Browse Items · Pediatric Palliative Care Library

Changes in Relationships in Bereaved Families: Perspectives of Mothers

The loss of a child greatly affects the dynamics of interpersonal relationships in bereaved families. This study explored the relationships in bereaved Korean families from the perspectives of mothers after the death of a child due to cancer. We…

Parental knowledge and views regarding palliative care for children with cancer in Greece

Introduction: Palliative care (PC) refers to interventions aimed to improve the quality of life (QoL) of children and their families by the prevention and relief of suffering. The purpose of this study was to explore the knowledge and views of…

Grieving Parents' Meaning-Making Narration in Relation to Value Orientations: A Cross-Cultural Study

This study investigated the association between prolonged grief (PG) severity and meaning-making narration in a cross-cultural context, and specifically aimed to illustrate the role of value orientation in shaping the grieving process. 30 Chinese and…

Parents' hope in perinatal and neonatal palliative care: a scoping review

Background: The diagnosis of a life-limiting condition of a child in the perinatal or neonatal period is a threat to parental hopes. Hope is an interactional and multidimensional construct, and in palliative care, it is a determinant of quality of…

Preparing for Death While Investing in Life: A Narrative Inquiry and Case Report of Home-Based Paediatric Palliative, End-of-Life, and After-Death Care

Paediatric palliative care is pivotal for addressing the complex needs of children with incurable diseases and their families. While home-based care offers a familiar and supportive environment, delivering comprehensive services in this context is…

"You're on a Rollercoaster, Just Hold On": The Lived Experience of the Dyad Following a Fetal Death

Purpose: Pregnancy and birth is often a joyous period for a dyad. In the instance of fetal death, however, dyads are met with a devastating loss of their child, the hope for the future, and the new reality of becoming a bereaved parent. The purpose…

Sources of emotional challenge for practitioners delivering family centred care after the death of child: an inductive thematic analysis.

Care after the death of a child and support of their bereaved family is an important element of the services offered by children's hospices in the United Kingdom. The study aims to explore the emotional challenges of those delivering…

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