Browse Items (40 total)
- Tags: Interviews
Grief Journey: Perception and Response Based on Cultural Beliefs in Thai Women Experiencing Perinatal Death
Tags: 2022, Adolescence, Adult, anxiety, April List 2023, Bih-Ching S, Content Analysis, cultural competence, cultural sensitivity, Culture, Descriptive Research, Emotions, Evaluation, Fear, Female, field notes, Forgiveness, Grief, Health Knowledge, Health Personnel, Hope, Hospitals Community, Human, Interviews, Medical Records, Nedruetai P, Pacific Rim International Journal of Nursing Research, Perinatal Death, Psychosocial Factors, Puangpaka K, Purposive Sample, Qualitative Studies, Quality Of Health Care, Reflection, Self Concept, Self-Talk, Social Norms, Thailand, Women
Using mobile phones, WhatsApp and phone interviews to explore how children's hospice nurses manage long-term relationships with parents: a feasibility pilot
Maternal Grief: A Qualitative Investigation of Mothers' Responses to the Death of a Child From Cancer
Tags: 2020, 2022 Special Edition 1 - Parent Perspectives, Adaptation, Attitude To Death, Bailey S, Bereavement, Childhood Neoplasms – Mortality, Complicated Grief, Coping, Female, Gerrish NJ, Grief, Interviews, Mothers – Psychosocial Factors, Omega, Phenomenological Research, Psychological, Qualitative Studies, Self Concept, Social Environment
Maternal Grief: A Qualitative Investigation of Mothers' Responses to the Death of a Child From Cancer
Tags: 2020, Adaptation, Attitude To Death, Bailey S, Bereavement, Childhood Neoplasms – Mortality, Complicated Grief, Coping, Female, Gerrish N J, Grief, Human, Interviews, Mothers – Psychosocial Factors, Omega: Journal Of Death & Dying, Oncology 2020 List, Phenomenological Research, Psychological, Qualitative Studies, Self Concept, Social Environment
Nurses' Perceptions of the Palliative Care Needs of Neonates With Multiple Congenital Anomalies
Tags: 2020, Abnormalities, Age Factors, Şener Taplak A, Consent (Research), Content Analysis, Data Analysis Software, Descriptive Statistics, Educational Status, Feedback, Female, Gürol A, Health Services Needs and Demand – In Infancy and Childhood, Human, Infant, Intensive Care Units, Interviews, Journal of Hospice and Palliative Nursing, June 2020 List, Male, Multiple, Neonatal, Neonatal Intensive Care Nursing, Newborn, Nurse Attitudes – Evaluation, Palliative Care, Polat S, Quality Of Life, Questionnaires, Semi-Structured Interview, Thematic Analysis, Time Factors
Trauma to Transformation: the lived experience of bereaved parents of children with chronic life-threatening illnesses in Singapore
Tags: 2020, Asia, Attitude To Death, Bereavement – Singapore, BMC Palliative Care, Chinese, Chong P H, Choo P Y, Critical Illness – Singapore, Dutta O, Ethnic Groups, Ganapathy S, Grounded Theory, Ho A H Y, Human, India – Ethnology, Interviews, June 2020 List, Life Experiences – Evaluation – Singapore, Low X C, Ng C, Palliative Care – Singapore, Parent-Child Relations – Singapore, Parents – Psychosocial Factors – Singapore, Pediatric Care – Singapore, Posttraumatic Growth, Psychological – Prevention and Control – Singapore, Psychological Well-being, psychosocial, Qualitative Studies, Rituals and Ceremonies, Singapore, Single Parent – Psychosocial Factors, Spouses – Psychosocial Factors, Support, Tan-Ho G
African American and Latino bereaved parent health outcomes after receiving perinatal palliative care: A comparative mixed methods case study
Tags: 2019, Adult, Anticipatory Grieving, anxiety, Applied Nursing Research, Bereavement, Blacks -- Psychosocial Factors, Côté-Arsenault D, Comparative Studies, Denney-Koelsch E M, Depression, Descriptive Statistics, February 2020 List, Female, Fetal Abnormalities -- Diagnosis, Funding Source, Health Status, Hispanics -- Psychosocial Factors, Human, Interviews, Kavanaugh K, Male, McCoy T P, Multimethod Studies, Palliative Care, Parental Attitudes, Patient Satisfaction, Perinatal Care, Perinatal Death -- Psychosocial Factors, Psychological Well-being, Qualitative Studies, Quantitative Studies, Questionnaires, scales, Self Report, Summated Rating Scaling, surveys, Treatment Outcomes
The clinical practice guideline palliative care for children and other strategies to enhance shared decision-making in pediatric palliative care; pediatricians' critical reflections
The Long-Term Care Experiences and Care Needs of Parents Caring for Children With Adrenoleukodystrophy
Tags: 2019, Descriptive Research, Guilt, Helplessness Learned, Hospice Care, Human, Individualized Medicine, Interviews, Journal of Nursing, Jui-Chun F, Long Term Care, March 2019 List, Miao-Ju C, Needs Assessment, Parental Attitudes, Peroxisomal Disorders -- Psychosocial Factors, Psychosocial Aspects of Illness, Qualitative Studies, Shu-Yuan L, Su-Fen C, Wei-Wen W U
Care of the Bereaved Mother
Tags: 2018, Bereavement -- Evaluation, Care Of The Bereaved Mother, December 2018 List, Grief -- Evaluation, Human, Interviews, Mothers -- Psychosocial Factors, Neonatal Intensive Care Nursing -- Education, Nurse-patient Relations, nursing role, Parental Attitudes, Patient Centered Care, Perinatal Death -- Psychosocial Factors, Quality Of Health Care, Rocio GI, Support Psychosocial, Support Groups
Early integrated palliative approach for idiopathic pulmonary fibrosis: A narrative study of bereaved caregivers' experiences
Tags: 2018, Accountability, Adult Children, Advance Care Planning, anxiety, Attitude To Death, Bereavement, Canada, Caregiver Attitudes, Collaboration, Communication, Content Analysis, December 2018 List, Emotions, Health Facilities -- Canada, Home Health Care, Hospital Mortality, Human, Idiopathic Pulmonary Fibrosis -- Prognosis, Idiopathic Pulmonary Fibrosis -- Therapy -- Canada, Interpersonal Relations, Interviews, Kalluri M, Life Change Events, Life Experiences, Memory, Narratives, Palliative Care, Palliative Medicine, Patient Attitudes, Patient Care Plans, Pooler C, Pulmonologists, Purposive Sample, Quality Of Life, Richman-Eisenstat J, Spouses, Stress Psychological, Support Psychosocial, Thematic Analysis
Managing Ambiguity: Nurses Caring for the Mother of a Stillborn Baby
Comparison of mothers and grandmothers physical and mental health and functioning within 6 months after child NICU/PICU death
Tags: 2018, Attitude To Death, Bereavement, Blacks, Brooten D, Checklists, Chi Square Test, Cross Sectional Studies, Depression, Employment Status, Grandparents Psychosocial Factors, Grief, Health Status, Hispanics, Human, Intensive Care Units, Interviews, Italian Journal of Pediatrics, Mental Health, Mothers Psychosocial Factors, Neonatal, October 2018 List, Paired T-Tests, Pediatric, Physical Fitness, Post-traumatic, Psychological Tests, psychosocial, September 2018 List, Stress Disorders, Support, Youngblut JM
Grief and coping of parents whose child has a constant life-threatening disability, hypoplastic left heart syndrome with reference to the Dual-Process Model
Tags: 2018, Cantwell-Bartl A, Child, Coping, Death studies, Grief, Human, Hypoplastic Left Heart Syndrome -- Diagnosis, Hypoplastic Left Heart Syndrome -- Psychosocial Factors, Hypoplastic Left Heart Syndrome -- Therapy, Interviews, July 2018 List, Models, Parent-child Relations, Parental Attitudes, Psychological, Recovery, Secondary Analysis, Thematic Analysis
Final transitions: family caregiving at the end of life
Tags: 2005, 80 And Over, Aged, Backlog, Caregivers/psychology, Female, Finn W, Humans, Interviews, Journal Article, Journal of Palliative Medicine, Kramer BJ, Male, Middle Aged, Milch RA, Non-U.S. Gov't, Psychological/etiology, Research Support, Skretny JA, Stress, Terminal Care, United States, Waldrop DP
Parents' reactions to participating in interviews about end-of-life decision making
Tell me about it: drawing as a communication tool for children with cancer
Tags: (b) explore and compare the coping measures they use to manage these stressors, 2005, AdolescentArt Therapy Attitude to Health Child Child, and (c) examine the use of drawing to enhance communication. Participants included 22 children ages 7 to 18 years, Backlog, Communication, Comparative Study, Emotions, Female, Great Britain, Hospitalized/psychology, Humans, Interviews, Journal Article, Journal Of Pediatric Oncology Nursing, Male Neoplasms/nursing/psychology, Non-U.S. Gov't Stress, Nurse-patient Relations, Oncologic Nursing/methods, PedPal Lit, Psychological/nursing United States%X As health-related research on children shifts from seeking information about children to seeking information directly from them, Qualitative Research, regardless of their ethnicity and other cultural comp onents, Research Support, respond to the childhood cancer experience in a similar manner. The use of drawing enhanced communication through direct visual expression and/or through verbal expression via the "campfire effect.", Rollins JA
Building a new world: habits and practices of healing following the death of a child
Tags: 2006, Adaptation, Adult, Attitude To Death, Backlog, Bereavement, Burial, Ceremonial Behavior, Chesla CA, Child, Family Relations, Female, Gudmundsdottir M, Habits, Humans, Infant, Interviews, Journal Article, Journal Of Family Nursing, Male, Parent-child Relations, Preschool, Psychological, Qualitative Research, Spirituality, SSHRC CURA
Consultation with children in hospital: children, parents' and nurses' perspectives
Tags: 2006, Attitude Of Health Personnel, Backlog, Child, Communication, Comprehension, Coyne I, Decision Making, England, Hospital/psychology, Hospitalized/psychology, Hospitals, Humans, Interviews, Journal Article, Journal of Clinical Nursing, Nurse-patient Relations, Nurse's Role, Nursing Staff, Parent-child Relations, Parents/psychology, Patient Participation, Pediatric, PedPal Lit, Questionnaires
Talking with terminally ill patients and their caregivers about death, dying, and bereavement: is it stressful? Is it helpful?
Tags: 2004, 80 And Over, Adolescent, Adult, Aged, Archives Of Internal Medicine, Attitude To Death, Backlog, Bereavement, Caregivers/psychology, Communication, Death, Death and Euthanasia, Emanuel EJ, Emanuel LL, Empirical Approach, Fairclough DL, Female, Humans, Interviews, Journal Article, Male, Middle Aged, Non-U.S. Gov't, Prospective Studies, Psychological/etiology/psychology, Research Support, Speech, Stress, Terminal Care, Terminally Ill/psychology, United States, Wolfe P
A population-based nationwide study of parents' perceptions of a questionnaire on their child's death due to cancer.
Tags: 2004, Attitude, Attitude To Death, Backlog, Bereavement, Biomedical and Behavioral Research, Child, Data Collection, Death and Euthanasia, Empirical Approach, Ethics, Female, Henter JI, Humans, Interviews, Journal Article, Kreicbergs U, Lancet, Longitudinal Studies, Male, Parents/psychology, Pilot Projects, Questionnaires, Research, Steineck G, Sweden, Valdimarsdottir U
A typology of fatigue in children with cancer
Tags: 2002, Adaptation, Adolescent, Adult, Alberta, Backlog, British Columbia, Bruce A, Child, Davies B, Fatigue/classification/complications/nursing/psychology, Female, Hospitals, Humans, Interviews, Journal Article, Journal Of Pediatric Oncology Nursing, Male, McCarthy P, Neoplasms/complications/nursing, Non-U.S. Gov't, Pediatric, Preschool, Psychological, Research Support, Whitsett SF
Taking a narrative approach to grief research: Finding meaning in stories
Tags: 2002, Backlog, Child, Death, Death studies, Emotion, Gilbert KR, Grief, Interviews, Journal Article, Meaning, Narrative, Qualitative Research, Research, Role, Time
Predictors of psychosocial distress after suicide, SIDS and accidents
Family beliefs regarding the nutritional care of a terminally ill relative: a qualitative study
Tags: 18th Century, 2003, Adolescent, Adult, Attitudes, Backlog, Canada, Degner LF, Family/psychology, Female, Harlos MS, Health Knowledge, History, Humans, Interviews, Journal Article, Journal of Palliative Medicine, Male, McClement SE, Middle Aged, Neoplasms/psychology/therapy, Non-U.S. Gov't, Nutritional Support, Palliative Care, Practice, Research Support, Terminally Ill/psychology
Issues in end-of-life care: patient, caregiver, and clinician perceptions
Tags: 2003, 80 And Over, Adult, Aged, Attitude Of Health Personnel, Attitude To Death, Backlog, Caregivers/psychology, Cohort Studies, Cost Of Illness, Egnew TR, Family/psychology, Farber SJ, Female, Guldin GE, Herman-Bertsch JL, Humans, Interpersonal Relations, Interviews, Journal Article, Journal of Palliative Medicine, Male, Middle Aged, Non-U.S. Gov't, Palliative Care/psychology, Patients/psychology, Physicians, Qualitative Research, Quality Of Health Care, Research Support, Taylor TR, Terminal Care/psychology, Washington
A grief ignored: Narratives of pregnancy loss from a male perspective
Self-reconstruction and biographical revisioning: survival following cancer in childhood or adolescence.
Tags: 2003, Adolescence, Adolescent Transitions, Adult, Australia, Backlog, Cancer Patients -- Psychosocial Factors, Cancer Survivors -- Psychosocial Factors, Child, Childhood Neoplasms -- Psychosocial Factors, Drew S, Health: An Interdisciplinary Journal For The Social Study Of Health, Illness & Medicine, Human, Interviews, Journal Article, Narratives, Phenomenological Research, Psychological Theory, Psychosocial Aspects of Illness, Qualitative Studies, Questionnaires
A measure of the quality of dying and death. Initial validation using after-death interviews with family members
Tags: 2002, Aged, Asp C, Attitude To Death, Backlog, Byock I, Cohort Studies, Curtis JR, Death, Engelberg RA, Family, Female, Human, Interviews, Journal Article, Journal of Pain and Symptom Management, Male, Middle Age, Non-U.S. Gov't, Norris K, Patrick DL, Personal Satisfaction, Quality Of Life, Questionnaires/standards, Retrospective Studies, Support, Terminal Care
Research & commentary: parents' experience of inflammatory bowel disease
Husbands and wives as caregivers: antecedents of depression and burden
Parent and health care provider communication and decision making in the intensive care nursery
Tags: 1989, Abel-Boone H, Attitude To Health, Backlog, Best Practices (Davies), Children's Health Care, Communication, Decision Making, Dokecki PR, Humans, ICU Decision Making, Infant, Intensive Care Units, Interviews, Journal Article, Life Support Care/psychology, Neonatal, Newborn, Parents, Professional-family Relations, Smith MS, Social Support, United States
Decisions about life-sustaining treatment. Impact of physicians' behaviors on the family
Tags: 1995, Archives Of Internal Medicine, Backlog, Communication, Consensus, Death and Euthanasia, Decision Making, Disclosure, Empirical Approach, Family/psychology, Garland MJ, Humans, Interviews, Journal Article, Life Support Care, Nelson CA, Nurse's Role, P.H.S., Physician's Role, Practice Guidelines, Professional Patient Relationship, Professional-patient Relations, Research Support, Tilden VP, Tolle SW, U.S. Gov't, Withholding Treatment
Qualitative analysis: What it is and how to begin
The multiple meanings of long-term gastrostomy in children with severe disability
Tags: 1997, Attitude Of Health Personnel, Attitude To Health, Backlog, Canada, Caregivers/psychology, Child, Gastrostomy/nursing/psychology, Humans, Interviews, Journal Article, Journal of Pediatric Nursing, McCormick J, Mothers/psychology, Nurses/psychology, Nutritional Failure, Radford MJ, Thorne SE, Time Factors, United States
Judging the effectiveness of analgesia for children and adolescents during vaso-occlusive events of sickle cell disease
Tags: 2000, Adolescent, Analgesia/standards, Analgesics, Anemia, Backlog, Beyer JE, Child, Female, Humans, Interviews, Journal Article, Journal of Pain and Symptom Management, Male, Nalbuphine/therapeutic use, Opioid/therapeutic use, P.H.S., Pain/physiopathology, Research Support, Sickle Cell/complications, U.S. Gov't, Vascular Diseases/etiology/physiopathology/therapy
Pain variations during cancer treatment in children: a descriptive survey
Tags: 2000, Adolescent, Backlog, Child, Family, Female, Gordh T, Humans, Infant, Interviews, Journal Article, Kreuger A, Ljungman G, Male, Neoplasms/physiopathology/psychology/therapy, Non-U.S. Gov't, Pain Measurement, Pain/epidemiology/physiopathology/therapy, Pediatric Hematology And Oncology, Preschool, Prevalence, Research Support, Sorensen S
Meaning in caregiving and its contribution to caregiver well-being.
Tags: 1997, 80 And Over, Adult, Aged, Backlog, Caregivers/psychology, Child, Comparative Study, Disabled Persons, Education, Emotions, Female, Frail Elderly, Gerontologist, Home Nursing, Humans, Income, Interviews, Journal Article, Longitudinal Studies, Male, Middle Aged, Noonan AE, P.H.S., Regression Analysis, Research, Research Support, Spouses, Tennstedt SL, Time Factors, U.S. Gov't
Focus group interview with parents of children with medically complex needs: an intimate look at their perceptions and feelings.
Tags: 1991, Backlog, Children's Health Care, Counseling, Diehl SF, Family Health, Female, Florida, Health Services Needs And Demand, Home Nursing/psychology, Humans, Interviews, Journal Article, Longitudinal Studies, Male, Moffitt KA, Parents/psychology, Patient Care Planning/standards, Respite Care, Self-Help Groups, Wade SM
Keeping All Options Open: Parents' Approaches To Advance Care Planning
Early engagement in advance care planning (ACP) is seen as fundamental for ensuring the highest standard of care for children and young people with a life-limiting condition (LLC). However, most families have little knowledge or…