A population-based nationwide study of parents' perceptions of a questionnaire on their child's death due to cancer.

Title

A population-based nationwide study of parents' perceptions of a questionnaire on their child's death due to cancer.

Creator

Kreicbergs U; Valdimarsdottir U; Steineck G; Henter JI

Publisher

Lancet

Date

2004

Subject

Child; Female; Humans; Male; Data Collection; Questionnaires; Attitude to Death; Pilot Projects; Attitude; Longitudinal Studies; Sweden; Research; Ethics; Empirical Approach; bereavement; Death and Euthanasia; Interviews; Parents/psychology; Biomedical and Behavioral Research

Description

A proposed nationwide postal questionnaire to Swedish parents who had lost a child due to cancer between 1992 and 1997 was denied approval by the local ethics committee. However, a pilot study to assess the harm and benefit of the questionnaire was approved. 95% of parents found the pilot study valuable; thus, we were allowed to proceed with the main study, which consisted of 129 questions about the child's care and death and five about the parents' perceptions of the study. 423 (99%) parents found the investigation valuable, 285 (68%) were positively affected, and 123 (28%) were negatively affected (10 [2%] of whom, very much). Although the numerical data cannot be directly translated to ethical conclusions, they can provide guidance for future ethical decisions.
2004

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Type

Journal Article

Citation List Month

Backlog

Pages

787-789

Issue

9436

Volume

364

Citation

Kreicbergs U; Valdimarsdottir U; Steineck G; Henter JI, “A population-based nationwide study of parents' perceptions of a questionnaire on their child's death due to cancer.,” Pediatric Palliative Care Library, accessed November 30, 2021, https://pedpalascnetlibrary.omeka.net/items/show/13028.

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