Establishing a multistakeholder research agenda: lessons learned from a James Lind Alliance Partnership

Title

Establishing a multistakeholder research agenda: lessons learned from a James Lind Alliance Partnership

Creator

Jongsma KR; Milota MM

Publisher

BMJ Open

Date

2022

Description

OBJECTIVE: The James Lind Alliance (JLA) offers a method for better aligning health and care agenda's with the needs of patients, carers and clinicians by bringing them together in a Priority Setting Partnership (PSP). In this paper, we draw attention to crucial lessons learnt when establishing such a shared research agenda. KEY ARGUMENTS: Having specific strategies and plans in place for maximising dialogic processes in a PSP can help facilitate and maintain trust, innovation and equal inclusion. CONCLUSION: Eight lessons learnt have been formulated, based on our observations and reflections on the JLA PSP and our expertise on patient participation and participatory research.

Rights

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Citation List Month

2023 SE1 - Parent Perspectives

Citation

Jongsma KR; Milota MM, “Establishing a multistakeholder research agenda: lessons learned from a James Lind Alliance Partnership,” Pediatric Palliative Care Library, accessed March 28, 2024, https://pedpalascnetlibrary.omeka.net/items/show/18597.