Helping parents prepare for their child's end of life: A retrospective survey of cancer-bereaved parents

Title

Helping parents prepare for their child's end of life: A retrospective survey of cancer-bereaved parents

Creator

Wiener L; Tager J; Mack J; Battles H; Bedoya S Z; Gerhardt C A

Identifier

Publisher

Pediatric Blood and Cancer

Date

2020

Subject

newborn; social support; child; human; adult; female; major clinical study; male; retrospective study; article; priority journal; aged; Bereavement; adolescent; terminal care; quality of life; emotion; Parent; psychologist; social worker; content analysis; interpersonal communication; quantitative analysis; time of death; infant; caregiver; pediatric patient; nurse; support group; thematic analysis; psycho-oncology; open ended questionnaire; childhood cancer/dm [Disease Management]; pediatric oncologist; health care need; social media; worker

Description

Background: Most parents vividly recall the weeks, days, and moments preceding their child's death for years to come. Dissatisfaction with communication about their child's condition and lack of guidance can contribute to stress prior to a child's death. Based on findings from a study assessing the degree of preparation bereaved parents received and our collective clinical experience, the authors provide suggestions on end-of-life communication and guidance for parents.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

Oncology 2020 List

Collection

Citation

Wiener L; Tager J; Mack J; Battles H; Bedoya S Z; Gerhardt C A, “Helping parents prepare for their child's end of life: A retrospective survey of cancer-bereaved parents,” Pediatric Palliative Care Library, accessed July 30, 2021, https://pedpalascnetlibrary.omeka.net/items/show/17409.

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