Browse Items (501 total)

Tags: 2014, 2023 SE1 - Parent Perspectives, Adolescent, Adult Child, Child, Conners FA, Family, Female, Hamilton JC, Humans, Infant, Intellectual and Developmental Disabilities, Intellectual Disability, Male, Middle Aged, Patient Selection, Phillips BA, Preschool, Registries, Research, Rhodes JD, Surveys And Questionnaires, Young Adult

Tags: 2020, 2022 Special Edition 2 - Parent Perspectives, Adaptation, Adolescent, Adult, Annals of Agricultural and Environmental Medicine, Attitude To Health, Bartoszuk-Popko M, Brodowicz-Król M, Child, Children, Chronic Disease, difficult situation, Female, Guz E, Humans, Kulbaka E, Lutomski P, Male, Middle Aged, paediatric patient, Parental Attitudes, Parents, Parents/psychology, Poland, Preschool, Psychological

Tags: 2021, Adolescent, Almack K, Child, Decision-making, Family, February 2022 List, Johnston B, Longitudinal Studies, Manning JC, Palliative Care, Palliative Medicine, Pollock K, Popejoy E, Preschool, Qualitative Research

Tags: 2020, Adolescent, Anthropometry, Barbosa E, Body Mass Index, Brazil/epidemiology, Bresolin N L, Child, Child Nutrition Disorders/*mortality, Critical Illness/*mortality, Female, Hauschild D B, Humans, Infant, Intensive Care Units, Journal of the Academy of Nutrition and Dietetics, Kawai K, Length Of Stay, Length of Stay/*statistics & numerical data, Male, malnutrition, Mehta N M, Moreno Y M F, Mortality, November 2020 List, Nutritional Status, Patient Admission/*statistics & numerical data, Patient Discharge/statistics & Numerical Data, Pediatric Intensive Care Unit, Pediatric/*statistics & numerical data, Predictive Value of Tests, Preschool, Proportional Hazards Models, Prospective Studies, Regression Analysis, Time Factors, Ventura J C

Tags: 2020, Adaptation, Adolescent, Adult, Annals of Agricultural and Environmental Medicine, Attitude To Health, Bartoszuk-Popko M, Brodowicz-Król M, Child, Children, Chronic Disease, Chronic Disease/*psychology, difficult situation, Disabled Persons/psychology, Female, Guz E, Humans, Kulbaka E, Lutomski P, Male, Middle Aged, November 2020 List, paediatric patient, Parental Attitudes, Parents, Parents/*psychology, Poland, Preschool, Psychological

Tags: 2020, Adolescent, Ariceta G, Aufricht C, Child, Chronic/complications/*therapy, Coronavirus Infections/complications/prevention & control/*therapy, COVID-19, Delphi, Delphi Technique, dialysis, Edefonti A, Eibensteiner F, Europe, Evidence-based Medicine, Humans, Infant, Infection Control, Jankauskiene A, Klaus G, Paglialonga F, Pandemics, Pandemics/prevention & control, Pediatric Nephrology, Pneumonia, Preschool, Ranchin B, Renal Dialysis, Renal Insufficiency, Ritschl V, Schmitt C P, September 2020 List, Shroff R, Stamm T, Stefanidis C J, Transplantation, Verrina E, Viral/complications/prevention & control/*therapy, Vondrak K, Walle J V, Zurowska A

Tags: 2019, Adolescent, Adult, Advance Care Planning/*standards, Aldridge J, Archives of Disease in Childhood - Education and Practice, Attitude To Death, Attitude To Health, August 2020 List, Child, Clayton M, Family/*psychology, Female, Humans, Male, Middle Aged, Paediatric Practice, Palliative Care, Palliative Care/*psychology/*standards, Pediatrics/*standards, Practice Guidelines As Topic, Preschool, Spirituality, United Kingdom

Tags: 2019, Adolescent, Artificial/adverse effects/*statistics & numerical data, Berg R A, Biomedical Technology, Carcillo J, Case-Control Studies, Child, Critical Care/*methods, Critical Illness/therapy, Dalton H, Dean J M, Health Care/*statistics & numerical data, Heneghan J A, Humans, Infant, Intensive Care Units, July 2020 List, Meert K L, Newborn, Newth C J L, outcome assessment, Parenteral Nutrition, Pediatric Critical Care Medicine, Pediatric/statistics & Numerical Data, Pollack M M, Preschool, Prospective Studies, Reeder R W, Respiration, Severity Of Illness Index, Tamburro R, Total/adverse effects/*statistics & numerical data

Tags: 2019, Adolescent, April 2020 List, Attitude Of Health Personnel, Child, Clinical Decision-Making/mt [Methods], Health Care Surveys, Humans, Infant, Intensive Care Units, Japan, Kurosawa H, Niitsu T, Palliative Care/mt [methods], Palliative Care/sn [Statistics & Numerical Data], Palliative Care/st [standards], Pediatric/sn [Statistics & Numerical Data], Pediatric/st [Standards], Pediatrics International, Physicians'/sn [Statistics & Numerical Data], Physicians'/st [Standards], Practice Patterns, Practice Patterns Physicians'/*ethics, Preschool, Seino Y, Shiima Y, Terminal Care/mt [methods], Terminal Care/sn [statistics & Numerical Data], Terminal Care/st [standards]

Tags: 2020, American Journal Of Occupational Therapy, April 2020 List, Child, Darlington A S, Grisbrooke J, Humans, Interpersonal Relations, Jasem Z A, Lambrick D, parent-psychology, Parents, Preschool, Psychology, Randall D C

Tags: 2018, Acta Oncologica, Adolescent, Child, Female, Finland/epidemiology, Humans, Income, Infant, Madanat-Harjuoja L, Male, Malila N, Mortality, Neoplasms/*mortality/therapy, Oncology 2019 List, Parents, Pitkaniemi J, Preschool, Rantanen M, Registries, Socioeconomic Factors, Taskinen M, Tolkkinen A, Young Adult

Tags: 2018, Acheson E, Adaptation, Adolescent, burden of treatment, Central Nervous System Neoplasms/therapy, Child, Death, Elger B S, European Journal of Cancer Care (Engl), Family, Female, Hengartner H, Hospitalization, Humans, Infant, inpatient stays, Kuhne T, Length Of Stay, leukaemia, Leukemia/therapy, Male, Medical Records, Neoplasms/*therapy, Newborn, Oncology 2019 List, Paediatric oncology, Place Of Death, Preschool, Psychological, Rakic M, Retrospective Studies, Rischewski J, Rost M, Switzerland, Terminal Care, Wangmo T

Tags: 2019, Adaptation, Adolescent, Anthropology, Beecham E, Bluebond-Langner M, Brain Neoplasms/*psychology, Cancer, Child, Children, Coping, Cultural, enduring, Experiences, Female, Hargrave D, Health, Humans, Illness and Disease, Infant, Langner R, lived experience, Male, meta-ethnogrpahy, Metasynthesis, Method: interpretive methods, Oncology 2019 List, Parents/*psychology, Preschool, Psychological, psychosocial aspects, Qualitative Health Research, Qualitative Research, qualitative. Geographic: Taiwan, Quality Of Life, Quality of Life/*psychology, Resilience, Resistance, Survivorship, Young Adult

Tags: 2019, Australia, best interests, Cameron J, Child, Decision Making, England, Futility, Humans, January 2020 List, Journal of law and medicine, life-sustaining treatment, New Zealand, parens patriae, Preschool, Savulescu J, Wales, Withdrawing Treatment, Withholding Treatment

Tags: 2019, Adolescence, Adolescent, Age Factors, Ambulatory Care -- In Adolescence, Ambulatory Care -- In Infancy and Childhood, Child, Chronic Disease, Confidence Intervals, Cross Sectional Studies, Data Analysis Software, Descriptive Statistics, Female, Health Services Insights, Hospitalized, Human, Infant, January 2020 List, Kum H C, Logistic Regression, Male, Models, Newborn, Nwaiwu O, Odds Ratio, Ohsfeldt R, Patient Discharge, Phillips C D, Post Hoc Analysis, Preschool, Probability, Race Factors, ROC Curve, Sex Factors, statistical, Texas, Truong C

Tags: 2012, Adolescent, Adult, Age, Aggression, aggressive behavior, anxiety, Behavior, behavioral problems, characteristics, Child, Congenital Anomalies, Depression, Factors, Female, Humans, Infant, Kosaki K, Kosaki R, Kurosawa K, Male, Mizuno S, Okamoto N, Preschool, Rubinstein-Taybi Syndrome, Rubinstein-Taybi Syndrome/di [Diagnosis], Sato Y, Surveys And Questionnaires, Takahashi T, Trajectory, Yagihashi T, Young Adult

Tags: 1995, achondroplasia, Achondroplasia/co [Complications], adenotonsillectomy, Adolescent, Adult Child, American Journal Of Medical Genetics, breathing difficulties, Child, CPAP, Everett F, Evoked Potentials, Fagan E R, Female, Humans, Infant, losing weight, Male, Middle Aged, physical interventions, Preschool, Respiration, respiratory disturbance index, Sillence D O, Sleep Apnea Syndromes/et [Etiology], Sleep Apnea Syndromes/th [Therapy], Sullivan C E, surgical interventions, Tonsillectomy, Waters K A, Weight Loss

Tags: 2010, Adolescent, ataxia telangiectasia, ataxia telangiectasia/di [Diagnosis], Ataxia Telangiectasia/pp [Physiopathology], Berkun Y, breathing difficulties, Case-Control Studies, characteristics, Child, Efrati O, Feasibility Studies, Female, Humans, Jacobson J M, Levi Y, lung deterioration, Male, Pediatric Pulmonology, Preschool, Reproducibility of Results, Spirometry, Trajectory, Vilozni D, Weiss B, Young Adult

Tags: 0 (Antiparkinson Agents), 2013, Adolescent, amantadine sulfate, Amantadine/tu [Therapeutic Use], Antiparkinson Agents/Antiparkinson [Therapeutic Use], ataxia telangiectasia, Ataxia Telangiectasia/co [Complications], Ben-Zeev B, BF4C9Z1J53 (Amantadine), Child, Disability, Evaluation, Hassin-Baer S, Humans, Journal of Child Neurology, Lerman S F, Levi Y B, Movement Disorders/dt [Drug Therapy], Movement Disorders/et [Etiology], Neurologic Examination, Nissenkorn A, pharmacologic intervention, Preschool, Prospective Studies, Severity Of Illness Index, tone and motor problems, Tzadok M

Tags: 2005, Adolescent Child, Arron K, behavioral problems, characteristics, Child, De Lange syndrome, De Lange Syndrome/ep [Epidemiology], Environment, Female, Hall S, Humans, Journal Of Intellectual Disability Research, Male, Moss J, Oliver C, Petty J, Preschool, Self-Injurious behavior, Self-Injurious Behavior/di [Diagnosis], Self-Injurious Behavior/ep [Epidemiology], Self-Injurious Behavior/px [Psychology], Severity Of Illness Index, Sloneem J, Trajectory

Tags: 2014, Actigraphy, Adolescent, Bigger B, Canal M, Case-Control Studies, characteristics, Child, Cross E, Female, Grant S, Hare D J, Humans, JL5DK93RCL (Melatonin), Jones S, Langford-Smith K, Lomax M, Mahon L V, Male, Melatonin/me [Metabolism], MPSIIIA, MPSIIIB, Mucopolysaccharidosis III/pp [Physiopathology], PLoS One, Preschool, sleep disturbance/disorders, Sleep/ph [Physiology], Time Factors, Trajectory, Wraith J E

Tags: 2006, Adolescent, Adult, Age of Onset, Carrier Proteins/ge [Genetics], cerebellar ataxia/di [Diagnosis], Cerebellar Ataxia/ep [Epidemiology], Cerebellar Diseases/di [Diagnosis], Cerebellar Diseases/ep [Epidemiology], Child, Coll M J, Comorbidity, Disability, Dysarthria/di [Diagnosis], Dysarthria/ep [Epidemiology], Evaluation, feeding difficulties, Female, Fernandez-Valero E M, Genetic Predisposition to Disease/ge [Genetics], Infant, Iturriaga C, Journal Of The Neurological Sciences, NPC, Pineda M, Preschool, scale development, sleep disturbance, tone and motor problems, tool development, Vanier M T

Tags: 1997, Adolescent Child, Atherton D, Child, Clayden G, Constipation, Constipation/co [Complications], Constipation/th [Therapy], epidermolysis bullosa, Epidermolysis Bullosa/co [Complications], Female, fiber-containing liquid formula Enrich, Food, Formulated, Haynes L, Humans, Male, Pediatric Dermatology, pharmacologic intervention, Preschool

Tags: (health care), 2011, atrophies of childhood/diagnosis, Child, Child Development/physiology, childhood/physiopathology, CHOP INTEND, Chung W K, Darras B T, De Vivo D C, Deng L Y, Disability Evaluation, Disease Severity, Dunaway S, Female, Finkel R S, Flickinger J, Glanzman A M, Humans, Infant, Kaufmann P, Male, Martens W B, McDermott M P, Montes J, Motor Skills/physiology, Muscle Study Group, natural-history, O'Hagen J, outcome assessment, Pediatric Neuromuscular Clinical Research, Pediatric Physical Therapy, Pediatrics, physical therapy/methods, Preschool, Psychometrics/methods, Quigley J, Rehabilitation, Riley S, scale development, Severity Of Illness Index, Sma, SMA1, smn2 copy number, spinal muscular, spinal muscular atrophies of, spinal muscular-atrophy, Sproule D, Tawil R, tone and motor problems, tool development, Validity, Yang M

Tags: 2005, Adolescent, Adult, Age of Onset, Archives of Disease in Childhood, Behavior Therapy, Benzodiazepines, characteristics, Child, Child Preschool, Delatycki M B, Fraser J, Gason A A, Humans, Incidence, Infant, Infant Newborn, melatonin, Melatonin/therapeutic use, MPS III, Mucopolysaccharidosis III/psychology, Preschool, Q3 Scoping Review Results, Questionnaires, Sleep Disorders/epidemiology/etiology/therapy, sleep disturbance/disorders, Trajectory, Treatment Outcome, Wraith J E

Tags: 2006, 24GP945V5T (Barium), Adolescent, Azizkhan R G, barium, Catheterization, Child, Cohen A P, Dystrophica/co [Complications], epidermolysis bullosa, Esophageal Stenosis/et [Etiology], Esophageal Stenosis/th [Therapy], Farrell M K, feeding difficulties, Female, fluoroscopically guided balloon dilatation, Hammelman B D, Humans, Johnson N D, Journal Of Pediatric Surgery, Lucky A W, Male, Preschool, Racadio J M, Retrospective Studies, Stehr W, surgical intervention, Treatment Outcome, Wittkugel E

Tags: 1978, Adolescent, Alpert M, Anderson L, aversive stimulation electric shock, Behavior Therapy/mt [Methods], behavioral problems, Child, Dancis J, Humans, Journal Of Consulting And Clinical Psychology, Lesch-Nyhan syndrome, Lesch-Nyhan Syndrome/px [Psychology], Lesch-Nyhan Syndrome/th [Therapy], Male Punishment, positive reinforcement, Preschool, psychological intervention, Self Mutilation/th [Therapy], self-injury, self-mutilation, time-out

Tags: 2011, Adolescent, Adult, Age, Air E L, Brain/ra [Radiography], Child, deep brain stimulation, Deep Brain Stimulation/ae [Adverse Effects], Deep Brain Stimulation/mt [Methods], Dystonia/pp [Physiopathology], Dystonia/th [Therapy], Factors Brain/pa [Pathology], Female, Follow-up Studies, Glutaric acidemia type I, Humans, Journal of Neurosurgery - Pediatrics, Lesch-Nyhan syndrome, Magnetic Resonance Imaging, Male, Movement, Ostrem J L, Preschool, Retrospective Studies, Sanger T D, secondary dystonia, Starr P A, Tomography, tone and motor problems, X-Ray Computed Treatment Outcome

Tags: 2018, American Journal of Hospice & Palliative Medicine, Child, Cohort Studies, Congenital Abnormalities/mo [Mortality], Critical Illness/mo [Mortality], Female, Humans, Hurst A, Male, Nageswaran S, North Carolina, November 2018 List, Palliative Care/sn [Statistics & Numerical Data], Preschool, Prognosis, Radulovic A, Retrospective Studies, Survivors/sn [Statistics & Numerical Data], Survivorship

Tags: 2018, Adolescent, American Journal of Hospice & Palliative Medicine, Artificial, Brain Death di [Diagnosis], Child, Decision Making, Female, Humans, Inata Y, Intensive Care Units, Isaka K, Kinouchi K, Length Of Stay, Life Support Care, Male, November 2018 List, Pediatric sn [Statistics & Numerical Data], Preschool, Respiration, Resuscitation Orders, Retrospective Studies, Suzuki F, Tachibana K, Takeuchi M, Terminal Care px [Psychology], Terminal Care sn [Statistics & Numerical Data], Time Factors, Withholding Treatment

Tags: 2018, Acute Drug Therapy, Administration, Adolescence, BMC Palliative Care, Child, Descriptive Statistics, Fentanyl Administration and Dosage, Fentanyl Adverse Effects, Fentanyl Therapeutic Use, Human, Infant, Intranasal, October 2018 List, Palliative Care, Pediatric Care, Pieper L, Preschool, Record Review, Respiratory Distress Syndrome, September 2018 List, Treatment Outcomes, Wager J, Zernikow B

Tags: 2018, Adolescent, Bmj Open, Child, Coad J, Dale J, Family/px [psychology], Female, Humans, Longitudinal Studies, Male, Mitchell S, October 2018 List, Palliative Care/es [Ethics], Palliative Care/mt [methods], Patient Preference/px [Psychology], Preschool, Qualitative Research, Quality of Health Care/og [Organization & Administration], Research Design, September 2018 List, Slowther AM, United Kingdom

Tags: 2016, Adolescent, California, Cardiovascular Diseases/mo [Mortality], Child, Congenital Abnormalities/mo [Mortality], Delivery of Health Care, Emergency Service, Female, Health Services Accessibility, Hispanic Americans, Hispanic Health Care International, Hospice Care/ut [Utilization], Hospices/ut [Utilization], Hospital/ut [Utilization], Hospitalization, Humans, Infant, Lindley LC, Male, Medicaid, Neoplasms/mo [mortality], October 2018 List, Palliative Care/ut [Utilization], Policy, Preschool, September 2018 List, Terminal Care/mt [methods], Trujillo LV, United States, Young Adult

Tags: 2018, Adolescence, Advance Care Planning, Attitude Of Health Personnel, BMC Palliative Care, Child, Community -- England, Conversation, Death, Documentation, England, Family Attitudes, Hospices -- England, Hospital, Hospitals, Human, Infant, Jack BA, Knighting K, Medical Staff, Mitchell TK, Multidisciplinary Care Team, Newborn, O'Brien MR, Palliative Care, Pediatric Care -- Psychosocial Factors, Preschool, Qualitative Studies, Semi-Structured Interview, September 2018 List, Silverio SA, Terminal Care, Thematic Analysis, Time Factors

Tags: 2017, Adolescent, Adult, Child, Cost Of Illness, Cross-sectional Studies, Cunningham ZZ, Damrauer SM, Databases, Factual, Falk MJ, Female, Ganetzky RD, Goldstein A, Health Services Research, Hospital Mortality, Hospitalization/ec [Economics], Hospitalization/sn [Statistics & Numerical Data], Humans, Infant, Karlsson M, Kilbaugh TJ, Longitudinal Studies, Male, McCormack SE, Middle Aged, Mitochondrial Diseases/ec [Economics], Mitochondrial Diseases/ep [Epidemiology], Mitochondrial Diseases/mo [Mortality], Molecular Genetics and Metabolism, Preschool, September 2018 List, United States/ep [Epidemiology], Xiao Rui, Young Adult

Tags: 2017, Academic Pediatrics, Attitude Of Health Personnel, Barnert ES, Chan V, Child, Child Health Services/organization & administration, Chung P J, Coller R J, Disabled Children/psychology, Female, Health Personnel/psychology, Humans, Interviews As Topic, July 2018 List, Klitzner TS, Male, Needs Assessment, Nelson BB, Padilla C, Patient-centered Care, Population Health, Preschool, Szilagyi M, Thompson LR, Treatment Outcome

Tags: 2017, Child, Clinical Decision-Making/ethics, Critical Illness/mortality/therapy, de Boer JC, Female, Follow-up Studies, Gennissen L, Humans, Infant, Intensive Care Units, Journal Of Perinatology, July 2018 List, Male, Naghib S, Neonatal, Netherlands, Newborn, Palliative Care, Parents/psychology, Preschool, Prospective Studies, Reiss I, Sol J, Survival Analysis, Tibboel D, van Dijk M, Williams M, Withholding Treatment/ethics/standards

Tags: 2013, Attitude to Death/eh Ethnology, Child, Cultural Diversity, Decision Making, Humans, Infant, July 2018 List, Latella L, Ludi E, McConnell DG, Newborn, Palliative & Supportive Care, Palliative Care, Pediatrics, Preschool, Religion and Medicine, Spirituality, Terminal Care, Wiener L

Tags: 2017, American Journal of Hospice & Palliative Medicine, April 2018 List, Audiorecording, Child, Ciriello AG, Communication, Content Analysis, Critical Care, Descriptive Statistics, Dizon Zoelle B, Female, field notes, Fisher's Exact Test, Funding Source, Human, In Infancy and Childhood, Inpatients, Intensive Care Units, Kappa Statistic, Language, Male, Mann-Whitney U Test, October Tessie W, Palliative Care, Patient-Family Conferences, Pediatric, Physicians, Preschool, psychosocial, Record Review, Retrospective Design, Support

Tags: 2017, Adolescent, Adult, April 2018 List, Attitude To Death, Attitude To Health, Carroll KW, Child, Child Health/statistics & numerical data, Cohort Studies, Critical Illness/epidemiology/ psychology, Decision-making, Female, Fenderson RM, Feudtner C, Health Surveys, Hill DL, Hope, hopes, Humans, Infant, Journal of Pain and Symptom Management, Longitudinal Studies, Male, Middle Aged, Nathanson PG, Only Child, Parent-child Relations, parental concordance, Parents/ Psychology, Pediatrics, Philadelphia/epidemiology, Preschool, Prevalence, problems, Quality of Life/ psychology, Serious Illness, Terminal Care/ psychology, Young Adult