Enabling flourishing: novel approaches in palliative medicine for children with advanced kidney disease
Title
Enabling flourishing: novel approaches in palliative medicine for children with advanced kidney disease
Creator
House TR; Wightman A
Identifier
Publisher
Current Opinion in Nephrology & Hypertension
Date
2023
Subject
Child; Diagnosis; Human; Kidney Diseases; Nephrology; Palliative Care; Therapy Kidney Diseases; Methods
Description
Purpose Of Review: Paediatric kidney disease results in considerable burden on children and their families. Paediatric palliative care is a holistic, family-centred care approach intended to enable flourishing and address the many impediments to life participation which advanced kidney disease can impose. To date, palliative care resources have been underutilized in paediatric nephrology. This review will highlight recent literature targeting the engagement and life participation of children with advanced kidney disease through implementation of novel palliative care approaches and propose directions for future research.Recent Findings: Children with advanced kidney disease and their families highly value incorporation of their perspectives, particularly on life participation, within care plan development; but what it means to participate in life can be variable, and clinicians need improved tools to ascertain and incorporate these perspectives. Novel palliative care interventions developed for application in comparable disease states offer potential opportunities for paediatric nephrologists to support this goal.Summary: Children with advanced kidney disease and their families will benefit from incorporation of their perspectives and values, facilitated by palliative interventions.
Rights
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Citation List Month
January List 2023
URL Address
Collection
Citation
House TR; Wightman A, “Enabling flourishing: novel approaches in palliative medicine for children with advanced kidney disease,” Pediatric Palliative Care Library, accessed April 26, 2024, https://pedpalascnetlibrary.omeka.net/items/show/18586.