Browse Items (14 total)
- Tags: Speech
"Somebody Hug the Interpreter": Enhancing Pediatric Palliative Care Partnership with Medical Interpreters
Tags: 2024, Child, Clinical Practice, Clinician, collaborative care team, conference abstract, Distress Syndrome, diversity equity and inclusion, Frechette EM, health disparity, health literacy, hospital planning, Human, Journal of Pain and Symptom Management, June List 2024, medical interpreter, Palliative Therapy, Patient Care, Personal Experience, Porter AS, professionalism, Snaman JM, Speech, structural racism, Teamwork, video interview, videorecording, Wise AF
Role of Pediatric Palliative Care in German-Speaking Centers for Heart Transplantation
Tags: 2024, cardiac patient, Child, Chronic Disease, conference abstract, Consultation, Controlled Study, Ethical dilemma, Fischer M, Haas N, heart disease, Heart Failure, Heart transplantation, Hermann M, Human, May List 2024, Medical Specialist, Nurse, Palliative Care, Palliative Therapy, Quality Of Life, Questionnaire, Rabenhorst D, Speech, Terminal Care, Therapy, Thoracic and Cardiovascular Surgeon, ventricular assist device
Sign Me Up! Understanding Referral and Enrollment to Community-Based Pediatric Hospice and Palliative Care (FR420D)
Tags: 2020, Caliboso M, Child, Cohort Analysis, conference abstract, Controlled Study, Demography, Female, Hospice, Human, Insurance, Journal of Pain and Symptom Management, Lindley L, Lotstein D, Major Clinical Study, Male, March 2020 List, Neonatal Intensive Care Unit, Nervous System, Palliative Therapy, Patient Referral, Pediatric Hospital, Preschool Child, Retrospective Study, Speech, Total Quality Management, Wolfe J
Dysphagia in Rett Syndrome: A Descriptive Study
Tags: 2017, Adolescent, Annals of Otology, Rhinology and Laryngology, apraxia, Bronchitis, Caregiver, characteristics, Child, Cocca S, Complication, De Felice C, Deterioration, Diagnosis, drug fatality, Dysphagia, Feeding, feeding difficulties, Female, hand movement, Human, Human Tissue, Livi W, Major Clinical Study, Mezzedimi C, neuropsychiatry, Normal Human, Otorhinolaryngology, Prevention, progressive feeding deterioration, Psychosexual Development, Rett syndrome, Speech, tongue, Trajectory
Dysphagia in Friedreich Ataxia
Tags: 2017, adults, aspiration, characteristics, Corben L A, Delatycki M B, Dysphagia, feeding difficulties, Friedreich's ataxia, Gait disorders/ataxia, Gupta I, interrater reliability, Keage M J, Management, molecular-genetics, Otorhinolaryngology, pathogenesis, Pathology, penetration, penetration-aspiration scale, Quality Of Life, Speech, Swallowing, Trajectory, Trinucleotide repeat diseases, Videofluoroscopy, Vogel A P
The Incidence and Evolution of Parkinsonian Rigidity in Rett Syndrome: A Pilot Study
Tags: 2016, 5 hydroxyindoleacetic acid, Adolescent, Adult, Age, ankle, Article, Barrowman N, Canadian Journal of Neurological Sciences, Cerebrospinal Fluid, characteristics, Child, Cohort Analysis, Cross-sectional Study, Disease Severity, Dopamine, Dystonia, Female, genetic susceptibility, homovanillic acid, homovanillic acid/ec [Endogenous Compound], Human, Humphreys P, hva, Incidence, Major Clinical Study, mecp2, methyl CpG binding protein 2, methyl CpG binding protein 2/ec [Endogenous Compound], missense mutation, mobilization, muscle rigidity, muscle tone, musculoskeletal disease assessment, neck, parkinsonism, Pharmacokinetics, Pilot Study, Priority Journal, Prospective Study, Quantitative Study, Rett syndrome, Rett syndrome rigidity distribution score, rigidity, scoring system, Speech, tone and motor problems, Trajectory, walking difficulty
Neonatal palliative care: A single site clinical audit
Tags: 2019, Bereavement Support, Broadbent A, Cause Of Death, Child, Clinical Audit, conference abstract, Delaney A, Female, Gill K, gold, Herbert A, Hong T, Hospital Admission, Human, Journal of Paediatrics and Child Health, June 2019 List, Major Clinical Study, Male, Mickan S, Moloney S, Music Therapy, Newborn, Newborn Death, Noyes M, Nursing Staff, Palliative Therapy, Physiotherapy, Retrospective Study, Scuffham P, seashore, Social Work, Speech, Terminal Care, Weir K
End-of-Life Decisions 20 Years after EURONIC: Neonatologists' Self-Reported Practices, Attitudes, and Treatment Choices in Germany, Switzerland, and Austria
Tags: 2018, Adolescent, Adult, Advanced Cancer, anxiety, Bradford M, cancer pain, Cancer Patient, Child, conference abstract, Controlled Study, Disease Course, Female, Human, Journal of Clinical Oncology. Conference, Lau N, Major Clinical Study, Male, May 2019 List, Nausea, Palliative Therapy, Pediatric Quality of Life Inventory, Quality Of Life, Randomized Controlled Trial, Rosenberg AR, Scott S, Secondary Analysis, Speech, Steineck A, stress management, Yi-Frazier J P, Young Adult
A new kind of language barrier: Examining disparities in medical teams' referrals of palliative care patients to Pediatric psychology
Tags: 2018, Adult, biological product, Cancer Patient, Child, Child Psychology, Complication, conference abstract, Controlled Study, Death, December 2018 List, Education, Female, Human, Karfunkle B, Language, Male, Malignant Neoplasm, Medical Record Review, Palliative Therapy, Patient Referral, Pediatric Blood and Cancer, pediatric patient, Retrospective Study, Schneider N, Social Care, Speech, Steinberg D, United States
Speaking a different language: Communication patterns of palliative care and pediatric intensive care unit providers during family conferences
Tags: 2017, audio recording, Ciriello A G, conference abstract, Controlled Study, December 2018 List, genetic transcription, Health Care Personnel, hopelessness, Human, Human Experiment, Language, Medical Information, October TW, Palliative Therapy, Pediatric Critical Care Medicine, Pediatric Intensive Care Unit, Quality Of Life, Retrospective Study, Speech, Thematic Analysis, Uncertainty
Neurodegenerative conditions: Exploring the role of music to enhance speech and cognitive functioning in children with batten disease
Talking with terminally ill patients and their caregivers about death, dying, and bereavement: is it stressful? Is it helpful?
Tags: 2004, 80 And Over, Adolescent, Adult, Aged, Archives Of Internal Medicine, Attitude To Death, Backlog, Bereavement, Caregivers/psychology, Communication, Death, Death and Euthanasia, Emanuel EJ, Emanuel LL, Empirical Approach, Fairclough DL, Female, Humans, Interviews, Journal Article, Male, Middle Aged, Non-U.S. Gov't, Prospective Studies, Psychological/etiology/psychology, Research Support, Speech, Stress, Terminal Care, Terminally Ill/psychology, United States, Wolfe P
Progressive sensorineural hearing loss in children with mitochondrial encephalomyopathies
Tags: 2001, Acoustic Impedance Tests, Acoustic/ph [Physiology], Adolescent, Adult, Audiometry, Auditory, Backlog, Brain Stem/ph [Physiology], Child, Evoked Potentials, Female, Friedreich Ataxia/di [Diagnosis], Friedreich Ataxia/pp [Physiopathology], Hearing Loss, Humans, IM, Journal Article, Kearns-Sayer Syndrome/di [Diagnosis], Kearns-Sayer Syndrome/pp [Physiopathology], Laryngoscope, Longitudinal Studies, Male, MELAS Syndrome/di [Diagnosis], MELAS Syndrome/pp [Physiopathology], Mitochondrial Encephalomyopathies/di [Diagnosis], Mitochondrial Encephalomyopathies/pp [Physiopathology], Otoacoustic Emissions, Preschool, Pure-Tone, Reflex, Sensorineural/di [Diagnosis], Sensorineural/pp [Physiopathology], Speech, Spontaneous/ph [Physiology], Wilichowski E, Zwirner P
Families Are Not The Barrier: Evaluating Attitudes Toward Early Integration Of Palliative Care In Pediatric Hematopoietic Stem Cell Transplant
Tags: 2017, anxiety, Attention, Baker J, Child, Constipation, Diarrhea, Family, Female, Graft Recipient, Hematopoietic Stem Cell, Human, Levine D, Loss Of Appetite, Major Clinical Study, Male, Mandrell B, Nausea, October 2017 List, Pain, Palliative Therapy, Parental Attitude, Pediatric Blood and Cancer, Quality Of Life, School Child, Speech, Sykes A, Symptom