Browse Items · Pediatric Palliative Care Library

Palliative sedation therapy in the last weeks of life: a literature review and recommendations for standards

PURPOSE: Palliative sedation therapy (PST) is a controversial issue. There is a need for internationally accepted definitions and standards. METHODS: A systematic review of the literature was performed by an international panel of 29 palliative care…

Tags: 2007, Attitude To Death/ethnology, Backlog, de Graeff A, Dean M, Fluid Therapy, Humans, Hypnotics and Sedatives/administration & dosage/classification/therapeutic use, Informed Consent, International Cooperation, Journal Article, Journal of Palliative Medicine, Neoplasms, Pain/drug Therapy, Palliative Care/standards, Parenteral Nutrition, Practice Guidelines, Risk Assessment, Terminal Care/standards

The experiences of Chinese family members of terminally ill patients - a qualitative study

AIM: To describe and understand the experiences of Chinese family members of terminally ill patients during the end of life process in a palliative care unit. BACKGROUND: Palliative care aims to provide care to dying patients and their family…

Enabling the transition to hospice through effective palliative care

The end of life has changed dramatically in recent years as life expectancies have increased, chronic disease rates have risen, and families, health care systems, and society have changed. As technology has advanced, death too often has become viewed…

Constructions of Mexican American family grief after the death of a child: an exploratory study

Using a collective case study ethnographic approach, nine individuals comprising three Mexican American families were interviewed about their family bereavement experiences after the death of a child. All families were Catholic, had surviving…

Tags: 2006, Attitude To Death/ethnology, Backlog, Bereavement, Case-Control Studies, Child, Cultural Diversity & Ethnic Minority Psychology, Doran G, Downing HN, Dreams, Family Relations, Family/psychology, Humans, Journal Article, Mexican Americans/psychology, Religion, SSHRC CURA

Family bereavement and cultural diversity: a social developmental perspective

This article offers an integrative, interdisciplinary model of bereavement as a family developmental process that unfolds in cultural context. A critique of cultural assumptions highlights the culture-bound nature of prevailing North American…

Tags: 1996, Acculturation, Adaptation, Attitude To Death/ethnology, Backlog, Bereavement, Cultural Diversity, Family Process, Family Therapy, Family/ethnology/psychology, Humans, Journal Article, Models, North America, Psychological, Shapiro ER, SSHRC CURA

Perceptions Of The Pediatric Hospice Experience Among English- And Spanish-speaking Families

OBJECTIVE:
Many children who die are eligible for hospice enrollment but little is known about parental perceptions of the hospice experience, the benefits, and disappointments. The objective of this study was to explore parental perspectives of the…

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