This article investigates the relationships of child- and family-related variables with family function in families with children who have Duchenne muscular dystrophy. Child-related variables included level of disability (indicator: Barthel Index)…
A community-based sample of 261 parents (aged 32-61 yrs) bereaved by the violent deaths (i.e., accident, suicide, or homicide) of their 12- to 28-yr-old children was recruited to explore the use of individual, family, and community resources during…
Families who care for children with tuberous sclerosis complex (TSC) tend to experience severe psychological stress. Families react to TSC with guilt, chronic grief, and a gradual loss of spontaneity. Since TSC is a relatively rare pediatric…
