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Introduction: Palliative care (PC) refers to interventions aimed to improve the quality of life (QoL) of children and their families by the prevention and relief of suffering. The purpose of this study was to explore the knowledge and views of…
Background: The diagnosis of a life-limiting condition of a child in the perinatal or neonatal period is a threat to parental hopes. Hope is an interactional and multidimensional construct, and in palliative care, it is a determinant of quality of…
Asking about the guiding goal of care (GOC) offers health care professionals a perspective on how an individual patient or a family prioritizes health care decisions and is an essential component of shared-decision making. Listening to the patient…
