Browse Items (10 total)

Tags: 2021, Baumann T, Benitez EA, Bronchopulmonary Dysplasia, Children, Communication, Cystic Fibrosis, Das S, Gazzaneo MC, Jarrell JA, lung transplant, Nakashima-Paniagua Y, Neuromuscular Disease, November 2021 List, Palliative Care, Pediatric Pulmonology, primary palliation, psychosocial support, pulmonary hypertension, Quality Of Life, Villafranco N

Tags: 2021, adolescents and young adults, Advance Directives, Baker DJ, Battista V, D'Aoust RF, Goals Of Care, Journal of Hospice and Palliative Nursing, Neuromuscular Disease, October 2021 List, Palliative Care, Sabri B, Trimarchi T, Wright R

Tags: 2020, Agra-Tunas C, brain dead, Chronic Disease, Critically Ill, Death, July 2020 List, Neuromuscular Disease, Pediatric Critical Care Medicine, Pediatric Intensive Care Unit, Picu, respiratory disease, Rodriguez Merino E, Rodriguez-Ruiz E

Tags: 2019, Adolescent, Agosto C, April 2020 List, Artificial Ventilation, assisted ventilation, Attention, Benedetti F, Benini F, Child, conference abstract, Divisic A, European Respiratory Journal, Female, Grigolon E, Human, Lazzarin P, Major Clinical Study, Male, Medical Record Review, Moro N, Neuromuscular Disease, Noninvasive Ventilation, Ometto M, Palliative Therapy, Pellizzon M, Retrospective Study, Rusalen F, School Child, school dropout, secondary health care, social exclusion, social needs, Tracheostomy

Tags: 2019, administrative personnel, Adolescent, Archives of Disease in Childhood, Artificial Ventilation, Caregiver, Cerebral Palsy, Child, Chow C, conference abstract, Congenital Heart Disease, Controlled Study, Diagnosis, Fatigue, Female, Gastrostomy, Home Care, Human, limited mobility, machine, Major Clinical Study, Male, Medical Technology, Multicenter Study, Multidisciplinary team, Neuromuscular Disease, Nurse, October 2019 List, Outpatient, Pediatrician, salary, Shahdadpuri R, Stress, Tracheostomy, ventilator, working time

Tags: 2018, Care coordination, February 2019 List, health care professional, Hjorth E, Jeppesen J, Journal of Child Neurology, Kreicbergs U, Lovgren M, Neuromuscular Disease, parental perception, Pediatric Palliative Care, Rahbek J, Sejersen T, Spinal Muscular Atrophy, Werlauff U

Tags: 2016, Bereavement, Forbes R, Genetics, Higgs EJ, Journal of Paediatrics and Child Health, July 2017 List, McClaren BJ, Neuromuscular Disease, Qualitative Research, Ryan MM, Sahhar MAR, Spinal Muscular Atrophy

Tags: 2017, Adolescent, Beernaert K, Belgium, Cancer Epidemiology, Cardenas-Turanzas M, Cause Of Death, Child, Cohen H, Controlled Study, Cultural Value, Death Certificate, Deliens L, European Journal of Pediatrics, Female, Frache S, Giovannetti L, Girl, Hakanson C, Houttekier D, Human, Kreicbergs U, Logistic Regression Analysis, Loucka M, Major Clinical Study, Male, Malignant Neoplastic Disease, March 2017 List, Mexico, Naylor W, Neuromuscular Disease, Ohlen J, Palliative Therapy, Ramos MR, Rhee Y, South Korea, Sweden, Teno J, Wilson DM

Tags: 2016, Brain Damage, Child, Chromosome Disorder, Chromosome Disorders, Complication, Controlled Study, Dyspnea, Family Study, Gene Deletion, Hospice, Hospital, Human, June 2017 List, Length Of Stay, Life Expectancy, Medical Service, Metabolic Disorder, Neuromuscular Disease, Neuropediatrics, Only Child, Pain, Palliative Care, Palliative Therapy, Pietz J, Quality Of Life, Seizure, Spasticity, Spiritual Care, Symptom

Tags: 2016, Adult, Artificial Ventilation, Cancer Epidemiology, Cantero EQ, Carro CC, Cerebral Palsy, Child, Chromosome Disorder, Cognitive Defect, Controlled Study, Cross-sectional Studies, Cross-sectional Study, Death, European Respiratory Journal, Follow Up, Gaboli M, Garrido MM, Human, Lung Disease, Major Clinical Study, May 2017 List, Mucopolysaccharidosis, Neuromuscular Disease, Only Child, Palliative Care, Palliative Therapy, Pecellin ID, Quality Of Life, Respiration Artificial, Respiratory Insufficiency, Rodriguez LMR, Spain, University Hospital, Valencia JPG, Ventilators Mechanical, Young Adult