Browse Items · Pediatric Palliative Care Library

Exploring Bereavement in Pediatric Nursing: A Systematic Review

Introduction: The management of parent’s and family’s bereavement, before, during and after the death of a child is a great challenge for health care professionals (HCPs). Aim: The purpose of this study was to investigate bereavement in pediatric…

Long-term nurse-parent relationships in paediatric palliative care: a narrative literature review

BACKGROUND: Paediatric palliative care (PPC) is an active, total approach to the holistic care of the child and family. Close, long-lasting relationships between healthcare professionals and parents in paediatric palliative care enhance quality,…

Tags: 2019, Anstey S, August 2020 List, Brimble M J, Davies J, Hospice And Palliative Care Nursing, Humans, International Journal of Palliative Nursing, Nurse-patient Relations, Nurses, Object Attachment, Parents, Professional-family Relations, professionalism, Trust

Who are the children using hospice care?

PURPOSE: The purpose was to examine the characteristics of children who use hospice care. DESIGN AND METHODS: Using the Andersen Model of Health Services Use, California Medicaid administrative databases were analyzed to describe the characteristics…

Care of the Bereaved Mother

Purpose: Caring for the bereaved mother can be a challenging undertaking for healthcare professionals who unless have suffered a similar loss, can find it difficult to relate with bereaved parents. The purpose of this DNP project is to research grief…

Tags: 2018, Bereavement -- Evaluation, Care Of The Bereaved Mother, December 2018 List, Grief -- Evaluation, Human, Interviews, Mothers -- Psychosocial Factors, Neonatal Intensive Care Nursing -- Education, Nurse-patient Relations, nursing role, Parental Attitudes, Patient Centered Care, Perinatal Death -- Psychosocial Factors, Quality Of Health Care, Rocio GI, Support Psychosocial, Support Groups

Maintaining Integrity: How Nurses Navigate Boundaries in Pediatric Palliative Care

PURPOSE: To explore how nurses manage personal and professional boundaries in caring for seriously ill children and their families., DESIGN AND METHODS: Using a constructivist grounded theory approach, a convenience sample of 18 registered nurses…

Exploring communication difficulties in pediatric hematology: oncology nurses

BACKGROUND: Communication plays an important role for the well being of patients, families and also health care professionals in cancer care. Conversely, ineffective communication may cause depression, increased anxiety, hopelessness and decreased of…

Hospice Use for Infants With Life-Threatening Health Conditions, 2007 to 2010

BACKGROUND: Infant deaths account for a majority of all pediatric deaths. However, little is known about the factors that influence parents to use hospice care for their infant with a life-threatening health condition. METHODS: Data were used from…

Predictors of good adherence of adolescents with diabetes (insulin-dependent diabetes mellitus)

OBJECTIVES: The purpose of this study was to identify the factors that predict good adherence to health regimens by adolescents with diabetes (insulin-dependent diabetes mellitus). METHODS: Altogether, 300 individuals aged 13-17 years were randomly…

Tell me about it: drawing as a communication tool for children with cancer

2005

Tags: (b) explore and compare the coping measures they use to manage these stressors, 2005, AdolescentArt Therapy Attitude to Health Child Child, and (c) examine the use of drawing to enhance communication. Participants included 22 children ages 7 to 18 years, Backlog, Communication, Comparative Study, Emotions, Female, Great Britain, Hospitalized/psychology, Humans, Interviews, Journal Article, Journal Of Pediatric Oncology Nursing, Male Neoplasms/nursing/psychology, Non-U.S. Gov't Stress, Nurse-patient Relations, Oncologic Nursing/methods, PedPal Lit, Psychological/nursing United States%X As health-related research on children shifts from seeking information about children to seeking information directly from them, Qualitative Research, regardless of their ethnicity and other cultural comp onents, Research Support, respond to the childhood cancer experience in a similar manner. The use of drawing enhanced communication through direct visual expression and/or through verbal expression via the "campfire effect.", Rollins JA

Consultation with children in hospital: children, parents' and nurses' perspectives

AIMS AND OBJECTIVES: To explore children's, parents' and nurses' views on participation in care in the healthcare setting. BACKGROUND: Children have a right to be consulted and involved in their care. DESIGN: The grounded theory method was used and…

The art of healing and knowing in cancer and palliative care

This article examines the role of artwork in cancer and palliative care. The literature review focuses on both children and adults. One case scenario focuses on a child's reaction to his mother's illness showing his distress through painting. Artwork…

Emotion work in the palliative nursing care of children and young people

The nurse's role in supporting and caring for children and young people with life-limiting illness/conditions and their families requires specialist expertise. This domain can be one of the most emotionally challenging areas of practice. The concept…

Hildegard Peplau meets family systems nursing: Innovation in theory-based practice.

Nursing theories which have evolved from mental health--psychiatric nursing have focused on the individual nurse-client relationship. Other nursing theories generally focus on the individual as client. Therefore, nurses working with families may have…

Tags: 1995, Adolescent, Aged, Backlog, Dorsay JP, Family Health, Female, Forchuk C, Humans, Journal Article, Journal Of Advanced Nursing, Longitudinal Studies, Male, Middle Aged, Nurse-patient Relations, Nursing Care, nursing theory

The importance of 'knowing the patient': community nurses' constructions of quality in providing palliative care

This paper reports findings from a study conducted in one community health care trust where 62 members of the district nursing team (grades B-H) were interviewed. An adaptation of the critical incident technique was used to determine factors which…

Tags: 2000, Austin L, Backlog, Caress A, Community Health Nursing, Death and Euthanasia, Empirical Approach, England, Hallett CE, Health Care Reform, Humans, Journal Article, Journal Of Advanced Nursing, Luker KA, Nurse-patient Relations, Palliative Care/standards, Quality Of Health Care, Questionnaires

Facilitating day-to-day decision making in palliative care

As part of a larger grounded theory study investigating the process by which palliative care patients make everyday choices, a secondary analysis of data was conducted to investigate the ways nurses support or restrict patients' participation in…

Support as a crucial predictor of good compliance of adolescents with a chronic disease

The purpose of this study was to describe the factors that predict compliance among adolescents with a chronic illness. The data were collected by questionnaires from adolescents with asthma, epilepsy, juvenile rheumatoid arthritis (JRA) and…

Consistency in end of life care

Draft guidelines address regional variations, but there are worries over terminology, the needs of family members and implementation. The death of a child is a comparatively rare event in the UK. Even so, more than 3,000 infant and 2,000 children and…

Tags: 2016, Adolescent, Allen D, August 2017 List, Child, Child Preschool, Communication, Decision Making, Hospice And Palliative Care Nursing/ Standards, Humans, Infant, Nurse-patient Relations, Nursing Children and Young People, Patient Participation, Pediatric Nursing/ Standards, Practice Guidelines As Topic

Improvements In Communication And Relationship Building Are Essential

Understanding research priorities in children's palliative care is important for nurses, following the phasing out of the Liverpool Care Pathway, which has led to a change in palliative and end of life care ( Department of Health (DH) 2014 ).…

Tags: 2016, Anonymous, Communication, Humans, Nurse-patient Relations, Nursing Children and Young People, Palliative Care/st [standards], Pediatric Nursing/mt [methods], Pediatric Nursing/st [standards], September 2017 List

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