Browse Items · Pediatric Palliative Care Library

Home care needs of paediatric palliative patients perceived by professionals: A grounded theory

Tags: 2023, Atenci—n Domiciliaria de Salud, Chronic Disease, Continuidad de la Atenci—n al Paciente, Continuity Of Patient Care, Cuidados paliativos, Enfermedad Cr—nica, Enfermeria Clinica, home care services, Home Nursing, Investigaci—n cualitativa, June 2022 List, Paediatrics, Palliative Care, Pediatr’a, Qualitative Research, Rodr’guez-Su‡rez CA, Santana-Medina J

What are virtual wards and how do they work?: primary care nursing roles are being reinvented as virtual ward and hospital at home services evolve

Virtual wards are expanding in many parts of the UK, with the aim of allowing patients to get the care they need at home, rather than in hospital.

State Variation in Posthospital Home Nursing for Commercially Insured Medically Complex Children

BACKGROUND AND OBJECTIVES: Home nursing is essential for children with medical complexity (CMC), but provision varies substantially across states. Our objectives were to quantify state-to-state variability in distribution of posthospitalization home…

What we know (and do not know) about raising children with complex continuing care needs

Canadian Directory of Hospice Palliative Care Services

Welcome to the Canadian Directory of Hospice Palliative Care Services. This on-line directory has been designed to provide you with information on the availability of hospice palliative care services across Canada. Here you will find a listing of…

Tags: 2010, Acute care Hospital, Backlog, Bussiness Directory, Canadian Hospice Palliative Care Association, CHPCA, Chronic / Long Term Care Facility, Dedicated Hospice Palliative Care Unit, Health Charity, Home Nursing, Hospice Society, Journal Article, Non-profit Organization, Out-Patient Clinic, PPC Book Chapter 2011 (Kim Widger), Private Clinic, Residential Hospice, skilled Nursing Facility

Factors associated with location of death of children with cancer in palliative care

OBJECTIVE: The aim of this study was to identify factors associated with location of death of patients receiving palliative care in a pediatric oncology unit. METHODS: A palliative care program was developed in the pediatric department in order to…

Medical adherence and childhood chronic illness: family daily management skills and emotional climate as emerging contributors

PURPOSE OF REVIEW: To describe recent research that examines family factors that promote or derail adherence to medical regimens for children with chronic health conditions, primarily asthma, diabetes, and cystic fibrosis. From the past 2 years,…

Tags: 2006, Adolescent Transitions, Asthma/therapy, Backlog, Child, Chronic Disease, Current Opinion In Pediatrics, Cystic Fibrosis/therapy, Diabetes Mellitus/therapy, Emotions, Everhart RS, Family/psychology, Fiese BH, Home Nursing, Humans, Journal Article, Patient Compliance

Helping families raise children with special health care needs at home

One goal of Healthy People 2010 is to reduce the number of people with disabilities in congregate care facilities, consistent with permanency-planning principles, to 0 by 2010 for persons aged 21 years and under (objective 6-7). Congregate care, in…

Tags: 2005, Adolescent, American Academy of Pediatrics Committee/Section on Children With Disabilities, Backlog, Child, Community Health Services, Disabled Children/legislation & jurisprudence/rehabilitation, Family, Health Services Needs And Demand, Healthy People Programs, Home Nursing, Humans, Infant, Johnson CP, Journal Article, Kastner TA, Pediatrics, Respite Care

Home management of the dying NICU patient

Intensive aggressive medical therapy does not always result in cure. For some neonates it is a futile exercise that may prolong a short life of suffering. In this article, we will discuss the babies for whom aggressive therapy may not be appropriate,…

Sublingual lorazepam at home for acute treatment of seizures

eizures are often initially treated at home. The standard treatment is rectal diazepam. Sublingual (SL) lorazepam is easy to administer but has not been well evaluated for efficacy in epilepsy. It has been reported to be effective for serial seizures…

Tags: 2003, Administration, Allen A, Archives of Disease in Childhood, Backlog, Benzodiazepinones, Bjelajac A, Chlorobenzenes, Convulsions, Epilepsy, home care services, Home Nursing, Journal Article, Lorazepam, Oral, Seizures, Sublingual, Wassmer E, Weiss S

Palliative care for children with cancer--home, hospital, or hospice?

1990

Tags: 1990, Archives of Disease in Childhood, Backlog, Beardsmore S, Child, Goldman A, Home Nursing, Humans, Hunt J, Journal Article, Location Of Death, Neoplasms/therapy, Non-U.S. Gov't, Palliative Care, Patient Care Team, Research Support, Terminal Care

An overview of National Hospice Study findings

Training health professionals in caring for dying children and grieving families

In most industrialized countries today, the death of a child is a rare phenomenon. When it occurs, however, it is usually within a hospital setting, after the child has received complex and often long-term medical care aimed at curing or controlling…

Tags: 1997, Attitude Of Health Personnel, Backlog, Caregivers/psychology, Child, Child Health Services, Continuing/methods, Death, Death studies, Education, Family, Home Nursing, Humans, Journal Article, Medical, Palliative Care, Papadatou D, Parent caregivers, Questionnaires

Meaning in caregiving and its contribution to caregiver well-being.

This multivariate study examined the relationship between meaning in caregiving--positive beliefs about the caregiving situation and the self as caregiver--and the psychological well-being of 131 informal caregivers to community-residing frail…

What is wrong with end-of-life care? Opinions of bereaved family members

OBJECTIVE: To describe family perceptions of care at the end of life. METHODS: In a representative sample of older people who died from chronic diseases, family members were interviewed about satisfaction with treatment intensity, decision-making,…

A comparative longitudinal study of gastrostomy devices in children

Long-term gastrostomy is a predictable intervention to ameliorate the effects of feeding and swallowing difficulties among children with severe spastic cerebral palsy. The evidence evaluating the efficacy and implications of the available gastrostomy…

Browse Items (16 total)