Conducting End-of-Life Studies in Pediatric Oncology


Conducting End-of-Life Studies in Pediatric Oncology


Hinds PS; Burghen E; Pritchard M


Western Journal Of Nursing Research




Humans; Terminal Care; Pediatrics; Pediatric Nursing; Longitudinal Studies; Reproducibility of Results; Oncology at EOL; Pediatric oncology; Clinical Nursing Research; dying children and adolescents; end-of-life research; Oncologic Nursing/ethics


Improving our ability to prevent or diminish suffering in dying children and adolescents and their families is dependent on the completion of high-quality pediatric end-of-life studies. The purpose of this article is to provide useful evidence-based strategies that have been used to implement and complete clinically useful pediatric end-of-life studies in oncology. The article describes specific peer-review and methodological challenges and links those to evidence-based solutions. The challenges and solutions described in this article are from eight end-of-life studies involving pediatric oncology patients. It is hoped that the solutions described here will benefit others in their efforts to implement pediatric end-of-life studies so that clinically useful findings will result and will improve the care of dying children and adolescents.


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Journal Article


Hinds PS; Burghen E; Pritchard M, “Conducting End-of-Life Studies in Pediatric Oncology,” Pediatric Palliative Care Library, accessed February 29, 2024,