Family function in families of children with Duchenne muscular dystrophy

Family function in families of children with Duchenne muscular dystrophy

Chen JY; Clark MJ

Family & Community Health

2007

Child; Cross-Sectional Studies; Female; Humans; Male; Adult; Questionnaires; Middle Aged; Family Relations; Age Factors; Socioeconomic Factors; Cost of Illness; Family Health; Sickness Impact Profile; Preschool; Adaptation; Psychological; Caregivers/psychology; Parents/psychology; Psychological; Stress; social support; Taiwan; disabled children; Muscular Dystrophy; Duchenne/economics/physiopathology

This article investigates the relationships of child- and family-related variables with family function in families with children who have Duchenne muscular dystrophy. Child-related variables included level of disability (indicator: Barthel Index) and age at diagnosis. Family-related variables included caregiver health status (indicator: Duke Health Profile), family income and employment, family support (indicator: Family APGAR), family hardiness (indicator: Family Hardiness Index), and family functioning (indicator: Family Assessment Device). Family function displayed a significant correlation with age at diagnosis, but not with disability level. It was also significantly correlated with family hardiness, caregiver health status, and levels of family support, but not with income or employment variables. These findings highlight the need to assist families to cope with the presence of serious illness in their children.

2007

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