Browse Items (13 total)

Tags: 2024, Adult, Advance Care Planning, Aged, Article, Artificial Ventilation, BMC Palliative Care, Child, Cohort Analysis, Controlled Study, data warehouse, Female, Health Care Cost, Health Care Delivery, Health Care Utilization, Human, Infant, July List 2024, Kim CH, Kim MS, Lee J, Lee JW, Major Clinical Study, Male, Medical Record, Medical Records, Neuromuscular Disease, Newborn, Opiate, Palliative Care, Palliative Therapy, Quality Of Life, Resuscitation, Retrospective Study, South Korea, Terminal Care, Young Adult

Tags: 2024, Adolescent, Adult, Brooks JV, Child, Clinician, conference abstract, Congenital Heart Disease, Diagnosis, Ellis KL, Gunya EK, Human, Jersak T, Journal of Pain and Symptom Management, June List 2024, Kansas, Medical Specialist, Needs Assessment, Neuromuscular Disease, Palliative Therapy, Patient Referral, Pediatric Hospital, pharmaceutics, Sinclair C, Steinfeldt L, Telehealth, Therapy, Velasquez AL, Young Adult

Tags: 2024, Acta Paediatrica, acute respiratory failure, adenoid hypertrophy, adenotonsillectomy, Adolescent, angiotensin receptor antagonist/pv [Special Situation for Pharmacovigilance], anxiety, apnea hypopnea index, April List 2024, Article, aspiration pneumonia/co [Complication], Asthma, automatic positive airway pressure, beta 2 adrenergic receptor stimulating agent/ih [Inhalational Drug Administration], beta 2 adrenergic receptor stimulating agent/pv [Special Situation for Pharmacovigilance], beta adrenergic receptor blocking agent/pv [Special Situation for Pharmacovigilance], brain hypoxia, Brain Tumor, cardiovascular agent/pv [Special Situation for Pharmacovigilance], central nervous system disease, central sleep apnea syndrome/th [Therapy], Child, childhood obesity, choana atresia/su [Surgery], Clinical Feature, Clinical Outcome, Cohort Analysis, Comorbidity, Continuous Positive Airway Pressure, Controlled Study, corticosteroid/ih [Inhalational Drug Administration], corticosteroid/pv [Special Situation for Pharmacovigilance], craniofacial malformation, craniofacial surgery, cranioplasty, Data Analysis Software, Demographics, Developmental delay, developmental disorder, diaphragm hernia, dipeptidyl carboxypeptidase inhibitor/pv [Special Situation for Pharmacovigilance], Disease Severity, Down Syndrome, Eskola V, Female, Finn (citizen), Follow Up, Home Care, Human, hypoventilation/th [Therapy], Icd-10, Infant, invasive ventilation, Jarvela M, Katila M, laryngomalacia, Lauhkonen E, Le Fort III osteotomy, Long Term Care, lung hypoplasia, Major Clinical Study, Makinen R, Male, Mandelin P, mask/am [Adverse Device Effect], maxilla hypoplasia/co [Complication], medical device complication/co [Complication], montelukast/pv [Special Situation for Pharmacovigilance], Multidisciplinary team, nasal mask, Neuromuscular Disease, noninvasive positive pressure ventilation, nose obstruction/co [Complication], obstructive sleep apnea/th [Therapy], Only Child, onset age, orthodontic procedure, Palliative Therapy, Pneumonia, Polysomnography, psychological aspect, respiratory care, Respiratory Distress Syndrome, Retrospective Study, Saarenpaa-Heikkila O, skin irritation/co [Complication], Sleep Apnea Syndromes, Sleep Apnea Syndromes/th [Therapy], sleep disorder/co [Complication], Sleep Disorders, SPSS version 28.00, steroid/pv [Special Situation for Pharmacovigilance], Tonsillectomy, tonsillotomy, Tracheostomy, treatment duration, University Hospital

Tags: 2021, Baumann T, Benitez EA, Bronchopulmonary Dysplasia, Children, Communication, Cystic Fibrosis, Das S, Gazzaneo MC, Jarrell JA, lung transplant, Nakashima-Paniagua Y, Neuromuscular Disease, November 2021 List, Palliative Care, Pediatric Pulmonology, primary palliation, psychosocial support, pulmonary hypertension, Quality Of Life, Villafranco N

Tags: 2021, adolescents and young adults, Advance Directives, Baker DJ, Battista V, D'Aoust RF, Goals Of Care, Journal of Hospice and Palliative Nursing, Neuromuscular Disease, October 2021 List, Palliative Care, Sabri B, Trimarchi T, Wright R

Tags: 2020, Agra-Tunas C, brain dead, Chronic Disease, Critically Ill, Death, July 2020 List, Neuromuscular Disease, Pediatric Critical Care Medicine, Pediatric Intensive Care Unit, Picu, respiratory disease, Rodriguez Merino E, Rodriguez-Ruiz E

Tags: 2019, Adolescent, Agosto C, April 2020 List, Artificial Ventilation, assisted ventilation, Attention, Benedetti F, Benini F, Child, conference abstract, Divisic A, European Respiratory Journal, Female, Grigolon E, Human, Lazzarin P, Major Clinical Study, Male, Medical Record Review, Moro N, Neuromuscular Disease, Noninvasive Ventilation, Ometto M, Palliative Therapy, Pellizzon M, Retrospective Study, Rusalen F, School Child, school dropout, secondary health care, social exclusion, social needs, Tracheostomy

Tags: 2019, administrative personnel, Adolescent, Archives of Disease in Childhood, Artificial Ventilation, Caregiver, Cerebral Palsy, Child, Chow C, conference abstract, Congenital Heart Disease, Controlled Study, Diagnosis, Fatigue, Female, Gastrostomy, Home Care, Human, limited mobility, machine, Major Clinical Study, Male, Medical Technology, Multicenter Study, Multidisciplinary team, Neuromuscular Disease, Nurse, October 2019 List, Outpatient, Pediatrician, salary, Shahdadpuri R, Stress, Tracheostomy, ventilator, working time

Tags: 2018, Care coordination, February 2019 List, health care professional, Hjorth E, Jeppesen J, Journal of Child Neurology, Kreicbergs U, Lövgren M, Neuromuscular Disease, parental perception, Pediatric Palliative Care, Rahbek J, Sejersen T, Spinal Muscular Atrophy, Werlauff U

Tags: 2016, Bereavement, Forbes R, Genetics, Higgs EJ, Journal of Paediatrics and Child Health, July 2017 List, McClaren BJ, Neuromuscular Disease, Qualitative Research, Ryan MM, Sahhar MAR, Spinal Muscular Atrophy

Tags: 2017, Adolescent, Beernaert K, Belgium, Cancer Epidemiology, Cardenas-Turanzas M, Cause Of Death, Child, Cohen H, Controlled Study, Cultural Value, Death Certificate, Deliens L, European Journal of Pediatrics, Female, Frache S, Giovannetti L, Girl, Hakanson C, Houttekier D, Human, Kreicbergs U, Logistic Regression Analysis, Loucka M, Major Clinical Study, Male, Malignant Neoplastic Disease, March 2017 List, Mexico, Naylor W, Neuromuscular Disease, Ohlen J, Palliative Therapy, Ramos MR, Rhee Y, South Korea, Sweden, Teno J, Wilson DM

Tags: 2016, Brain Damage, Child, Chromosome Disorder, Chromosome Disorders, Complication, Controlled Study, Dyspnea, Family Study, Gene Deletion, Hospice, Hospital, Human, June 2017 List, Length Of Stay, Life Expectancy, Medical Service, Metabolic Disorder, Neuromuscular Disease, Neuropediatrics, Only Child, Pain, Palliative Care, Palliative Therapy, Pietz J, Quality Of Life, Seizure, Spasticity, Spiritual Care, Symptom

Tags: 2016, Adult, Artificial Ventilation, Cancer Epidemiology, Cantero EQ, Carro CC, Cerebral Palsy, Child, Chromosome Disorder, Cognitive Defect, Controlled Study, Cross-sectional Studies, Cross-sectional Study, Death, European Respiratory Journal, Follow Up, Gaboli M, Garrido MM, Human, Lung Disease, Major Clinical Study, May 2017 List, Mucopolysaccharidosis, Neuromuscular Disease, Only Child, Palliative Care, Palliative Therapy, Pecellin ID, Quality Of Life, Respiration Artificial, Respiratory Insufficiency, Rodriguez LMR, Spain, University Hospital, Valencia JPG, Ventilators Mechanical, Young Adult