Browse Items · Pediatric Palliative Care Library

The Photographs of Meaning Program for Pediatric Palliative Caregivers and Its Impact on Meaning, Well-Being, and Perceived Social Support

Background: Caring for a child or adolescent with palliative care needs can significantly influence the physical, mental, financial, and social well-being of caregivers. Due to this multifaceted impact, there is a demand for evidence-based support…

Tags: 2020, Beaupin LK, Brewer-Spritzer E, Caregiver, Depner RM, Grant PC, Levy K, Pailler ME, Palliative Medicine Reports, Pediatric Palliative Care, photographs of meaning program, photovoice, September 2021 List, social media, Tenzek KE, Well-being

Angels in the Clouds: Stillbirth and Virtual Cemeteries on 50 YouTube Videos

Today every aspect of our life is published and shared online, including grief. The virtual cemeteries and social networks' use could be considered as a new modern mortuary ritual. Starting from the keyword stillbirth, 50 videos published on YouTube…

Tags: 2021, April 2021 List, Bacqué MF, Burial Practices, Descriptive Statistics, Human, Laurenti Dimanche AC, Mothers -- Psychosocial Factors, music, Omega: Journal Of Death & Dying, Perinatal Death, Photography, Qualitative Studies, Religion and Religions, Sani L, social media, User-Computer Interface, videorecording

Helping parents prepare for their child's end of life: A retrospective survey of cancer-bereaved parents

Background: Most parents vividly recall the weeks, days, and moments preceding their child's death for years to come. Dissatisfaction with communication about their child's condition and lack of guidance can contribute to stress prior to a child's…

Pediatric palliative podcasting as a tool to reach families

Podcasts have grown in popularity over the last several years. Pediatric Palliative Care services can use this medium of communication to reach families more effectively. Podcast use is determined by the schedule of parents rather than providers.…

Tags: 2019, Bills O, Child, Clinical Article, conference abstract, Female, Follow Up, Human, Male, March 2020 List, Moore D, Organization, Palliative Therapy, Pediatrics, season, social media, Total Quality Management, touch

The Experience of Pediatric Palliative Caregiving: A Qualitative Analysis From the Photographs of Meaning Program

The Photographs of Meaning Program for pediatric palliative caregivers (POM-PPCG) is an innovative, meaning-based intervention utilizing photovoice and social media components. In 2017, 9 pediatric palliative caregivers participated in this…

The Photographs of Meaning Program for Pediatric Palliative Caregivers: Feasibility of a Novel Meaning-Making Intervention

Background: Research indicates that informal caregiving can have intense physical and mental impact on the individual. Relative to caregivers of adults, pediatric palliative caregivers appear less in literature despite experiencing greater mental,…

Tags: 2019, Action Research, Adaptation, Adult, American Journal of Hospice & Palliative Medicine, August 2019 List, Beaupin L K, Breier J M, Byrwa D J, Caregiver, Caregiver Support, Caregivers -- Psychosocial Factors, Coefficient Alpha, Criterion-Related Validity, Data Analysis Software, Depner R M, Descriptive Statistics, Discriminant Validity, Female, Grant P C, Health Facilities, Human, Internal Consistency, Levy K, Life Purpose, Married Women, meaning-centered psychotherapy, Middle Age, Mothers, Multimethod Studies, Narratives, New York, Pailler M E, Paired T-Tests, Palliative Care -- Psychosocial Factors, Pediatric, Pediatric Care, pediatric caregiver, Pediatric Palliative Care, Personal Satisfaction, Photography, photovoice, Pilot Studies, Pretest-Posttest Design, Program Development, Program Evaluation, Program Implementation, Psychological, Psychotherapy -- Methods, Questionnaires, Reliability, Research Subject Recruitment, Semi-Structured Interview, social media, surveys, Tenzek K E, Whites

Courageous conversations: Advance care planning and family communication

Background/Objectives: Discussing end-of-life (EoL) care is very challenging for adolescents and young adults (AYA) living with cancer. While many helpful documents exist to facilitate EoL conversations with adults, few resources exist to aid AYA in…

Conflicting realities experienced by children with life-limiting and life-threatening conditions when transitioning to adult health services

AIMS: The aim of this study was to report a secondary qualitative analysis exploring the cultural and practical differences that young people and parents experience when transitioning from children's to adult services. BACKGROUND: Despite two decades…

Social Media Consequences of Pediatric Death

Social media is an important access point for engagement of children and adolescents. For individuals with a life-limiting illness or serving as the caregiver for an ill child, social media can be a helpful outlet for support and information…

Tags: 2018, Adolescent, Article, Bereavement, Buxton DC, Caregiver, Child, Child And Adolescent Psychiatric Clinics Of North America, Death, Grief, Human, knee prosthesis, Pediatrics, September 2018 List, social media, Vest TR, videorecording

Use of Facebook in the maternal grief process: An exploratory qualitative study

This study seeks to explore the potential implications of Facebook use in the process of maternal grief. The participants were 11 women who had lost their children due to accidents or prolonged illness. Semistructured interviews were conducted and…

Tags: 2018, April 2018 List, Death studies, Exploratory Research, Francisco R, Grief, Human, Maternal Attitudes, Perluxo D, psychosocial, Qualitative Studies, Research Subjects, Semi-Structured Interview, social media, Social Networks, Support, Thematic Analysis, utilization, Women

Facebook Advertisements Recruit Parents of Children With Cancer for an Online Survey of Web-Based Research Preferences

BACKGROUND:: Studies involving samples of children with life-threatening illnesses and their families face significant challenges, including inadequate sample sizes and limited diversity. Social media recruitment and Web-based research methods may…

Growing a professional network to over 3000 members in less than 4 years: evaluation of InspireNet, British Columbia's virtual nursing health services research network

BACKGROUND: Use of Web 2.0 and social media technologies has become a new area of research among health professionals. Much of this work has focused on the use of technologies for health self-management and the ways technologies support communication…

Using Web Analytics and Social Media to Improve Knowledge Translation and Increase Patient Engagement

For the last several months our team of clinicians and health librarians have been collecting analytics data via Google Analytics, Twitter analytics, and MailChimp analytics to inform the following projects as part of an outreach strategy: The…

Tags: Health librarian, Hermansen AM, knowledge translation, Pawliuk C, poster, Research Methods, Robins S, Siden H, social media, web analytics

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