Browse Items (4 total)

Tags: 2024, Adult, American Journal of Medical Genetics, Part C: Seminars in Medical Genetics, Anderson R, Article, Bierer R, Carey J, Child, Chromosome Disorder, Clinical Article, Content Analysis, Diagnosis, Down Syndrome, Edwards syndrome, Female, heart surgery, Human, Infant Mortality, Male, Mladucky J, Narrative, November List 2024, Parent, Patient Comfort, Personal Experience, Qualitative Research, Quality Of Life, rearing, shared decision making, support group, Therapy, Trisomy 13, Trisomy 18

Tags: 2017, Balkin Emily M, brain disease, central nervous system disease, Child, Chromosome Disorder, Comfort, Death, DeCourcey DD, Drug Withdrawal, Female, Human, Intensive Care Unit, January 2018 List, Life Sustaining Treatment, Lung Disease, Major Clinical Study, Male, Medical Record, Oladunjoye A, Palliative Therapy, Resuscitation, Silverman M, Study Design, Terminal Care, The Journal Of Pediatrics, Wolfe J, Young Adult

Tags: 2016, Brain Damage, Child, Chromosome Disorder, Chromosome Disorders, Complication, Controlled Study, Dyspnea, Family Study, Gene Deletion, Hospice, Hospital, Human, June 2017 List, Length Of Stay, Life Expectancy, Medical Service, Metabolic Disorder, Neuromuscular Disease, Neuropediatrics, Only Child, Pain, Palliative Care, Palliative Therapy, Pietz J, Quality Of Life, Seizure, Spasticity, Spiritual Care, Symptom

Tags: 2016, Adult, Artificial Ventilation, Cancer Epidemiology, Cantero EQ, Carro CC, Cerebral Palsy, Child, Chromosome Disorder, Cognitive Defect, Controlled Study, Cross-sectional Studies, Cross-sectional Study, Death, European Respiratory Journal, Follow Up, Gaboli M, Garrido MM, Human, Lung Disease, Major Clinical Study, May 2017 List, Mucopolysaccharidosis, Neuromuscular Disease, Only Child, Palliative Care, Palliative Therapy, Pecellin ID, Quality Of Life, Respiration Artificial, Respiratory Insufficiency, Rodriguez LMR, Spain, University Hospital, Valencia JPG, Ventilators Mechanical, Young Adult