidemiology], childhood diseases, Children, Chordata, Cohort Analysis, Cohort Studies, Commonwealth of Nations, Controlled Study, Data Base, death rate, Developed Countries, Disease Course, disease prevalence, Disease Progression, Eukaryotes, Female, Gershon A, Goldstein R, Health Care, health Insurance, Hominidae, Homo, Human, Human Diseases, Incidence, Infant, International Classification of Diseases, Katz S, Leasa D, Major Clinical Study, Male, Mammals, Man, McKim D, Middle Aged, Mortality, mortality rates, muscles, neuromuscular disease/ep [Epidemiology], Neuromuscular Diseases, Neuromuscular Disorders, Nonoyama M, North America, OECD Countries, Ontario, Palliative Care, Palliative Therapy, planning, PLoS One, Population Research, Preschool Child, Prevalence, Primates, Retrospective Studies, Retrospective Study, Rose L, School Child, sclerosis, spinal muscular atrophy/ep [Epidemiology], Spine, Survival, Tandon A, trend study, Trends, Vertebrates, Young Adult
End of life care in children with neurodisability and concurrent palliative care needs: An audit of local Paediatric palliative services
Tags: 2019, Archives of Disease in Childhood, August 2019 List, Awareness, Canavan disease, Cerebral Palsy, Child, Clinical Article, conference abstract, Decision Making, disorders of mitochondrial functions, Documentation, Female, Hqli F, Human, Male, Medical Specialist, Monitoring, Nutrition, Pain, Palliative Therapy, Rett syndrome, Santhanam G, School Child, secondary health care, Seizure, Social Care, Spinal Muscular Atrophy, Terminal Care
When a child becomes terminal: Discrepant adolescent and parent perspectives on discussing a terminal prognosis with adolescents with cardiomyopathy, heart failure, and heart transplant
Tags: 2018, Adolescent, Advance Care Planning, Cancer Prognosis, Cardiomyopathy, Child, Circulation. Conference, Cohen H, conference abstract, Controlled Study, Conversation, Death, Edwards L A, Halpern-Felsher B, Hansen K, Heart Failure, heart graft, Human, June 2019 List, Kaufman B, Luong R, Malignant Neoplasm, Outpatient, Perception, Prognosis, School Child, Yohannes K
The aggressive end-of-life care in pediatric cancer patients in taiwan
Tags: 2018, Cancer Chemotherapy, Cancer Patient, Child, conference abstract, Controlled Study, Death, Diagnosis, do not resuscitate order, Female, Hospice Care, Human, Intensive Care Unit, Intubation, Major Clinical Study, Male, Medical Record Review, Oncology 2018 List, patent, Pediatric Blood and Cancer, Retrospective Study, School Child, Taiwan, Wu LM
Palliative care referral patterns for children with cancer: A three-year retrospective study
Tags: 2018, Cancer Patient, Central Nervous System, Child, conference abstract, Diagnosis, Emergency Ward, Female, Hospice, Hospital Patient, Human, Infant, Intensive Care Unit, Kim CH, Kim MS, Korea, Leukemia, Lymphoma, Major Clinical Study, Male, Moon YJ, Oncology, Oncology 2018 List, outpatient department, Palliative Therapy, Patient Referral, Pediatric Blood and Cancer, pediatric ward, Quality Of Life, Resuscitation, Retrospective Study, School Child, Shin HY, solid malignant neoplasm, Song IG, statistical analysis, Terminal Care, time of death
Aggressiveness of care at the end of life in children with cancer: A nationwide cohort study
Tags: 2017, Aggression, aggressiveness, Annals of Oncology, Cancer Staging, Cardoso A, Cause Of Death, Child, Cohort Analysis, Cohort Studies, developmental stage, Female, Gomes B, Hospitalization, Human, Icd-9, immunotherapy, Intensive Care Unit, Lacerda A, Lopes S, Major Clinical Study, Male, Martins BD, Morbidity, Multicenter Study, Oncology 2018 List, Only Child, Palliative Care, Palliative Therapy, Portugal, Prevalence, Quality Of Life, Resuscitation, School Child, total parenteral nutrition, vascular access
Parents' needs for physician-parent communication in the face of life-threatening illness: Qualitative analysis
Tags: 2017, Adolescent, Article, Child, Child Death, child hospitalization, Childhood Disease, Clinical Article, Female, Health Care System, Hospice, Human, Infant, Interpersonal Communication, Janusz B, June 2018 List, Knowledge, law suit, Life Threatening illness, Male, malpractice, Palliative Medicine in Practice, Parent, Personal Experience, personal needs, physical disease, Physician, Preschool Child, Qualitative Analysis, School Child, Semi Structured Interview, Walkiewicz M
Facebook Advertisements Recruit Parents of Children With Cancer for an Online Survey of Web-Based Research Preferences
Tags: 2014, Adolescent, advertizing, Akard TF, Article, Backlog, Cancer Nursing, Cancer Palliative Therapy, Cancer Patient, Cancer Recurrence, Cancer Research, Caregiver, Child, Childhood Cancer, click, computer, Diseases, Facebook, Female, Gilmer Mary Jo, Health Survey, Human, Income, Information Processing, Internet, Interpersonal Communication, Journal Article, legal guardian, Major Clinical Study, Male, mobile phone, Neoplasm, Nurse, Oncology, Only Child, Palliative Therapy, Parent, Parental Attitude, participant recruitment, Patient, Population, Priority Journal, Sample Size, School Child, social media, social network, Video Recording, Wray S
Advanced care planning in cystic fibrosis
Tags: 2017, 7782-44-7 (oxygen), Altstein L, Bach K, chest tube, Child, Clinical Article, Comfort, Cystic Fibrosis, durable power of attorney, Female, Forced Expiratory Volume, Friedman D, Georgiopoulos A, hemoptysis, Hospitalization, Human, Islam S, January 2018 List, Lifespan, Linnemann RW, living will, Male, Moskowitz SM, Outpatient, oxygen, Palliative Therapy, Pediatric Pulmonology, Pilot Study, pneumothorax, Practice Guideline, School Child, St John A, thinking, Yonker LM
Pediatric palliative care (PPC) access in Chile: Private practice health insurance law implementation
Tags: 2017, Analgesia, Araya E, Central Nervous System Tumor, Child, Chile, Clinical Article, Counseling, Diagnosis, Doctor Patient Relation, Female, Gallastegui A, health Insurance, Home Visit, Human, Leukemia, Lopez P, Nurse, Outpatient, Overall Survival, Palliative Therapy, Pediatric Blood and Cancer, private Practice, Psychologist, Rojas N, Rosas A, School Child, Telephone, Varela J
Use of opioids in palliative care of children with advanced cancer
Tags: 2016, 52-26-6 (morphine), 53663-61-9 (opiate), 57-27-2 (morphine), 8002-76-4 (opiate), 8008-60-4 (opiate), Adjuvant, Advanced Cancer, Analgesia, Article, Child, Childhood Cancer, Cid Barria L, Constipation, Diagnosis, Drug Efficacy, Drug Safety, Female, Fernandez Urtubia B, Human, Major Clinical Study, Male, Medical Record, Morphine, Morphine/dt [drug Therapy], Nonsteroid Antiinflammatory Agent, Nonsteroid Antiinflammatory Agent/dt [drug Therapy], Oncology 2017 List, Opiate/dt [drug Therapy], Pain Intensity, Pain/dt [drug Therapy], Palliative Therapy, Palma Torres C, Retrospective Study, Revista Chilena De Pediatria, Rodriguez Zamora N, School Child, Sedation, Trevigno Bravo A, Visual Analog Scale
Families Are Not The Barrier: Evaluating Attitudes Toward Early Integration Of Palliative Care In Pediatric Hematopoietic Stem Cell Transplant
Tags: 2017, anxiety, Attention, Baker J, Child, Constipation, Diarrhea, Family, Female, Graft Recipient, Hematopoietic Stem Cell, Human, Levine D, Loss Of Appetite, Major Clinical Study, Male, Mandrell B, Nausea, October 2017 List, Pain, Palliative Therapy, Parental Attitude, Pediatric Blood and Cancer, Quality Of Life, School Child, Speech, Sykes A, Symptom
Problematic Symptoms In Children Attending For Short Breaks At A Children's Hospice; Are We Missing An Opportunity For Symptom Assessment And Management?
Tags: 2017, Archives of Disease in Childhood, Balfe J M, Booth A, Child, Clinical Article, Clinical Nurse Specialist, Diagnosis, Family Study, Female, Health Care Delivery, Hospice, Human, Information Processing, Irritability, Male, Nursing, Pain Assessment, Pediatrician, Ritchie B, School Child, Seizure, September 2017 List, Sleep, Symptom Assessment
Integrating Palliative Care Into School Communities
Tags: 2016, Bereavement, Child, Controlled Study, Cree V, Curriculum, Hospice, Hospices, Human, Human Experiment, Information Processing, Interview, May 2017 List, Model, Murray S, Only Child, Palliative Care, Palliative Medicine, Palliative Therapy, Paul S, Primary School, School Child, Scotland, Skill, Staff, Terminal Care