events: a perinatal loss. Although grief processes have some common aspects, grief over a child can be especially intense, and those grieving such a loss have unique needs. One of the things that nurses can do to assist families in these situations…
Open and honest communication has been identified as an important factor in providing good palliative care. However, there is no easy solution to if, when, and how parents and a dying child should communicate about death. This article reports how…
We hypothesized that the implementation of a neonatal palliative care initiative will result in improved markers of end-of-life care.
A retrospective and prospective chart review of neonatal intensive care unit deaths was…
Distinguish between the ‘‘best interest standard’’
and ‘‘the harm principle’’ in the evaluation of familial
medical decision making in pediatrics and
analyze the strengths and weaknesses of each.
Identify key legal cases in pediatrics…
Describe the history, epidemiology, and role of
perinatal palliative care.
Examine the impact of perinatal palliative care on
neonatal outcomes at the University of
Explore the potential benefits of perinatal palliative
Describe patterns of medical care provided to patients
with cystic fibrosis (CF) around the end of
Explore the roles a pediatric palliative care
consultation service serves for patients with CF
who ultimately die from their…
Determine feasibility of a communication skills
training (CST) to prepare pediatric intensivists
for communicating bad news and assessing goals
of care in the pediatric intensive care unit
Describe the impact of CST on…
Explain the rationale for a full-time physician as a
member of a home hospice team.
Describe the outcomes of an effort to put physicians
on home hospice teams.
Describe barriers to implementation.
Vol. 51 No. 2 February 2016 Schedule…
Congenital anomalies account for 20% of neonatal and infant deaths in the United States. Perinatal palliative care is a recent addition to palliative care and is meant to meet the needs of families who choose to continue a pregnancy…
Reflect on current neonatal intensive care practice
for the seriously ill and or dying neonate.
Explore the role of the primary palliative care
Discuss palliative educational goals for intensive
Outline the current state of education and clinical
training of adult hospice and palliative medicine
(HPM) fellows in pediatric palliative care
Compare responses between adult HPM fellowship
and pediatric rotation directors…
Propose pediatric program design or expansion
based on newly acquired skills of defining a
desirable and functional scope that aligns with
health system’s missions and values and identifies
areas of potential growth and…
In 2007, a literature review was undertaken of palliative care research from Sweden during the 1970s-2006, paving the way for a follow-up study to explore the recent developments. The aim was to systematically examine palliative care…
Identify 3 core aspects of development unique to
patients with autism spectrum disorders (ASD).
Describe how developmental differences impact
symptom assessment and pain behaviors in children
with ASD who also have a serious illness.
Emergency medicine (EM) residents perceive palliative care (PC) skills as important and want training, yet there is a general lack of formal PC training in EM residency programs. A clearer definition of the PC educational needs of EM…
Identify the diagnoses and death rate found in an
outpatient pediatric palliative care clinic.
Describe the technology and community supports
used by children with medical complexity and
Original Research Background.…
To determine the causes and process of death in neonates in Canada.
Prospective observational study.
Nineteen tertiary level neonatal units in Canada.
942 neonatal deaths (215 full-term and 727…
Experiential studies in paediatric palliative care are needed to enable an ongoing international agenda which supports the development of responsive family supports.
To provide an in-depth exploration of the prevalent lived…
Describe different methods of palliative care education,
including simulation-based education and
Delineate differences between pediatric fellow
self-assessment data and external reviewer data
Understand the role of pediatric palliative care in
Identify further opportunities for do-not-resuscitate
(DNR) research and analysis of advanced
care planning in pediatrics.
Original Research Background.…
Evaluate changes in end-of-life care following initiation of a palliative care program in a neonatal intensive care unit.
Retrospective study comparing infant deaths before and after implementation of a Palliative Care…
•Explore their own personal struggles and be able to list five barriers frequently cited when considering advance care planning (ACP) for children with complex chronic conditions who cannot communicate their wishes.
•Apply newly acquired…
Review all live births 22 0/7 through 26 6/7 weeks gestation born 1996 through 2013 at our institution to describe the decision process and immediate outcomes of palliative comfort care (PCC) versus neonatal intensive care (NICU) and…
Summarize the current state of our understanding
of spiritual needs of children facing lifethreatening
Learn basic skills for being a spiritual generalist
and how to begin exploring spiritual needs of
Describe categories of need faced by parents and
patients in pediatric palliative care.
Describe unmet needs faced by parents and patients
in pediatric palliative care.
322 Schedule with Abstracts Vol. 51 No. 2 February 2016
Parents who experience the loss of a child have unique and valuable insights into the grief journey and can help health care providers identify key components intrinsic to the development, implementation, and maintenance of a comprehensive…
Children with complex chronic medical conditions benefit from early introduction of palliative care services and advanced care planning for symptom management and to support quality of life and medical decision-making. This study…
The disclosure of a diagnosis during pregnancy of a fetal malformation, which is incompatible with life, normally comes completely unexpectedly to the parents. Although a body of international literature has considered the topic, most of…
Describe how and when individuals with cystic
fibrosis learn about prognosis with a life-limiting
disease, specifically its progressive nature and
the median life expectancy.
Describe the emotional impact of initial communication
Primary palliative care refers to basic skills that all healthcare providers can employ to improve quality of life for patients at any stage of disease. Training in these core skills is not commonly provided to clinicians caring for…
Identify the core category for parents of a seriously ill child about the decision making process at the hospital.
Identify parents' preferences when they have to make a decision on behalf of their seriously ill child.
•Describe steps to take before starting the procedure to ensure comfort for the patient and family.
•Identify likely symptoms during and after the extubation and their management.
•Describe ways to support family and staff during and after…
The use of compassionate extubation (CE) to alleviate suffering by terminating mechanical ventilation and withdrawing the endotracheal tube requires professional adherence and efficiency. The Hospice Palliative Care Act, amended on…
Understand reasons a bereaved parent chooses to
return to the hospital for a memorial service.
Identify elements of a hospital memorial service
that parents identify as most beneficial.
Original Research Background. 77% of…
An order protocol for distress (OPD), including respiratory distress and acute pain crisis, has been established for pediatric palliative care patients at Sainte-Justine Hospital (SJH). After discussion with the patient/his or her family,…
In Canada and other developed countries, the majority of neonatal deaths occur in tertiary neonatal intensive care units. Most deaths occur following the withdrawal of life-sustaining treatments.
To explore neonatal death events and…
Objectives * Compare purposeful and non-purposeful continuing bonds between one and two years post-death. * Compare comforting and discomforting effects of continuing bonds between one and two years post-death. Original Research Background.…
Lethal fetal diagnoses are made in 2% of all pregnancies. The pregnancy experience is certainly changed for the parents who choose to continue the pregnancy with a known fetal diagnosis but little is known about how the psychological…
Define a collaborative model between pediatric palliative care teams and child psychiatry.
Demonstrate knowledge of psychotropic medication use in children with advanced illness.
Recognize when the involvement of child psychiatry is…
Describe the role of pediatric palliative care
consultation in the neonatal intensive care unit
Describe parent experiences with a pediatric palliative
care consultation in the NICU and implications
for practice and…