Browse Items · Pediatric Palliative Care Library

Exploring Bereavement in Pediatric Nursing: A Systematic Review

Introduction: The management of parent’s and family’s bereavement, before, during and after the death of a child is a great challenge for health care professionals (HCPs). Aim: The purpose of this study was to investigate bereavement in pediatric…

Vulnerability and Agency across Treatment-Seeking Journeys for Acutely Ill Children: How Family Members Navigate Complex Healthcare Before, During and After Hospitalisation in A Rural Kenyan Setting

BACKGROUND: Child mortality rates during hospitalisation for acute illness and after discharge are unacceptably high in many under-resourced settings. Childhood vulnerability to recurrent illness, and death, is linked to their families' situations…

The Marital Implications of Bereavement: Child Death and Intimate Partner Violence in West and Central Africa

In high-mortality contexts, research examining the effects of child mortality has focused almost exclusively on couples' fertility responses while overlooking other potential family consequences. Using nationally representative survey data from 13…

An evaluation of By My Side: Peer support in written form is acceptable and useful for parents bereaved by childhood cancer

CONTEXT: Cancer is the leading cause of non-accidental death in childhood, with the death of a child representing a devastating loss for families. Peer support offers a valuable way to support parents' adjustment in bereavement. The By My Side book…

Tags: 2020, Bereavement, Child Mortality, Cohn R J, Donovan L, Fardell J E, Hetherington K, Journal of Pain and Symptom Management, Morgan N, neoplasm/mortality*, Oncology 2020 List, Parents, Peer Group, Psychosocial Support Systems, Raharjo C, Russell V, Siddiqui J, Wakefield C E

Mortality in parents after the death of a child

The death of a child is a traumatic stressor that takes a toll on the health of parents. This study examined long-term impacts of the death of a child on the risk of early mortality in bereaved parents. In a follow-up analysis, a twin subsample was…

Child death in high-income countries

Reductions in child mortality in high-income settings have been substantial over recent decades, although variations remain between and within countries. A three-part Series outlines the epidemiology of child mortality and a standardised approach to…

Tags: 2014, Backlog, Cause Of Death, Child, Child Mortality, Developed Countries, Early Diagnosis, Fraser J, Humans, Journal Article, Lancet, Perinatal Care, Petrou S, Primary Prevention, Sidebotham P

Epidemiology of Death in the PICU at Five U.S. Teaching Hospitals*

OBJECTIVE: To determine the epidemiology of death in PICUs at 5 geographically diverse teaching hospitals across the United States. DESIGN: Prospective case series. SETTING: Five U.S. teaching hospitals. SUBJECTS: We concurrently identified 192…

Tags: 2014, Backlog, Burns JP, Cause Of Death, Child Mortality, Critical Care Medicine, Journal Article, Lewis-Newby M, Meyer EC, Picu, Retrospective Studies, Sellers DE, Truog RD

Palliative Care Is Critical to the Changing Face of Child Mortality and Morbidity in the United States

NO ABSTRACT PARAGRAPH 1: In hospitals around the nation, children with medical complexity (CMC) receive life-prolonging interventions for debilitating diseases. These children are alive because of disease-focused interventions including multiple…

Tags: 2014, Backlog, Bergman DA, Bogetz JF, Child Mortality, Clinical Pediatrics, Cohen HJ, Journal Article, Schroeder AR, Sourkes B

Pediatric out-of-hospital deaths following hospital discharge: a mixed-methods study

BACKGROUND: Out-of-hospital death among children living in resource poor settings occurs frequently. Little is known about the location and circumstances of child death following a hospital discharge. OBJECTIVES: This study aimed to understand the…

Neonatal mortality and associated factors in newborn infants admitted to a Neonatal Care Unit

INTRODUCTION: The increasing survival rate of preterm infants has altered the epidemiology of neonatal diseases; however, neonatal mortality is still the main component of child mortality. The objective of this study was to evaluate neonatal…

Tags: 2018, Archivos Argentinos De Pediatria, Benitez Vazquez EA, Child Mortality, Gomez Ruiz LM, Llamas Ramos L, Lona Reyes JC, March 2018 List, Neonatal mortality, Neonatal respiratory distress syndrome, Perez Ramirez RO, Perinatal Mortality, preterm birth, Rodriguez Patino V

Parents' reactions to participating in interviews about end-of-life decision making

BACKGROUND: Although in-depth interviewing is well suited to studying the sensitive topic of end-of-life decision making, no reports have been published assessing the effects on parents of participating in interviews regarding end-of-life decision…

Place of death and palliative care following discharge from paediatric intensive care units

OBJECTIVE: To determine where children die following discharge from paediatric intensive care units (PICUs) in Great Britain and to investigate if this varies by discharge to palliative care. DESIGN: National cohort of PICU admissions linked to…

Parents' Perception of Their Relationship Following the Loss of a Child.

It is known that if one partner wants to talk after the loss of a child, while the other does not, the less satisfied they are with the relationship. The aim of this study was to increase our understanding of parental relationships following the loss…

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